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Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings.
Published in:
Quality of Life Research, 2021, v. 30, n. 11, p. 3015, doi. 10.1007/s11136-020-02564-9
By:
- Stover, Angela M.;
- Haverman, Lotte;
- van Oers, Hedy A.;
- Greenhalgh, Joanne;
- Potter, Caroline M.;
- On behalf of the ISOQOL PROMs/PREMs in Clinical Practice Implementation Science Work Group;
- Ahmed, Sara;
- Gibbons, Elizabeth;
- Manalili, Kimberly;
- Potter, Caroline;
- Roberts, Natasha;
- Santana, Maria;
- van Oers, Hedy
Publication type:
Article
From statistics to clinics: the visual feedback of PROMIS® CATs.
Published in:
Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00324-y
By:
- van Muilekom, Maud M.;
- Luijten, Michiel A. J.;
- van Oers, Hedy A.;
- Terwee, Caroline B.;
- van Litsenburg, Raphaële R. L.;
- Roorda, Leo D.;
- Grootenhuis, Martha A.;
- Haverman, Lotte
Publication type:
Article
Psychosocial developmental milestones of young adult survivors of childhood cancer.
Published in:
Supportive Care in Cancer, 2022, v. 30, n. 8, p. 6839, doi. 10.1007/s00520-022-07113-3
By:
- Maurice-Stam, Heleen;
- van Erp, Loes M. E.;
- Maas, Anne;
- van Oers, Hedy A.;
- Kremer, Leontien C. M.;
- van Dulmen-den Broeder, Eline;
- Tissing, Wim J. E.;
- Loonen, Jacqueline J.;
- van der Pal, Helena J. H.;
- Beek, Laura R.;
- de Vries, Andrica C. H.;
- van den Heuvel-Eibrink, Marry M.;
- Ronckers, Cécile M.;
- Bresters, Dorine;
- Louwerens, Marloes;
- van der Heiden-van der Loo, Margriet;
- Huizinga, Gea A.;
- Grootenhuis, Martha A.
Publication type:
Article
Mental and Social Health of Children and Adolescents With Pre-existing Mental or Somatic Problems During the COVID-19 Pandemic Lockdown.
Published in:
Frontiers in Psychiatry, 2021, v. 12, p. 1, doi. 10.3389/fpsyt.2021.692853
By:
- Zijlmans, Josjan;
- Teela, Lorynn;
- van Ewijk, Hanneke;
- Klip, Helen;
- van der Mheen, Malindi;
- Ruisch, Hyun;
- Luijten, Michiel A. J.;
- van Muilekom, Maud M.;
- Oostrom, Kim J.;
- Buitelaar, Jan;
- Hoekstra, Pieter J.;
- Lindauer, Ramón;
- Popma, Arne;
- Staal, Wouter;
- Vermeiren, Robert;
- van Oers, Hedy A.;
- Haverman, Lotte;
- Polderman, Tinca J. C.
Publication type:
Article
Health-related quality of life of children with first onset steroid-sensitive nephrotic syndrome.
Published in:
European Journal of Pediatrics, 2023, v. 182, n. 10, p. 4605, doi. 10.1007/s00431-023-05135-5
By:
- Veltkamp, Floor;
- Teela, Lorynn;
- Luijten, Michiel A. J.;
- van Oers, Hedy A.;
- Mak-Nienhuis, Elske M.;
- Haverman, Lotte;
- Bouts, Antonia H. M.;
- on behalf of the LEARNS consortium;
- Adeel, Abdul;
- Bael, Anna;
- Buter, Nynke H.;
- van der Deure, Hans;
- Dorresteijn, Eiske;
- Florquin, Sandrine;
- Gracchi, Valentina;
- Horuz, Flore;
- Kloosterman-Eijgenraam, Francis;
- Levtchenko, Elena;
- Mathôt, Ron A. A.;
- Oversteege, Floor
Publication type:
Article
Heritable connective tissue disorders in childhood: Decreased health‐related quality of life and mental health.
