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FIXing postinfusion monitoring: Assay experiences with N9‐GP (nonacog beta pegol; Refixia<sup>®</sup>; Rebinyn<sup>®</sup>).
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 154, doi. 10.1111/hae.13671
By:
- Ezban, Mirella;
- Hermit, Mette Brunsgaard;
- Persson, Egon
Publication type:
Article
The invisible child: Sibling experiences of growing up with a brother with severe haemophilia—An interpretative phenomenological analysis.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 84, doi. 10.1111/hae.13659
By:
- Tregidgo, Catherine;
- Elander, James
Publication type:
Article
Mycophenolate mofetil as adjunctive therapy in acquired haemophilia A.
Published in:
2019
By:
- Obaji, Samya;
- Rayment, Rachel;
- Collins, Peter W.
Publication type:
Letter to the Editor
Accurate measurement of extended half‐life and unmodified factor VIII low levels with one‐stage FVIII assays is dependent on the matrix of calibration curves.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. e19, doi. 10.1111/hae.13656
By:
- Van den Bossche, Dorien;
- Toelen, Jelle;
- Schoeters, Joke;
- Van Horenbeeck, Isa;
- Vanlinthout, Ingrid;
- Debasse, Mirjam;
- Jacquemin, Marc;
- Peerlinck, Kathelijne
Publication type:
Article
A rare presentation of homozygous factor X deficiency in a pregnant patient: A case report and review of the literature.
Published in:
2019
By:
- Dievoet, Marie‐Astrid;
- Jacquemin, Marc;
- Van Calsteren, Kristel;
- Peerlinck, Kathelijne
Publication type:
Case Study
A single‐centre study of management of pregnant women with von Willebrand disease.
Published in:
2019
By:
- Dargaud, Yesim;
- Chamouard, Valérie;
- Le Quellec, Sandra;
- Lienhart, Anne;
- Meunier, Sandrine;
- Rugeri, Lucia;
- Xu, Zizhen
Publication type:
Letter to the Editor
Whole exome sequencing in the diagnostic workup of patients with a bleeding diathesis.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 127, doi. 10.1111/hae.13638
By:
- Blijlevens, Nicole M. A.;
- Smit, Yolba;
- Saes, Joline L.;
- Schols, Saskia E. M.;
- van Heerde, Waander L.;
- Brons, Paul P.;
- Simons, Annet;
- de Munnik, Sonja A.;
- Jongmans, Marjolijn C.;
- Nijziel, Marten R.;
- van der Reijden, Bert A.
Publication type:
Article
Posturographic and ankle muscle activation characteristics in patients with haemophilia.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 136, doi. 10.1111/hae.13650
By:
- Kurz, Eduard;
- Hilberg, Thomas;
- Herbsleb, Marco;
- Gabriel, Holger H. W.
Publication type:
Article
Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia‐specific instruments.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. e1, doi. 10.1111/hae.13631
By:
- Peters, Marjolein;
- Gouw, Samantha C.;
- Timmer, Merel A.;
- Fischer, Kathelijn;
- Kleijn, Piet;
- Srivastava, Alok;
- Hilliard, Pamela;
- Blanchette, Victor
Publication type:
Article
A case of moderate haemophilia A with inhibitor, carrying the p.R1800H mutation, complicated with juvenile idiopathic arthritis.
Published in:
2019
By:
- Kondo, Yuka;
- Shida, Yasuaki;
- Ishikawa, Tomoaki;
- Yada, Koji;
- Takeyama, Masahiro;
- Shima, Midori;
- Nogami, Keiji
Publication type:
Case Study
Over two decades of orthopaedic surgery in patients with inhibitors—Quantifying the complication of bleeding.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 21, doi. 10.1111/hae.13647
By:
- Erturan, Gurhan;
- Guevel, Borna;
- Goddard, Nicholas J.;
- Alvand, Abtin
Publication type:
Article
Potential limits of AAV‐based gene therapy with the use of new transgenes expressing factor IX fusion proteins.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. e11, doi. 10.1111/hae.13651
By:
- Le Quellec, Sandra;
- Enjolras, Nathalie;
- Negrier, Claude;
- Dane, Allison;
- McIntosh, Jenny;
- Rosales, Cecilia;
- Nathwani, Amit
Publication type:
Article
The prevalence and burden of hand and wrist bleeds in von Willebrand disease.
Published in:
2019
By:
- van Deukeren, Désirée;
- Mauser‐Bunschoten, Eveline P.;
- Schutgens, Roger E. G.;
- van Galen, Karin P. M.;
- Leebeek, Frank W. G.;
- Eikenboom, Jeroen;
- Meijer, Karina;
- Fijnvandraat, Karin;
- Laros‐van Gorkom, Britta A. P.;
- Cnossen, Marjon;
- de Meris, Joke;
- van der Bom, Johanna G.
