Works matching DE "MEDICAL registries"

Results: 2321

The Quebec Parkinson Network: A Researcher-Patient Matching Platform and Multimodal Biorepository.

Published in:

Journal of Parkinson's Disease, 2020, v. 10, n. 1, p. 301, doi. 10.3233/JPD-191775

By:

Gan-Or, Ziv;
Rao, Trisha;
Leveille, Etienne;
Degroot, Clotilde;
Chouinard, Sylvain;
Cicchetti, Francesca;
Dagher, Alain;
Das, Samir;
Desautels, Alex;
Drouin-Ouellet, Janelle;
Durcan, Thomas;
Gagnon, Jean-François;
Genge, Angela;
Karamchandani, Jason;
Lafontaine, Anne-Louise;
Sun, Sonia Lai Wing;
Langlois, Mélanie;
Levesque, Martin;
Melmed, Calvin;
Panisset, Michel

Publication type:

Article

Trends in Cystic Fibrosis–Related Diabetes Epidemiology Between 2003 and 2018 From the U.S. Cystic Fibrosis Foundation Patient Registry.

Published in:

Diabetes Care, 2025, v. 48, n. 7, p. 1251, doi. 10.2337/dc25-0044

By:

Kohler, Celia L.;
Vigers, Tim;
Pyle, Laura;
Miller, Kristen;
Zemanick, Edith T.;
Moran, Antoinette;
Sagel, Scott D.;
Chan, Christine L.

Publication type:

Article

Acute kidney injury does not explain sex differences in kidney replacement therapy initiation or death amongst individuals with chronic kidney disease reported to the UK Renal Registry Open Access.

Published in:

Clinical Kidney Journal, 2025, v. 18, n. 5, p. 1, doi. 10.1093/ckj/sfaf105

By:

Tsuji, Takahiro;
Casula, Anna;
Tomlinson, Laurie;
Nitsch, Dorothea;
Hole, Barnaby

Publication type:

Article

The Global Register of Alopecia areata disease Severity and treatment Safety – United Kingdom (GRASS-UK): importance of real-world data in alopecia areata.

Published in:

Clinical & Experimental Dermatology, 2025, v. 50, n. 6, p. 1250, doi. 10.1093/ced/llaf055

By:

Harries, Matthew;
Al-Nuaimi, Yusur;
Wall, Dmitri;
Chandidzura, Anne;
Ahmed, Shehnaz;
Meah, Nekma

Publication type:

Article

Temporal trends in incidence and mortality of colorectal cancer in Denmark from 2007 to 2022.

Published in:

International Journal of Cancer, 2025, v. 157, n. 4, p. 634, doi. 10.1002/ijc.35400

By:

Johannsen, Ida Ravnsbæk;
Boysen, Anders Kindberg;
Mortensen, Frank V.;
Kirkegård, Jakob

Publication type:

Article

Sex differences in treatment response in patients with rheumatoid arthritis treated with tumour necrosis factor inhibitor: a cohort study from the DANBIO registry.

Published in:

Scandinavian Journal of Rheumatology, 2025, v. 54, n. 4, p. 252, doi. 10.1080/03009742.2025.2471713

By:

Lauridsen, KB;
Duch, KS;
Mortensen, AS;
Cordtz, R;
Kristensen, S;
Lund, M L;
Dreyer, LW

Publication type:

Article

Stakeholders' Perspectives Toward the Use of Patient Registry Data for Decision-Making on Medicines: A Cross-Sectional Survey.

Published in:

Drug Safety, 2025, v. 48, n. 7, p. 753, doi. 10.1007/s40264-025-01528-7

By:

Windfuhr, Fabian;
de Vries, Sieta T.;
Melinder, Maria;
Dahlqvist, Tanja;
Almeida, Diogo;
Sepodes, Bruno;
Torre, Carla;
Wettermark, Björn;
Mol, Peter G. M.

Publication type:

Article

Regulatory Framework for Orphan Drug Development in India.

