Works matching Genetic research

Results: 5000

Ethics in Behavioral Genetics Research.

Published in:

Accountability in Research: Policies & Quality Assurance, 2004, v. 11, n. 1, p. 27, doi. 10.1080/725289013

By:

DeCamp, Matthew;
Sugarman, Jeremy

Publication type:

Article

Participation in Genetic Research: Amazon’s Mechanical Turk Workforce in the United States and India.

Published in:

Public Health Genomics, 2017, v. 19, n. 6, p. 325, doi. 10.1159/000452094

By:

Groth, Susan W.;
Dozier, Ann;
Demment, Margaret;
Li, Dongmei;
Fernandez, I. Diana;
Chang, Jack;
Dye, Timothy

Publication type:

Article

"IF I COULD IN A SMALL WAY HELP": MOTIVATIONS FOR AND BELIEFS ABOUT SAMPLE DONATION FOR GENETIC RESEARCH.

Published in:

Journal of Empirical Research on Human Research Ethics, 2011, v. 6, n. 2, p. 57, doi. 10.1525/jer.2011.6.2.57

By:

MICHIE, MARSHA;
HENDERSON, GAIL;
GARRETT, JOANNE;
CORBIE-SMITH, GISELLE

Publication type:

Article

Online discussion effects on intention to participate in genetic research: A longitudinal experimental study.

Published in:

Psychology & Health, 2016, v. 31, n. 9, p. 1025, doi. 10.1080/08870446.2016.1165221

By:

Kim, Sojung Claire;
Cappella, Joseph N.;
Price, Vincent

Publication type:

Article

Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research.

Published in:

American Journal of Bioethics, 2008, v. 8, n. 10, p. 62, doi. 10.1080/15265160802478404

By:

Hull, SaraChandros;
Sharp, RichardR.;
Botkin, JeffreyR.;
Brown, Mark;
Hughes, Mark;
Sugarman, Jeremy;
Schwinn, Debra;
Sankar, Pamela;
Bolcic-Jankovic, Dragana;
Clarridge, BrianR.;
Wilfond, BenjaminS.

Publication type:

Article

Mapping genetic research in noncommunicable disease publications in selected Arab countries: first step towards a guided research agenda.

Published in:

Health Research Policy & Systems, 2016, v. 14, p. 1, doi. 10.1186/s12961-016-0153-9

By:

Jamaluddine, Zeina;
Sibai, Abla Mehio;
Othman, Shahd;
Yazbek, Soha

Publication type:

Article

Consenting for current genetic research: is Canadian practice adequate?

Published in:

BMC Medical Ethics, 2014, v. 15, n. 1, p. 1, doi. 10.1186/1472-6939-15-80

By:

Groisman, Iris Jaitovich;
Egalite, Nathalie;
Godard, Beatrice

Publication type:

Article

Consensus Statement on Genetic Research in Dementia.

Published in:

American Journal of Alzheimer's Disease & Other Dementias, 2008, v. 23, n. 3, p. 262, doi. 10.1177/1533317508317817

By:

Olde Rikkert, Marcel G. M.;
Van der Vorm, Anco;
Burns, Alistair;
Dekkers, Wim;
Robert, Philipp;
Sartorius, Norman;
Selmes, Jacques;
Stoppe, Gabriela;
Vernooij-Dassen, Myrra;
Waldemar, Gunhild

Publication type:

Article

The emergence of an ethical duty to disclose genetic research results: international perspectives.

Published in:

European Journal of Human Genetics, 2006, v. 14, n. 11, p. 1170, doi. 10.1038/sj.ejhg.5201690

By:

Knoppers, Bartha Maria;
Joly, Yann;
Simard, Jacques;
Durocher, Francine

Publication type:

Article

Beliefs and attitudes towards participating in genetic research -- a population based cross-sectional study.

Published in:

BMC Public Health, 2013, v. 13, n. 1, p. 1, doi. 10.1186/1471-2458-13-114

By:

Kerath, Samantha M.;
Klein, Gila;
Kern, Marlena;
Shapira, Iuliana;
Witthuhn, Jennifer;
Norohna, Nicole;
Kline, Myriam;
Baksh, Farisha;
Gregersen, Peter;
Taioli, Emanuela

Publication type:

Article

Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.

Published in:

Clinical Genetics, 2006, v. 69, n. 5, p. 393, doi. 10.1111/j.1399-0004.2006.00614.x

By:

Kaphingst, K. A.;
Janoff, J. M.;
Harris, L. N.;
Emmons, K. M.

