Works matching DE "PATIENT participation"

Results: 5000
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    European Reference Network (ERN) ReCONNET methodology for the cross-cultural adaptation of instruments for research and care in the context of rare connective tissue diseases (CROSSADAPT).

    Published in:
    Orphanet Journal of Rare Diseases, 2025, v. 20, n. 1, p. 1, doi. 10.1186/s13023-025-03674-8
    By:
    • Arnaud, Laurent;
    • Sander, Oliver;
    • Rednic, Simona;
    • Mertz, Philippe;
    • Faria, Raquel;
    • Crisafulli, Francesca;
    • Silva-Ribeiro, Sofia;
    • Kawka, Lou;
    • Sztejkowski, Cedric;
    • Düsing, Christina;
    • Rose, Thomas;
    • Lamas, Antonio;
    • Vasconcelos, Carlos;
    • Fontana, Giulia;
    • Semeraro, Paolo;
    • Neagu, Teodora;
    • Resteu, Mihaela;
    • Damian, Laura;
    • Pamfil, Cristina;
    • Bucsa, Camelia
    Publication type:
    Article
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    A stakeholder-involved adaptation of pathways and resources for engagement and participation (PREP) material with young adults with complex disability in Australia: an implementation feasibility study.

    Published in:
    Disability & Rehabilitation, 2025, v. 47, n. 10, p. 2586, doi. 10.1080/09638288.2024.2397083
    By:
    • Cassidy, Annabelle;
    • Bannon, Natasha;
    • Wallen, Margaret;
    • Dimarco, Alessandra;
    • Garrity, Natasha;
    • Hunter, Oliver;
    • Anaby, Dana;
    • Fredrickson, Emma;
    • Cowan, Harry;
    • Knudsen, Dewa;
    • Thornton, Scott;
    • Imms, Christine
    Publication type:
    Article
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    An Adapted Friendship Bench Counseling Intervention (FB) to Improve Mental Health and HIV Care Engagement Outcomes Among People Living with HIV (PWH) Who Inject Drugs in Hanoi, Vietnam: Results from the VITAL Pilot Randomized Controlled Trial.

    Published in:
    AIDS & Behavior, 2025, v. 29, n. 6, p. 1761, doi. 10.1007/s10461-025-04645-7
    By:
    • Gaynes, Bradley N.;
    • Tran, Ha V.;
    • Nong, Ha T. T.;
    • Filipowicz, Teresa R.;
    • Landrum, Kelsey R.;
    • Tran, Thuy T. T.;
    • Nguyen, Vu Q.;
    • Verhey, Ruth;
    • Nguyen, Ha Nhat;
    • Giang, Le Minh;
    • Pence, Brian W.
    Publication type:
    Article
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    An expert patient program for people living with multiple sclerosis improves knowledge and empowerment: a pre-test, post-test multicenter implementation study.

    Published in:
    Frontiers in Neurology, 2025, p. 1, doi. 10.3389/fneur.2025.1581038
    By:
    • Robles-Sánchez, Miguel Ángel;
    • Amil-Bujan, Paloma;
    • Bosch-Farré, Cristina;
    • Coll-Martínez, Clàudia;
    • Arévalo, María Jesús;
    • Anglada-Clofent, Elisenda;
    • Menéndez-Díaz, Rebeca;
    • Aroca-Alsina, Montserrat;
    • Merchan-Ruiz, Miguel;
    • Pérez-Hoyos, Santiago;
    • Arévalo-Bernabé, Ángel Guillermo;
    • Montalban, Xavier;
    • Hernando, Ana;
    • LLufriú, Sara;
    • Peralta-Moncusí, Silvia;
    • Brieva, Lluís;
    • Ramo-Tello, Cristina;
    • Carabí, Mariona;
    • Solà-Valls, Nuria;
    • Zabay, Maria Cinta
    Publication type:
    Article
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    Defining Excellence: The First Core Set of Quality Indicators for the European Paediatric Surgical Audit on Hirschsprung's Disease Care.

    Published in:
    Acta Paediatrica, 2025, v. 114, n. 6, p. 1464, doi. 10.1111/apa.17594
    By:
    • Rossi, Daniel;
    • Granström, Anna Löf;
    • Pakarinen, Mikko;
    • Bjørnland, Kristin;
    • de Blaauw, Ivo;
    • Ellebæk, Mark;
    • Leon, Francesco Fascetti;
    • Gloudemans, Dirk‐Jan;
    • Prato, Alessio Pini;
    • Rolle, Udo;
    • Schwarzer, Nicole;
    • Tabbers, Merit;
    • Vilanova, Alejandra;
    • Wijnen, Rene;
    • Sloots, Cornelius E. J.;
    • Wester, Tomas;
    • Tambucci, R.;
    • Vercauteren, C.;
    • Bagolan, P.;
    • Hubertus, J.
    Publication type:
    Article
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    Which Benefits Can Justify Risks in Research?

    Published in:
    American Journal of Bioethics, 2025, v. 25, n. 5, p. 65, doi. 10.1080/15265161.2023.2296404
    By:
    • van Rijssel, Tessa I.;
    • van Thiel, Ghislaine J. M. W.;
    • Gardarsdottir, Helga;
    • van Delden, Johannes J. M.
    Publication type:
    Article
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    Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials.

    Published in:
    Trials, 2025, v. 26, n. 1, p. 1, doi. 10.1186/s13063-025-08846-2
    By:
    • Thombs, Brett D.;
    • Adams, Claire;
    • Nassar, Elsa-Lynn;
    • Carrier, Marie-Eve;
    • Golberg, Meira;
    • Bharthi, Kanika;
    • Wurz, Amanda;
    • South, Annabelle;
    • Kwakkenbos, Linda;
    • Hoa, Sabrina;
    • Rice, Danielle B.;
    • Guillot, Geneviève;
    • Lawrie-Jones, Amanda;
    • Sauvé, Maureen;
    • Bartlett, Susan J.;
    • Fortune, Catherine;
    • Gietzen, Amy;
    • Gottesman, Karen;
    • Hudson, Marie;
    • Hummers, Laura K.
    Publication type:
    Article
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