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Results: 27

Assessment of joint health in females with haemophilia: The carriers ultrasound project (CUP) study.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1422, doi. 10.1111/hae.15128
By:
- Corrales‐Medina, Fernando F.;
- Fraga, Kelli;
- D'Almeida Bastos, Maria;
- Rafique, Amina;
- Kempton, Christine L.;
- Vijayvargia, Pooja;
- Davis, Joanna A.;
- Kronenfeld, Rachel S.
Publication type:
Article
A core outcome set for prophylaxis and perioperative treatment of von Willebrand disease: The coreVWD initiative.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1357, doi. 10.1111/hae.15122
By:
- Clearfield, Elizabeth;
- Kim, Benjamin;
- Ford, Sarah;
- Connell, Nathan T.;
- Santaella, Maria E.;
- Lavin, Michelle;
- Degenaar‐Dujardin, Manon E. L.;
- Ayoub, Emily;
- Flood, Veronica H.;
- Rotellini, Dawn;
- Skinner, Mark W.;
- James, Paula
Publication type:
Article
Thirty Years of the Journal Haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1255, doi. 10.1111/hae.15127
By:
- Lee, Christine A.
Publication type:
Article
Evaluating the impact of the self‐BAT screening tool on patient outcomes: Results of the let's talk period project.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1400, doi. 10.1111/hae.15113
By:
- McDonald, Laura;
- Grabell, Julie;
- Leung, Jennifer;
- Hopman, Wilma;
- James, Paula
Publication type:
Article
One day at a time: Life with Glanzmann thrombasthenia – Qualitative results from the GT 360 study.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1373, doi. 10.1111/hae.15126
By:
- Khair, Kate;
- Fletcher, Simon;
- Jenner, Kathryn;
- Holland, Michael
Publication type:
Article
Assessment of haemophilic joints in a low‐resourced area using clinical tools: The effect of different types of prophylaxis.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1414, doi. 10.1111/hae.15115
By:
- Youssry, Ilham;
- El‐Taweel, Rania;
- Seif, Hadeel;
- Sami, Rania;
- Okasha, Karim;
- Taha, Ebtehal;
- Haffar, Assad;
- Elhady, Marwa Abd
Publication type:
Article
Performance of instrumental activities of daily living in patients with haemophilic arthropathy. A cross‐sectional cohort study.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1406, doi. 10.1111/hae.15114
By:
- Seoane‐Martín, Marta Elisa;
- Cuesta‐Barriuso, Rubén;
- Rodríguez‐Martínez, María Carmen
Publication type:
Article
The haemophilia joint health score for the assessment of joint health in patients with haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1265, doi. 10.1111/hae.15116
By:
- Ay, Cihan;
- Mancuso, Maria Elisa;
- Matino, Davide;
- Strike, Karen;
- Pasta, Gianluigi
Publication type:
Article
A novel gene editing lexicon strategy for the haemophilia community: Research plan for development and preliminary results.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1272, doi. 10.1111/hae.15108
By:
- Hermans, Cedric;
- Valentino, Leonard A.;
- Thornburg, Courtney D.;
- Unzu, Carmen;
- Kay, Mark A.;
- Peyvandi, Flora;
- Smith, Penni;
- Miesbach, Wolfgang;
- McKeown, William;
- Pierce, Glenn F.;
- Khair, Kate;
- Pipe, Steven W.;
- Starcevic, Katarina;
- Pillai, Monisha;
- Jones, Micheala;
- Chiao, Megan;
- Antonino, Ilia;
- Kessler, Craig
Publication type:
Article
Haemophilia testing of young girls in Canada: Describing the current recommendations for factor level and genetic testing and the experiences of Canadian parents.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1393, doi. 10.1111/hae.15107
By:
- Chaigneau, Megan;
- Grabell, Julie;
- Wijnker, Emil;
- Bowman, Mackenzie;
- James, Paula
Publication type:
Article
NXT007 does not interfere with the anticoagulant effects on tissue factor pathway inhibitor.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1435, doi. 10.1111/hae.15106
By:
- Nakajima, Yuto;
- Ogiwara, Kenichi;
- Inaba, Keito;
- Kitazawa, Takehisa;
- Nogami, Keiji
Publication type:
Article
Evaluating the benefits of emicizumab prophylaxis for haemophilia A with inhibitors: A cost‐effectiveness and budget impact analysis in Thailand's upper‐middle income setting.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1288, doi. 10.1111/hae.15105
By:
- Kengkla, Kirati;
- Wilairat, Preyanate;
- Natesirinilkul, Rungrote;
- Sosothikul, Darintr;
- Phisalprapa, Pochamana;
- Saokaew, Surasak
Publication type:
Article
Voices of patients with hemophilia: Life‐changing gene therapy.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1444, doi. 10.1111/hae.15104
By:
- Pietu, Genevieve;
- Frenzel, Laurent;
- Rauch, Antoine;
- Chambost, Herve;
- Lienhart, Anne;
- Giraud, Nicolas;
- Dargaud, Yesim
Publication type:
Article
Patient‐reported data on the severity of Von Willebrand disease.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1348, doi. 10.1111/hae.15103
By:
- van Kwawegen, Calvin B.;
- Fijnvandraat, Karin;
- Kruip, Marieke J. H. A.;
- de Meris, Joke;
- Schols, Saskia E. M.;
- Meijer, Karina;
- van der Bom, Johanna G.;
- Cnossen, Marjon H.;
- van Galen, Karin P. M.;
- Atiq, Ferdows;
- Eikenboom, Jeroen;
- Leebeek, Frank W. G.