Publication type:

Article

Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice.

Published in:

Clinical Genetics, 2006, v. 69, n. 3, p. 199, doi. 10.1111/j.1399-0004.2006.00581.x

By:

Pullman, D.;
Hodgkinson, K.

Publication type:

Article

Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine.

Published in:

2016

By:

Dye, Timothy;
Dongmei Li;
Demment, Margaret;
Groth, Susan;
Fernandez, Diana;
Dozier, Ann;
Chang, Jack;
Li, Dongmei

Publication type:

journal article

Contract governance of human biological samples for genetic research.

Published in:

Revista de Derecho y Genoma Humano, 2020, n. 53, p. 101, doi. 10.14679/1226

By:

Santamaría Echeverría, Enrique

Publication type:

Article

Reporting Race and Ethnicity in Genetics Research: Do Journal Recommendations or Resources Matter?

Published in:

Science & Engineering Ethics, 2015, v. 21, n. 5, p. 1353, doi. 10.1007/s11948-014-9596-y

By:

Sankar, Pamela;
Cho, Mildred;
Monahan, Keri;
Nowak, Kamila

Publication type:

Article

Genetic research and applicable law: the intra-EU conflict of laws as a regulatory challenge to cross-border genetic research.

Published in:

Journal of Law & the Biosciences, 2018, v. 5, n. 3, p. 706, doi. 10.1093/jlb/lsy023

By:

Pormeister, Kärt

Publication type:

Article

Ethics in Population-Based Genetic Research.

Published in:

Accountability in Research: Policies & Quality Assurance, 2004, v. 11, n. 1, p. 1, doi. 10.1080/08989620490280221

By:

DeCamp, Matthew;
Sugarman, Jeremy

Publication type:

Article

Genetic research and consent: On the crossroads of human and data research.

Published in:

Bioethics, 2019, v. 33, n. 3, p. 347, doi. 10.1111/bioe.12475

By:

Pormeister, Kärt

Publication type:

Article

The Concept of Human Dignity in the Ethics of Genetic Research.

Published in:

Bioethics, 2015, v. 29, n. 4, p. 274, doi. 10.1111/bioe.12102

By:

Chan, David K.

Publication type:

Article

PROTECTING GROUPS FROM GENETIC RESEARCH.

Published in:

Bioethics, 2008, v. 22, n. 3, p. 157, doi. 10.1111/j.1467-8519.2007.00625.x

By:

HAUSMAN, DANIEL

Publication type:

Article

Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

Published in:

2020

By:

Ralefala, Dimpho;
Kasule, Mary;
Wonkam, Ambroise;
Matshaba, Mogomotsi;
de Vries, Jantina

Publication type:

journal article

Transgender identity genetic research: Attitudes, opinions & beliefs among members of the transgender and gender diverse communities.

Published in:

International Journal of Transgender Health, 2024, v. 25, n. 4, p. 971, doi. 10.1080/26895269.2023.2294825

By:

Theisen, J. Graham;
Draheim, Amanda A.;
Darosh, Angela;
Layman, Lawrence C.;
Stepleman, Lara M.

Publication type:

Article

Psychological Impact of Learning CDKN2A Variant Status as a Genetic Research Result.

Published in:

Public Health Genomics, 2018, v. 21, n. 3/4, p. 154, doi. 10.1159/000496556

By:

Zhu, Xuan;
Leof, Emma R.;
Rabe, Kari G.;
McCormick, Jennifer B.;
Petersen, Gloria M.;
Radecki Breitkopf, Carmen

Publication type:

Article

Perceptions of African-American Health Professionals and Community Members on the Participation of Children and Pregnant Women in Genetic Research.

Published in:

Public Health Genomics, 2014, v. 17, n. 1, p. 23, doi. 10.1159/000355359

By:

Ngui, E.M.;
Warner, T.D.;
Roberts, L.W.

Publication type:

Article

Patient Perspectives on Group Benefits and Harms in Genetic Research.

Published in:

Public Health Genomics, 2011, v. 14, n. 3, p. 135, doi. 10.1159/000317497

By:

Goldenberg, A. J.;
Hull, S. C.;
Wilfond, B. S.;
Sharp, R. R.

Publication type:

Article

Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing.

Published in:

Public Health Genomics, 2010, v. 13, n. 6, p. 368, doi. 10.1159/000276767

By:

Lemke, A. A.;
Wolf, W. A.;
Hebert-Beirne, J.;
Smith, M. E.

