Found: 56
Select item for more details and to access through your institution.
"Melanoma: Questions and Answers." Development and evaluation of a psycho-educational resource for people with a history of melanoma.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Parents' perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study.
- Published in:
- BJU International, 2017, v. 119, n. 3, p. 474, doi. 10.1111/bju.13668
- By:
- Publication type:
- Article
What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review.
- Published in:
- Developmental Psychobiology, 2019, v. 61, n. 5, p. 700, doi. 10.1002/dev.21819
- By:
- Publication type:
- Article
Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative.
- Published in:
- Cardiology in the Young, 2023, v. 33, n. 2, p. 280, doi. 10.1017/S1047951122000579
- By:
- Publication type:
- Article
Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.
- Published in:
- Cardiology in the Young, 2021, v. 31, n. 6, p. 900, doi. 10.1017/S1047951121002134
- By:
- Publication type:
- Article
Feeding difficulties in neonates following cardiac surgery: determinants of prolonged feeding-tube use.
- Published in:
- 2017
- By:
- Publication type:
- journal article
eHealth literacy and preferences for eHealth resources in parents of children with complex CHD.
- Published in:
- 2017
- By:
- Publication type:
- journal article
"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study.
- Published in:
- Pediatric Cardiology, 2024, v. 45, n. 3, p. 529, doi. 10.1007/s00246-023-03376-7
- By:
- Publication type:
- Article
"I Just Want You to Hear That Term": Characterizing Language Used in Fetal Cardiology Consultations.
- Published in:
- Journal of Cardiovascular Development & Disease (JCDD), 2023, v. 10, n. 9, p. 394, doi. 10.3390/jcdd10090394
- By:
- Publication type:
- Article
Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings.
- Published in:
- JAMA Network Open, 2024, v. 7, n. 7, p. e2422104, doi. 10.1001/jamanetworkopen.2024.22104
- By:
- Publication type:
- Article
"The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy.
- Published in:
- Patient, 2020, v. 13, n. 4, p. 389, doi. 10.1007/s40271-020-00415-w
- By:
- Publication type:
- Article
Engaging hearts and minds: An in-depth qualitative examination of health professionals' perceptions of, and experiences with, an integrated, hospital-based mental health service dedicated to childhood heart disease.
- Published in:
- International Journal of Integrated Care (IJIC), 2019, v. 19, n. S1, p. 1, doi. 10.5334/ijic.s3378
- By:
- Publication type:
- Article
Integrated psychological care in paediatric hospital settings: Determining implementation success.
- Published in:
- International Journal of Integrated Care (IJIC), 2019, v. 19, n. S1, p. 1, doi. 10.5334/ijic.s3181
- By:
- Publication type:
- Article
Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease.
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 1, p. 34, doi. 10.1038/ejhg.2014.44
- By:
- Publication type:
- Article
Communication and Information Needs of Women Diagnosed With Ovarian Cancer Regarding Treatment-Focused Genetic Testing.
- Published in:
- Oncology Nursing Forum, 2013, v. 40, n. 3, p. 275, doi. 10.1188/13.ONF.40-03AP
- By:
- Publication type:
- Article
Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma.
- Published in:
- Applied Health Economics & Health Policy, 2019, v. 17, n. 5, p. 669, doi. 10.1007/s40258-019-00483-6
- By:
- Publication type:
- Article
Prenatal counselling for congenital anomalies: a systematic review.
- Published in:
- 2016
- By:
- Publication type:
- journal article
A qualitative study on decision‐making about BRCA1/2 testing in Italian women.
- Published in:
- European Journal of Cancer Care, 2019, v. 28, n. 5, p. N.PAG, doi. 10.1111/ecc.13083
- By:
- Publication type:
- Article
Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study.
- Published in:
- Quality of Life Research, 2020, v. 29, n. 8, p. 2021, doi. 10.1007/s11136-020-02464-y
- By:
- Publication type:
- Article
Sensitivity of Preference-Based Quality-of-Life Measures for Economic Evaluations in Early-Stage Melanoma.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial.
- Published in:
- International Journal of Environmental Research & Public Health, 2023, v. 20, n. 1, p. 584, doi. 10.3390/ijerph20010584
- By:
- Publication type:
- Article
"It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care.
- Published in:
- Frontiers in Pediatrics, 2024, p. 1, doi. 10.3389/fped.2024.1364190
- By:
- Publication type:
- Article
Mother–Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery.
- Published in:
- Journal of Pediatric Psychology, 2024, v. 49, n. 1, p. 13, doi. 10.1093/jpepsy/jsad069
- By:
- Publication type:
- Article
Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.
