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Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study.
Published in:
2017
By:
- Verberne, Lisa;
- Kars, Marijke;
- Schouten-van Meeteren, Antoinette;
- Bosman, Diederik;
- Colenbrander, Derk;
- Grootenhuis, Martha;
- Delden, Johannes;
- Verberne, Lisa M;
- Kars, Marijke C;
- Schouten-van Meeteren, Antoinette Y N;
- Bosman, Diederik K;
- Colenbrander, Derk A;
- Grootenhuis, Martha A;
- van Delden, Johannes J M
Publication type:
journal article
Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home.
Published in:
European Journal of Pediatrics, 2024, v. 183, n. 2, p. 629, doi. 10.1007/s00431-023-05314-4
By:
- Brouwer, Marije A.;
- Bas-Douw, Barbara C.;
- Leget, Carlo J. W.;
- Engel, Marijanne;
- Teunissen, Saskia C. C. M.;
- Kars, Marijke C.
Publication type:
Article
Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study.
Published in:
European Journal of Pediatrics, 2023, v. 182, n. 10, p. 4683, doi. 10.1007/s00431-023-05139-1
By:
- van Driessche, Anne;
- Beernaert, Kim;
- Deliens, Luc;
- Kars, Marijke C.;
- Lyon, Maureen E.;
- Barrera, Maru;
- Dussel, Veronica;
- Bidstrup, Pernille;
- Rosenberg, Abby R.;
- Akard, Terrah F.;
- Cohen, Joachim;
- De Vleminck, Aline
Publication type:
Article
Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals.
Published in:
European Journal of Pediatrics, 2021, v. 180, n. 3, p. 949, doi. 10.1007/s00431-020-03824-z
By:
- Verberne, Lisa M.;
- Fahner, Jurrianne C.;
- Sondaal, Stephanie F. V.;
- Schouten–van Meeteren, Antoinette Y. N.;
- de Kruiff, Chris C.;
- van Delden, Johannes J. M.;
- Kars, Marijke C.
Publication type:
Article
Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child.
Published in:
European Journal of Pediatrics, 2020, v. 179, n. 9, p. 1461, doi. 10.1007/s00431-020-03627-2
By:
- Fahner, Jurrianne C.;
- Thölking, Thessa W.;
- Rietjens, Judith A. C.;
- van der Heide, Agnes;
- van Delden, Johannes J. M.;
- Kars, Marijke C.
Publication type:
Article
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study.
Published in:
2019
By:
- Verberne, Lisa M.;
- Kars, Marijke C.;
- Schouten-van Meeteren, Antoinette Y. N.;
- van den Bergh, Esther M. M.;
- Bosman, Diederik K.;
- Colenbrander, Derk A.;
- Grootenhuis, Martha A.;
- van Delden, Johannes J. M.
Publication type:
journal article
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review.
Published in:
Palliative Medicine, 2023, v. 37, n. 9, p. 1303, doi. 10.1177/02692163231186173
By:
- Engel, Marijanne;
- Brouwer, Marije A;
- Jansen, Nienke;
- Leget, Carlo;
- Teunissen, Saskia CCM;
- Kars, Marijke C
Publication type:
Article
Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning.
Published in:
Palliative Medicine, 2023, v. 37, n. 5, p. 707, doi. 10.1177/02692163221142950
By:
- Korfage, Ida J;
- Polinder, Suzanne;
- Preston, Nancy;
- van Delden, Johannes JM;
- Geraerds, SandraJLM;
- Dunleavy, Lesley;
- Faes, Kristof;
- Miccinesi, Guido;
- Carreras, Giulia;
- Moeller Arnfeldt, Caroline;
- Kars, Marijke C;
- Lippi, Giuseppe;
- Lunder, Urska;
- Mateus, Ceu;
- Pollock, Kristian;
- Deliens, Luc;
- Groenvold, Mogens;
- van der Heide, Agnes;
- Rietjens, Judith AC
Publication type:
Article
Parental experiences with a paediatric palliative care team: A qualitative study.
