Works matching DE "GENETIC privacy"

Results: 228

Impact of genetic risk information and type of disease on perceived risk, anticipated affect, and expected consequences of genetic tests.

Published in:

2009

By:

Cameron, Linda D.;
Sherman, Kerry A.;
Marteau, Theresa M.;
Brown, Paul M.

Publication type:

Journal Article

Disclosure of donor insemination: Parental attitudes.

Published in:

1995

By:

Cook, Rachel;
Golombok, Susan;
Bish, Alison;
Murray, Clare

Publication type:

Journal Article

DNA debate.

Published in:

Medical Laboratory Observer (MLO), 2019, v. 51, n. 1, p. 2

By:

Wider, Janette

Publication type:

Article

The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement.

Published in:

JAMA Network Open, 2024, v. 7, n. 9, p. e2435355, doi. 10.1001/jamanetworkopen.2024.35355

By:

Uberoi, Diya;
Dalpé, Gratien;
Cheung, Katherine;
Kondrup, Emma;
Palmour, Nicole;
Arawi, Thalia;
Arych, Mykhailo;
Ramiro Aviles, Miguel A.;
Ayuso, Carmen;
Bentzen, Heidi B.;
Blizinsky, Katherine;
Bombard, Yvonne;
Chandrasekharan, Subhashini;
Chung, Brian Hon Yin;
de Paor, Aisling;
Doerr, Megan;
Dove, Edward S.;
Dupras, Charles;
Granados-Moreno, Palmira;
Greenbaum, Dov

Publication type:

Article

Curiosity and Uncertainty Resolution: Inflating the Perceived Utility of Genetic Information.

Published in:

American Journal of Bioethics, 2023, v. 23, n. 7, p. 53, doi. 10.1080/15265161.2023.2207518

By:

Furrer, Rémy;
Barlevy, Dorit;
Pereira, Stacey;
Lázaro-Muñoz, Gabriel

Publication type:

Article

Respecting Autonomy and Balancing Benefits by Disclosing the Secondary Finding of Klinefelter's.

Published in:

American Journal of Bioethics, 2022, v. 22, n. 10, p. 89, doi. 10.1080/15265161.2022.2110974

By:

Miner, Skye Adell;
Hester, D. Micah

Publication type:

Article

Response to Open Peer Commentaries on Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.

Published in:

2022

By:

Dupras, Charles;
Bunnik, Eline M.

Publication type:

Letter to the Editor

Capacities and Limitations of Using Polygenic Risk Scores for Reproductive Decision Making.

Published in:

American Journal of Bioethics, 2022, v. 22, n. 2, p. 42, doi. 10.1080/15265161.2021.2013983

By:

Barlevy, Dorit;
Lencz, Todd;
Carmi, Shai;
Kostick-Quenet, Kristin Marie;
Mukherjee, Meghna;
Pereira, Stacey;
Lázaro-Muñoz, Gabriel

Publication type:

Article

Exceptionalism, Information Categories and the Relevance of Gender.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 65, doi. 10.1080/15265161.2021.1991045

By:

Chadwick, Ruth

Publication type:

Article

Scrutinizing Privacy in Multi-Omics Research: How to Provide Ethical Grounding for the Identification of Privacy-Relevant Data Properties.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 73, doi. 10.1080/15265161.2021.1991041

By:

Safarlou, C. W.;
Bredenoord, A. L.;
Vermeulen, R.;
Jongsma, K. R.

Publication type:

Article

Ownership of Genetic Data: Between Universalism and Contextualism?

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 75, doi. 10.1080/15265161.2021.1991033

By:

Stoeklé, Henri-Corto;
Hervé, Christian

Publication type:

Article

Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.

Published in:

American Journal of Bioethics, 2021, v. 21, n. 12, p. 46, doi. 10.1080/15265161.2020.1863516

By:

Dupras, Charles;
Bunnik, Eline M.

Publication type:

Article

Measuring Understanding and Respecting Trust in Biobank Consent.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 5, p. 29, doi. 10.1080/15265161.2019.1587034

By:

Kasperbauer, T.J.;
Schwartz, Peter H.

Publication type:

Article

Ethical Guidelines for DNA Testing in Migrant Family Reunification.

Published in:

2019

By:

Farahany, Nita;
Chodavadia, Saheel;
Katsanis, Sara H.

Publication type:

Editorial

Genomic Contextualism, Genetic Determinism, and Causal Models.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 73, doi. 10.1080/15265161.2018.1544317

By:

Boyce, Angie

Publication type:

Article

Is Genetic Exceptionalism Past Its Sell-By Date? On Genomic Diaries, Context, and Content.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 13, doi. 10.1080/15265161.2018.1552038

By:

Murray, Thomas H.

