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Is Participating in Psychological Research a Benefit, Burden, or Both for Medically Ill Youth and Their Caregivers?
- Published in:
- IRB: Ethics & Human Research, 2015, v. 37, n. 6, p. 1
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- Publication type:
- Article
Child and parent perspectives of the chronic graft-versus-host disease (cGVHD) symptom experience: a concept elicitation study.
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- Supportive Care in Cancer, 2014, v. 22, n. 2, p. 295, doi. 10.1007/s00520-013-1957-6
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- Publication type:
- Article
Gastrointestinal stromal tumor: psychosocial characteristics and considerations.
- Published in:
- Supportive Care in Cancer, 2012, v. 20, n. 6, p. 1343, doi. 10.1007/s00520-012-1426-7
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- Publication type:
- Article
ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer.
- Published in:
- 2011
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- Publication type:
- journal article
A Longitudinal Study of Adolescents with Perinatally or Transfusion Acquired HIV Infection: Sexual Knowledge, Risk Reduction Self-efficacy and Sexual Behavior.
- Published in:
- AIDS & Behavior, 2007, v. 11, n. 3, p. 471, doi. 10.1007/s10461-006-9162-y
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- Publication type:
- Article
Identifying Symptoms of Distress in Youth Living with Neurofibromatosis Type 1 (NF1).
- Published in:
- Journal of Genetic Counseling, 2018, v. 27, n. 1, p. 115, doi. 10.1007/s10897-017-0128-1
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- Publication type:
- Article
An exploration of the prevalence and predictors of work-related well-being among psychosocial oncology professionals: An application of the job demands-resources model.
- Published in:
- 2016
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- Publication type:
- journal article
Cultural and religious considerations in pediatric palliative care.
- Published in:
- Palliative & Supportive Care, 2013, v. 11, n. 1, p. 47, doi. 10.1017/S1478951511001027
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- Publication type:
- Article
Comparing Parent and Child Self-report Measures of the State-Trait Anxiety Inventory in Children and Adolescents with a Chronic Health Condition.
- Published in:
- Journal of Clinical Psychology in Medical Settings, 2020, v. 27, n. 1, p. 173, doi. 10.1007/s10880-019-09631-5
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- Publication type:
- Article
Patient, Caregiver, and Clinician Perspectives on Core Components of Therapeutic Alliance for Adolescents and Young Adults With Advanced Cancer: A Qualitative Study.
- Published in:
- JAMA Network Open, 2023, v. 6, n. 8, p. e2328153, doi. 10.1001/jamanetworkopen.2023.28153
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- Publication type:
- Article
Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer.
- Published in:
- PLoS ONE, 2022, v. 17, n. 7, p. 1, doi. 10.1371/journal.pone.0270797
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- Publication type:
- Article
Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.
- Published in:
- 2022
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- Publication type:
- journal article
End of life communication among caregivers of children with cancer: A qualitative approach to understanding support desired by families.
- Published in:
- 2021
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- Publication type:
- journal article
Navigating the terrain of moral distress: Experiences of pediatric end-of-life care and bereavement during COVID-19.
- Published in:
- 2021
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- Publication type:
- journal article
An open trial of meaning-centered grief therapy: Rationale and preliminary evaluation.
- Published in:
- 2019
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- Publication type:
- journal article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- Palliative & Supportive Care, 2018, v. 16, n. 6, p. 706, doi. 10.1017/S1478951517001249
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- Publication type:
- Article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Expressing Condolences to a Family after the Death of a Child #443.
- Published in:
- Journal of Palliative Medicine, 2022, v. 25, n. 8, p. 1309, doi. 10.1089/jpm.2022.0252
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- Publication type:
- Article
Impact of the Coronavirus Pandemic on Pediatric Palliative Care Team Structures, Services, and Care Delivery.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 8, p. 1213, doi. 10.1089/jpm.2020.0589
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- Publication type:
- Article
Weaver et al's Response to Morrison: Advance Directives/Care Planning: Clear, Simple, and Wrong (DOI: 10.1089/jpm.2020.0272).
- Published in:
- 2021
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- Publication type:
- Letter
The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.
- Published in:
- Journal of Palliative Medicine, 2019, v. 22, n. 8, p. 915, doi. 10.1089/jpm.2018.0483
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- Publication type:
- Article
A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.
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- Journal of Palliative Medicine, 2018, v. 21, n. 4, p. 452, doi. 10.1089/jpm.2017.0405
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- Publication type:
- Article
Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature.
- Published in:
- Journal of Palliative Medicine, 2017, v. 20, n. 5, p. 548, doi. 10.1089/jpm.2016.0494
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- Publication type:
- Article
The lived experience of people affected by cancer: A global cross-sectional survey protocol.