Published in:
Palliative Medicine, 2017, v. 31, n. 10, p. 956, doi. 10.1177/0269216317692682
By:
- Verberne, Lisa M.;
- Schouten-van Meeteren, Antoinette Y. N.;
- Bosman, Diederik K.;
- Colenbrander, Derk A.;
- Jagt, Charissa T.;
- Grootenhuis, Martha A.;
- van Delden, Johannes J. M.;
- Kars, Marijke C.
Publication type:
Article
A systematic review of reasons for gatekeeping in palliative care research.
Published in:
Palliative Medicine, 2016, v. 30, n. 6, p. 533, doi. 10.1177/0269216315616759
By:
- Kars, Marijke C.;
- van Thiel, Ghislaine J. M. W.;
- van der Graaf, Rieke;
- Moors, Marleen;
- de Graeff , Alexander;
- van Delden, Johannes J. M.
Publication type:
Article
Decisions to Withhold Diagnostic Investigations in Nursing Home Patients with a Clinical Suspicion of Venous Thromboembolism.
Published in:
PLoS ONE, 2014, v. 9, n. 3, p. 1, doi. 10.1371/journal.pone.0090395
By:
- Schouten, Henrike J.;
- Koek, Huiberdina L.;
- Kruisman-Ebbers, Marije;
- Geersing, Geert-Jan;
- Oudega, Ruud;
- Kars, Marijke C.;
- Moons, Karel G. M.;
- van Delden, Johannes J. M.
Publication type:
Article
Advance care planning--a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study.
Published in:
2016
By:
- Rietjens, Judith A. C.;
- Korfage, Ida J.;
- Dunleavy, Lesley;
- Preston, Nancy J.;
- Jabbarian, Lea J.;
- Christensen, Caroline Arnfeldt;
- de Brito, Maja;
- Bulli, Francesco;
- Caswell, Glenys;
- Červ, Branka;
- van Delden, Johannes;
- Deliens, Luc;
- Gorini, Giuseppe;
- Groenvold, Mogens;
- Houttekier, Dirk;
- Ingravallo, Francesca;
- Kars, Marijke C.;
- Lunder, Urška;
- Miccinesi, Guido;
- Mimić, Alenka
Publication type:
journal article
Postdoctoral Nurses' Experiences With Leadership and Career Development: A Qualitative Study.
Published in:
Journal of Nursing Scholarship, 2019, v. 51, n. 6, p. 689, doi. 10.1111/jnu.12519
By:
- Lange, Wendela;
- Kars, Marijke C.;
- Poslawsky, Irina E.;
- Schuurmans, Marieke J.;
- Hafsteinsdóttir, Thóra B.
Publication type:
Article
Effective communication in palliative care from the perspectives of patients and relatives: A systematic review.
Published in:
Palliative & Supportive Care, 2023, v. 21, n. 5, p. 890, doi. 10.1017/S1478951523001165
By:
- Engel, Marijanne;
- Kars, Marijke C.;
- Teunissen, Saskia C.C.M.;
- van der Heide, Agnes
Publication type:
Article
The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.
Published in:
BMC Pediatrics, 2022, v. 22, n. 1, p. 1, doi. 10.1186/s12887-022-03247-9
By:
- van Driessche, Anne;
- Gilissen, Joni;
- De Vleminck, Aline;
- Kars, Marijke;
- Fahner, Jurrianne;
- van der Werff ten Bosch, Jutte;
- Deliens, Luc;
- Cohen, Joachim;
- Beernaert, Kim
Publication type:
Article
The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.
Published in:
2022
By:
- van Driessche, Anne;
- Gilissen, Joni;
- De Vleminck, Aline;
- Kars, Marijke;
- Fahner, Jurrianne;
- van der Werff ten Bosch, Jutte;
- Deliens, Luc;
- Cohen, Joachim;
- Beernaert, Kim
Publication type:
journal article
Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation.
Published in:
2021
By:
- van Driessche, Anne;
- De Vleminck, Aline;
- Gilissen, Joni;
- Kars, Marijke C.;
- van der Werff ten Bosch, Jutte;
- Deliens, Luc;
- Cohen, Joachim;
- Beernaert, Kim
Publication type:
journal article
Parents' and healthcare professionals' experiences with the content of an individual care plan for pediatric palliative care: a mixed-method study.