Publication type:
Letter to the Editor
Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 75, doi. 10.1111/hae.13649
By:
- Chai‐Adisaksopha, Chatree;
- Crowther, Mark A.;
- Iorio, Alfonso;
- Stonebraker, Jeffrey;
- Thabane, Lehana;
- Skinner, Mark W.;
- Curtis, Randall;
- Frick, Neil;
- Nichol, Michael B.;
- Noone, Declan;
- O'Mahony, Brian;
- Page, David
Publication type:
Article
Does haemophilia slow down the development of liver fibrosis?
Published in:
2019
By:
- van Dievoet, Marie‐Astrid;
- Leclercq, Isabelle;
- Hermans, Cedric;
- Lambert, Catherine;
- Horsmans, Yves;
- Jacquemin, Marc;
- Eeckhoudt, Stéphane
Publication type:
Letter to the Editor
A novel approach to immune tolerance induction in haemophilia A with factor VIII inhibitor.
Published in:
2019
By:
- Thornburg, Courtney D.;
- Ducore, Jonathan
Publication type:
Letter to the Editor
Samuel Armstrong Lane's first successful treatment of haemophilia with blood transfusion in 1840: Could this also be the first successful bypassing therapy?
Published in:
2019
By:
- Poon, Man‐Chiu;
- Card, Robert T.
Publication type:
Letter to the Editor
Analytical variation in factor VIII one‐stage and chromogenic assays: Experiences from the ECAT external quality assessment programme.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 162, doi. 10.1111/hae.13643
By:
- van Moort, Iris;
- Cnossen, Marjon H.;
- Meijer, Piet;
- Priem‐Visser, Debby;
- Leebeek, Frank W. G.;
- de Maat, Moniek P. M.;
- van Gammeren, Adriaan J.;
- Péquériaux, Nathalie C. V.
Publication type:
Article
Cardiovascular disease‐related hospitalization and mortality among persons with von Willebrand disease: A nationwide register study in Sweden.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 109, doi. 10.1111/hae.13642
By:
- Holm, Elena;
- Osooli, Mehdi;
- Berntorp, Erik;
- Steen Carlsson, Katarina
Publication type:
Article
Emicizumab: Review of the literature and critical appraisal.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 11, doi. 10.1111/hae.13641
By:
- Rodriguez‐Merchan, E. Carlos;
- Valentino, Leonard A.
Publication type:
Article
Intravenous immunoglobulin in patients with acquired Von Willebrand syndrome: A single referral centre experience.
Published in:
2019
By:
- Bertolino, Julien;
- Seguier, Julie;
- Masson, Elodie;
- Bernit, Emmanuelle;
- Veit, Veronique;
- Ebbo, Mikael;
- Harlé, Jean‐Robert;
- Schleinitz, Nicolas;
- Khibri, Hajar;
- Pouymayou, Catherine;
- Ibrahim, Manal;
- Morange, Pierre‐Emmanuel
Publication type:
Letter to the Editor
Thromboelastometry profiles after "in vitro" addition of a new plasma‐derived factor V concentrate to whole blood from parahaemophilia patients.