- Published in:
- PLoS ONE, 2024, v. 19, n. 2, p. 1, doi. 10.1371/journal.pone.0294492
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- Publication type:
- Article
The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents.
- Published in:
- Current Oncology, 2023, v. 30, n. 2, p. 2441, doi. 10.3390/curroncol30020186
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- Publication type:
- Article
Reflections of Moral Suffering, Resilience, and Wisdom of Pediatric Oncology Social Workers during the COVID-19 Pandemic.
- Published in:
- Current Oncology, 2022, v. 29, n. 9, p. 6177, doi. 10.3390/curroncol29090485
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- Publication type:
- Article
Use of cancer-directed therapy at the end of life among adolescents and young adults.
- Published in:
- JNCI: Journal of the National Cancer Institute, 2024, v. 116, n. 7, p. 1080, doi. 10.1093/jnci/djae038
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- Publication type:
- Article
Healthy Children in Families Affected by AIDS: Epidemiological and Psychosocial Considerations.
- Published in:
- Child & Adolescent Social Work Journal, 1995, v. 12, n. 3, p. 165, doi. 10.1007/BF01876770
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- Publication type:
- Article
Pediatrics: The Emerging Psychosocial Challenges of the AIDS Epidemic.
- Published in:
- Child & Adolescent Social Work Journal, 1992, v. 9, n. 5, p. 381, doi. 10.1007/BF00757007
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- Publication type:
- Article
Considerations for conducting and reporting digitally supported cognitive interviews with children and adults.
- Published in:
- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00371-5
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- Publication type:
- Article
Organizational and individual barriers and facilitators to the integration of pediatric palliative care for children: A grounded theory study.
- Published in:
- Palliative Medicine, 2021, v. 35, n. 8, p. 1612, doi. 10.1177/02692163211026171
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- Publication type:
- Article
Regret and unfinished business in parents bereaved by cancer: A mixed methods study.
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- Palliative Medicine, 2020, v. 34, n. 3, p. 367, doi. 10.1177/0269216319900301
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- Publication type:
- Article
Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.
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- Palliative Medicine, 2016, v. 30, n. 3, p. 212, doi. 10.1177/0269216315583446
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- Publication type:
- Article
Symptom screening via screen: Real‐time electronic tracking of pediatric patient‐reported outcomes.
- Published in:
- Cancer (0008543X), 2021, v. 127, n. 16, p. 2877, doi. 10.1002/cncr.33614
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- Publication type:
- Article
Weathering the storm when the end of the road is near: A qualitative analysis of supportive care needs during CAR T‐cell therapy in pediatrics.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 9, p. 1, doi. 10.1002/pbc.31092
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- Publication type:
- Article
How we approach sharing child–caregiver PRO disagreement.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 2, p. 1, doi. 10.1002/pbc.30783
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- Publication type:
- Article
Agreement and disagreement between child–caregiver symptom and function reports in pediatric oncology.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 1, p. 1, doi. 10.1002/pbc.30710
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- Publication type:
- Article
"The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer.
- Published in:
- 2023
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- Publication type:
- journal article
How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions.
- Published in:
- Pediatric Blood & Cancer, 2022, v. 69, n. 9, p. 1, doi. 10.1002/pbc.29780
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- Publication type:
- Article
"Some things are even worse than telling a child he is going to die": Pediatric oncology healthcare professionals perspectives on communicating with children about cancer and end of life.
- Published in:
- Pediatric Blood & Cancer, 2022, v. 69, n. 3, p. 1, doi. 10.1002/pbc.29533
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- Publication type:
- Article
Tools to guide the identification and implementation of care consistent with the psychosocial Standards of care.
- Published in:
- 2020
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- Publication type:
- journal article
Taking burnout off the backburner.
- Published in:
- 2020
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- Publication type:
- journal article
Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy.
- Published in:
- 2020
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- Publication type:
- journal article
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents.
- Published in:
- 2020
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- Publication type:
- journal article
Utilization of palliative care consultations in pediatric oncology phase I clinical trials.
- Published in:
- 2019
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- Publication type:
- journal article
How I approach expressing condolences and longitudinal remembering to a family after the death of a child.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Andrea Farkas Patenaude, PhD: 1946-2018.
- Published in:
- 2018
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- Publication type:
- journal article
Who is responsible for delivering palliative care to children with cancer?
- Published in:
- 2018
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- Publication type:
- journal article
Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States.
- Published in:
- 2018
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- Publication type:
- journal article
Implementing the psychosocial standards in pediatric cancer: Current staffing and services available.
- Published in:
- 2017
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- Publication type:
- journal article