Found: 73
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Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions.
- Published in:
- Cardiology in the Young, 2021, v. 31, n. 3, p. 471, doi. 10.1017/S1047951120004023
- By:
- Publication type:
- Article
Mixed method study of quality of life for children with trisomy 18 and 13 after cardiac surgery.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Discovering dad: paternal roles, responsibilities, and support needs as defined by fathers of children with complex cardiac conditions perioperatively.
- Published in:
- 2019
- By:
- Publication type:
- journal article
A Prospective, Crossover Survey Study of Child- and Proxy-Reported Quality of Life According to Spinal Muscular Atrophy Type and Medical Interventions.
- Published in:
- Journal of Child Neurology, 2020, v. 35, n. 5, p. 322, doi. 10.1177/0883073819900463
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- Publication type:
- Article
Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer.
- Published in:
- PLoS ONE, 2022, v. 17, n. 7, p. 1, doi. 10.1371/journal.pone.0270797
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- Publication type:
- Article
Using a Mindfulness-Based Intervention to Support the Resiliency of In-Patient Pediatric Respiratory Therapists.
- Published in:
- Respiratory Care, 2019, v. 64, n. 5, p. 550, doi. 10.4187/respcare.06483
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- Publication type:
- Article
What does the word healing mean to you? Perceptions of patients with life-limiting illness.
- Published in:
- Palliative & Supportive Care, 2024, v. 22, n. 3, p. 577, doi. 10.1017/S1478951522000839
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- Publication type:
- Article
Aromatherapy improves nausea, pain, and mood for patients receiving pediatric palliative care symptom-based consults: A pilot design trial.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- Palliative & Supportive Care, 2018, v. 16, n. 6, p. 706, doi. 10.1017/S1478951517001249
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- Publication type:
- Article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Exploring the impact of pediatric short bowel syndrome on parent well‐being using a disease‐specific pilot survey.
- Published in:
- Nutrition in Clinical Practice, 2024, v. 39, n. 1, p. 154, doi. 10.1002/ncp.11008
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- Publication type:
- Article
Translating Pediatric Hospital Interpreters' Feedback From Difficult Conversations into Improved Communication.
- Published in:
- Journal of Palliative Care, 2022, v. 37, n. 2, p. 159, doi. 10.1177/0825859720933112
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- Publication type:
- Article
Sowing Across a State: Development and Delivery of a Grassroots Pediatric Palliative Care Nursing Curriculum.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Documentation of Advance Directives and Code Status in Electronic Medical Records to Honor Goals of Care.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Letter to the Editor: Removing Code Status from Patient Wristbands While Fostering Strong Care Practices.
- Published in:
- 2024
- By:
- Publication type:
- Letter to the Editor
State of the Service: Pediatric Palliative and Hospice Community-Based Service Coverage in the United States.
- Published in:
- Journal of Palliative Medicine, 2023, v. 26, n. 11, p. 1521, doi. 10.1089/jpm.2023.0204
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- Publication type:
- Article
Expressing Condolences to a Family after the Death of a Child #443.
- Published in:
- Journal of Palliative Medicine, 2022, v. 25, n. 8, p. 1309, doi. 10.1089/jpm.2022.0252
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- Publication type:
- Article
Letter to the Editor: Protecting Values and Preventing Conflict: Impact of the Life-Sustaining Treatment Decisions Initiative for Veterans with Serious Illness.
- Published in:
- 2022
- By:
- Publication type:
- Letter to the Editor
Top Ten Tips Palliative Care Clinicians Should Know About Their Work's Intersection with Clinical Ethics.
- Published in:
- Journal of Palliative Medicine, 2022, v. 25, n. 4, p. 656, doi. 10.1089/jpm.2021.0521
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- Publication type:
- Article
Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in Children.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 11, p. 1725, doi. 10.1089/jpm.2021.0439
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- Publication type:
- Article
Clinician Perspectives on Animated Video Vignettes to Support Advance Care Planning Communication for Veterans.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 11, p. 1710, doi. 10.1089/jpm.2021.0255
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- Publication type:
- Article
Actual Solidarity through Virtual Support: A Pilot Descriptive Study of an Online Support Group for Bereaved Parents.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 8, p. 1161, doi. 10.1089/jpm.2020.0617
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- Publication type:
- Article
Impact of the Coronavirus Pandemic on Pediatric Palliative Care Team Structures, Services, and Care Delivery.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 8, p. 1213, doi. 10.1089/jpm.2020.0589
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- Publication type:
- Article
Top Ten Tips Palliative Care Clinicians Should Know About Medical Decision-Making Capacity Assessment.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 4, p. 599, doi. 10.1089/jpm.2021.0022
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- Publication type:
- Article
Identifying as a Good Parent: Considering the Communication Theory of Identity for Parents of Children Receiving Palliative Care.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 2, p. 305, doi. 10.1089/jpm.2020.0131
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- Publication type:
- Article
Weaver et al's Response to Morrison: Advance Directives/Care Planning: Clear, Simple, and Wrong (DOI: 10.1089/jpm.2020.0272).