Publication type:

Article

Genetic Contextualism and the Value of a Structured Process.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 72, doi. 10.1080/15265161.2018.1546351

By:

Botkin, Jeffrey R.

Publication type:

Article

It’s the Idiom, Stupid: A Plea for Formal Rhetorical Analysis in Bioethics.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 67, doi. 10.1080/15265161.2018.1546350

By:

Garrett, Jeremy R.

Publication type:

Article

Genomes in Context.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 66, doi. 10.1080/15265161.2018.1544323

By:

Burke, Wylie

Publication type:

Article

“DNA Is Information, and Genetics Is Information Technology”: Reconsidering the Genetic Code.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 75, doi. 10.1080/15265161.2018.1544321

By:

Pereira, Stacey

Publication type:

Article

How Can We Integrate Interests and Reasoned Arguments in Bioethics?

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 64, doi. 10.1080/15265161.2018.1544322

By:

Condit, Celeste M.

Publication type:

Article

Unpacking the Concept of a Genomic Result.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 70, doi. 10.1080/15265161.2018.1544316

By:

Horton, Rachel;
Lucassen, Anneke;
Fenwick, Angela

Publication type:

Article

Toward Broader Genetic Contextualism: Genetic Testing Enters the Age of Evidence-Based Medicine.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 77, doi. 10.1080/15265161.2018.1544315

By:

Laberge, Anne-Marie;
Richer, Julie;
Ravitsky, Vardit

Publication type:

Article

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.

Published in:

American Journal of Bioethics, 2019, v. 19, n. 1, p. 51, doi. 10.1080/15265161.2018.1544304

By:

Garrison, Nanibaa' A.;
Brothers, Kyle B.;
Goldenberg, Aaron J.;
Lynch, John A.

Publication type:

Article

Diversity Beyond Race and Ethnicity: Enhancing Inclusion With an Expanded Definition of Diversity.

Published in:

American Journal of Bioethics, 2018, v. 18, n. 4, p. 47, doi. 10.1080/15265161.2018.1431705

By:

Quinn, Gwendolyn P.;
Gwede, Clement K.;
Meade, Cathy D.

Publication type:

Article

Collegiate Sports: Professionals All But in Name Raise Unique Bioethics Concerns in the Collection of Biometric Data.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 70, doi. 10.1080/15265161.2016.1251646

By:

Lazan, Ariela;
Greenbaum, Dov

Publication type:

Article

Biometric Tracking From Professional Athletes to Consumers.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 72, doi. 10.1080/15265161.2016.1251652

By:

Purcell, Ryan H.;
Rommelfanger, Karen S.

Publication type:

Article

The Legality of Biometric Screening of Professional Athletes.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 65, doi. 10.1080/15265161.2016.1251647

By:

Roberts, Jessica L.;
Cohen, I. Glenn;
Deubert, Christopher R.;
Lynch, Holly Fernandez

Publication type:

Article

Tracking U.S. Professional Athletes: The Ethics of Biometric Technologies.

Published in:

American Journal of Bioethics, 2017, v. 17, n. 1, p. 45, doi. 10.1080/15265161.2016.1251633

By:

Karkazis, Katrina;
Fishman, Jennifer R.

Publication type:

Article

Policy and the Inevitability of Sharing: GINA and Social Media.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 57, doi. 10.1080/15265161.2014.957422

By:

Yu, Joon-Ho;
Engrav, Rebecca S.

Publication type:

Article

Direct-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 55, doi. 10.1080/15265161.2014.959320

By:

Garrison, Nanibaa' A.;
Non, Amy L.

Publication type:

Article

GINA's Limits or Something More? The Need for Greater Protection of Employee Health-Related Information.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 45, doi. 10.1080/15265161.2014.957625

By:

Roberts, Jessica L.

Publication type:

Article

Beyond Social Media: Inadvertent Acquisition of Genetic Information in Medical Certifications.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 48, doi. 10.1080/15265161.2014.957624

By:

Prince, Anya E. R.

Publication type:

Article

Sharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 53, doi. 10.1080/15265161.2014.957620

By:

Ragoussis, Vassilis;
Feze, Ida Ngueng;
Joly, Yann

Publication type:

Article

Protecting Posted Genes: Social Networking and the Limits of GINA.

Published in:

American Journal of Bioethics, 2014, v. 14, n. 11, p. 32, doi. 10.1080/15265161.2014.957417

By:

Lee, Sandra Soo-Jin;
Borgelt, Emily

Publication type:

Article

Policy Guidance for Direct-to-Consumer Genetic Testing Services: Framework Development Study.