Published in:

IUP Law Review, 2025, v. 15, n. 2, p. 14, doi. 10.71329/IUPLR/2025.15.2.14-26

By:

Mazumdar, Ritwika;
Tyagi, Bhawna

Publication type:

Article

HARNESSING INFORMATION TECHNOLOGY FOR AFFORDABLE HOUSING DELIVERY: GLOBAL LESSONS AND PROSPECTS FOR NIGERIA.

Published in:

Information Technologist, 2025, v. 22, n. 1, p. 68

By:

Dada, Akolade Michael;
Taiwo, Tayo Amos

Publication type:

Article

The FAIR data point populator: collaborative FAIRification and population of FAIR data points.

Published in:

BMC Medical Informatics & Decision Making, 2025, v. 25, n. 1, p. 1, doi. 10.1186/s12911-025-03022-7

By:

Wijnbergen, Daphne;
Kaliyaperumal, Rajaram;
Burger, Kees;
Bonino da Silva Santos, Luiz Olavo;
Mons, Barend;
Roos, Marco;
Mina, Eleni

Publication type:

Article

Data Resource Profile: STHLM0, the Stockholm Prostate Cancer Diagnostics Register Open Access.

Published in:

International Journal of Epidemiology, 2025, v. 54, n. 3, p. 1, doi. 10.1093/ije/dyaf062

By:

Abbadi, Ahmad;
Eklund, Martin;
Aly, Markus;
Clements, Mark;
Crippa, Alessio;
Discacciati, Andrea;
Björklund, Astrid;
Lanka, Vivekananda;
Micoli, Chiara;
Lantz, Anna;
Grönberg, Henrik;
Nordström, Tobias

Publication type:

Article

Differences in catch-up growth and its relationship to nutritional status between SGA and AGA twins and singletons in the first year after birth: a prospective cohort study.

Published in:

Scientific Reports, 2025, v. 15, n. 1, p. 1, doi. 10.1038/s41598-025-03360-6

By:

Xiong, Minghui;
Pan, Ting;
Zhang, Zhanzhan;
Zhong, Yuanfeng;
Chen, Qian;
Wan, Yannan;
Zhu, Lin;
Chen, Li;
Zhang, Xuan

Publication type:

Article

Estimating and Testing the Variation of a Binary Treatment Effect Over Clusters in a Proportional Hazard Frailty Model.

Published in:

Statistics in Biopharmaceutical Research, 2014, v. 6, n. 1, p. 1, doi. 10.1080/19466315.2013.818053

By:

Feng, Shibao;
Nie, Lei

Publication type:

Article

Cohort Profile: The Danish Venous Thromboembolism Cohort – A Linkage Between Danish National Health Surveys and Health Registers.

Published in:

Clinical Epidemiology, 2025, v. 17, p. 485, doi. 10.2147/CLEP.S522468

By:

Horváth-Puhó, Erzsébet;
Pedersen, Lars;
Martiny, Søren Korsgaard;
Amdisen, Lau;
Viuff, Jakob Hansen;
Ekholm, Ola;
Sørensen, Henrik Toft

Publication type:

Article

Tumour size is associated with growth rates of >0.5 cm/year and delayed intervention in small renal masses in patients on active surveillance.

Published in:

BJU International, 2025, v. 135, n. 5, p. 860, doi. 10.1111/bju.16651

By:

Pallauf, Maximilian;
Rezaee, Michael;
Elias, Roy;
Wlajnitz, Tina;
Fletcher, Sean A.;
Cheaib, Joseph;
Alkhatib, Khalid;
Chang, Peter;
Wagner, Andrew A.;
McKiernan, James M.;
Allaf, Mohamad E.;
Pierorazio, Phillip M.;
Singla, Nirmish

Publication type:

Article

Overweight/obesity and gastrointestinal disease incidence in Denmark—a cohort study.

