Works matching DE "PATIENTS' associations"

Results: 102

Dementia and the Limits to Life: Anthropological Sensibilities, STS Interferences, and Possibilities for Action in Care.

Published in:

Science, Technology & Human Values, 2011, v. 36, n. 5, p. 704, doi. 10.1177/0162243910396349

By:

Moser, Ingunn

Publication type:

Article

Interpellating Patients as Users: Patient Associations and the Project-Ness of Stem Cell Research.

Published in:

Science, Technology & Human Values, 2011, v. 36, n. 4, p. 573, doi. 10.1177/0162243910368397

By:

Langstrup, Henriette

Publication type:

Article

MAKING THE PATIENT-CONSUMER IN MARGARET THATCHER'S BRITAIN.

Published in:

Historical Journal, 2011, v. 54, n. 2, p. 509, doi. 10.1017/S0018246X10000646

By:

MOLD, ALEX

Publication type:

Article

Patients Association seeks review of dignity standards after damning report.

Published in:

2009

By:

Berry L

Publication type:

Journal Article

Drivers of cost and health-related quality of life in patients with systemic lupus erythematosus (SLE): a Swedish nationwide study based on patient reports.

Published in:

Lupus, 2013, v. 22, n. 8, p. 793, doi. 10.1177/0961203313491849

By:

Bexelius, C;
Wachtmeister, K;
Skare, P;
Jönsson, L;
Vollenhoven, R van

Publication type:

Article

Lessons from the current European Heart Rhythm Association consensus document on screening for atrial fibrillation.

Published in:

Anatolian Journal of Cardiology / Anadolu Kardiyoloji Dergisi, 2018, v. 19, n. 3, p. 222, doi. 10.14744/AnatolJCardiol.2018.37043

By:

Özcan, Emin Evren;
Görenek, Bülent

Publication type:

Article

Self-help, mutual aid and chronic patients' clubs in Croatia, Yugoslavia: discussion paper.

Published in:

Journal of the Royal Society of Medicine, 1991, v. 84, n. 5, p. 288

By:

Kulčar, Z.

Publication type:

Article

Filophilia.

Published in:

1985

By:

Northover, J. M. A.

Publication type:

Editorial

Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries.

Published in:

BMC Health Services Research, 2010, v. 10, p. 45, doi. 10.1186/1472-6963-10-45

By:

Noordman, Janneke;
van Dijk, Liset;
Friele, Roland

Publication type:

Article

The Role of Patients and Patient Advocacy Groups in Educating Patients on the Importance of Legitimate Scientific Research.

Published in:

American Journal of Bioethics, 2010, v. 10, n. 5, p. 49, doi. 10.1080/15265161003769179

By:

Foster, Susan

Publication type:

Article

The Internet and Medicine: Building a Community for Patients With Rare Diseases.

Published in:

JAMA: Journal of the American Medical Association, 2001, v. 285, n. 6, p. 805, doi. 10.1001/jama.285.6.805-JMS0214-2-1

By:

Patsos, Mary

Publication type:

Article

Patient's Rights Charter in IRAN.

Published in:

Acta Medica Iranica, 2014, v. 52, n. 1, p. 24

By:

Parsapoor, Alireza;
Bagheri, Alireza;
Larijani, Bagher

Publication type:

Article

Patient perspectives: how a quest for better recognition and care united four women from three different continents.

Published in:

European Heart Journal, 2022, v. 43, n. 10, p. 935, doi. 10.1093/eurheartj/ehab556

By:

Ozkan, Judith

Publication type:

Article

The British Polio Fellowship: its contribution to the development of inclusivity for disabled people.

Published in:

Dynamis, 2012, v. 32, n. 2, p. 361, doi. 10.4321/S0211-95362012000200005

By:

North, Barry

Publication type:

Article

The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks.

Published in:

Orphanet Journal of Rare Diseases, 2016, v. 11, p. 1, doi. 10.1186/s13023-016-0527-7

By:

Baldo, Chiara;
Casareto, Lorena;
Renieri, Alessandra;
Merla, Giuseppe;
Garavaglia, Barbara;
Goldwurm, Stefano;
Pegoraro, Elena;
Moggio, Maurizio;
Mora, Marina;
Politano, Luisa;
Sangiorgi, Luca;
Mazzotti, Raffaella;
Viotti, Valeria;
Meloni, Ilaria;
Pellico, Maria Teresa;
Barzaghi, Chiara;
Wang, Chiuhui Mary;
Monaco, Lucia;
Filocamo, Mirella

Publication type:

Article

Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.