Published in:
American Journal of Medical Genetics. Part A, 2022, v. 188, n. 7, p. 2096, doi. 10.1002/ajmg.a.62750
By:
- Warnink‐Kavelaars, Jessica;
- de Koning, Lisanne E.;
- Rombaut, Lies;
- Menke, Leonie A.;
- Alsem, Mattijs W.;
- van Oers, Hedy A.;
- Buizer, Annemieke I.;
- Engelbert, Raoul H. H.;
- Oosterlaan, Jaap
Publication type:
Article
Health-related quality of life in children with Robin sequence.
Published in:
American Journal of Medical Genetics. Part A, 2017, v. 173, n. 1, p. 54, doi. 10.1002/ajmg.a.37968
By:
- Basart, Hanneke;
- van Oers, Hedy A.;
- Paes, Emma C.;
- Breugem, Corstiaan C.;
- Don Griot, J. Peter W.;
- van der Horst, Chantal M. A. M.;
- Haverman, Lotte;
- Hennekam, Raoul C.
Publication type:
Article
Internalizing problems before and during the COVID-19 pandemic in independent samples of Dutch children and adolescents with and without pre-existing mental health problems.
Published in:
European Child & Adolescent Psychiatry, 2023, v. 32, n. 10, p. 1873, doi. 10.1007/s00787-022-01991-y
By:
- Fischer, Karen;
- Tieskens, Jacintha M.;
- Luijten, Michiel A. J.;
- Zijlmans, Josjan;
- van Oers, Hedy A.;
- de Groot, Rowdy;
- van der Doelen, Daniël;
- van Ewijk, Hanneke;
- Klip, Helen;
- van der Lans, Rikkert M.;
- De Meyer, Ronald;
- van der Mheen, Malindi;
- van Muilekom, Maud M.;
- Hyun Ruisch, I.;
- Teela, Lorynn;
- van den Berg, Germie;
- Bruining, Hilgo;
- van der Rijken, Rachel;
- Buitelaar, Jan;
- Hoekstra, Pieter J.
Publication type:
Article
The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department.
Published in:
International Journal of Environmental Research & Public Health, 2022, v. 19, n. 9, p. 5338, doi. 10.3390/ijerph19095338
By:
- Veltkamp, Floor;
- Teela, Lorynn;
- van Oers, Hedy A.;
- Haverman, Lotte;
- Bouts, Antonia H. M.
Publication type:
Article
Distress in parents of children with first-onset steroid-sensitive nephrotic syndrome.
Published in:
Pediatric Nephrology, 2023, v. 38, n. 12, p. 4013, doi. 10.1007/s00467-023-06038-1
By:
- Veltkamp, Floor;
- van Oers, Hedy A.;
- Teela, Lorynn;
- Mak-Nienhuis, Elske M.;
- Haverman, Lotte;
- Bouts, Antonia H. M.;
- Bael, Anna;
- Buter, Nynke;
- van der Deure, Hans;
- Dorresteijn, Eiske;
- Florquin, Sandrine;
- Gracchi, Valentina;
- Engels, Flore;
- Kloosterman-Eijgenraam, Francis;
- Levtchenko, Elena;
- Mak-Nienhuis, Elske;
- Mathôt, Ron;
- Oversteege, Floor;
- de Pont, Saskia;
- van Rooij-Kouwenhoven, Roos
Publication type:
Article
The challenges of classical galactosemia: HRQoL in pediatric and adult patients.
Published in:
Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02749-8
By:
- Hermans, Merel E.;
- van Oers, Hedy A.;
- Geurtsen, Gert J.;
- Haverman, Lotte;
- Hollak, Carla E. M.;
- Rubio-Gozalbo, M. Estela;
- Bosch, Annet M.
Publication type:
Article
Changes in child and adolescent mental health across the COVID‐19 pandemic (2018–2023): Insights from general population and clinical samples in the Netherlands.
Published in:
JCPP Advances, 2024, v. 4, n. 3, p. 1, doi. 10.1002/jcv2.12213
By:
- van Oers, Hedy A.;
- Alrouh, Hekmat;
- Tieskens, Jacintha M.;
- Luijten, Michiel A. J.;
- de Groot, Rowdy;
- Broek, Emma;
- van der Doelen, Daniël;
- Klip, Helen;
- De Meyer, Ronald;
- van der Mheen, Malindi;
- Ruisch, I. Hyun;
- van den Berg, Germie;
- Bruining, Hilgo;
- Buitelaar, Jan;
- van der Rijken, Rachel;
- Hoekstra, Pieter J.;
- Kleinjan, Marloes;
- Lindauer, Ramón;
- Oostrom, Kim J.;
- Staal, Wouter
Publication type:
Article
The effects of COVID-19 on child mental health: Biannual assessments up to April 2022 in a clinical and two general population samples.