Published in:
2019
By:
- Bulato, Cristiana;
- Radu, Claudia Maria;
- Spiezia, Luca;
- Campello, Elena;
- Simioni, Paolo;
- Barillari, Giovanni;
- Pradella, Paola
Publication type:
Letter to the Editor
Utility valuation of health states for haemophilia and related complications in Europe and in the United States.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 92, doi. 10.1111/hae.13634
By:
- Hoxer, Christina S.;
- Zak, Marek;
- Benmedjahed, Khadra;
- Lambert, Jérémy
Publication type:
Article
Recommendations for the clinical interpretation of genetic variants and presentation of results to patients with inherited bleeding disorders. A UK Haemophilia Centre Doctors' Organisation Good Practice Paper.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 116, doi. 10.1111/hae.13637
By:
- Gomez, Keith;
- Laffan, Mike;
- Keeney, Steve;
- Sutherland, Megan;
- Curry, Nikki;
- Lunt, Peter
Publication type:
Article
Joint status in Spanish haemophilia B patients assessed using the Haemophilia Early Arthropathy Detection with Ultrasound (HEAD‐US) score.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 144, doi. 10.1111/hae.13628
By:
- Jiménez‐Yuste, Victor;
- Álvarez‐Román, María Teresa;
- Martín‐Salces, Mónica;
- De la Corte‐Rodríguez, Hortensia;
- Bermejo, Nuria;
- Pérez‐González, Noelia;
- Gutiérrez‐Pimentel, María José;
- Martinoli, Carlo;
- Fernández‐Arias, Isabel;
- Kim, Hae Kyung;
- Altisent, Carmen;
- Parra, Rafael;
- Núñez, Ramiro;
- Pérez, Rosario;
- García‐Candel, Faustino;
- Bonanad, Santiago;
- Querol, Felipe;
- Alonso, Nieves;
- Fernández‐Mosteirín, Nuria;
- López‐Ansoar, Elsa
Publication type:
Article
Prevalence of FVIII inhibitors in severe haemophilia A patients: Effect of treatment and genetic factors in an Indian population.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 67, doi. 10.1111/hae.13633
By:
- David, Sachin;
- Alex, Ansu Abu;
- Ganesan, Saravanan;
- Palani, Hamenth Kumar;
- Balasundaram, Nithya;
- Lakshmi, Kavitha M.;
- Korula, Anu;
- Nambiatheyil Aboobacker, Fouzia;
- Abraham, Aby;
- George, Biju;
- Srivastava, Alok;
- Mathews, Vikram;
- Nair, Sukesh C.;
- Singh, G. Surender;
- Joshi, Aditi;
- Kannan, S.;
- Apte, Shashikant Janardan
Publication type:
Article
Issue Information.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 5, doi. 10.1111/hae.13572
Publication type:
Article
Sports participation and physical activity in patients with von Willebrand disease.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 101, doi. 10.1111/hae.13629
By:
- Atiq, Ferdows;
- Leebeek, Frank W. G.;
- Nieuwenhuizen, Laurens;
- van der Bom, Johanna G.;
- Fijnvandraat, Karin;
- Mauser‐Bunschoten, Eveline P.;
- van Galen, Karin P. M.;
- Eikenboom, Jeroen;
- Meijer, Karina;
- de Meris, Joke;
- Cnossen, Marjon H.;
- Beckers, Erick A. M.;
- Laros‐van Gorkom, Britta A. P.
Publication type:
Article
Concizumab restores thrombin generation potential in patients with haemophilia: Pharmacokinetic/pharmacodynamic modelling results of concizumab phase 1/1b data.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 60, doi. 10.1111/hae.13627
By:
- Eichler, Hermann;
- Angchaisuksiri, Pantep;
- Kavakli, Kaan;
- Knoebl, Paul;
- Windyga, Jerzy;
- Jiménez‐Yuste, Victor;
- Harder Delff, Philip;
- Chowdary, Pratima
Publication type:
Article
Severe acquired von Willebrand syndrome secondary to systemic lupus erythematosus.
Published in:
2019
By:
- Stufano, Francesca;
- Baronciani, Luciano;
- Biguzzi, Eugenia;
- Cozzi, Giovanna;
- Colpani, Paola;
- Chisini, Marta;
- Peyvandi, Flora
Publication type:
Letter to the Editor
Continuous infusion of simoctocog alfa in haemophilia A patients undergoing surgeries.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 54, doi. 10.1111/hae.13625
By:
- Holme, Pål Andre;
- Tjønnfjord, Geir E.
Publication type:
Article
Health‐related quality of life in paediatric haemophilia B patients treated with rIX‐FP.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 45, doi. 10.1111/hae.13624
By:
- von Mackensen, Sylvia;
- Shah, Jinesh;
- Seifert, Wilfried;
- Kenet, Gili
Publication type:
Article
Assessment of tensile mechanical properties of the Achilles tendon in adult patients with haemophilic arthropathy. Reproducibility study.
Published in:
2019
By:
- Cruz‐Montecinos, Carlos;
- Pérez‐Alenda, Sofía;
- Querol, Felipe;
- Contreras‐Sepúlveda, Felipe;
- Cerda, Mauricio;
- Maas, Huub
Publication type:
Letter to the Editor
The effect of emicizumab prophylaxis on health‐related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 33, doi. 10.1111/hae.13618
By:
- Oldenburg, Johannes;
- Negrier, Claude;
- Kessler, Craig;
- Windyga, Jerzy;
- Shima, Midori;
- von Mackensen, Sylvia;
- Mahlangu, Johnny N.;
- Bujan, Willem;
- Trask, Peter;
- Xu, Jin;
- Callaghan, Michael U.;
- Young, Guy;
- Asikanius, Elina;
- Peyvandi, Flora;
- Santagostino, Elena;
- Kruse‐Jarres, Rebecca
Publication type:
Article
Instructions for Authors.
Published in:
Haemophilia, 2019, v. 25, n. 1, p. 170, doi. 10.1111/hae.13571
Publication type:
Article

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