Published in:

2016

By:

Hollak, Carla E. M.;
Biegstraaten, Marieke;
Baumgartner, Matthias R.;
Belmatoug, Nadia;
Bembi, Bruno;
Bosch, Annet;
Brouwers, Martijn;
Dekker, Hanka;
Dobbelaere, Dries;
Engelen, Marc;
Groenendijk, Marike C.;
Lachmann, Robin;
Langendonk, Janneke G.;
Langeveld, Mirjam;
Linthorst, Gabor;
Morava, Eva;
Bwee Tien Poll-The;
Rahman, Shamima;
Rubio-Gozalbo, M. Estela;
Spiekerkoetter, Ute

Publication type:

journal article

The involvement of patient organisations in rare disease research: a mixed methods study in Australia.

Published in:

2016

By:

Pinto, Deirdre;
Martin, Dominique;
Chenhall, Richard

Publication type:

journal article

The accuracy of general practitioner workforce projections.

Published in:

Human Resources for Health, 2013, v. 11, n. 1, p. 1, doi. 10.1186/1478-4491-11-31

By:

Greuningen, Malou Van;
Batenburg, Ronald S.;
Van der Velden, Lud F.J.

Publication type:

Article

News.

Published in:: British Journal of Community Nursing, 2010, v. 15, p. S30, doi. 10.12968/bjcn.2010.15.Sup1.46909
Publication type:: Article

The patient as a partner in promoting healthcare policies and research.

Published in:

Thalassemia Reports, 2014, v. 4, n. 3, p. 36, doi. 10.4081/thal.2014.4868

By:

Bianchi, Marco

Publication type:

Article

A patient centred approach to care planning for patients with chronic genetic diseases.

Published in:

2013

By:

Kent, Alastair

Publication type:

Essay

Consumers taking charge.

Published in:

Journal of Pharmaceutical Health Services Research, 2012, v. 3, n. 3, p. 127, doi. 10.1111/j.1759-8893.2012.00094.x

By:

Wertheimer, Albert I.

Publication type:

Article

Is having a job a protective factor? Employment status and state of medical care as subjectively perceived by adults with CHD in Germany.

Published in:

2017

By:

Helm, Paul C.;
Sticker, Elisabeth J.;
Keuchen, Roland;
Koerten, Marc-André;
Diller, Gerhard-Paul;
Tutarel, Oktay;
Bauer, Ulrike M. M.

Publication type:

journal article

As complaints of poor care rise, patients' group offers solutions.

Published in:

2010

By:

Sprinks, Jennifer

Publication type:

Journal Article

From nursing leader to patients' champion.

Published in:

2009

By:

Pearce L

Publication type:

Journal Article

The relevance of different trust models for representation in patient organizations: conceptual considerations.

Published in:

2017

By:

Gerhards, Helene;
Jongsma, Karin;
Schicktanz, Silke

Publication type:

journal article

The husband as an informal caregiver of a chronically ill wife. Analysis of men's representations in features on breast cancer in the women's magazines.

Published in:

Family Upbringing / Wychowanie w Rodzinie, 2018, n. 3, p. 273, doi. 10.61905/wwr/170523

By:

ZIERKIEWICZ, Edyta

Publication type:

Article

Peer recommendations on how to improve clinical research, and Conference wrap-up.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 67, doi. 10.3109/21678421.2013.778605

By:

CHAD, DAVID A.;
ROWLAND, LEWIS P.;
ARMON, CARMEL;
BEDLACK, RICHARD;
DURHAM, HEATHER;
FACTOR-LITVAK, PAM;
HEIMAN-PATTERSON, TERRY;
HEITZMAN, DARAGH;
LACOMIS, DAVID;
LUDOLPH, ALBERT;
MARAGAKIS, NICHOLAS;
MILLER, ROBERT;
PATTEE, GARY;
SHOESMITH, CHRISTEN;
SORENSON, ERIC;
TURNER, MARTIN R.

Publication type:

Article

Funding agencies and disease organizations: Resources and recommendations to facilitate ALS clinical research.

Published in:

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 2013, p. 62, doi. 10.3109/21678421.2013.778588

By:

CHAD, DAVID A.;
BIDICHANDANI, SANJAY;
BRUIJN, LUCIE;
CAPRA, J. DONALD;
DICKIE, BRIAN;
FERGUSON, JOHN;
FIGLEWICZ, DENISE;
FORSYTHE, MELISSA;
KAUFMANN, PETRA;
KIRSHNER, ANNETTE;
MONTI, WILLIAM

Publication type:

Article

The Toxic Politics of Health Care.

Published in:

2013

By:

Berwick, Donald M.