- Published in:
- Journal of Pediatric Psychology, 2023, v. 48, n. 6, p. 537, doi. 10.1093/jpepsy/jsad015
- By:
- Publication type:
- Article
Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative.
- Published in:
- Journal of Pediatric Psychology, 2022, v. 47, n. 6, p. 707, doi. 10.1093/jpepsy/jsac003
- By:
- Publication type:
- Article
Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease.
- Published in:
- Journal of Patient Experience, 2022, v. 9, p. 1, doi. 10.1177/23743735221092488
- By:
- Publication type:
- Article
IDMOD: An Australian microsimulation model of lifetime economic and social factors in familial intellectual disability.
- Published in:
- International Journal of Microsimulation, 2020, v. 13, n. 1, p. 52, doi. 10.34196/ijm.00212
- By:
- Publication type:
- Article
Children's experiences of congenital heart disease: a systematic review of qualitative studies.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Maintaining Momentum in Infant Mental Health Research During COVID-19: Adapting Observational Assessments.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Women's Knowledge, Beliefs, and Information Needs in Relation to the Risks and Benefits Associated with Use of the Oral Contraceptive Pill.
- Published in:
- 2011
- By:
- Publication type:
- Journal Article
The Melanoma care study: protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease.
- Published in:
- BMC Psychology, 2015, v. 3, n. 1, p. 1, doi. 10.1186/s40359-015-0074-3
- By:
- Publication type:
- Article
Hypoplastic left heart syndrome in context.
- Published in:
- Journal of Paediatrics & Child Health, 2012, v. 48, n. 2, p. E7, doi. 10.1111/j.1440-1754.2011.02084.x
- By:
- Publication type:
- Article
Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era.
- Published in:
- Journal of Paediatrics & Child Health, 2011, v. 47, n. 10, p. 717, doi. 10.1111/j.1440-1754.2011.02039.x
- By:
- Publication type:
- Article
Better the Devil You Know? High-Risk Individuals' Anticipated Psychological Responses to Genetic Testing for Melanoma Susceptibility.
- Published in:
- Journal of Genetic Counseling, 2006, v. 15, n. 6, p. 433, doi. 10.1007/s10897-006-9038-3
- By:
- Publication type:
- Article
Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment.
- Published in:
- Developmental Medicine & Child Neurology, 2022, v. 64, n. 6, p. 753, doi. 10.1111/dmcn.15135
- By:
- Publication type:
- Article
When the Risks Are High: Psychological Adjustment Among Melanoma Survivors at High Risk of Developing New Primary Disease.
- Published in:
- 2012
- By:
- Publication type:
- Journal Article
Does motivation predict outcome of pelvic floor muscle retraining?
- Published in:
- Neurourology & Urodynamics, 2017, v. 36, n. 2, p. 316, doi. 10.1002/nau.22917
- By:
- Publication type:
- Article
Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study.
- Published in:
- Journal of the American Heart Association, 2024, v. 13, n. 15, p. 1, doi. 10.1161/JAHA.123.033818
- By:
- Publication type:
- Article
Prevalence and Prognostic Association of a Clinical Diagnosis of Depression in Adult Congenital Heart Disease: Results of the Boston Adult Congenital Heart Disease Biobank.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Health-Related Quality of Life in Children, Adolescents, and Adults With a Fontan Circulation: A Meta-Analysis.
- Published in:
- 2020
- By:
- Publication type:
- journal article
The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods.
- Published in:
- ClinicoEconomics & Outcomes Research, 2022, v. 14, p. 665, doi. 10.2147/CEOR.S370311
- By:
- Publication type:
- Article
Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review.
- Published in:
- 2020
- By:
- Publication type:
- journal article
"Congenital heart health": how psychological care can make a difference.
- Published in:
- 2016
- By:
- Publication type:
- journal article
What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta‐analysis.
- Published in:
- Psycho-Oncology, 2022, v. 31, n. 6, p. 879, doi. 10.1002/pon.5921
- By:
- Publication type:
- Article
Economic evaluations of psychosocial interventions in cancer: a systematic review.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Improving subjective perception of personal cancer risk: systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer.
- Published in:
- Psycho-Oncology, 2014, v. 23, n. 6, p. 613, doi. 10.1002/pon.3476
- By:
- Publication type:
- Article
Psycho-educational interventions for melanoma survivors: a systematic review.
- Published in:
- Psycho-Oncology, 2013, v. 22, n. 7, p. 1444, doi. 10.1002/pon.3165
- By:
- Publication type:
- Article
Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes.
- Published in:
- Psycho-Oncology, 2013, v. 22, n. 1, p. 228, doi. 10.1002/pon.2049
- By:
- Publication type:
- Article