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Outcomes in children with hemophilia A with inhibitors: Results from a noninterventional study.
- Published in:
- 2020
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- Publication type:
- journal article
An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate.
- Published in:
- Journal of Orofacial Orthopedics/Fortschritte der Kieferorthopadie, 2009, v. 70, n. 4, p. 274, doi. 10.1007/s00056-009-9906-1
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- Publication type:
- Article
Psycho-social determinants of quality of life in children and adolescents with haemophilia—a cross-cultural approach.
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- Clinical Psychology & Psychotherapy, 2008, v. 15, n. 3, p. 164, doi. 10.1002/cpp.569
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- Publication type:
- Article
Physical activity improved by adherence to prophylaxis in an Italian population of children, adolescents and adults with severe haemophilia A: the SHAPE Study.
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- Blood Transfusion (17232007), 2020, v. 18, n. 2, p. 154, doi. 10.2450/2019.0040-19
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- Publication type:
- Article
Health-Related Quality of Life in Children and Adolescents with Hereditary Bleeding Disorders and in Children and Adolescents with Stroke: Cross-Sectional Comparison to Siblings and Peers.
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- BioMed Research International, 2016, v. 2016, p. 1, doi. 10.1155/2016/1579428
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- Publication type:
- Article
Health-related quality-of-life and treatment satisfaction of individuals with hemophilia A treated with turoctocog alfa pegol (N8-GP): a new recombinant extended half-life FVIII.
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- Patient Preference & Adherence, 2019, v. 13, p. 497, doi. 10.2147/PPA.S196103
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- Publication type:
- Article
Efficacy and safety in patients with haemophilia A switching to octocog alfa (BAY 81–8973): Final results of the global real‐world study, TAURUS.
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- European Journal of Haematology, 2023, v. 110, n. 1, p. 77, doi. 10.1111/ejh.13876
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- Publication type:
- Article
BAY 81‐8973 prophylaxis and pharmacokinetics in haemophilia A: Interim results from the TAURUS study.
- Published in:
- European Journal of Haematology, 2020, v. 105, n. 2, p. 164, doi. 10.1111/ejh.13420
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- Publication type:
- Article
Health-related quality of life in children and adolescents with stroke, self-reports, and parent/proxies reports: Cross-sectional investigation.
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- Annals of Neurology, 2011, v. 70, n. 1, p. 70, doi. 10.1002/ana.22381
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- Publication type:
- Article
Quality of life assessment in haemophilia.
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- Haemophilia, 2004, v. 10, p. 9, doi. 10.1111/j.1355-0691.2004.00874.x
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- Publication type:
- Article
Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.
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- Pediatric Blood & Cancer, 2014, v. 61, n. 4, p. 706, doi. 10.1002/pbc.24856
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- Publication type:
- Article
Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany.
- Published in:
- Health & Quality of Life Outcomes, 2014, v. 12, n. 1, p. 1, doi. 10.1186/s12955-014-0119-y
- By:
- Publication type:
- Article
Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany.
- Published in:
- 2014
- By:
- Publication type:
- journal article
Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).
- Published in:
- 2010
- By:
- Publication type:
- journal article
Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).
- Published in:
- Health & Quality of Life Outcomes, 2010, v. 8, p. 139, doi. 10.1186/1477-7525-8-139
- By:
- Publication type:
- Article
A new tool for the assessment of satisfaction with iron chelation therapy (ICT-Sat) for patients with β-thalassemia major.
- Published in:
- Pediatric Blood & Cancer, 2012, v. 58, n. 6, p. 910, doi. 10.1002/pbc.23413
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- Publication type:
- Article
Association of patient, treatment and disease characteristics with patient‐reported outcomes: Results of the ECHO Registry.
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- Haemophilia, 2024, v. 30, n. 1, p. 106, doi. 10.1111/hae.14895
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- Publication type:
- Article
The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.
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- Haemophilia, 2023, v. 29, n. 1, p. 199, doi. 10.1111/hae.14678
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- Publication type:
- Article
The effect of emicizumab prophylaxis on long‐term, self‐reported physical health in persons with haemophilia A without factor VIII inhibitors in the HAVEN 3 and HAVEN 4 studies.
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- Haemophilia, 2021, v. 27, n. 5, p. 854, doi. 10.1111/hae.14363
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- Publication type:
- Article
Health‐related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors—A non‐interventional study.
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- Haemophilia, 2021, v. 27, n. 3, p. 398, doi. 10.1111/hae.14270
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- Publication type:
- Article
Health‐related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors—Results from the HAVEN 2 study.
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- Haemophilia, 2020, v. 26, n. 6, p. 1009, doi. 10.1111/hae.14183
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- Publication type:
- Article
Determining meaningful health‐related quality‐of‐life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL).
- Published in:
- Haemophilia, 2020, v. 26, n. 6, p. 1019, doi. 10.1111/hae.14184
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- Publication type:
- Article
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.
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- Haemophilia, 2020, v. 26, n. 6, p. 966, doi. 10.1111/hae.14144
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- Publication type:
- Article
Impact of COVID‐19 pandemic on mental health of patients with inherited bleeding disorders in Germany.
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- Haemophilia, 2020, v. 26, n. 6, p. e272, doi. 10.1111/hae.14130
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- Publication type:
- Article
Cross‐cultural adaptation and validation of Haem‐A‐QoL in Côte d'Ivoire.
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- Haemophilia, 2020, v. 26, n. 3, p. 459, doi. 10.1111/hae.13987
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- Publication type:
- Article
Heavy menstrual bleeding in women with inherited bleeding disorders.
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- Haemophilia, 2020, v. 26, p. 16, doi. 10.1111/hae.13888
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- Publication type:
- Article
The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).
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- Haemophilia, 2019, v. 25, n. 3, p. 416, doi. 10.1111/hae.13736
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- Publication type:
- Article
Health‐related quality of life and health status in persons with haemophilia A with inhibitors: A prospective, multicentre, non‐interventional study (NIS).
- Published in:
- Haemophilia, 2019, v. 25, n. 3, p. 382, doi. 10.1111/hae.13731
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- Publication type:
- Article
The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).
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- Haemophilia, 2019, v. 25, n. 3, p. 424, doi. 10.1111/hae.13684
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- Publication type:
- Article
Health‐related quality of life in paediatric haemophilia B patients treated with rIX‐FP.
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- Haemophilia, 2019, v. 25, n. 1, p. 45, doi. 10.1111/hae.13624
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- Publication type:
- Article
The effect of emicizumab prophylaxis on health‐related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study.
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- Haemophilia, 2019, v. 25, n. 1, p. 33, doi. 10.1111/hae.13618
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- Publication type:
- Article
Cross-Sectional and Longitudinal Construct Validity of the Generic KINDL-A(dult)B(rief) Questionnaire in Adults with Thrombophilia or with Hereditary and Acquired Bleeding Disorders.
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- Acta Haematologica, 2021, v. 144, n. 2, p. 166, doi. 10.1159/000507602
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- Publication type:
- Article
Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran.
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- Clinical & Applied Thrombosis/Hemostasis, 2018, v. 24, n. 7, p. 1073, doi. 10.1177/1076029618758954
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- Publication type:
- Article
Gene Therapy in Hemophilia: A Transformational Patient Experience.
- Published in:
- Journal of Patient Experience, 2023, p. 1, doi. 10.1177/23743735231193573
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- Publication type:
- Article