Found: 64
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A new diagnostic entity must enable earlier treatment in gene carriers.
- Published in:
- Brain: A Journal of Neurology, 2023, v. 146, n. 10, p. e77, doi. 10.1093/brain/awad164
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- Publication type:
- Article
The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis.
- Published in:
- BMC Research Notes, 2016, v. 9, p. 1, doi. 10.1186/s13104-016-2243-8
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- Publication type:
- Article
Online randomised trials with children: A scoping review.
- Published in:
- PLoS ONE, 2023, v. 17, n. 5, p. 1, doi. 10.1371/journal.pone.0280965
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- Publication type:
- Article
Getting stem cell patients 'on the grid'.
- Published in:
- Nature Biotechnology, 2016, v. 34, n. 12, p. 1228, doi. 10.1038/nbt.3740
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- Publication type:
- Article
Increasing patient participation in drug development.
- Published in:
- Nature Biotechnology, 2015, v. 33, n. 2, p. 134, doi. 10.1038/nbt.3145
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- Publication type:
- Article
Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.
- Published in:
- Nature Biotechnology, 2011, v. 29, n. 5, p. 411, doi. 10.1038/nbt.1837
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- Publication type:
- Article
The power of social networking in medicine.
- Published in:
- 2009
- By:
- Publication type:
- Letter
Going on up to the SPIRIT in AI: will new reporting guidelines for clinical trials of AI interventions improve their rigour?
- Published in:
- 2020
- By:
- Publication type:
- Letter
Evaluation of an Online Platform for Multiple Sclerosis Research: Patient Description, Validation of Severity Scale, and Exploration of BMI Effects on Disease Course.
- Published in:
- PLoS ONE, 2013, v. 8, n. 3, p. 1, doi. 10.1371/journal.pone.0059707
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- Publication type:
- Article
Experiences With Assessments and Procurement of Their First Power Wheelchair Among Members of an Online Patient Community.
- Published in:
- American Journal of Occupational Therapy, 2019, v. 73, p. 1, doi. 10.5014/ajot.2019.73S1-PO1035
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- Publication type:
- Article
Clinical trials from the patient perspective: survey in an online patient community.
- Published in:
- 2017
- By:
- Publication type:
- journal article
The regulatory status of health apps that employ gamification.
- Published in:
- Scientific Reports, 2024, v. 14, n. 1, p. 1, doi. 10.1038/s41598-024-71808-2
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- Publication type:
- Article
So You Want to Build Your Disease's First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience.
- Published in:
- Patient, 2023, v. 16, n. 3, p. 183, doi. 10.1007/s40271-023-00619-w
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- Publication type:
- Article
Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States.
- Published in:
- Patient, 2018, v. 11, n. 5, p. 547, doi. 10.1007/s40271-018-0312-x
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- Publication type:
- Article
Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community.
- Published in:
- Patient, 2014, v. 7, n. 1, p. 73, doi. 10.1007/s40271-013-0033-0
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- Publication type:
- Article
Safety of Triage Self-assessment Using a Symptom Assessment App for Walk-in Patients in the Emergency Care Setting: Observational Prospective Cross-sectional Study.
- Published in:
- JMIR mHealth & uHealth, 2022, v. 10, n. 3, p. 1, doi. 10.2196/32340
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- Publication type:
- Article
Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community.
- Published in:
- 2019
- By:
- Publication type:
- Editorial
A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Scaling PatientsLikeMe via a "Generalized Platform" for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Correction of: Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level.
- Published in:
- Journal of Medical Internet Research, 2016, v. 18, n. 10, p. 1, doi. 10.2196/jmir.6757
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- Publication type:
- Article
Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Feasibility of a Web-Based Survey of Hallucinations and Assessment of Visual Function in Patients With Parkinson's Disease.
- Published in:
- Journal of Medical Internet Research, 2014, v. 16, n. 1, p. 1, doi. 10.2196/ijmr.2744
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- Publication type:
- Article
Quantifying Short-Term Dynamics of Parkinson's Disease Using Self-Reported Symptom Data From an Internet Social Network.
- Published in:
- Journal of Medical Internet Research, 2013, v. 15, n. 1, p. 31, doi. 10.2196/jmir.2112
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- Publication type:
- Article
Mining online social network data for biomedical research: a comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatments.
- Published in:
- 2012
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- Publication type:
- journal article
Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians' and Patients' Perceptions About Amyotrophic Lateral Sclerosis Treatments.
- Published in:
- Journal of Medical Internet Research, 2012, v. 14, n. 3, p. 33, doi. 10.2196/jmir.2127
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- Publication type:
- Article
Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe.
- Published in:
- Journal of Medical Internet Research, 2011, v. 13, n. 1, p. 14, doi. 10.2196/jmir.1643
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- Publication type:
- Article
Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe.