Published in:

European Journal of Endocrinology, 2025, v. 192, n. 5, p. 540, doi. 10.1093/ejendo/lvaf077

By:

Gribsholt, Sigrid Bjerge;
Farkas, Dóra Körmendiné;
Jepsen, Peter;
Richelsen, Bjørn;
Sørensen, Henrik Toft

Publication type:

Article

Thoughts on trends in cancer incidence and mortality and the COVID‐19 pandemic.

Published in:

Cancer (0008543X), 2025, v. 131, n. 11, p. 1, doi. 10.1002/cncr.35921

By:

Rhinehart, Dena P.;
Rice, Nathan E.;
Brawley, Otis W.

Publication type:

Article

National implementation of Watch-and-Wait in patients with rectal cancer.

Published in:

British Journal of Surgery, 2025, v. 112, n. 4, p. 1, doi. 10.1093/bjs/znaf040

By:

Geubels, Barbara M;
Grotenhuis, Brechtje A;
van den Esschert, Aart-Jan;
Lambregts, Doenja M J;
Maas, Monique;
Marijnen, Corrie A M;
Beets-Tan, Regina G H;
Beets, Geerard L;
Dutch Watch-and-Wait consortium;
van Leerdam, M E;
van Triest, B;
Melenhorst, J;
Breukink, S O;
Sonneveld, D J A;
van den Broek, J J;
Peeters, K C M J;
Boonstra, J J;
van Westreenen, H L;
de Vos Tot Nederveen Cappel, W H;
Burger, J W A

Publication type:

Article

Oesophagectomy in the East versus the West: comparison of two national audit databases.

Published in:

British Journal of Surgery, 2025, v. 112, n. 4, p. 1, doi. 10.1093/bjs/znaf035

By:

Matsuda, Satoru;
van der Sluis, Pieter;
Kumamaru, Hiraku;
Kingma, Feike;
Kawakubo, Hirofumi;
Ruurda, Jelle;
Watanabe, Masayuki;
Miyata, Hiroaki;
Lagarde, Sjoerd;
Takeuchi, Hiroya;
van Hillegersberg, Richard;
Shirabe, Ken;
Wijnhoven, Bas P L;
Kitagawa, Yuko

Publication type:

Article

Association between hemoglobin level and mortality in patients undergoing maintenance hemodialysis: a nationwide dialysis registry in Japan.

Published in:

Clinical & Experimental Nephrology, 2025, v. 29, n. 6, p. 831, doi. 10.1007/s10157-025-02632-9

By:

Kosugi, Takaaki;
Hasegawa, Takeshi;
Imaizumi, Takahiro;
Nishiwaki, Hiroki;
Honda, Hirokazu;
Ito, Yasuhiko;
Tsuruya, Kazuhiko;
Abe, Masanori;
Hanafusa, Norio;
Kuragano, Takahiro

Publication type:

Article

Lactoferrin for prevention of neonatal sepsis.

Published in:

BioMetals, 2014, v. 27, n. 5, p. 1007, doi. 10.1007/s10534-014-9754-3

By:

Turin, Christie;
Zea-Vera, Alonso;
Pezo, Alonso;
Cruz, Karen;
Zegarra, Jaime;
Bellomo, Sicilia;
Cam, Luis;
Llanos, Raul;
Castañeda, Anne;
Tucto, Lourdes;
Ochoa, Theresa

Publication type:

Article

COVID-19 Positive Versus Negative Complete Kawasaki Disease: A Study from the International Kawasaki Disease Registry.

Published in:

Pediatric Cardiology, 2023, v. 44, n. 6, p. 1373, doi. 10.1007/s00246-023-03109-w

By:

Jose, Jerin;
Tierney, Elif Seda Selamet;
Harahsheh, Ashraf S.;
Dahdah, Nagib;
Raghuveer, Geetha;
Friedman, Kevin G.;
Khoury, Michael;
Hicar, Mark D.;
Merves, Shae A.;
Dallaire, Frederic;
Farid, Pedrom;
Manlhiot, Cedric;
Runeckles, Kyle;
Misra, Nilanjana;
Portman, Michael;
Ballweg, Jean A.;
Lee, Simon;
Jain, Supriya S.;
Harris, Tyler H.;
Szmuszkovicz, Jacqueline R.

