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- Title
From genetic privacy to open consent.
- Authors
Lunshof, Jeantine E; Chadwick, Ruth; Vorhaus, Daniel B; Church, George M
- Abstract
Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example.
- Publication
Nature reviews. Genetics, 2008, Vol 9, Issue 5, p406
- ISSN
1471-0064
- Publication type
Journal Article
- DOI
10.1038/nrg2360