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"If I have a limited amount of time left, this is not how I want to spend it": A qualitative descriptive study of factors influencing daily life participation following a cancer diagnosis.
- Published in:
- Psycho-Oncology, 2024, v. 33, n. 6, p. 1, doi. 10.1002/pon.6366
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- Publication type:
- Article
Primary Prevention of Stroke in Children With Sickle Cell Anemia in Nigeria: Protocol for a Mixed Methods Implementation Study in a Community Hospital.
- Published in:
- JMIR Research Protocols, 2022, v. 11, n. 6, p. 1, doi. 10.2196/37927
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- Publication type:
- Article
Activity competence among infants and toddlers with developmental disabilities: Rasch analysis of the Infant Toddler Activity Card Sort (ITACS).
- Published in:
- Journal of Patient-Reported Outcomes, 2021, v. 5, n. 1, p. 1, doi. 10.1186/s41687-021-00287-0
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- Publication type:
- Article
Genetic and histopathological associations with outcome in pediatric pilocytic astrocytoma.
- Published in:
- Journal of Neurosurgery: Pediatrics, 2022, v. 29, n. 5, p. 504, doi. 10.3171/2021.9.PEDS21405
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- Publication type:
- Article
The Association of Cytokine Levels With Cognitive Function in Children With Sickle Cell Disease and Normal MRI Studies of the Brain.
- Published in:
- Journal of Child Neurology, 2015, v. 30, n. 10, p. 1349, doi. 10.1177/0883073814563140
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- Publication type:
- Article
Trajectories of participation in daily life among individuals newly diagnosed with cancer: A 5-month longitudinal study.
- Published in:
- Supportive Care in Cancer, 2023, v. 31, n. 4, p. 1, doi. 10.1007/s00520-023-07672-z
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- Publication type:
- Article
Assessments used to measure participation in life activities in individuals with cancer: a scoping review.
- Published in:
- 2020
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- Publication type:
- journal article
Assessing quality of life in childhood cancer survivors at risk for hearing loss: a comparison of HEAR-QL and PROMIS measures.
- Published in:
- Frontiers in Oncology, 2024, p. 1, doi. 10.3389/fonc.2024.1362315
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- Publication type:
- Article
Corrigendum: Academic performance of children with sickle cell disease in the United States: a meta-analysis..
- Published in:
- Frontiers in Neurology, 2023, p. 1, doi. 10.3389/fneur.2023.1281630
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- Publication type:
- Article
Cognition and education benefits of increased hemoglobin and blood oxygenation in children with sickle cell disease.
- Published in:
- PLoS ONE, 2023, v. 18, n. 8, p. 1, doi. 10.1371/journal.pone.0289642
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- Publication type:
- Article
Cognitive outcomes of children and adults with sickle cell anaemia: A contemporary cohort.
- Published in:
- British Journal of Haematology, 2024, v. 205, n. 3, p. 1238, doi. 10.1111/bjh.19642
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- Publication type:
- Article
Characterising the prevalence of overweight and obese status among adults with sickle cell disease.
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- British Journal of Haematology, 2023, v. 200, n. 5, p. 633, doi. 10.1111/bjh.18548
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- Publication type:
- Article
Hydroxyurea treatment and neurocognitive functioning in sickle cell disease from school age to young adulthood.
- Published in:
- British Journal of Haematology, 2021, v. 195, n. 2, p. 256, doi. 10.1111/bjh.17687
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- Publication type:
- Article
Cognitive performance as a predictor of healthcare transition in sickle cell disease.
- Published in:
- British Journal of Haematology, 2021, v. 192, n. 6, p. 1082, doi. 10.1111/bjh.17351
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- Publication type:
- Article
Association between hydroxycarbamide exposure and neurocognitive function in adolescents with sickle cell disease.
- Published in:
- British Journal of Haematology, 2020, v. 189, n. 6, p. 1192, doi. 10.1111/bjh.16519
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- Publication type:
- Article
Hydroxyurea to prevent brain injury in children with sickle cell disease (HU Prevent)—A randomized, placebo‐controlled phase II feasibility/pilot study.
- Published in:
- American Journal of Hematology, 2024, v. 99, n. 10, p. 1906, doi. 10.1002/ajh.27423
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- Publication type:
- Article
Mortality in adults with sickle cell disease: Results from the sickle cell disease implementation consortium (SCDIC) registry.
