Works matching DE "PATIENTS' associations"

Results: 105

Dysfunctional fear of progression in DM patients and association with HbA1c level.

Published in:

Klinik Psikofarmakoloji Bulteni, 2015, v. 25, p. S23

By:

Demir, Esra Yancar;
Kaya, Yasemin;
Cosar, Behcet;
Ozcan, Tuba;
Enginyurt, Ozgur

Publication type:

Article

The husband as an informal caregiver of a chronically ill wife. Analysis of men's representations in features on breast cancer in the women's magazines.

Published in:

Family Upbringing / Wychowanie w Rodzinie, 2018, n. 3, p. 273, doi. 10.61905/wwr/170523

By:

ZIERKIEWICZ, Edyta

Publication type:

Article

A systematic review and secondary analysis of two studies identifying demographic and medical characteristics determining patient-centeredness in endometriosis care as experienced by patients.

Published in:

Human Reproduction Open, 2020, v. 2020, n. 3, p. 1, doi. 10.1093/hropen/hoaa041

By:

Schreurs, A M F;
Dancet, E A F;
Apers, S;
Wijsard, M van Hoefen;
Kuchenbecker, W K H;
Ven, P M van de;
Lambalk, C B;
Nelen, W L D M;
Houwen, L E E van der;
Mijatovic, V

Publication type:

Article

Peer recommendations on how to improve clinical research, and Conference wrap-up.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 67, doi. 10.3109/21678421.2013.778605

By:

CHAD, DAVID A.;
ROWLAND, LEWIS P.;
ARMON, CARMEL;
BEDLACK, RICHARD;
DURHAM, HEATHER;
FACTOR-LITVAK, PAM;
HEIMAN-PATTERSON, TERRY;
HEITZMAN, DARAGH;
LACOMIS, DAVID;
LUDOLPH, ALBERT;
MARAGAKIS, NICHOLAS;
MILLER, ROBERT;
PATTEE, GARY;
SHOESMITH, CHRISTEN;
SORENSON, ERIC;
TURNER, MARTIN R.

Publication type:

Article

Funding agencies and disease organizations: Resources and recommendations to facilitate ALS clinical research.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 62, doi. 10.3109/21678421.2013.778588

By:

CHAD, DAVID A.;
BIDICHANDANI, SANJAY;
BRUIJN, LUCIE;
CAPRA, J. DONALD;
DICKIE, BRIAN;
FERGUSON, JOHN;
FIGLEWICZ, DENISE;
FORSYTHE, MELISSA;
KAUFMANN, PETRA;
KIRSHNER, ANNETTE;
MONTI, WILLIAM

Publication type:

Article

The Role of Patients and Patient Advocacy Groups in Educating Patients on the Importance of Legitimate Scientific Research.

Published in:

American Journal of Bioethics, 2010, v. 10, n. 5, p. 49, doi. 10.1080/15265161003769179

By:

Foster, Susan

Publication type:

Article

Disease-specific clinical trials networks: the example of cystic fibrosis.

Published in:

2016

By:

Boeck, Kris;
Bulteel, Veerle;
Fajac, Isabelle;
De Boeck, Kris

Publication type:

journal article

Is having a job a protective factor? Employment status and state of medical care as subjectively perceived by adults with CHD in Germany.

Published in:

2017

By:

Helm, Paul C.;
Sticker, Elisabeth J.;
Keuchen, Roland;
Koerten, Marc-André;
Diller, Gerhard-Paul;
Tutarel, Oktay;
Bauer, Ulrike M. M.

Publication type:

journal article

A guide for better understanding between patients and doctors.

Published in:

2009

By:

Bisdorff, A.;
Baker, M.;
Newton, A.

Publication type:

Letter

Guide of good practice for cooperation between doctors and patient associations for chronic neurological disorders in Europe.

Published in:

2009

By:

Bisdorff, A.;
Baker, M.

Publication type:

Letter

Chronic obstructive pulmonary disease (COPD) in Spain and the different aspects of its social impact: a multidisciplinary opinion document.

Published in:

Revista Española de Quimioterapia, 2020, v. 33, n. 1, p. 49, doi. 10.37201/req/2064.2019

By:

Bouza, Emilio;
Alvar, Agustí;
Almagro, Pere;
Alonso, Tamara;
Ancochea, Julio;
Barbé, Ferrán;
Corbella, Josep;
Gracia, Diego;
Mascarós, Enrique;
Melis, Joan;
Miravitlles, Marc;
Pastor, Mariano;
Pérez, Patricia;
Rudilla, David;
Torres, Antoni;
Bautista Soriano, Joan;
Vallano, Antoni;
Vargas, Franciso;
Palomo, Esteban

Publication type:

Article

Supporting the patient and family with Fabry disease.

Published in:

Acta Paediatrica, 2007, p. 88, doi. 10.1111/j.1651-2227.2007.00218.x

By:

Romero, Miguel-Ángel Barba;
Milligan, Allan;
Briva, Jordi;
Basalla, Ditmar

Publication type:

Article

Supporting the patient and family with mucopolysaccharidosis disorders: the role of patient organizations.