Published in:

Journal of Medical Internet Research, 2024, v. 26, p. 1, doi. 10.2196/47389

By:

Onstwedder, Suzanne Maria;
Jansen, Marleen Elizabeth;
Cornel, Martina Cornelia;
Rigter, Tessel

Publication type:

Article

Developments in Genetic and Epigenetic Data Protection in Behavioral and Mental Health Spaces.

Published in:

2015

By:

Terry, Nicolas

Publication type:

journal article

Forensic STR Loci and Schizophrenia: An Exploration of Implications for Forensic Applications and Genetic Privacy.

Published in:

Genes, 2024, v. 15, n. 12, p. 1525, doi. 10.3390/genes15121525

By:

Yang, Qi;
Yang, Chun;
Hua, Zhiqi;
Shen, Qi;
Chen, Anqi;
Ba, Huajie;
Zhang, Suhua

Publication type:

Article

Opportunities and Challenges in Interpreting and Sharing Personal Genomes.

Published in:

Genes, 2019, v. 10, n. 9, p. 643, doi. 10.3390/genes10090643

By:

Rubin, Irit R.;
Glusman, Gustavo

Publication type:

Article

The Ethical Implications of Using Genetic Information in Personnel Selection.

Published in:

Ethics & Behavior, 2016, v. 26, n. 2, p. 144, doi. 10.1080/10508422.2014.999918

By:

Clark, Brent B.;
Barney, Chet E.;
Reddington, Tyler

Publication type:

Article

Revealing misattributed parentage through the integration of genetic information into the electronic health record.

Published in:

Bioethics, 2024, v. 38, n. 8, p. 741, doi. 10.1111/bioe.13332

By:

Tamir, Sivan;
Gazit, Sivan;
Sivan, Shiri;
Patalon, Tal

Publication type:

Article

Rethinking 'family': A call for conceptual amelioration.

Published in:

Bioethics, 2024, v. 38, n. 7, p. 650, doi. 10.1111/bioe.13333

By:

Lam, Ryan Xia‐Hui

Publication type:

Article

A principled approach to cross‐sector genomic data access.

Published in:

Bioethics, 2021, v. 35, n. 8, p. 779, doi. 10.1111/bioe.12919

By:

Smith, Marcus;
Miller, Seumas

Publication type:

Article

Should clinicians make chest surgery available to transgender male adolescents?

Published in:

Bioethics, 2021, v. 35, n. 7, p. 696, doi. 10.1111/bioe.12912

By:

McDougall, Rosalind;
Notini, Lauren;
Delany, Clare;
Telfer, Michelle;
Pang, Ken C.

Publication type:

Article

Informed Consent for Genetic Testing in Autopsy.

Published in:

2020

By:

Gatter, Ken

Publication type:

Editorial

Standards for Clinical Grade Genomic Databases.

Published in:

Archives of Pathology & Laboratory Medicine, 2015, v. 139, n. 11, p. 1400, doi. 10.5858/arpa.2014-0568-CP

By:

Yohe, Sophia L.;
Carter, Alexis B.;
Pfeifer, John D.;
Crawford, James M.;
Cushman-Vokoun, Allison;
Caughron, Samuel;
Leonard, Debra G. B.

Publication type:

Article

Recording our genes: Stakeholder views on genetic test results in networked electronic medical records.

Published in:

Health Information Management Journal, 2023, v. 52, n. 3, p. 194, doi. 10.1177/18333583221090969

By:

Prictor, Megan;
Rychkova, Maria

Publication type:

Article

THE CHALLENGES OF FORENSIC GENEALOGY: DIRTY DATA, ELECTRONIC EVIDENCE, AND PRIVACY CONCERNS.

Published in:

Denver Law Review, 2020, v. 98, n. 1, p. 157

By:

RAMJEE, DIVYA;
RINGROS, KATELYN

Publication type:

Article

Sharing Genetic Risk Information: Implications for Family Nurses Across the Life Span.

Published in:

Journal of Family Nursing, 2018, v. 24, n. 1, p. 86, doi. 10.1177/1074840718755401

By:

Metcalfe, Alison

Publication type:

Article

Shedding Privacy Along with our Genetic Material: What Constitutes Adequate Legal Protection against Surreptitious Genetic Testing?

Published in:

AMA Journal of Ethics, 2016, v. 18, n. 3, p. 264, doi. 10.1001/journalofethics.2016.18.3.pfor2-1603

By:

Strand, Nicolle K.

Publication type:

Article