Publication type:

Article

Physicians' Self-reported Exercise Testing and Physical Activity Recommendations in Kawasaki Patients.

Published in:

Pediatric Cardiology, 2023, v. 44, n. 3, p. 631, doi. 10.1007/s00246-022-02984-z

By:

Hansen, Katherine;
Grady, Stafford;
McCrindle, Brian W.;
Harahsheh, Ashraf S.;
Elias, Matthew D.;
Dahdah, Nagib;
Selamet Tierney, Elif Seda

Publication type:

Article

Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION.

Published in:

Pediatric Cardiology, 2022, v. 43, n. 6, p. 1379, doi. 10.1007/s00246-022-02863-7

By:

Peng, David M.;
Shezad, Muhammad F.;
Lorts, Angela;
Gajarski, Robert J.;
VanderPluym, Christina;
Murray, Jenna M.;
Hawkins, Beth;
Villa, Chet R.;
Zafar, Farhan;
Rosenthal, David N.

Publication type:

Article

Congenital Heart Disease and Risk of Central Nervous System Infections: A Nationwide Cohort Study.

Published in:

Pediatric Cardiology, 2020, v. 41, n. 5, p. 869, doi. 10.1007/s00246-020-02324-z

By:

Bagge, Carina N.;
Smit, Jesper;
Madsen, Nicolas L.;
Olsen, Morten

Publication type:

Article

The Pediatric COVID-19 Registry in Kuwait: Methodology and Results of Pilot Phase.

Published in:

2022

By:

Qabazard, Sarah;
Al-Abdulrazzaq, Dalia;
Al-Kandari, Hessa;
Ayed, Mariam;
Alanezi, Ayed;
Al-Shammari, Nufoud;
Alharbash, Zaid;
Al-Khabbaz, Muna;
Kalander, Khaled;
Bin-Hassan, Saadoun;
Alfraij, Abdulla;
Alghounaim, Mohammad;
Alsaeid, Khaled;
Al-Hashemi, Hashem

Publication type:

journal article

Low Recurrence Rate and Risk of Distant Metastases following Marginal Surgery of Intramuscular Lipoma and Atypical Lipomatous Tumors of the Extremities and Trunk Wall.

Published in:

2020

By:

Presman, Benjamin;
Jauffred, Sune Frederik;
Kornø, Maj Raundrup;
Petersen, Michael Mørk;
Jauffred, Sune Frederik;
Kornø, Maj Raundrup;
Petersen, Michael Mørk

Publication type:

journal article

Ehlers-Danlos Syndromes and Related Disorders: Diagnostic Challenges and the Need for an Interdisciplinary Patient Care in Germany.

Published in:

Dermatology (10188665), 2025, v. 241, n. 2, p. 124, doi. 10.1159/000542026

By:

Kernich, Nikolaus;
Peters, Franziska;
Schreml, Julia;
Semler, Oliver;
Koch, Manuel;
Schönau, Eckhard;
Huntgeburth, Michael;
Eysel, Peer;
Krieg, Thomas;
von Stebut-Borschitz, Esther;
Tantcheva-Poór, Iliana

Publication type:

Article

Belgian Patients of the European Registry for Hidradenitis Suppurativa (ERHS-Be): Data, Scores, and Phenotypes since 2015.

Published in:

Dermatology (10188665), 2024, v. 240, n. 4, p. 553, doi. 10.1159/000538804

By:

Heudens, Stephanie;
Sarkis, Anne-Sophie;
Daoud, Mathieu;
Daxhelet, Mathilde;
Benhadou, Farida;
Suppa, Mariano;
Nobile, Laura;
Karama, Jalila;
Njimi, Hassane;
White, Jonathan M.;
del Marmol, Veronique

Publication type:

Article

Challenges and Opportunities in Establishing a COVID-19 Patient Registry in a Regional Setting in the Philippines.

