Found: 58
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Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.
- Published in:
- PLoS Biology, 2016, v. 14, n. 11, p. 1, doi. 10.1371/journal.pbio.2000206
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- Publication type:
- Article
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 2, p. 1, doi. 10.1093/jlb/lsad022
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- Publication type:
- Article
Payer reimbursement practices and incentives for improving interpretation of germline genetic testing.
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 2, p. 1, doi. 10.1093/jlb/lsad020
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- Publication type:
- Article
Constraints on gene patent protection fuel secrecy concerns: a qualitative study.
- Published in:
- Journal of Law & the Biosciences, 2017, v. 4, n. 3, p. 542, doi. 10.1093/jlb/lsx034
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- Publication type:
- Article
Clearing complexity from the Common Rule NPRM.
- Published in:
- Journal of Law & the Biosciences, 2016, v. 3, n. 2, p. 257, doi. 10.1093/jlb/lsw026
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- Publication type:
- Article
Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.
- Published in:
- Journal of Personalized Medicine, 2021, v. 11, n. 7, p. 646, doi. 10.3390/jpm11070646
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- Publication type:
- Article
ETHICAL DILEMM AS SURROUNDING THE USE OF VENTRICULAR ASSIST DEVICES IN SUPPORTING PATIENTS WITH END-STAGE ORGAN DYSFUNCTION.
- Published in:
- Methodist DeBakey Cardiovascular Journal, 2013, v. 9, n. 1, p. 11, doi. 10.14797/mdcj-9-1-11
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- Publication type:
- Article
Data stewardship in FTLD research: Investigator and research participant views.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2024, v. 20, n. 4, p. 2886, doi. 10.1002/alz.13719
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- Publication type:
- Article
Developing context-specific next-generation sequencing policy.
- Published in:
- Nature Biotechnology, 2016, v. 34, n. 5, p. 466, doi. 10.1038/nbt.3545
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- Publication type:
- Article
Persistent confusion and controversy surrounding gene patents.
- Published in:
- Nature Biotechnology, 2016, v. 34, n. 2, p. 145, doi. 10.1038/nbt.3470
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- Publication type:
- Article
Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
- Published in:
- 2019
- By:
- Publication type:
- journal article
Taking DNA from the dead.
- Published in:
- 2010
- By:
- Publication type:
- journal article
United States: law and policy concerning transfer of genomic data to third countries.
- Published in:
- Human Genetics, 2018, v. 137, n. 8, p. 647, doi. 10.1007/s00439-018-1917-9
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- Publication type:
- Article
Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2023, v. 12, n. 5, p. 773, doi. 10.1089/jayao.2022.0066
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- Publication type:
- Article
Laws About Transparent School Vaccination Reporting: Public Health Context and Ethics.
- Published in:
- American Journal of Public Health, 2019, v. 109, n. 12, p. 1687, doi. 10.2105/AJPH.2019.305356
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- Publication type:
- Article
Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.
- Published in:
- American Journal of Public Health, 2016, v. 106, n. 1, p. 40, doi. 10.2105/AJPH.2015.302940
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- Publication type:
- Article
LEGAL CONCEPTIONS: THE EVOLVING LAW AND POLICY OF ASSISTED REPRODUCTIVE TECHNOLOGIES.
- Published in:
- 2010
- By:
- Publication type:
- Book Review
LAW, LEGITIMACY AND THE RATIONING OF HEALTH CARE: A CONTEXTUAL AND COMPARATIVE PERSPECTIVE.
- Published in:
- 2009
- By:
- Publication type:
- Book Review
THE OXFORD HANDBOOK OF BIOETHICS.
- Published in:
- 2007
- By:
- Publication type:
- Book Review
Data Sharing in the Context of Health-Related Citizen Science.