- Published in:
- 2021
- By:
- Publication type:
- Letter
Lessons Learned: Identifying Items Felt To Be Critical to Leading a Pediatric Palliative Care Program in the Current Era of Program Development.
- Published in:
- Journal of Palliative Medicine, 2021, v. 24, n. 1, p. 40, doi. 10.1089/jpm.2020.0205
- By:
- Publication type:
- Article
Telehealth Acceptability for Children, Family, and Adult Hospice Nurses When Integrating the Pediatric Palliative Inpatient Provider during Sequential Rural Home Hospice Visits.
- Published in:
- Journal of Palliative Medicine, 2020, v. 23, n. 5, p. 641, doi. 10.1089/jpm.2019.0450
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- Publication type:
- Article
Crossing the Line: Care of a Pediatric Patient with Intractable Seizures and Severe Neuropathic Pain in Absence of Access to Medical Marijuana.
- Published in:
- Journal of Palliative Medicine, 2019, v. 22, n. 10, p. 1232, doi. 10.1089/jpm.2019.0261
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- Publication type:
- Article
The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.
- Published in:
- Journal of Palliative Medicine, 2019, v. 22, n. 8, p. 915, doi. 10.1089/jpm.2018.0483
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- Publication type:
- Article
Use of an Electronic Journal Club to Increase Access to and Acceptance of Palliative Care Literature across General Pediatricians and Pediatric Subspecialties.
- Published in:
- Journal of Palliative Medicine, 2019, v. 22, n. 1, p. 50, doi. 10.1089/jpm.2018.0178
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- Publication type:
- Article
Mindful Movement: Tai Chi, Gentle Yoga, and Qi Gong for Hospitalized Pediatric Palliative Care Patients and Family Members.
- Published in:
- Journal of Palliative Medicine, 2018, v. 21, n. 9, p. 1212, doi. 10.1089/jpm.2018.0203
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- Publication type:
- Article
Tattooed and Told: Stories on Skin.
- Published in:
- 2018
- By:
- Publication type:
- Poem
Silent Soundings: Hearing the Hospice Call.
- Published in:
- 2018
- By:
- Publication type:
- Poem
Personalize the Patient Initiative: A Demedicalized Medical Chart Cover Page for Children Receiving Palliative Care.
- Published in:
- 2018
- By:
- Publication type:
- Letter to the Editor
A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.
- Published in:
- Journal of Palliative Medicine, 2018, v. 21, n. 4, p. 452, doi. 10.1089/jpm.2017.0405
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- Publication type:
- Article
Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature.
- Published in:
- Journal of Palliative Medicine, 2017, v. 20, n. 5, p. 548, doi. 10.1089/jpm.2016.0494
- By:
- Publication type:
- Article
Interventions to improve adherence to treatment for paediatric tuberculosis in low- and middle-income countries: a systematic review and meta-analysis.
- Published in:
- Bulletin of the World Health Organization, 2015, v. 93, n. 10, p. 700, doi. 10.2471/BLT.14.147231
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- Publication type:
- Article
Kneading Acceptance: Experiential Massage Therapy Education Fosters Nursing Acceptance of Massage Therapy for Pediatric Patients.
- Published in:
- Journal of Alternative & Complementary Medicine, 2018, v. 24, n. 11, p. 1128, doi. 10.1089/acm.2018.0021
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- Publication type:
- Article
Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.
- Published in:
- Palliative Medicine, 2016, v. 30, n. 3, p. 212, doi. 10.1177/0269216315583446
- By:
- Publication type:
- Article
Symptom screening via screen: Real‐time electronic tracking of pediatric patient‐reported outcomes.
- Published in:
- Cancer (0008543X), 2021, v. 127, n. 16, p. 2877, doi. 10.1002/cncr.33614
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- Publication type:
- Article
How young adults with sickle cell disease define "being a good patient" in the adult healthcare system.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 2, p. 1, doi. 10.1002/pbc.30786
- By:
- Publication type:
- Article
How we approach sharing child–caregiver PRO disagreement.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 2, p. 1, doi. 10.1002/pbc.30783
- By:
- Publication type:
- Article
Agreement and disagreement between child–caregiver symptom and function reports in pediatric oncology.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 1, p. 1, doi. 10.1002/pbc.30710
- By:
- Publication type:
- Article
How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions.
- Published in:
- Pediatric Blood & Cancer, 2022, v. 69, n. 9, p. 1, doi. 10.1002/pbc.29780
- By:
- Publication type:
- Article
Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care.
- Published in:
- Pediatric Blood & Cancer, 2021, v. 68, n. 4, p. 1, doi. 10.1002/pbc.28921
- By:
- Publication type:
- Article
Taking burnout off the backburner.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Comment on: Spiritual support: A model of care not to forget.
- Published in:
- 2019
- By:
- Publication type:
- letter
Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature.
- Published in:
- 2019
- By:
- Publication type:
- journal article