Published in:
JCPP Advances, 2023, v. 3, n. 2, p. 1, doi. 10.1002/jcv2.12150
By:
- Zijlmans, Josjan;
- Tieskens, Jacintha M.;
- van Oers, Hedy A.;
- Alrouh, Hekmat;
- Luijten, Michiel A. J.;
- de Groot, Rowdy;
- van der Doelen, Daniël;
- Klip, Helen;
- van der Lans, Rikkert M.;
- de Meyer, Ronald;
- van der Mheen, Malindi;
- Ruisch, I. Hyun;
- van den Berg, Germie;
- Bruining, Hilgo;
- Buitelaar, Jan;
- van der Rijken, Rachel;
- Hoekstra, Pieter J.;
- Kleinjan, Marloes;
- Lindauer, Ramón J. L.;
- Oostrom, Kim J.
Publication type:
Article
Pediatric patient engagement in clinical care, research and intervention development: a scoping review.
Published in:
Journal of Patient-Reported Outcomes, 2023, v. 7, n. 1, p. 1, doi. 10.1186/s41687-023-00566-y
By:
- Teela, Lorynn;
- Verhagen, Lieke E.;
- van Oers, Hedy A.;
- Kramer, Esmée E. W.;
- Daams, Joost G.;
- Gruppen, Mariken P.;
- Santana, Maria J.;
- Grootenhuis, Martha A.;
- Haverman, Lotte
Publication type:
Article
Development of a set of patient reported outcome measures for patients with benign liver tumours and cysts: patient focus groups and systematic review.
Published in:
Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00531-1
By:
- Furumaya, Alicia;
- Nooijen, Lynn E.;
- Haring, Martijn P. D.;
- van Oers, Hedy A.;
- van Beneden, Marlou;
- van Rosmalen, Belle V.;
- Takkenberg, R. Bart;
- Kazemier, Geert;
- Besselink, Marc G.;
- de Meijer, Vincent E.;
- Erdmann, Joris I.
Publication type:
Article
Health‐related quality of life in infants, toddlers and young children with sickle cell disease.
Published in:
Pediatric Blood & Cancer, 2022, v. 69, n. 1, p. 1, doi. 10.1002/pbc.29358
By:
- Houwing, Maite E.;
- Muntendam, Madieke J.;
- van Muilekom, Maud M.;
- Teela, Lorynn;
- Fijnvandraat, Karin;
- de Pagter, Anne P. J.;
- Heijboer, Henriëtte;
- van Oers, Hedy A.;
- Cnossen, Marjon H.;
- Haverman, Lotte
Publication type:
Article
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version.
Published in:
Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/1477-7525-12-9
By:
- Limperg, Perrine F.;
- Haverman, Lotte;
- van Oers, Hedy A.;
- van Rossum, Marion A. J.;
- Maurice-Stam, Heleen;
- Grootenhuis, Martha A.
Publication type:
Article
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version.
Published in:
2014
By:
- Limperg, Perrine F;
- Haverman, Lotte;
- van Oers, Hedy A;
- van Rossum, Marion Aj;
- Maurice-Stam, Heleen;
- Grootenhuis, Martha A;
- van Rossum, Marion A J
Publication type:
journal article
Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition.
Published in:
2022
By:
- Nagelkerke, Sjoerd C.J.;
- van Oers, Hedy A.;
- Haverman, Lotte;
- Vlug, Lotte E.;
- de Koning, Barbara A.E.;
- Benninga, Marc A.;
- Tabbers, Merit M.
Publication type:
journal article
Health-Related Quality of Life and Distress of Parents of Children With Avoidant Restrictive Food Intake Disorder.
Published in:
2021
By:
- Krom, Hilde;
- van Oers, Hedy A.;
- van der Sluijs Veer, Liesbeth;
- van Zundert, Suzanne M. C.;
- Otten, Marie-Anne G. M.;
- Haverman, Lotte;
- Benninga, Marc A.;
- Kindermann, Angelika
Publication type:
journal article
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention.