- Published in:
- American Journal of Hematology, 2024, v. 99, n. 5, p. 900, doi. 10.1002/ajh.27279
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- Publication type:
- Article
Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
- Published in:
- American Journal of Hematology, 2022, v. 97, n. 5, p. 603, doi. 10.1002/ajh.26495
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- Publication type:
- Article
Patient‐reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.
- Published in:
- American Journal of Hematology, 2021, v. 96, n. 11, p. 1396, doi. 10.1002/ajh.26315
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- Publication type:
- Article
A Multidisciplinary Health Care Team's Efforts to Improve Educational Attainment in Children With Sickle-Cell Anemia and Cerebral Infarcts.
- Published in:
- Journal of School Health, 2006, v. 76, n. 1, p. 33, doi. 10.1111/j.1746-1561.2006.00064.x
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- Publication type:
- Article
An Education Program to Increase Teacher Knowledge About Sickle Cell Disease.
- Published in:
- Journal of School Health, 2005, v. 75, n. 1, p. 11, doi. 10.1111/j.1746-1561.2005.tb00003.x
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- Publication type:
- Article
Academic Performance of Children With Sickle Cell Disease in the United States: A Meta-Analysis.
- Published in:
- Frontiers in Neurology, 2021, v. 12, p. 1, doi. 10.3389/fneur.2021.786065
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- Publication type:
- Article
The Small Heat Shock Protein p26 Aids Development of Encysting ArtemiaEmbryos, Prevents Spontaneous Diapause Termination and Protects against Stress.
- Published in:
- PLoS ONE, 2012, v. 7, n. 8, p. 1, doi. 10.1371/journal.pone.0043723
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- Publication type:
- Article
ADAPT-SCD: A Pilot Meta-Cognitive Strategy Training Intervention for Adolescents & Young Adults With Sickle Cell Disease.
- Published in:
- American Journal of Occupational Therapy, 2023, v. 77, p. 1, doi. 10.5014/ajot.2023.77S2-PO301
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- Publication type:
- Article
Occupational Deprivation Among Cancer Patients in the Era of COVID-19: A Qualitative Analysis.
- Published in:
- American Journal of Occupational Therapy, 2023, v. 77, p. 1, doi. 10.5014/ajot.2023.77S2-PO110
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- Publication type:
- Article
Parent and Provider Perspectives on a Developmental Screening and Therapy Referral Program for Children 0-3 Years With Sickle Cell Disease.
- Published in:
- American Journal of Occupational Therapy, 2022, v. 76, p. 1, doi. 10.5014/ajot.2022.76S1-PO154
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- Publication type:
- Article
Cognition and Functional Performance in Adults With Sickle Cell Disease.
- Published in:
- American Journal of Occupational Therapy, 2021, v. 75, p. 1, doi. 10.5014/ajot.2021.75S2-PO311
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- Publication type:
- Article
Activity Engagement Among Infants and Toddlers With Developmental Disabilities: Rasch Analysis of the Infant Toddler Activity Card Sort (ITACS).
- Published in:
- American Journal of Occupational Therapy, 2021, v. 75, p. 1, doi. 10.5014/ajot.2021.75S2-RP3
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- Publication type:
- Article
Need for a Standard Approach to Service Delivery and Educational Opportunities in Pediatric Cancer Rehabilitation.
- Published in:
- American Journal of Occupational Therapy, 2021, v. 75, p. 1, doi. 10.5014/ajot.2021.75S2-RP258
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- Publication type:
- Article
Cognition and Quality of Life Among Survivors of Pediatric Non-CNS Cancers Receiving Ototoxic Therapy.
- Published in:
- American Journal of Occupational Therapy, 2021, v. 75, p. 1, doi. 10.5014/ajot.2021.75S2-PO11
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- Publication type:
- Article
Psychometrics of the Infant-Toddler Activity Card Sort (ITACS): A Caregiver-Reported Measure of Children's Occupational Engagement in Family Routines.
- Published in:
- American Journal of Occupational Therapy, 2020, v. 74, p. 1, doi. 10.5014/ajot.2020.74S1-RP401C
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- Publication type:
- Article
Test-Retest Reliability of the Infant Toddler Activity Card Sort (ITACS).
