Found: 46
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Managing hemophilia: the role of mobile technology.
- Published in:
- Smart Homecare Technology & TeleHealth, 2014, v. 2, p. 39, doi. 10.2147/SHTT.S40961
- By:
- Publication type:
- Article
Health-Related Quality of Life among Adult Patients with Ehlers-Danlos Syndrome: A Systematic Review and Meta-Analysis.
- Published in:
- Mediterranean Journal of Clinical Psychology, 2023, v. 11, n. 2, p. 1, doi. 10.13129/2282-1619/mjcp-3665
- By:
- Publication type:
- Article
The top 10 research priorities in bleeding disorders: a James Lind Alliance Priority Setting Partnership.
- Published in:
- British Journal of Haematology, 2019, v. 186, n. 4, p. e98, doi. 10.1111/bjh.15928
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- Publication type:
- Article
Treatment burden, haemostatic strategies and real world inhibitor screening practice in non-severe haemophilia A.
- Published in:
- British Journal of Haematology, 2017, v. 176, n. 5, p. 796, doi. 10.1111/bjh.14543
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- Publication type:
- Article
Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study.
- Published in:
- Pilot & Feasibility Studies, 2024, v. 10, n. 1, p. 1, doi. 10.1186/s40814-024-01550-z
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- Publication type:
- Article
Supporting adherence and improving quality of life in haemophilia care.
- Published in:
- 2013
- By:
- Publication type:
- Opinion
Therapeutic use of arteriovenous fistula in children with haemophilia.
- Published in:
- British Journal of Nursing, 2008, v. 17, n. 22, p. 1396, doi. 10.12968/bjon.2008.17.22.31864
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- Publication type:
- Article
Haemophilia A: meeting the needs of individual patients.
- Published in:
- British Journal of Nursing, 2007, v. 16, n. 16, p. 987, doi. 10.12968/bjon.2007.16.16.27077
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- Publication type:
- Article
The lived experience of a novel disruptive therapy in a group of men and boys with haemophilia A with inhibitors: Emi & Me.
- Published in:
- Health Expectations, 2022, v. 25, n. 1, p. 443, doi. 10.1111/hex.13404
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- Publication type:
- Article
Self-management and skills acquisition in boys with haemophilia.
- Published in:
- Health Expectations, 2015, v. 18, n. 5, p. 1105, doi. 10.1111/hex.12083
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- Publication type:
- Article
Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study.
- Published in:
- Orphanet Journal of Rare Diseases, 2024, p. 1, doi. 10.1186/s13023-024-03068-2
- By:
- Publication type:
- Article
Using theory of change to co-create a programme theory for a telerehabilitation intervention for pain management in people with haemophilia.
- Published in:
- Orphanet Journal of Rare Diseases, 2023, v. 18, n. 1, p. 1, doi. 10.1186/s13023-023-02988-9
- By:
- Publication type:
- Article
Real-world data in patients with congenital hemophilia and inhibitors: final data from the FEIBA Global Outcome (FEIBA GO) study.
- Published in:
- Therapeutic Advances in Hematology, 2023, v. 14, p. 1, doi. 10.1177/20406207231184323
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- Publication type:
- Article
Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study.
- Published in:
- Therapeutic Advances in Hematology, 2021, v. 12, p. 1, doi. 10.1177/20406207211007058
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- Publication type:
- Article
The experiences of people with haemophilia and their families of gene therapy in a clinical trial setting: regaining control, the Exigency study.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Multimethodology research with boys with severe haemophilia.
- Published in:
- 2013
- By:
- Publication type:
- Journal Article
Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.
- Published in:
- Pediatric Blood & Cancer, 2014, v. 61, n. 4, p. 706, doi. 10.1002/pbc.24856
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- Publication type:
- Article
Experience of recombinant-activated factor VII to control bleeding in children with Glanzmann’s thrombasthenia.
- Published in:
- Comparative Clinical Pathology, 2007, v. 16, n. 3, p. 167, doi. 10.1007/s00580-007-0686-y
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- Publication type:
- Article
Final Results of the Prospective ADVATE<sup>®</sup> Immune Tolerance Induction Registry (PAIR) Study with Plasma- and Albumin-Free Recombinant Factor VIII.
- Published in:
- Journal of Blood Medicine, 2021, v. 12, p. 991, doi. 10.2147/JBM.S329883
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- Publication type:
- Article
The use of intermediate purity factor VIII concentrate BPL 8Y as prophylaxis and treatment in congenital thrombotic thrombocytopenic purpura.
- Published in:
- British Journal of Haematology, 2006, v. 135, n. 1, p. 101, doi. 10.1111/j.1365-2141.2006.06264.x
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- Publication type:
- Article
Bruising and bleeding in infants and children – a practical approach.
- Published in:
- British Journal of Haematology, 2006, v. 133, n. 3, p. 221, doi. 10.1111/j.1365-2141.2006.06016.x
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- Publication type:
- Article
The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co-segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype.
- Published in:
- British Journal of Haematology, 2005, v. 128, n. 6, p. 830, doi. 10.1111/j.1365-2141.2005.05375.x
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- Publication type:
- Article
short report Rituximab in the treatment of alloimmune factor VIII and IX antibodies in two children with severe haemophilia.
- Published in:
- British Journal of Haematology, 2004, v. 125, n. 3, p. 366, doi. 10.1111/j.1365-2141.2004.04916.x
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- Publication type:
- Article
The use of recombinant factor VIIa in children with inherited platelet function disorders.