Publication type:

Opinion

Removing the Mystique.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 85

By:

Pellegrino, Jill;
Smith, Roger

Publication type:

Article

Better than a Crystal Ball.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 79

By:

Harper, Beth D.;
Andes, Robert

Publication type:

Article

Measuring Recruitment Performance.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 76

By:

Hursey, Tony

Publication type:

Article

Patient Power.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 36

By:

Smit, Cees

Publication type:

Article

Make New Friends.

Published in:

Applied Clinical Trials, 2009, v. 18, n. 3, p. 12

By:

Henderson, Lisa

Publication type:

Article

Patients' Impatience.

Published in:

Applied Clinical Trials, 2005, v. 14, n. 9, p. 28

By:

O'Donnell, Peter

Publication type:

Article

Reflections on the Future of Pharmaceutical Public-Private Partnerships: From Input to Impact.

Published in:

Pharmaceutical Research, 2017, v. 34, n. 10, p. 1985, doi. 10.1007/s11095-017-2192-5

By:

Vrueh, Remco;
Crommelin, Daan

Publication type:

Article

Alpha-1 Antitrypsin Deficiency: Principles of Care.

Published in:

Acta Médica Portuguesa, 2020, v. 33, n. 6, p. 433, doi. 10.20344/amp.12950

By:

RODRIGUES, Joana F.;
MINEIRO, Alexandra;
REIS, António;
VENTURA, David G.;
FERNANDEZ-LLIMOS, Fernando;
COSTA, Filipa;
GOMES, Joana;
SILVA, José Manuel;
LOPES, Paulo;
CORDEIRO, Carlos Robalo

Publication type:

Article

Supporting the patient and family with mucopolysaccharidosis disorders: the role of patient organizations.

Published in:

Acta Paediatrica, 2007, p. 87, doi. 10.1111/j.1651-2227.2007.00217.x

By:

Lavery, Christine;
Ramaswami, Uma

Publication type:

Article

Supporting the patient and family with Fabry disease.

Published in:

Acta Paediatrica, 2007, p. 88, doi. 10.1111/j.1651-2227.2007.00218.x

By:

Romero, Miguel-Ángel Barba;
Milligan, Allan;
Briva, Jordi;
Basalla, Ditmar

Publication type:

Article

Advance Directives: The Price of Life.

Published in:

Nursing Economic$, 1995, v. 13, n. 6, p. 355

By:

Ross, Patricia;
West Jr., Daniel J.

Publication type:

Article

The disease olympics.

Published in:

Nature Medicine, 2013, v. 19, n. 3, p. 257, doi. 10.1038/nm0313-257

By:

Hughes, Virginia

Publication type:

Article

News and Viewpoints.

Published in:: Chronic Illness, 2005, v. 1, n. 2, p. 97, doi. 10.1179/174239505X44808
Publication type:: Article

Medically unexplained symptoms.

Published in:

2003

By:

Goodare, Heather

Publication type:

Letter

Advertising and disclosure of funding on patient organisation websites: a cross-sectional survey.

Published in:

BMC Public Health, 2006, v. 6, n. 1, p. 201, doi. 10.1186/1471-2458-6-201

By:

Ball, Douglas E.;
Tisocki, Klara;
Herxheimer, Andrew

Publication type:

Article

Patients + research = result!

Published in:

EMBO Reports, 2002, v. 3, n. 8, p. 707, doi. 10.1093/embo-reports/kvf166

By:

Kent, Alastair

Publication type:

Article

"Small Wins" for those with Lyme Disease in Canada: Patients in an Embodied Health Movement.

Published in:

Zoonotic Diseases (2813-0227), 2024, v. 4, n. 1, p. 22, doi. 10.3390/zoonoticdis4010004

By:

Cox, Marilyn;
Levesque, Mario

Publication type:

Article

The role of patients' associations in assisted reproduction treatment.

Published in:

Reproductive BioMedicine Online (Reproductive Healthcare Limited), 2006, v. 13, n. 3, p. 447, doi. 10.1016/S1472-6483(10)61451-4

By:

Cohen, Jean

Publication type:

Article

Assessing Patient Organization Participation in Health Policy: A Comparative Study in France and Italy.

Published in:

International Journal of Health Policy & Management, 2018, v. 7, n. 1, p. 48, doi. 10.15171/ijhpm.2017.44

By:

Souliotis, Kyriakos;
Agapidaki, Eirini;
Peppou, Lily Evangelia;
Tzavara, Chara;
Varvaras, Dimitrios;
Buonomo, Oreste Claudio;
Debiais, Dominique;
Hasurdjiev, Stanimir;
Sarkozy, Francois

Publication type:

Article

Patient organizations and prevention in the Netherlands.

Published in:

2007

By:

Van Bennekom-Stompedissel, Iris

Publication type:

Editorial