- Published in:
- American Journal of Occupational Therapy, 2019, v. 73, p. 1, doi. 10.5014/ajot.2019.73S1-PO8011
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- Publication type:
- Article
Cognitive and Functional Outcomes in Adults With Sickle Cell Disease.
- Published in:
- American Journal of Occupational Therapy, 2019, v. 73, p. 1, doi. 10.5014/ajot.2019.73S1-PO7014
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- Publication type:
- Article
The Infant Toddler Activity Card Sort (ITACS): A Caregiver Reported Measure of Occupational Development of Young Children.
- Published in:
- American Journal of Occupational Therapy, 2019, v. 73, p. 1, doi. 10.5014/ajot.2019.73S1-PO1006
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- Publication type:
- Article
Transition Needs of Adolescents With Sickle Cell Disease.
- Published in:
- American Journal of Occupational Therapy, 2015, v. 69, n. 2, p. 1, doi. 10.5014/ajot.2015.013730
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- Publication type:
- Article
Administration of antiretroviral medication via enteral tubes.
- Published in:
- American Journal of Health-System Pharmacy, 2012, v. 69, n. 24, p. 2140, doi. 10.2146/ajhp120106
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- Publication type:
- Article
New Practitioners Forum. Writing a review article.
- Published in:
- American Journal of Health-System Pharmacy, 2011, v. 68, n. 9, p. 790, doi. 10.2146/ajhp100235
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- Publication type:
- Article
Compliance with recommendations for prevention and detection of controlled-substance diversion in hospitals.
- Published in:
- American Journal of Health-System Pharmacy, 2011, v. 68, n. 8, p. 689, doi. 10.2146/ajhp100212
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- Publication type:
- Article
Children with sickle cell disease: the case for developmental screening.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Impact of the affordable care act dependent coverage provision on young adult cancer patient insurance coverage by sociodemographic and economic characteristics.
- Published in:
- 2020
- By:
- Publication type:
- journal article
390 Adaptation and Evaluation of Guideline-Based Family-Based Behavioral Treatment for Overweight and Obesity in Childhood Survivors of Acute Lymphoblastic Leukemia (ALL).
- Published in:
- 2022
- By:
- Publication type:
- Abstract
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
- Published in:
- PLoS ONE, 2021, v. 16, n. 10, p. 1, doi. 10.1371/journal.pone.0258638
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- Publication type:
- Article
Symptom management care pathway adaptation process and specific adaptation decisions.
- Published in:
- BMC Cancer, 2023, v. 23, n. 1, p. 1, doi. 10.1186/s12885-023-10835-0
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- Publication type:
- Article
A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.
- Published in:
- Public Health Reports, 2020, v. 135, n. 4, p. 442, doi. 10.1177/0033354920935068
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- Publication type:
- Article
Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease.
- Published in:
- JAMA Network Open, 2023, v. 6, n. 5, p. e2314070, doi. 10.1001/jamanetworkopen.2023.14070
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- Publication type:
- Article
LETTERS TO THE EDITOR.
- Published in:
- 2017
- By:
- Publication type:
- Letter to the Editor
Longitudinal assessment of late-onset neurologic conditions in survivors of childhood central nervous system tumors: a Childhood Cancer Survivor Study report.
- Published in:
- Neuro-Oncology, 2018, v. 20, n. 1, p. 132, doi. 10.1093/neuonc/nox148
- By:
- Publication type:
- Article
Long-term neurologic health and psychosocial function of adult survivors of childhood medulloblastoma/PNET: a report from the Childhood Cancer Survivor Study.
- Published in:
- Neuro-Oncology, 2017, v. 19, n. 5, p. 689, doi. 10.1093/neuonc/now242
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- Publication type:
- Article
Youth with Sickle Cell Disease: Genetic and Sexual Health Education Needs.
- Published in:
- American Journal of Health Behavior, 2015, v. 39, n. 6, p. 856, doi. 10.5993/AJHB.39.6.13
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- Publication type:
- Article
Functional differentiation of small heat shock proteins in diapause-destined Artemia embryos.
- Published in:
- FEBS Journal, 2013, v. 280, n. 19, p. 4761, doi. 10.1111/febs.12442
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- Publication type:
- Article