Validation and adherence to the use of the home exercise booklet - Duchenne muscular dystrophy.

Gomes dos Santos, Amanda Silva; Barboza Franco, Camila Scarpino; Claudia Mattiello-Sverzut, Ana

The present study aimed to validate the content and analyze adherence to the exercises presented in the booklet for children and adolescents with Duchenne muscular dystrophy (DMD). Nine expert judges evaluated the booklet using an adapted questionnaire for the content validation process. Fifteen children/adolescents with DMD and their caregivers reported on the quality of the material's content and adherence to its use (15 and 45 days after receiving the booklet). Twenty-two aspects addressed in the content validation received scores above the acceptable threshold. Most caregivers responded "I agree" or "I completely agree" to all items analyzed regarding the evaluation of the material. In the short term, the adherence rate was 33.3%, and in the long term, it was 13.3%. The booklet enriched the physiotherapeutic treatment of children and adolescents with DMD. However, moderate to low adherence was observed among participants.

MUSCULAR dystrophy; EXERCISE

Saúde e Pesquisa, 2024, Vol 17, Issue 3, p1

1983-1870

Academic Journal

10.17765/2176-9206.2024v17n3.e12091