Caregiver Preferences for Emerging Duchenne Muscular Dystrophy Treatments: A Comparison of Best-Worst Scaling and Conjoint Analysis.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 19, doi. 10.1007/s40271-014-0104-x
- By:
- Publication type:
- Article
Works matching IS 11781653 AND DT 2015 AND VI 8 AND IP 1
Results: 12
1
2
An Asia Pacific Alliance for Rare Diseases.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 11, doi. 10.1007/s40271-014-0103-y
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- Publication type:
- Article
3
Developing a Patient-Directed Policy Framework for Managing Orphan and Ultra-Orphan Drugs Throughout Their Lifecycle.
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- Patient, 2015, v. 8, n. 1, p. 103, doi. 10.1007/s40271-014-0108-6
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- Publication type:
- Article
4
Challenges in Measuring the Societal Value of Orphan Drugs: Insights from a Canadian Stated Preference Survey.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 93, doi. 10.1007/s40271-014-0109-5
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- Publication type:
- Article
5
The Imperative for Patient-Centred Research to Develop Better Quality Services in Rare Diseases.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 1, doi. 10.1007/s40271-015-0113-4
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- Publication type:
- Article
6
Identifying the Benefits and Risks of Emerging Treatments for Idiopathic Pulmonary Fibrosis: A Qualitative Study.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 85, doi. 10.1007/s40271-014-0081-0
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- Publication type:
- Article
7
Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 65, doi. 10.1007/s40271-014-0085-9
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- Publication type:
- Article
8
Personal Reflections of a Patient Representative in an Appraisal Committee.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 5, doi. 10.1007/s40271-014-0086-8
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- Publication type:
- Article
9
How Narrative Journalistic Stories Can Communicate the Individual's Challenges of Daily Living with Amyotrophic Lateral Sclerosis.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 41, doi. 10.1007/s40271-014-0088-6
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- Publication type:
- Article
10
Development and Use of New Therapeutics for Rare Diseases: Views from Patients, Caregivers, and Advocates.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 75, doi. 10.1007/s40271-014-0096-6
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- Publication type:
- Article
11
Adopting a Sustainable Community of Practice Model when Developing a Service to Support Patients with Epidermolysis Bullosa (EB): A Stakeholder-Centered Approach.
- Published in:
- Patient, 2015, v. 8, n. 1, p. 51, doi. 10.1007/s40271-014-0097-5
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- Publication type:
- Article
12
Involving Patients in Reducing Decision Uncertainties Around Orphan and Ultra-Orphan Drugs: A Rare Opportunity?
- Published in:
- Patient, 2015, v. 8, n. 1, p. 29, doi. 10.1007/s40271-014-0106-8
- By:
- Publication type:
- Article