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, p. 167, doi. 10.1177/1073110520917044
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- Publication type:
- Article
The Ethics of Breastfeeding by Women Living with HIV/AIDS: A Concrete Proposal for Reforming Department of Health and Human Services Recommendations.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 161, doi. 10.1177/1073110519840496
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- Publication type:
- Article
Innovative Law and Policy Responses to the Opioid Crisis.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 173, doi. 10.1177/1073110519840498
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- Publication type:
- Article
A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 165, doi. 10.1177/1073110519840497
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- Publication type:
- Article
Approximating Future Generic Entry for New Drugs.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 177, doi. 10.1177/1073110519840499
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- Publication type:
- Article
Thought Leader Perspectives on Participant Protections in Precision Medicine Research.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 134, doi. 10.1177/1073110519840493
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- Publication type:
- Article
Living Organ Donation Near and at the End of Life: Drawing and Re-Drawing the Boundaries Around Permissible Practices in Organ Donation.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 123, doi. 10.1177/1073110519840491
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- Publication type:
- Article
Breastfeeding with HIV: An Evidence-Based Case for New Policy.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 152, doi. 10.1177/1073110519840495
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- Publication type:
- Article
Do Community Treatment Orders in Psychiatry Stand Up to Principalism: Considerations Reflected through the Prism of the Convention on the Rights of Persons with Disabilities.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 126, doi. 10.1177/1073110519840492
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- Publication type:
- Article
Precision Medicine Research: An Exception or An Exemplar?
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 149, doi. 10.1177/1073110519840494
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- Publication type:
- Article
Whose Commons? Data Protection as a Legal Limit of Open Science.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 106, doi. 10.1177/1073110519840489
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- Publication type:
- Article
Living Donation by Individuals with Life-Limiting Conditions.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 112, doi. 10.1177/1073110519840490
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- Publication type:
- Article
What is a Medical Information Commons?
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 41, doi. 10.1177/1073110519840483
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- Publication type:
- Article
Genomic Data-Sharing Practices.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 31, doi. 10.1177/1073110519840482
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- Publication type:
- Article
Characterizing the Biomedical Data-Sharing Landscape.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 21, doi. 10.1177/1073110519840481
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- Publication type:
- Article
Introduction: Sharing Data in a Medical Information Commons.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 7, doi. 10.1177/1073110519840479
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- Publication type:
- Article
Medical Information Commons to Support Learning Healthcare Systems: Examples From Canada.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 97, doi. 10.1177/1073110519840488
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- Publication type:
- Article
BRCA1/2 Variant Data-Sharing Practices.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 88, doi. 10.1177/1073110519840487
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- Publication type:
- Article
Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 70, doi. 10.1177/1073110519840486
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- Publication type:
- Article
Who Owns the Data in a Medical Information Commons?
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 62, doi. 10.1177/1073110519840485
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- Publication type:
- Article
The Role of Participants in a Medical Information Commons.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 51, doi. 10.1177/1073110519840484
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- Publication type:
- Article
Letter From The Editor.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 1, doi. 10.1177/1073110519840478
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- Publication type:
- Article
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.
- Published in:
- Journal of Law, Medicine & Ethics, 2019, v. 47, n. 1, p. 12, doi. 10.1177/1073110519840480
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- Publication type:
- Article
Ethical and Legal Challenges Associated with Public Molecular Autopsies.
- Published in:
- Journal of Law, Medicine & Ethics, 2016, v. 44, n. 2, p. 309, doi. 10.1177/1073110516654124
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- Publication type:
- Article
The “Permanent” Patient Problem.
- Published in:
- Journal of Law, Medicine & Ethics, 2014, v. 42, n. 1, p. 88, doi. 10.1111/jlme.12121
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- Publication type:
- Article
The Ethical Health Lawyer.
- Published in:
- Journal of Law, Medicine & Ethics, 2005, v. 33, n. 3, p. 603, doi. 10.1111/j.1748-720X.2005.tb00523.x
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- Publication type:
- Article
The Roles of Ethicists in Managed Care Litigation.
- Published in:
- Journal of Law, Medicine & Ethics, 2005, v. 33, n. 2, p. 264, doi. 10.1111/j.1748-720X.2005.tb00492.x
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- Publication type:
- Article
Cyberbanks and Other Virtual Research Repositories.
- Published in:
- Journal of Law, Medicine & Ethics, 2005, v. 33, n. 1, p. 31, doi. 10.1111/j.1748-720X.2005.tb00208.x
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- Publication type:
- Article
Translational Research and Health Equity: Gene Therapies for Sickle Cell Disease as a Case Study.
- Published in:
- Ethics & Human Research, 2024, v. 46, n. 3, p. 34, doi. 10.1002/eahr.500211
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- Publication type:
- Article
Bad Words.
- Published in:
- Hastings Center Report, 2014, v. 44, n. 2, p. 13, doi. 10.1002/hast.280
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- Publication type:
- Article
Uncharitable Care?
- Published in:
- Hastings Center Report, 2004, v. 34, n. 4, p. 0
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- Publication type:
- Article