- Published in:
- British Journal of Haematology, 2003, v. 121, n. 3, p. 477, doi. 10.1046/j.1365-2141.2003.04286.x
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- Publication type:
- Article
Recombinant factor VIIa in the management of surgery and acute bleeding episodes in children with haemophilia and high responding inhibitors.
- Published in:
- British Journal of Haematology, 2002, v. 116, n. 3, p. 632, doi. 10.1046/j.0007-1048.2001.03324.x
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- Publication type:
- Article
Prevalence and perceptions of pain in people with haemophilia: A UK study.
- Published in:
- Haemophilia, 2023, v. 29, n. 6, p. 1509, doi. 10.1111/hae.14860
- By:
- Publication type:
- Article
Expectation and loss when gene therapy for haemophilia is not an option: An exigency sub‐study.
- Published in:
- Haemophilia, 2023, v. 29, n. 3, p. 776, doi. 10.1111/hae.14774
- By:
- Publication type:
- Article
Humanistic burden of problem joints for children and adults with haemophilia.
- Published in:
- Haemophilia, 2023, v. 29, n. 2, p. 608, doi. 10.1111/hae.14731
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- Publication type:
- Article
The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.
- Published in:
- Haemophilia, 2023, v. 29, n. 1, p. 199, doi. 10.1111/hae.14678
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- Publication type:
- Article
The views of women with bleeding disorders: Results from the Cinderella study.
- Published in:
- Haemophilia, 2022, v. 28, n. 2, p. 316, doi. 10.1111/hae.14514
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- Publication type:
- Article
European principles of care for women and girls with inherited bleeding disorders.
- Published in:
- Haemophilia, 2021, v. 27, n. 5, p. 837, doi. 10.1111/hae.14379
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- Publication type:
- Article
An exploration of why men with severe haemophilia might not want gene therapy: The exigency study.
- Published in:
- Haemophilia, 2021, v. 27, n. 5, p. 760, doi. 10.1111/hae.14378
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- Publication type:
- Article
Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.
- Published in:
- Haemophilia, 2021, v. 27, n. 2, p. 305, doi. 10.1111/hae.14241
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- Publication type:
- Article
Parental perspectives on gene therapy for children with haemophilia: The Exigency study.
- Published in:
- Haemophilia, 2021, v. 27, n. 1, p. 120, doi. 10.1111/hae.14188
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- Publication type:
- Article
Physiotherapy interventions for pain management in haemophilia: A systematic review.
- Published in:
- Haemophilia, 2020, v. 26, n. 4, p. 667, doi. 10.1111/hae.14030
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- Publication type:
- Article
The UK haemophilia specialist nurse: Competencies fit for practice in the 21st century.
- Published in:
- Haemophilia, 2020, v. 26, n. 4, p. 622, doi. 10.1111/hae.14002
- By:
- Publication type:
- Article
Assessing the supportive care needs of parents with a child with a bleeding disorder using the Parental Needs Scale for Rare Diseases (PNS‐RD): A single‐centre pilot study.
- Published in:
- Haemophilia, 2019, v. 25, n. 5, p. 831, doi. 10.1111/hae.13826
- By:
- Publication type:
- Article
HOw Patients view Extended half‐life products: Impressions from real‐world experience (The HOPE study).
- Published in:
- Haemophilia, 2019, v. 25, n. 5, p. 814, doi. 10.1111/hae.13803
- By:
- Publication type:
- Article
The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).
- Published in:
- Haemophilia, 2019, v. 25, n. 3, p. 416, doi. 10.1111/hae.13736
- By:
- Publication type:
- Article
The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).
- Published in:
- Haemophilia, 2019, v. 25, n. 3, p. 424, doi. 10.1111/hae.13684
- By:
- Publication type:
- Article
The Kids' immune thrombocytopenia Tool is not suitable for assessing quality of life in children with platelet function disorders.
- Published in:
- Haemophilia, 2018, v. 24, n. 4, p. e259, doi. 10.1111/hae.13528
- By:
- Publication type:
- Article
Assessment of Treatment Practice Patterns for Severe Hemophilia A: A Global Nurse Perspective.
- Published in:
- Acta Haematologica, 2008, v. 119, n. 2, p. 115, doi. 10.1159/000121828
- By:
- Publication type:
- Article
Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran.
- Published in:
- Clinical & Applied Thrombosis/Hemostasis, 2018, v. 24, n. 7, p. 1073, doi. 10.1177/1076029618758954
- By:
- Publication type:
- Article
Pain Experience in Hemophilia Patients: A Hermeneutic Phenomenological Study.
- Published in:
- International Journal of Community Based Nursing & Midwifery, 2016, v. 4, n. 4, p. 309
- By:
- Publication type:
- Article
What are the experiences of non‐invasive ventilation for sleep‐disordered breathing in children and young people and what outcomes matter? Perspectives of children and young people, their parents and the staff who care for them.
- Published in:
- Child: Care, Health & Development, 2024, v. 50, n. 4, p. 1, doi. 10.1111/cch.13292
- By:
- Publication type:
- Article
Spirituality Experiences in Hemophilia Patients: A Phenomenological Study.
- Published in:
- Journal of Religion & Health, 2019, v. 58, n. 3, p. 992, doi. 10.1007/s10943-018-0621-3
- By:
- Publication type:
- Article