- Published in:
- 2011
- By:
- Publication type:
- journal article
Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).
- Published in:
- 2011
- By:
- Publication type:
- journal article
Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).
- Published in:
- Journal of Medical Internet Research, 2011, v. 13, n. 1, p. 26, doi. 10.2196/jmir.1687
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- Publication type:
- Article
Sharing Health Data for Better Outcomes on PatientsLikeMe.
- Published in:
- Journal of Medical Internet Research, 2010, v. 12, n. 2, p. 10, doi. 10.2196/jmir.1549
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- Publication type:
- Article
SIBAT--A Computerized Assessment Tool for Suicide Ideation and Behavior: Development and Psychometric Properties.
- Published in:
- Innovations in Clinical Neuroscience, 2022, v. 19, n. 4-6, p. 36
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- Publication type:
- Article
The People's Trial: supporting the public's understanding of randomised trials.
- Published in:
- 2022
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- Publication type:
- journal article
Beyond the hype of big data and artificial intelligence: building foundations for knowledge and wisdom.
- Published in:
- 2019
- By:
- Publication type:
- Editorial
Patient, study thyself.
- Published in:
- 2018
- By:
- Publication type:
- Editorial
Comparison of rates of nausea side effects for prescription medications from an online patient community versus medication labels: an exploratory analysis.
- Published in:
- AAPS Open, 2017, v. 3, n. 1, p. 1, doi. 10.1186/s41120-017-0020-y
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- Publication type:
- Article
Does reading a book in bed make a difference to sleep in comparison to not reading a book in bed? The People's Trial-an online, pragmatic, randomised trial.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Conversational Agents in Health Care.
- Published in:
- 2020
- By:
- Publication type:
- Letter
Could digital patient communities be the launch pad for patient-centric trial design?
- Published in:
- Trials, 2014, v. 15, n. 1, p. 1, doi. 10.1186/1745-6215-15-172
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- Publication type:
- Article
Could digital patient communities be the launch pad for patient-centric trial design?
- Published in:
- 2014
- By:
- Publication type:
- Editorial
Ethnic Differences in Fibrinogen Levels: The Role of Environmental Factors and the β-Fibrinogen Gene.
- Published in:
- American Journal of Epidemiology, 2001, v. 153, n. 8, p. 799, doi. 10.1093/aje/153.8.799
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- Publication type:
- Article
Sharing information with patients like me.
- Published in:
- British Journal of Neuroscience Nursing, 2009, v. 5, n. 3, p. 132, doi. 10.12968/bjnn.2009.5.3.40616
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- Publication type:
- Article
The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community.
- Published in:
- Health & Quality of Life Outcomes, 2012, v. 10, n. 1, p. 70, doi. 10.1186/1477-7525-10-70
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- Publication type:
- Article
The quality of diagnosis and triage advice provided by free online symptom checkers and apps in Australia.
- Published in:
- Medical Journal of Australia, 2021, v. 214, n. 3, p. 143, doi. 10.5694/mja2.50917
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- Publication type:
- Article
No tears in heaven: did the media create the pseudo-phenomenon ''altitude-adjusted lachrymosity syndrome (AALS)''?
- Published in:
- PeerJ, 2018, p. 1, doi. 10.7717/peerj.4569
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- Publication type:
- Article
Actionable absolute risk prediction of atherosclerotic cardiovascular disease based on the UK Biobank.
- Published in:
- PLoS ONE, 2022, v. 17, n. 2, p. 1, doi. 10.1371/journal.pone.0263940
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- Publication type:
- Article
Improving Emergency Department Patient-Physician Conversation Through an Artificial Intelligence Symptom-Taking Tool: Mixed Methods Pilot Observational Study.
- Published in:
- JMIR Formative Research, 2022, v. 6, n. 2, p. 1, doi. 10.2196/28199
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- Publication type:
- Article
Rigorous and rapid evidence assessment in digital health with the evidence DEFINED framework.
- Published in:
- NPJ Digital Medicine, 2023, v. 6, n. 1, p. 1, doi. 10.1038/s41746-023-00836-5
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- Publication type:
- Article
Opportunities and counterintuitive challenges for decentralized clinical trials to broaden participant inclusion.
- Published in:
- NPJ Digital Medicine, 2022, v. 5, n. 1, p. 1, doi. 10.1038/s41746-022-00603-y
- By:
- Publication type:
- Article
Innovations in e-health.
- Published in:
- Quality of Life Research, 2014, v. 23, n. 1, p. 195, doi. 10.1007/s11136-013-0458-x
- By:
- Publication type:
- Article
Quality of condition suggestions and urgency advice provided by the Ada symptom assessment app evaluated with vignettes optimised for Australia*.
- Published in:
- Australian Journal of Primary Health, 2021, v. 27, n. 5, p. 377, doi. 10.1071/PY21032
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- Publication type:
- Article