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Review about the impact of growing up with a chronic disease showed delays achieving psychosocial milestones.
- Published in:
- 2019
- By:
- Publication type:
- journal article
High occurrence of sleep problems in survivors of a childhood brain tumor with neurocognitive complaints: The association with psychosocial and behavioral executive functioning.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Parental distress 6 months after a pediatric cancer diagnosis in relation to family psychosocial risk at diagnosis.
- Published in:
- 2018
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- Publication type:
- journal article
Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands.
- Published in:
- 2011
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- Publication type:
- journal article
Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures.
- Published in:
- 2010
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- Publication type:
- journal article
Psychosocial developmental trajectory of a cohort of young adults born very preterm and/or with a very low birth weight in the Netherlands.
- Published in:
- Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0106-5
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- Publication type:
- Article
Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA.
- Published in:
- 2012
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- Publication type:
- Journal Article
Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA.
- Published in:
- Rheumatology, 2012, v. 51, n. 2, p. 368, doi. 10.1093/rheumatology/ker378
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- Publication type:
- Article
Illness cognitions associated with health‐related quality of life in young adult men with haemophilia.
- Published in:
- Haemophilia, 2020, v. 26, n. 5, p. 793, doi. 10.1111/hae.14120
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- Publication type:
- Article
Professional functioning of young adults with congenital coagulation disorders in the Netherlands.
- Published in:
- Haemophilia, 2019, v. 25, n. 3, p. e138, doi. 10.1111/hae.13698
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- Publication type:
- Article
Online cognitive-behavioral based group interventions for adolescents with chronic illness and parents: study protocol of two multicenter randomized controlled trials.
- Published in:
- 2018
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- Publication type:
- journal article
Psychosocial development in survivors of childhood differentiated thyroid carcinoma: a cross-sectional study.
- Published in:
- European Journal of Endocrinology, 2018, v. 178, n. 3, p. 215, doi. 10.1530/EJE-17-0741
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- Publication type:
- Article
Monitoring health related quality of life in survivorship care of young adult survivors of childhood cancer using web-based patient-reported outcome measures: survivors' and health care practitioners' perspectives on the KLIK method.
- Published in:
- Quality of Life Research, 2024, v. 33, n. 1, p. 145, doi. 10.1007/s11136-023-03504-z
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- Publication type:
- Article
Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints.
- Published in:
- 2016
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- Publication type:
- journal article
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults.
- Published in:
- Quality of Life Research, 2014, v. 23, n. 10, p. 2841, doi. 10.1007/s11136-014-0734-4
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- Publication type:
- Article
Pediatric Perceived Cognitive Functioning: Psychometric Properties and Normative Data of the Dutch Item Bank and Short Form.
- Published in:
- Journal of the International Neuropsychological Society, 2019, v. 25, n. 8, p. 845, doi. 10.1017/S1355617719000572
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- Publication type:
- Article
(65) PSYCHOSEXUAL DEVELOPMENT, SEXUAL FUNCTIONING AND SEXUAL SATISFACTION IN LONG TERM CHILDHOOD CANCER SURVIVORS: DCCSS-LATER 2 SEXUALITY SUBSTUDY.
- Published in:
- Journal of Sexual Medicine, 2023, v. 20, p. 1, doi. 10.1093/jsxmed/qdad062.052
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- Publication type:
- Article
Paediatric patients report lower health‐related quality of life in daily clinical practice compared to new normative PedsQL<sup>TM</sup> data.
- Published in:
- Acta Paediatrica, 2021, v. 110, n. 7, p. 2267, doi. 10.1111/apa.15872
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- Publication type:
- Article
Psychosocial outcomes in long‐term Dutch adult survivors of childhood cancer: The DCCSS‐LATER 2 psycho‐oncology study.
- Published in:
- Cancer (0008543X), 2023, v. 129, n. 16, p. 2553, doi. 10.1002/cncr.34795
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- Publication type:
- Article
Increased health‐related quality of life impairments of male and female survivors of childhood cancer: DCCSS LATER 2 psycho‐oncology study.
- Published in:
- Cancer (0008543X), 2022, v. 128, n. 5, p. 1074, doi. 10.1002/cncr.34003
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- Publication type:
- Article
Different subtypes of chronic fatigue in childhood cancer survivors: A DCCSS LATER study.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 6, p. 1, doi. 10.1002/pbc.30951
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- Publication type:
- Article
Clinical evaluation of late outcomes in Dutch childhood cancer survivors: Methodology of the DCCSS LATER 2 study.
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- Pediatric Blood & Cancer, 2023, v. 70, n. 5, p. 1, doi. 10.1002/pbc.30212
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- Publication type:
- Article
Psychosocial function of Dutch children with cancer and their caregivers during different phases of the COVID‐19 pandemic.
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- Pediatric Blood & Cancer, 2022, v. 69, n. 4, p. 1, doi. 10.1002/pbc.29535
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- Publication type:
- Article
No increase in psychosocial stress of Dutch children with cancer and their caregivers during the first months of the COVID‐19 pandemic.
- Published in:
- Pediatric Blood & Cancer, 2021, v. 68, n. 2, p. 1, doi. 10.1002/pbc.28827
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- Publication type:
- Article
Psychosocial well-being of long-term survivors of pediatric head-neck rhabdomyosarcoma.