Published in:

COVID, 2024, v. 4, n. 11, p. 1776, doi. 10.3390/covid4110124

By:

Dumancas, Gerard G.;
Generalao, Oliver B.;
Rivera, Hans Carlo E.;
Zamora-Rico, Pia Regina Fatima;
Rico, Jonathan Adam A.;
Climacosa, Fresthel Monica M.;
Caoili, Salvador Eugenio C.;
de Castro, Romulo

Publication type:

Article

Correction: The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform.

Published in:: 2022
Publication type:: Correction Notice

Cesarean section trends from 1992 to 2023 in Estonia among singleton term pregnancies: A registry-based study.

Published in:

European Journal of Midwifery, 2025, v. 9, p. 1, doi. 10.18332/ejm/201342

By:

Sildver, Kaire;
Veerus, Piret;
Gissler, Mika;
Lang, Katrin;
Pisarev, Heti

Publication type:

Article

Presence of HLA-DQ2 and HLA-DQ8/DR4 celiac disease predisposing alleles in tested group of patients in Bosnia and Herzegovina.

Published in:

Genetics & Applications, 2023, v. 7, n. 2, p. 1, doi. 10.31383/ga.vol7iss2ga06

By:

Bećirević, Tea;
Kozarić, Selma;
Đugum, Ammar;
Čović, Selen

Publication type:

Article

Patients as Researchers: Chronicity, Health Data, and Emergent Attribution Practices.

Published in:

Rhetoric of Health & Medicine, 2022, v. 5, n. 2, p. 130, doi. 10.5744/rhm.2022.5008

By:

Singer, Sarah Ann

Publication type:

Article

Funkcionalnosti in uporaba portala za paciente zvem in centralnega registra podatkov o pacientu.

Published in:

Uporabna Informatika, 2022, v. 30, p. 63

By:

Rant, Živa;
Stanimirović, Dalibor;
Janet, Jure

Publication type:

Article

CDC Releases New Data on Cancer Rates Through 2020.

Published in:

ONS Voice, 2023, p. 1

By:

Stone, Alec

Publication type:

Article

Annual Trends in Total Ischemic Time and One-Year Fatalities: The Paradox of STEMI Network Performance Assessment.

Published in:

Journal of Clinical Medicine, 2019, v. 8, n. 1, p. 78, doi. 10.3390/jcm8010078

By:

Kawecki, Damian;
Morawiec, Beata;
Gąsior, Mariusz;
Wilczek, Krzysztof;
Nowalany-Kozielska, Ewa;
Gierlotka, Marek

Publication type:

Article

Improving Health Through Healthcare Technologies Assessment Development: Further Perspectives for HTA Tools Development.

Published in:

Advances in Systems Science & Applications, 2022, v. 22, n. 3, p. 84

By:

Meshkov, Dmitry;
Melien, Oyvind;
Cherkasov, Sergey;
Lobanov, Alexey;
Fedyaeva, Anna

Publication type:

Article

Proton therapy for head and neck cancer therapy: A real-world data case study from Bulgaria.

Published in:

Pharmacia (0428-0296), 2024, v. 71, n. 1, p. 1, doi. 10.3897/pharmacia.71.e129379

By:

Dimitrova, Maria;
Tsvetanova, Nezabravka;
Penchev, Daniel;
Petrova, Guenka

Publication type:

Article

Knowledge integration in international SMEs – The effects on firm innovation and performance.

Published in:

Cogent Business & Management, 2020, v. 7, n. 1, p. 1, doi. 10.1080/23311975.2020.1849890

By:

Azari, Mohammad Javadinia;
Aspelund, Arild;
Eide, Ann Elida;
Wright, Len Tiu

Publication type:

Article

Innovation's New Catechism.