Published in:

Acta Paediatrica, 2007, p. 87, doi. 10.1111/j.1651-2227.2007.00217.x

By:

Lavery, Christine;
Ramaswami, Uma

Publication type:

Article

The British Polio Fellowship: its contribution to the development of inclusivity for disabled people.

Published in:

Dynamis, 2012, v. 32, n. 2, p. 361, doi. 10.4321/S0211-95362012000200005

By:

North, Barry

Publication type:

Article

The role of patient organizations in the rare disease ecosystem in India: an interview based study.

Published in:

2019

By:

Choudhury, Mohua Chakraborty;
Saberwal, Gayatri

Publication type:

journal article

The Italian neuromuscular registry: a coordinated platform where patient organizations and clinicians collaborate for data collection and multiple usage.

Published in:

2018

By:

Ambrosini, Anna;
Calabrese, Daniela;
Avato, Francesco Maria;
Catania, Felice;
Cavaletti, Guido;
Pera, Maria Carmela;
Toscano, Antonio;
Vita, Giuseppe;
Monaco, Lucia;
Pareyson, Davide

Publication type:

journal article

The disease olympics.

Published in:

Nature Medicine, 2013, v. 19, n. 3, p. 257, doi. 10.1038/nm0313-257

By:

Hughes, Virginia

Publication type:

Article

Lessons from the current European Heart Rhythm Association consensus document on screening for atrial fibrillation.

Published in:

Anatolian Journal of Cardiology / Anadolu Kardiyoloji Dergisi, 2018, v. 19, n. 3, p. 222, doi. 10.14744/AnatolJCardiol.2018.37043

By:

Özcan, Emin Evren;
Görenek, Bülent

Publication type:

Article

Patient assistance programs and patient advocacy foundations: Alternatives for obtaining prescription medications when insurance fails.

Published in:

American Journal of Health-System Pharmacy, 2006, v. 63, p. S13, doi. 10.2146/ajhp060464

By:

Johnson, Philip E.

Publication type:

Article

Filophilia.

Published in:

1985

By:

Northover, J. M. A.

Publication type:

Editorial

Porphyria in Sweden.

Published in:

Physiological Research, 2006, v. 55, p. S109

By:

Thunell, Stig;
Floderus, Y.;
Henrichson, A.;
Harper, P.

Publication type:

Article

The role of patients' associations in assisted reproduction treatment.

Published in:

Reproductive BioMedicine Online (Reproductive Healthcare Limited), 2006, v. 13, n. 3, p. 447, doi. 10.1016/S1472-6483(10)61451-4

By:

Cohen, Jean

Publication type:

Article

PARTICIPATION AND HEALTHCARE: A SURVEY INVESTIGATING CURRENT AND DESIRED LEVELS OF COLLABORATION BETWEEN PATIENT ORGANIZATIONS AND HOSPITALS.

Published in:

Journal of Social Intervention: Theory & Practice, 2018, v. 27, n. 4, p. 4, doi. 10.18352/jsi.572

By:

CASTRO, EVA MARIE;
VAN REGENMORTEL, TINE;
VAN WANSEELE, CARINE;
SERMEUS, WALTER;
VANHAECHT, KRIS

Publication type:

Article

EDITORIAL.

Published in:

Journal of Social Intervention: Theory & Practice, 2018, v. 27, n. 4, p. 1, doi. 10.18352/jsi.571

By:

WITTE, TOBY;
EIJKEMANS, YKE

Publication type:

Article

Patient Organizations' Funding from Pharmaceutical Companies: Is Disclosure Clear, Complete and Accessible to the Public? An Italian Survey.

Published in:

PLoS ONE, 2012, v. 7, n. 5, p. 1, doi. 10.1371/journal.pone.0034974

By:

Colombo, Cinzia;
Mosconi, Paola;
Villani, Walter;
Garattini, Silvio

Publication type:

Article

Alpha-1 Antitrypsin Deficiency: Principles of Care.

Published in:

Acta Médica Portuguesa, 2020, v. 33, n. 6, p. 433, doi. 10.20344/amp.12950

By:

RODRIGUES, Joana F.;
MINEIRO, Alexandra;
REIS, António;
VENTURA, David G.;
FERNANDEZ-LLIMOS, Fernando;
COSTA, Filipa;
GOMES, Joana;
SILVA, José Manuel;
LOPES, Paulo;
CORDEIRO, Carlos Robalo

Publication type:

Article

The accuracy of general practitioner workforce projections.

Published in:

Human Resources for Health, 2013, v. 11, n. 1, p. 1, doi. 10.1186/1478-4491-11-31

By:

Greuningen, Malou Van;
Batenburg, Ronald S.;
Van der Velden, Lud F.J.

Publication type:

Article

Safety concerns over Crestor.

Published in:

Chemistry & Industry, 2004, n. 6, p. 5

By:

Butler, Richard

Publication type:

Article

Congress Statement on the Appraisal and Prospects for Person-Centered Medicine in Croatia.