Publication type:
Article
Development of the World Federation of Hemophilia Shared Decision‐Making Tool.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1298, doi. 10.1111/hae.15100
By:
- Coffin, Donna;
- Skinner, Mark W.;
- Thornburg, Courtney D.;
- Hayes, Brendan K.;
- Sannié, Thomas;
- Kaeser, Gwendolyn E.;
- Chadwick, Julia;
- Naccache, Mayss;
- Pierce, Glenn F.
Publication type:
Article
Low vitamin C status and hypermobility‐related disorders in patients with bleeding disorder of unknown cause.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1366, doi. 10.1111/hae.15099
By:
- Leinøe, Eva;
- Fridriksdottir, Halla;
- Rasmussen, Andreas Ørslev;
- Funding, Eva;
- Sørensen, Anne Louise Tølbøll;
- Kampmann, Peter;
- Lykkesfeldt, Jens;
- Rossing, Maria
Publication type:
Article
Women and girls' participation in haemophilia clinical trials.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1440, doi. 10.1111/hae.15101
By:
- Fedewa, Stacey A.;
- Cafuir, Lorraine;
- Valentino, Leonard A.;
- Koo, Andee;
- Antun, Ana;
- Kempton, Christine L.
Publication type:
Article
Pathogenesis of osteoarthritis, rheumatoid arthritis, and hemophilic arthropathy: The role of angiogenesis.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1256, doi. 10.1111/hae.15097
By:
- Caliogna, Laura;
- Berni, Micaela;
- Torriani, Camilla;
- Mancuso, Maria Elisa;
- Di Minno, Matteo Nicola Dario;
- Brancato, Alice Maria;
- Jannelli, Eugenio;
- Mosconi, Mario;
- Pasta, Gianluigi
Publication type:
Article
Efficacy and safety of a recombinant von Willebrand factor treatment in acquired von Willebrand syndrome in case of bleeding and surgical procedures.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1341, doi. 10.1111/hae.15098
By:
- Desprez, Dominique;
- Pierre, Léa;
- Hittinger, Xavier;
- Babuty, Antoine;
- Sattler, Laurent;
- Ternisien, Catherine;
- Herb, Agathe;
- Trossaërt, Marc;
- Gérout, Anne‐Cécile;
- Fouassier, Marc;
- Wimmer, Jordan;
- Feugeas, Olivier;
- Drillaud, Nicolas
Publication type:
Article
Value contribution of etranacogene dezaparvovec gene therapy in moderately severe and severe haemophilia B through multi‐criteria decision analysis.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1281, doi. 10.1111/hae.15096
By:
- García‐Diego, Daniel‐Aníbal;
- Badia, Xavier;
- Benítez‐Hidalgo, Olga;
- Jiménez, Víctor;
- Juárez, Juan Carlos;
- Núñez, Ramiro;
- Poveda, José Luis;
- Trillo, José Luis;
- Vallés, Joan‐Antoni
Publication type:
Article
We need better health‐related quality‐of‐life data for children with haemophilia in lower‐income countries.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1429, doi. 10.1111/hae.15095
By:
- Speckert, Matthew;
- Bijelić, Vid;
- Simpson, Ewurabena;
- Klaassen, Robert J.
Publication type:
Article
Real‐world effectiveness of eptacog beta in patients with haemophilia and inhibitors: A multi‐institutional case series.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1321, doi. 10.1111/hae.15094
By:
- Youkhana, Kimberley;
- Batsuli, Glaivy;
- Acharya, Suchitra;
- Khan, Osman;
- Tran, Duc Q.;
- Dvorak, Andrea;
- Recht, Michael;
- Young, Guy;
- Sidonio, Robert;
- Abajas, Yasmina
Publication type:
Article
Democratisation of physiotherapy for people with haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1432, doi. 10.1111/hae.15092
By:
- Cruz‐Montecinos, Carlos;
- Pérez‐Alenda, Sofía;
- Núñez‐Cortés, Rodrigo;
- Daffunchio, Carla
Publication type:
Article
Determination of body composition by dual x‐ray absorptiometry in persons with haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1332, doi. 10.1111/hae.15091
By:
- Ransmann, Pia;
- Brühl, Marius;
- Hmida, Jamil;
- Goldmann, Georg;
- Oldenburg, Johannes;
- Strauss, Anna Christina;
- Hagedorn, Thorsten;
- Schildberg, Frank Alexander;
- Hilberg, Thomas;
- Strauss, Andreas Christian
Publication type:
Article
Differences and similarities in patient‐reported outcomes among men and women with haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1383, doi. 10.1111/hae.15090
By:
- Kempton, Christine L.;
- Guasch, Sara A.;
- Buckner, Tyler W.;
- Mattis, Shanna;
- Fedewa, Stacey A.
Publication type:
Article
Development of the coreHEM mental health patient‐reported outcome measure – A novel mental health outlook measure for people with haemophilia.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1309, doi. 10.1111/hae.15085
By:
- Clearfield, Elizabeth;
- Chang, Hsing‐Yuan;
- Janssen, Ellen M.;
- Majid, Tabassum;
- Messner, Donna A.;
- Coffin, Donna;
- Jain, Mohit;
- Monahan, Paul E.;
- Valentino, Leonard A.;
- Witkop, Michelle;
- Skinner, Mark W.
Publication type:
Article
Issue Information.
Published in:
Haemophilia, 2024, v. 30, n. 6, p. 1251, doi. 10.1111/hae.14733
Publication type:
Article