Publication type:

Article

Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.

Published in:

Journal of Empirical Research on Human Research Ethics, 2018, v. 13, n. 3, p. 295, doi. 10.1177/1556264618769165

By:

Radecki Breitkopf, Carmen;
Wolf, Susan M.;
Chaffee, Kari G.;
Robinson, Marguerite E.;
Lindor, Noralane M.;
Gordon, Deborah R.;
Koenig, Barbara A.;
Petersen, Gloria M.

Publication type:

Article

EPILEPSY PATIENT-PARTICIPANTS AND GENETIC RESEARCH RESULTS AS "ANSWERS.".

Published in:

Journal of Empirical Research on Human Research Ethics, 2011, v. 6, n. 4, p. 21, doi. 10.1525/jer.2011.6.4.21

By:

Namey, Emily E.;
Beskow, Laura M.

Publication type:

Article

ATTITUDES TOWARD GENETIC RESEARCH REVIEW: RESULTS FROM A NATIONAL SURVEY OF PROFESSIONALS INVOLVED IN HUMAN SUBJECTS PROTECTION.

Published in:

Journal of Empirical Research on Human Research Ethics, 2010, v. 5, n. 1, p. 83, doi. 10.1525/jer.2010.5.1.83

By:

Lemke, Amy A.;
Trinidad, Susan B.;
Edwards, Karen L.;
Starks, Helene;
Wiesner, Georgia L.

Publication type:

Article

Clinical verification of genetic results returned to research participants: findings from a Colon Cancer Family Registry.

Published in:

Molecular Genetics & Genomic Medicine, 2017, v. 5, n. 6, p. 700, doi. 10.1002/mgg3.328

By:

Laurino, Mercy Y.;
Truitt, Anjali R.;
Tenney, Lederle;
Fisher, Douglass;
Lindor, Noralane M.;
Veenstra, David;
Jarvik, Gail P.;
Newcomb, Polly A.;
Fullerton, Stephanie M.

Publication type:

Article

Parents' Perspectives on Participating in Genetic Research in Autism.

Published in:

Journal of Autism & Developmental Disorders, 2013, v. 43, n. 3, p. 556, doi. 10.1007/s10803-012-1592-y

By:

Trottier, Magan;
Roberts, Wendy;
Drmic, Irene;
Scherer, Stephen;
Weksberg, Rosanna;
Cytrynbaum, Cheryl;
Chitayat, David;
Shuman, Cheryl;
Miller, Fiona

Publication type:

Article

Informed Consent Form Challenges for Genetic Research in a Developing Arab Country with High Risk for Genetic Disease.

Published in:

Journal of Genetic Counseling, 2015, v. 24, n. 2, p. 294, doi. 10.1007/s10897-014-9763-y

By:

Nair, Satish;
Ibrahim, Halah

Publication type:

Article

Disclosing Individual Genetic Results to Research Participants.

Published in:

American Journal of Bioethics, 2006, v. 6, n. 6, p. 8, doi. 10.1080/15265160600934772

By:

Ravitsky, Vardit;
Wilfond, BenjaminS.

Publication type:

Article

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya.

Published in:

BMC Medical Ethics, 2013, v. 14, n. 1, p. 1, doi. 10.1186/1472-6939-14-41

By:

Marsh, Vicki;
Kombe, Francis;
Fitzpatrick, Raymond;
Williams, Thomas N.;
Parker, Michael;
Molyneux, Sassy

Publication type:

Article

CULTURAL DIFFERENCES IN FAMILY COMMUNICATION ABOUT INHERITED CANCER: IMPLICATIONS FOR CANCER GENETICS RESEARCH.

Published in:

Journal of Cultural Diversity, 2013, v. 20, n. 4, p. 195

By:

ETCHEGARY, HOLLY;
POTTER, BETH;
PERRIER, COLIN;
WILSON, BRENDA

Publication type:

Article

Survey of Attitudes of Japanese Women Toward Genetic/Genomic Research.

Published in:

Journal of Empirical Research on Human Research Ethics, 2014, v. 9, n. 3, p. 29, doi. 10.1177/1556264614540597

By:

Hiromi Moriya;
Ituro Inoue;
Mayumi Ikeuchi;
Naoaki Ishii;
Masaru Motojima

Publication type:

Article

The Evolution of Forest Genetics and Tree Improvement Research in the United States.