Published in:

2014

By:

Đorđević, Veljko;
Braš, Marijana;
Brajković, Lovorka

Publication type:

Proceeding

Dementia and the Limits to Life: Anthropological Sensibilities, STS Interferences, and Possibilities for Action in Care.

Published in:

Science, Technology & Human Values, 2011, v. 36, n. 5, p. 704, doi. 10.1177/0162243910396349

By:

Moser, Ingunn

Publication type:

Article

Interpellating Patients as Users: Patient Associations and the Project-Ness of Stem Cell Research.

Published in:

Science, Technology & Human Values, 2011, v. 36, n. 4, p. 573, doi. 10.1177/0162243910368397

By:

Langstrup, Henriette

Publication type:

Article

World Endometriosis Society consensus on the classification of endometriosis.

Published in:

2017

By:

Johnson, Neil P.;
Hummelshoj, Lone;
Adamson, G. David;
Keckstein, Jörg;
Taylor, Hugh S.;
Abrao, Mauricio S.;
Bush, Deborah;
Kiesel, Ludwig;
Tamimi, Rulla;
Sharpe-Timms, Kathy L.;
Rombauts, Luk;
Giudice, Linda C.;
for the World Endometriosis Society Sao Paulo Consortium;
World Endometriosis Society Sao Paulo Consortium

Publication type:

journal article

Quality of life outcomes in women with endometriosis are highly influenced by recruitment strategies.

Published in:

Human Reproduction, 2015, v. 30, n. 6, p. 1331, doi. 10.1093/humrep/dev084

By:

De Graaff, A. A.;
Dirksen, C. D.;
Simoens, S.;
De Bie, B.;
Hummelshoj, L.;
D'Hooghe, T. M.;
Dunselman, G. A. J.

Publication type:

Article

"Small Wins" for those with Lyme Disease in Canada: Patients in an Embodied Health Movement.

Published in:

Zoonotic Diseases (2813-0227), 2024, v. 4, n. 1, p. 22, doi. 10.3390/zoonoticdis4010004

By:

Cox, Marilyn;
Levesque, Mario

Publication type:

Article

The involvement of patients' associations in research.

Published in:

International Social Science Journal, 2002, v. 54, n. 171, p. 57, doi. 10.1111/1468-2451.00359

By:

Rabeharisoa, Vololona;
Callon, Michel

Publication type:

Article

MAKING THE PATIENT-CONSUMER IN MARGARET THATCHER'S BRITAIN.

Published in:

Historical Journal, 2011, v. 54, n. 2, p. 509, doi. 10.1017/S0018246X10000646

By:

MOLD, ALEX

Publication type:

Article

Patient participation in collective healthcare decision making: the Dutch model.

Published in:

Health Expectations, 2010, v. 13, n. 1, p. 73, doi. 10.1111/j.1369-7625.2009.00567.x

By:

Van De Bovenkamp, Hester M.;
Trappenburg, Margo J.;
Grit, Kor J.

Publication type:

Article

Patient Power: The Politics of Patients’ Associations in Britain and America.

Published in:

2001

By:

Hayes, A

Publication type:

Book Review

The use of evidence by health care user organizations.

Published in:

Health Expectations, 1998, v. 1, n. 1, p. 14, doi. 10.1046/j.1369-6513.1998.00002.x

By:

Glenton, Claire;
Oxman, Andrew D.;
Oxman, Andy

Publication type:

Article

Updated Guide to Information for Families with Inherited Skin Disorders.

Published in:

Pediatric Dermatology, 2001, v. 18, n. 1, p. 77, doi. 10.1046/j.1525-1470.2001.018001077.x

By:

Sybert, Virginia P.

Publication type:

Article

The Toxic Politics of Health Care.

Published in:

2013

By:

Berwick, Donald M.

Publication type:

Opinion

Removing the Mystique.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 85

By:

Pellegrino, Jill;
Smith, Roger

Publication type:

Article

Better than a Crystal Ball.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 79

By:

Harper, Beth D.;
Andes, Robert

Publication type:

Article

Measuring Recruitment Performance.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 76

By:

Hursey, Tony

Publication type:

Article

Patient Power.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 36

By:

Smit, Cees

Publication type:

Article

Make New Friends.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 12

By:

Henderson, Lisa

Publication type:

Article

Patients' Impatience.

Published in:

Applied Clinical Trials, 2005, v. 14, n. 9, p. 28

By:

O'Donnell, Peter

Publication type:

Article

Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries.

Published in:

BMC Health Services Research, 2010, v. 10, p. 45, doi. 10.1186/1472-6963-10-45

By:

Noordman, Janneke;
van Dijk, Liset;
Friele, Roland

Publication type:

Article

Patient Advocacy and Constraint: Reflections on the Challenges of Patient Representation.

Published in:

Social Work Forum, 2006, v. 39, p. 43

By:

Martin, Donald R.;
Heyworth, Judith A.;
O'Brien, Jill L.;
Tipton, Bryan K.

Publication type:

Article

The impact of patient advocacy: the case of innovative breast cancer drug reimbursement.

Published in:

2011

By:

Nahuis, Roel;
Boon, Wouter P. C.

Publication type:

Journal Article