- Published in:
- 2019
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- Publication type:
- journal article
Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective?
- Published in:
- Pediatric Blood & Cancer, 2012, v. 58, n. 5, p. 766, doi. 10.1002/pbc.23158
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- Publication type:
- Article
The Working Mechanisms of Parental Involvement in Interventions for Children with Chronic Illness.
- Published in:
- Journal of Child & Family Studies, 2022, v. 31, n. 11, p. 3037, doi. 10.1007/s10826-022-02329-7
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- Publication type:
- Article
Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the FACE‐Q Craniofacial module.
- Published in:
- Cancer Medicine, 2023, v. 12, n. 4, p. 4739, doi. 10.1002/cam4.5252
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- Publication type:
- Article
Health related quality of life and perceptions of child vulnerability among parents of children with a history of Kawasaki disease.
- Published in:
- Acta Paediatrica, 2014, v. 103, n. 6, p. 671, doi. 10.1111/apa.12619
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- Publication type:
- Article
Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability.
- Published in:
- Acta Paediatrica, 2012, v. 101, n. 1, p. e19, doi. 10.1111/j.1651-2227.2011.02418.x
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- Publication type:
- Article
Online psychosocial group intervention for parents: Positive effects on anxiety and depression.
- Published in:
- 2021
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- Publication type:
- journal article
Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment.
- Published in:
- Pediatric Blood & Cancer, 2008, v. 50, n. 5, p. 1047, doi. 10.1002/pbc.21374
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- Publication type:
- Article
Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life.
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- Journal of Inherited Metabolic Disease, 2011, v. 34, n. 2, p. 391, doi. 10.1007/s10545-010-9267-3
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- Publication type:
- Article
Psychosocial developmental milestones in men with classic galactosemia.
- Published in:
- Journal of Inherited Metabolic Disease, 2011, v. 34, n. 2, p. 415, doi. 10.1007/s10545-011-9290-z
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- Publication type:
- Article
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention.
- Published in:
- Maternal & Child Health Journal, 2020, v. 24, n. 10, p. 1238, doi. 10.1007/s10995-020-02925-3
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- Publication type:
- Article
Sleep disorders in children after treatment for a CNS tumour.
- Published in:
- Journal of Sleep Research, 2012, v. 21, n. 4, p. 461, doi. 10.1111/j.1365-2869.2011.00971.x
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- Publication type:
- Article
The Impact of Cancer-Related Fatigue on HRQOL in Survivors of Childhood Cancer: A DCCSS LATER Study.
- Published in:
- Cancers, 2022, v. 14, n. 12, p. 2851, doi. 10.3390/cancers14122851
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- Publication type:
- Article
Psychosocial developmental milestones of young adult survivors of childhood cancer.
- Published in:
- Supportive Care in Cancer, 2022, v. 30, n. 8, p. 6839, doi. 10.1007/s00520-022-07113-3
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- Publication type:
- Article
First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care.
- Published in:
- 2017
- By:
- Publication type:
- journal article
Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions.
- Published in:
- Child & Adolescent Psychiatry & Mental Health, 2014, v. 8, n. 1, p. 1, doi. 10.1186/1753-2000-8-12
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- Publication type:
- Article
Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions.
- Published in:
- Child & Adolescent Psychiatry & Mental Health, 2013, v. 7, n. 1, p. 1, doi. 10.1186/1753-2000-7-12
- By:
- Publication type:
- Article
Health-related quality of life and self-worth in 10-year old children with congenital hypothyroidism diagnosed by neonatal screening.
- Published in:
- Child & Adolescent Psychiatry & Mental Health, 2012, v. 6, n. 1, p. 32, doi. 10.1186/1753-2000-6-32
- By:
- Publication type:
- Article
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version.
- Published in:
- Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/1477-7525-12-9
- By:
- Publication type:
- Article
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version.
- Published in:
- 2014
- By:
- Publication type:
- journal article
Health-related quality of life in young adults with symptoms of constipation continuing from childhood into adulthood.
- Published in:
- Health & Quality of Life Outcomes, 2009, v. 7, p. 1, doi. 10.1186/1477-7525-7-20
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- Publication type:
- Article
Psychosocial functioning of adult siblings of Dutch very long‐term survivors of childhood cancer: DCCSS‐LATER 2 psycho‐oncology study.
- Published in:
- Psycho-Oncology, 2023, v. 32, n. 9, p. 1401, doi. 10.1002/pon.6191
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- Publication type:
- Article
Psychosexual development, sexual functioning and sexual satisfaction in long‐term childhood cancer survivors: DCCSS‐LATER 2 sexuality substudy.
- Published in:
- Psycho-Oncology, 2023, v. 32, n. 8, p. 1279, doi. 10.1002/pon.6181
- By:
- Publication type:
- Article
Psychosocial functioning of parents of Dutch long‐term survivors of childhood cancer.
- Published in:
- Psycho-Oncology, 2023, v. 32, n. 2, p. 283, doi. 10.1002/pon.6069
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- Publication type:
- Article
Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study.
- Published in:
- Psycho-Oncology, 2009, v. 18, n. 7, p. 762, doi. 10.1002/pon.1470
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- Publication type:
- Article
Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment.
- Published in:
- Psycho-Oncology, 2008, v. 17, n. 5, p. 448, doi. 10.1002/pon.1260
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- Publication type:
- Article