QUALITY OF LIFE AND CHRONIC DISEASE: CORRELATION BETWEEN REPORTS FROM CHILDREN, ADOLESCENTS, AND THEIR GUARDIANS.

Benevides dos Santos, Lívia Grazielle; Rodrigues Nunes, Michelle Darezzo; Braga, Carolina Almeida; Reis Evangelista, Thais Alves; de Araújo Pacheco, Sandra Teixeira; Castanheira Nascimento, Lucila

Objectives: To evaluate the quality of life of children and adolescents with chronic conditions and correlate the self-report of the child and adolescent with the guardian's report. Method: A quantitative, descriptive, cross-sectional study involving children and adolescents aged 8 to 18 years and their guardians was conducted. Data collection took place in a university hospital in Rio de Janeiro, gathering sociodemographic and clinical characterization data of the participants and using the PedsQL™ Pediatric Quality of Life Inventory, valid and reliable for use in Brazilian Portuguese. Data analysis included descriptive statistics and the Pearson correlation test. Results: In total, 92 participants were included in the study, comprising 46 children and adolescents, and 46 guardians. Most children and adolescents (74%) showed low quality of life scores. The guardians' scores were, on average, 5% to 10% lower than those of the children and adolescents. A weak correlation was found between children or adolescents and guardians in the social dimension of quality of life. Conclusion: It is the responsibility of healthcare professionals, including nursing staff, to identify affected dimensions of the quality of life of this clientele and plan interventions that mitigate the consequences of chronic diseases and promote quality of life.

BRAZIL; CHRONIC disease diagnosis; SELF-evaluation; CROSS-sectional method; STATISTICAL correlation; RESEARCH funding; QUESTIONNAIRES; QUANTITATIVE research; QUALITY of life; RESEARCH methodology; RESEARCH; GUARDIAN & ward; COMPARATIVE studies; ADOLESCENCE; CHILDREN

Ciencia, Cuidado e Saude, 2024, Vol 23, p1

1677-3861

Academic Journal

10.4025/ciencuidsaude.v23i0.66021