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Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?".
Published in:
Journal of Genetic Counseling, 2024, v. 33, n. 2, p. 341, doi. 10.1002/jgc4.1725
By:
- Lincoln‐Boyea, Beth;
- Moultrie, Rebecca R.;
- Biesecker, Barbara B.;
- Underwood, Marcia;
- Duparc, Martin;
- Wheeler, Anne C.;
- Peay, Holly L.
Publication type:
Article
An Evidence-Based, Community-Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular Trials.
Published in:
Journal of Genetic Counseling, 2018, v. 27, n. 2, p. 416, doi. 10.1007/s10897-017-0190-8
By:
- Moultrie, Rebecca R.;
- Lewis, Megan A.;
- Paquin, Ryan S.;
- Lucas, Ann;
- Jarecki, Jill;
- Peay, Holly L.
Publication type:
Article
Oncology patients' communication experiences during COVID-19: comparing telehealth consultations to in-person visits.
Published in:
Supportive Care in Cancer, 2022, v. 30, n. 6, p. 4769, doi. 10.1007/s00520-022-06897-8
By:
- Street Jr, Richard L;
- Treiman, Katherine;
- Kranzler, Elissa C.;
- Moultrie, Rebecca;
- Arena, Laura;
- Mack, Nicole;
- Garcia, Reese;
- Street, Richard L Jr
Publication type:
Article
Women's knowledge, attitudes, and beliefs about Down syndrome: A qualitative research study.
Published in:
American Journal of Medical Genetics. Part A, 2012, v. 158A, n. 6, p. 1355, doi. 10.1002/ajmg.a.35340
By:
- Levis, Denise M.;
- Harris, Shelly;
- Whitehead, Nedra;
- Moultrie, Rebecca;
- Duwe, Kara;
- Rasmussen, Sonja A.
Publication type:
Article
Engaging Patient Advocates and Other Stakeholders to Design Measures of Patient-Centered Communication in Cancer Care.
Published in:
Patient, 2017, v. 10, n. 1, p. 93, doi. 10.1007/s40271-016-0188-6
By:
- Treiman, Katherine;
- McCormack, Lauren;
- Olmsted, Murrey;
- Roach, Nancy;
- Reeve, Bryce;
- Martens, Christa;
- Moultrie, Rebecca R.;
- Sanoff, Hanna
Publication type:
Article
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.
Published in:
2020
By:
- Andrews, Sara M;
- Raspa, Melissa;
- Edwards, Anne;
- Moultrie, Rebecca;
- Turner-Brown, Lauren;
- Wagner, Laura;
- Rivas, Alexandra Alvarez;
- Frisch, Mary Katherine;
- Wheeler, Anne C;
- Alvarez Rivas, Alexandra
Publication type:
journal article
Barriers and Facilitators to Genetic Service Delivery Models: Scoping Review.
Published in:
Journal of Medical Internet Research, 2021, v. 23, n. 2, p. N.PAG, doi. 10.2196/23523
By:
- Raspa, Melissa;
- Moultrie, Rebecca;
- Toth, Danielle;
- Haque, Saira Naim
Publication type:
Article
Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.
Published in:
2020
By:
- Raspa, Melissa;
- Moultrie, Rebecca;
- Wagner, Laura;
- Edwards, Anne;
- Andrews, Sara;
- Frisch, Mary Katherine;
- Turner-Brown, Lauren;
- Wheeler, Anne
Publication type:
journal article
Virtual Versus In-Person Focus Groups: Comparison of Costs, Recruitment, and Participant Logistics.
Published in:
2017
By:
- Rupert, Douglas J;
- Poehlman, Jon A;
- Hayes, Jennifer J;
- Ray, Sarah E;
- Moultrie, Rebecca R
Publication type:
journal article
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability.
Published in:
PLoS ONE, 2019, v. 14, n. 10, p. 1, doi. 10.1371/journal.pone.0223801
By:
- McCormack, Lauren A.;
- Wylie, Amanda;
- Moultrie, Rebecca;
- Furberg, Robert D.;
- Wheeler, Anne C.;
- Treiman, Katherine;
- Bailey, Donald B.;
- Raspa, Melissa
Publication type:
Article
A Review on Spinal Muscular Atrophy: Awareness, Knowledge, and Attitudes.
Published in:
Journal of Genetic Counseling, 2016, v. 25, n. 5, p. 892, doi. 10.1007/s10897-016-9955-8
By:
- Moultrie, Rebecca;
- Kish-Doto, Julia;
- Peay, Holly;
- Lewis, Megan
Publication type:
Article
Use of a web‐based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.
Published in:
Clinical Genetics, 2023, v. 103, n. 6, p. 672, doi. 10.1111/cge.14325
By:
- Cope, Heidi;
- Lincoln‐Boyea, Beth;
- Gwaltney, Angela You;
- Biesecker, Barbara B.;
- Moultrie, Rebecca;
- Alexander, Amir A.;
- King, Nancy M. P.;
- Check, Jennifer;
- Corbo, Allyson;
- Tzeng, Janice;
- Porter, Katherine Ackerman;
- Peay, Holly L.
Publication type:
Article
Early Check: translational science at the intersection of public health and newborn screening.
