Title: CONNECTing Concussion Care with Research Across Ontario.
Authors: Hunt, Cindy; MacKenzie, Heather; Dosaj, Anil; Zych, Justina; Tartaglia, Carmela; Bayley, Mark; Wilcock, Ruth; Zabjek, Karl; Burke, Matthew; Kristman, Vicki; Hardy, Billie; Fischer, Lisa K.; Baker, Andrew
Abstract: Common data elements (CDEs) for concussion, as established by international bodies, are not being widely used in Ontario, resulting in significant variability in the data being assessed and collected across clinics. CDEs support standardization of care as well as large-scale data sharing for high impact research. A collaborative network – Concussion Ontario Network: Neuroinformatics to Enhance Clinical care and Translation (CONNECT) – comprised of health care professionals, researchers, members from advocacy groups, and patients was formed to establish and implement CDEs for concussion care and research. While the seeds have been planted and initial effectiveness demonstrated, future challenges exist.
Subjects: MEDICAL personnel; BRAIN concussion; BRAIN injuries; PRESSURE groups; RESEARCH personnel
Publication: Canadian Journal of Neurological Sciences, 2024, Vol 51, Issue 6, p855
ISSN: 0317-1671
Publication type: Academic Journal
DOI: 10.1017/cjn.2023.326

CONNECTing Concussion Care with Research Across Ontario.

Hunt, Cindy; MacKenzie, Heather; Dosaj, Anil; Zych, Justina; Tartaglia, Carmela; Bayley, Mark; Wilcock, Ruth; Zabjek, Karl; Burke, Matthew; Kristman, Vicki; Hardy, Billie; Fischer, Lisa K.; Baker, Andrew