Published in:

Issues in Science & Technology, 2023, v. 39, n. 4, p. 22, doi. 10.58875/ceng5192

By:

MARGONELLI, LISA

Publication type:

Article

Performance of the High-dimensional Propensity Score in a Nordic Healthcare Model.

Published in:

Basic & Clinical Pharmacology & Toxicology, 2017, v. 120, n. 3, p. 312, doi. 10.1111/bcpt.12716

By:

Hallas, Jesper;
Pottegård, Anton

Publication type:

Article

Validity of the Prescriber Information in the Danish National Prescription Registry.

Published in:

Basic & Clinical Pharmacology & Toxicology, 2016, v. 119, n. 4, p. 376, doi. 10.1111/bcpt.12610

By:

Rasmussen, Lotte;
Valentin, Julie;
Gesser, Katarina Margareta;
Hallas, Jesper;
Pottegård, Anton

Publication type:

Article

Paediatric Off-Label Use of Melatonin - A Register Linkage Study between the Norwegian Prescription Database and Patient Register.

Published in:

Basic & Clinical Pharmacology & Toxicology, 2015, v. 117, n. 4, p. 267, doi. 10.1111/bcpt.12411

By:

Hartz, Ingeborg;
Handal, Marte;
Tverdal, Aage;
Skurtveit, Svetlana

Publication type:

Article

Metabolic bariatric surgery generates substantial, sustained weight loss and health improvement in a real‐world setting.

Published in:

ANZ Journal of Surgery, 2025, v. 95, n. 5, p. 895, doi. 10.1111/ans.19378

By:

Brown, Wendy A.;
Brown, Dianne L.;
Holland, Jennifer F.;
Campbell, Angus;
Cottrell, Jenifer;
Ahern, Susannah;
Reilly, Jennifer;
Garduce, Patrick;
Wetter, James;
Hamdorf, Jeffrey M.;
Talbot, Michael;
Baker, Samuel;
MacCormick, Andrew D.;
Caterson, Ian D.

Publication type:

Article

Abstract Journal Health Policy & Advocacy.

Published in:: ANZ Journal of Surgery, 2025, v. 95, p. 79, doi. 10.1111/ans.70068
Publication type:: Article

Development of a standardized minimum dataset for including low‐severity trauma patients in trauma registry collections in Australia and Aotearoa New Zealand.

Published in:

ANZ Journal of Surgery, 2023, v. 93, n. 3, p. 572, doi. 10.1111/ans.18326

By:

Christey, Grant;
Warren, Jacelle;
Palmer, Cameron S.;
Burrell, Maxine;
Vallmuur, Kirsten

Publication type:

Article

Staged laparotomy for acute non‐traumatic intra‐abdominal emergencies in a tertiary South African unit.

Published in:

ANZ Journal of Surgery, 2021, v. 91, n. 12, p. 2637, doi. 10.1111/ans.17270

By:

Smith, Michelle T. D.;
Clarke, Damian L.

Publication type:

Article

Clinical quality registries: local registries complement national registries. An example from joint arthroplasty.

Published in:

ANZ Journal of Surgery, 2018, v. 88, n. 7/8, p. 667, doi. 10.1111/ans.14432

By:

Page, Richard S.;
Beattie, Sally;
Williams, Simon;
Gill, Stephen D.

Publication type:

Article

Use of recombinant activated factor VII in Jehovah's Witness patients with critical bleeding.

Published in:

ANZ Journal of Surgery, 2013, v. 83, n. 3, p. 155, doi. 10.1111/j.1445-2197.2012.06285.x

By:

Kandane‐Rathnayake, Rangi K.;
Isbister, James P.;
Zatta, Amanda J.;
Aoki, Naomi J.;
Cameron, Peter;
Phillips, Louise E.;
Dunkley, Scott;
Houben, Roger;
McNeil, John;
Thomas, Wendy

Publication type:

Article