Published in:
2019
By:
- Bailey, Donald B.;
- Gehtland, Lisa M.;
- Lewis, Megan A.;
- Peay, Holly;
- Raspa, Melissa;
- Shone, Scott M.;
- Taylor, Jennifer L.;
- Wheeler, Anne C.;
- Cotten, Michael;
- King, Nancy M. P.;
- Powell, Cynthia M.;
- Biesecker, Barbara;
- Bishop, Christine E.;
- Boyea, Beth Lincoln;
- Duparc, Martin;
- Harper, Blake A.;
- Kemper, Alex R.;
- Lee, Stacey N.;
- Moultrie, Rebecca;
- Okoniewski, Katherine C.
Publication type:
journal article
Understanding Women’s Preconception Health Goals: Audience Segmentation Strategies for a Preconception Health Campaign.
Published in:
Social Marketing Quarterly, 2014, v. 20, n. 3, p. 148, doi. 10.1177/1524500414534421
By:
- Lynch, Molly;
- Squiers, Linda;
- Lewis, Megan A.;
- Moultrie, Rebecca;
- Kish-Doto, Julia;
- Boudewyns, Vanessa;
- Bann, Carla;
- Levis, Denise M.;
- Mitchell, Elizabeth W.
Publication type:
Article
Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.
Published in:
Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.891592
By:
- Peay, Holly L.;
- Gwaltney, Angela You;
- Moultrie, Rebecca;
- Cope, Heidi;
- Boyea, Beth Lincoln‐;
- Porter, Katherine Ackerman;
- Duparc, Martin;
- Alexander, Amir A.;
- Biesecker, Barbara B.;
- Isiaq, Aminah;
- Check, Jennifer;
- Gehtland, Lisa;
- Bailey Jr, Donald B.;
- King, Nancy M. P.
Publication type:
Article
Outreach to new mothers through direct mail and email: recruitment in the Early Check research study.
Published in:
CTS: Clinical & Translational Science, 2021, v. 14, n. 3, p. 880, doi. 10.1111/cts.12950
By:
- Paquin, Ryan S.;
- Lewis, Megan A.;
- Harper, Blake A.;
- Moultrie, Rebecca R.;
- Gwaltney, Angela;
- Gehtland, Lisa M.;
- Peay, Holly L.;
- Duparc, Martin;
- Raspa, Melissa;
- Wheeler, Anne C.;
- Powell, Cynthia M.;
- King, Nancy M. P.;
- Shone, Scott M.;
- Bailey, Donald B.
Publication type:
Article
Parental Views on Newborn Next Generation Sequencing: Implications for Decision Support.
Published in:
Maternal & Child Health Journal, 2020, v. 24, n. 7, p. 856, doi. 10.1007/s10995-020-02953-z
By:
- Moultrie, Rebecca R.;
- Paquin, Ryan;
- Rini, Christine;
- Roche, Myra I.;
- Berg, Jonathan S.;
- Powell, Cynthia M.;
- Lewis, Megan A.
Publication type:
Article
Patients' Experiences with Cancer Care: Impact of the COVID-19 Pandemic.
Published in:
Journal of Patient Experience, 2022, v. 9, p. 1, doi. 10.1177/23743735221092567
By:
- Treiman, Katherine;
- Kranzler, Elissa C.;
- Moultrie, Rebecca;
- Arena, Laura;
- Mack, Nicole;
- Fortune, Erica;
- Garcia, Reese;
- Street, Richard L
Publication type:
Article
Patients' Experiences with Cancer Care: Impact of the COVID-19 Pandemic.
Published in:
Journal of Patient Experience, 2022, v. 9, p. 1, doi. 10.1177/23743735221092567
By:
- Treiman, Katherine;
- Kranzler, Elissa C.;
- Moultrie, Rebecca;
- Arena, Laura;
- Mack, Nicole;
- Fortune, Erica;
- Garcia, Reese;
- Street, Richard L
Publication type:
Article
Patients' Experiences with Cancer Care: Impact of the COVID-19 Pandemic.
Published in:
Journal of Patient Experience, 2022, v. 9, p. 1, doi. 10.1177/23743735221092567
By:
- Treiman, Katherine;
- Kranzler, Elissa C.;
- Moultrie, Rebecca;
- Arena, Laura;
- Mack, Nicole;
- Fortune, Erica;
- Garcia, Reese;
- Street, Richard L.
Publication type:
Article
Program Implementation Approaches to Build and Sustain Health Care Coordination for Type 2 Diabetes.
Published in:
Health Promotion Practice, 2017, v. 18, n. 2, p. 306, doi. 10.1177/1524839916643705
By:
- Fitzgerald, Tania M.;
- Williams, Pam A.;
- Moultrie, Rebecca;
- Taylor, Olivia;
- Lewis, Megan A.;
- Dodge, Julia A.;
- Quinn, Martha;
- Nelson, Belinda W.;
- Heminger, Christina L.
Publication type:
Article
Improving the Implementation of Diabetes Self-Management: Findings From the Alliance to Reduce Disparities in Diabetes.
Published in:
Health Promotion Practice, 2014, v. 15, n. 2, p. 83S, doi. 10.1177/1524839914541277
By:
- Lewis, Megan A.;
- Williams, Pam A.;
- Fitzgerald, Tania M.;
- Heminger, Christina L.;
- Hobbs, Connie L.;
- Moultrie, Rebecca R.;
- Taylor, Olivia M.;
- Holt, Sidney;
- Karns, Shawn A.;
- Burton, Joseph A.;
- Kamerow, Douglas B.
Publication type:
Article

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