Published in:

Journal of Forestry, 2015, v. 113, n. 5, p. 500, doi. 10.5849/jof.14-120

By:

Wheeler, Nicholas C.;
Steiner, Kim C.;
Schlarbaum, Scott E.;
Neale, David B.

Publication type:

Article

Research progress and diagnostic strategy of genetic pathogenesis of dystonia.

Published in:

Chinese Journal of Contemporary Neurology & Neurosurgery, 2013, v. 13, n. 7, p. 568, doi. 10.3969/j.issn.1672-6731.2013.07.004

By:

Yi-wen WU;
Sheng-di CHEN

Publication type:

Article

THE MEANING OF GENETIC RESEARCH RESULTS: REFLECTIONS FROM INDIVIDUALS WITH AND WITHOUT A KNOWN GENETIC DISORDER.

Published in:

Journal of Empirical Research on Human Research Ethics, 2011, v. 6, n. 4, p. 30, doi. 10.1525/jer.2011.6.4.30

By:

Cadigan, R. Jean;
Michie, Marsha;
Henderson, Gail;
Davis, Arlene M.;
M.Beskow, Laura

Publication type:

Article

Understanding of research, genetics and genetic research in a rapid ethical assessment in north west Cameroon.

Published in:

International Health (1876-3413), 2016, v. 8, n. 3, p. 197, doi. 10.1093/inthealth/ihv034

By:

Kengne-Ouafo, Jonas A.;
Millard, James D.;
Nji, Theobald M.;
Tantoh, William F.;
Nyoh, Doris N.;
Tendongfor, Nicholas;
Enyong, Peter A.;
Newport, Melanie J.;
Davey, Gail;
Wanji, Samuel

Publication type:

Article

Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.

Published in:

Science, Technology & Human Values, 2013, v. 38, n. 2, p. 201, doi. 10.1177/0162243912470009

By:

Garrison, Nanibaa' A.

Publication type:

Article

An Exploration of Attitudes Among Black Americans Towards Psychiatric Genetic Research.

Published in:

Psychiatry: Interpersonal & Biological Processes, 2009, v. 72, n. 2, p. 177, doi. 10.1521/psyc.2009.72.2.177

By:

Murphy, Eleanor;
Thompson, Azure

Publication type:

Article

Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.

Published in:

Journal of Law, Medicine & Ethics, 2015, v. 43, n. 3, p. 529, doi. 10.1111/jlme.12295

By:

Scollon, Sarah;
Bergstrom, Katie;
McCullough, Laurence B.;
McGuire, Amy L.;
Gutierrez, Stephanie;
Kerstein, Robin;
Parsons, D. Williams;
Plon, Sharon E.

Publication type:

Article

Commentary: Reconstruing genetic research as research.

Published in:

1998

By:

Lysaught, M. Therese

Publication type:

Editorial

Qualitative Research Methodology in the Exploration of Patients' Perceptions of Participating in a Genetic Research Program.

Published in:

Ophthalmic Genetics, 2007, v. 28, n. 3, p. 143, doi. 10.1080/13816810701356627

By:

Basson, Frieda;
Futter, Merle Joyce;
Greenberg, Jacquie

Publication type:

Article

"Bioethics in action" and human population genetics research.

Published in:

2005

By:

Brodwin, Paul

Publication type:

journal article

Unwarranted Optimism in Media Portrayals of Genetic Research on Addiction Overshadows Critical Ethical and Social Concerns.

Published in:

Journal of Health Communication, 2015, v. 20, n. 5, p. 555, doi. 10.1080/10810730.2014.999895

By:

Ostergren, Jenny E.;
Dingel, Molly J.;
McCormick, Jennifer B.;
Koenig, Barbara A.

Publication type:

Article

GENETIC RESEARCH & HUMAN BIOLOGICAL SAMPLES: SOME LEGAL AND ETHICAL CONSIDERATIONS.

Published in:

Medicine & Law (World Association for Medical Law), 2004, v. 23, n. 4, p. 897

By:

Sheikh, Asim A.

Publication type:

Article

Taking a Stand: The Genetics Community's Responsibility for Intelligence Research.

Published in:

Hastings Center Report, 2015, v. 45, p. S54, doi. 10.1002/hast.500

By:

Callier, Shawneequa L.;
Bonham, Vence L.

Publication type:

Article

An Introduction to Thinking about Trustworthy Research into the Genetics of Intelligence.

Published in:

Hastings Center Report, 2015, v. 45, p. S2, doi. 10.1002/hast.491

By:

Parens, Erik;
Appelbaum, Paul S.

Publication type:

Article