Published in:
Maternal & Child Health Journal, 2020, v. 24, n. 10, p. 1238, doi. 10.1007/s10995-020-02925-3
By:
- Douma, Miriam;
- Bouman, Charlotte P.;
- van Oers, Hedy A.;
- Maurice-Stam, Heleen;
- Haverman, Lotte;
- Grootenhuis, Martha A.;
- Scholten, Linde
Publication type:
Article
Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.
Published in:
Quality of Life Research, 2022, v. 31, n. 1, p. 241, doi. 10.1007/s11136-021-02950-x
By:
- van Muilekom, Maud M.;
- Teela, Lorynn;
- van Oers, Hedy A.;
- van Goudoever, Johannes B.;
- Grootenhuis, Martha A.;
- Haverman, Lotte
Publication type:
Article
Correction to: Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.
Published in:
2022
By:
- van Muilekom, Maud M.;
- Teela, Lorynn;
- van Oers, Hedy A.;
- van Goudoever, Johannes B.;
- Grootenhuis, Martha A.;
- Haverman, Lotte
Publication type:
Correction Notice
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR).
Published in:
2021
By:
- van Oers, Hedy A.;
- Teela, Lorynn;
- Schepers, Sasja A.;
- Grootenhuis, Martha A.;
- Haverman, Lotte;
- ISOQOL PROMs and PREMs in Clinical Practice Implementation Science Group
Publication type:
journal article
Clinicians' perspective on the implemented KLIK PROM portal in clinical practice.
Published in:
2021
By:
- Teela, Lorynn;
- van Muilekom, Maud M.;
- Kooij, Lieke H.;
- Gathier, Anouk W.;
- van Goudoever, Johannes B.;
- Grootenhuis, Martha A.;
- Haverman, Lotte;
- van Oers, Hedy A.
Publication type:
journal article
The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents.
Published in:
Quality of Life Research, 2021, v. 30, n. 10, p. 2795, doi. 10.1007/s11136-021-02861-x
By:
- Luijten, Michiel A. J.;
- van Muilekom, Maud M.;
- Teela, Lorynn;
- Polderman, Tinca J. C.;
- Terwee, Caroline B.;
- Zijlmans, Josjan;
- Klaufus, Leonie;
- Popma, Arne;
- Oostrom, Kim J.;
- van Oers, Hedy A.;
- Haverman, Lotte
Publication type:
Article
Dutch normative data and psychometric properties for the Distress Thermometer for Parents.
Published in:
2017
By:
- Oers, Hedy;
- Schepers, Sasja;
- Grootenhuis, Martha;
- Haverman, Lotte;
- van Oers, Hedy A;
- Schepers, Sasja A;
- Grootenhuis, Martha A
Publication type:
journal article
Paediatric patients report lower health‐related quality of life in daily clinical practice compared to new normative PedsQL<sup>TM</sup> data.
Published in:
Acta Paediatrica, 2021, v. 110, n. 7, p. 2267, doi. 10.1111/apa.15872
By:
- van Muilekom, Maud M.;
- Luijten, Michiel A. J.;
- van Oers, Hedy A.;
- Conijn, Thirsa;
- Maurice‐Stam, Heleen;
- van Goudoever, Johannes B.;
- Grootenhuis, Martha A.;
- Haverman, Lotte;
- M. A., Benninga;
- J. M., van den Berg;
- A. H. M., Bouts;
- C. C., Breugem;
- C. J., Fijnvandraat;
- J. W., Groothoff;
- C. M., van der Horst;
- B., Jaeger;
- A., Kindermann;
- H., Knoester;
- B. J. P., Koot;
- L. A., Menke
Publication type:
Article
Perceived stress, family impact, and changes in physical and social daily life activities of children with chronic somatic conditions during the COVID-19 pandemic.
Published in:
BMC Public Health, 2022, v. 22, n. 1, p. 1, doi. 10.1186/s12889-022-13544-8
By:
- Krijger, Anne;
- Dulfer, Karolijn;
- van Oers, Hedy;
- Teela, Lorynn;
- de Jong-van Kempen, Brita;
- van Els, Anne;
- Haverman, Lotte;
- Joosten, Koen
Publication type:
Article

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