Published in:
Palliative Care & Social Practice, 2024, p. 1, doi. 10.1177/26323524241277572
By:
- Joren, Chantal Y.;
- Kars, Marijke C.;
- Kremer, Leontien C. M.;
- Hofman, Suzanne C.;
- Rippen-Wagner, Hester;
- Slingerland-Blom, Ria;
- van der Velden, Chantal;
- Schuiling-Otten, Meggi;
- Verhagen, A. A. Eduard;
- Aris-Meijer, Judith L.
Publication type:
Article
Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.
Published in:
Journal of Genetic Counseling, 2016, v. 25, n. 3, p. 461, doi. 10.1007/s10897-015-9889-6
By:
- Baars, Jessica;
- Ausems, Margreet;
- Riel, Els;
- Kars, Marijke;
- Bleiker, Eveline
Publication type:
Article
Parental experience at the end-of-life in children with cancer: 'preservation' and 'letting go' in relation to loss.
Published in:
2011
By:
- Kars MC;
- Grypdonck MH;
- de Korte-Verhoef MC;
- Kamps WA;
- Meijer-van den Bergh EM;
- Verkerk MA;
- van Delden JJ;
- Kars, Marijke C;
- Grypdonck, Mieke H F;
- de Korte-Verhoef, Maria C;
- Kamps, Willem A;
- Meijer-van den Bergh, Esther M M;
- Verkerk, Marian A;
- van Delden, Johannes J M
Publication type:
journal article
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.
Published in:
Children, 2024, v. 11, n. 8, p. 967, doi. 10.3390/children11080967
By:
- Joren, Chantal Y.;
- Aris-Meijer, Judith L.;
- Kremer, Leontien C. M.;
- Hofman, Suzanne C.;
- Rippen-Wagner, Hester;
- Slingerland-Blom, Ria;
- van der Velden, Chantal;
- Schuiling-Otten, Meggi A.;
- Verhagen, A. A. Eduard;
- Kars, Marijke C.
Publication type:
Article
Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review.
Published in:
Children, 2022, v. 9, n. 6, p. 830, doi. 10.3390/children9060830
By:
- Brunetta, Julie;
- Fahner, Jurrianne;
- Legemaat, Monique;
- van den Bergh, Esther;
- Krommenhoek, Koen;
- Prinsze, Kyra;
- Kars, Marijke;
- Michiels, Erna
Publication type:
Article
Treatment decision-making in diffuse cutaneous systemic sclerosis: a patient's perspective.
Published in:
Rheumatology, 2020, v. 59, n. 8, p. 2052, doi. 10.1093/rheumatology/kez579
By:
- Spierings, Julia;
- Rhijn-Brouwer, Femke C C van;
- Bresser, Carolijn J M de;
- Mosterman, Petra T M;
- Pieterse, Arwen H;
- Vonk, Madelon C;
- Voskuyl, Alexandre E;
- Vries-Bouwstra, Jeska K de;
- Kars, Marijke C;
- Laar, Jacob M van
Publication type:
Article
A grounded theory study on the dynamics of parental grief during the children's end of life.
Published in:
Acta Paediatrica, 2023, v. 112, n. 5, p. 1101, doi. 10.1111/apa.16716
By:
- Kochen, Eline M.;
- Grootenhuis, Martha A.;
- Teunissen, Saskia C. C. M.;
- Boelen, Paul A.;
- Tataranno, Maria‐Luisa;
- Fahner, Jurrianne C.;
- de Jonge, Roos R.;
- Houben, Michiel L.;
- Kars, Marijke C.;
- van Berkestijn, Frédérique;
- Falkenburg, Jeannette;
- Frohn‐Mulder, Ingrid;
- Knoester, Hennie;
- Molderink, Alice;
- van de Loo, Moniek;
- Michiels, Erna
Publication type:
Article
Insight into the content of and experiences with follow‐up conversations with bereaved parents in paediatrics: A systematic review.
Published in:
Acta Paediatrica, 2022, v. 111, n. 4, p. 716, doi. 10.1111/apa.16248
By:
- van Kempen, Merel M.;
- Kochen, Eline M.;
- Kars, Marijke C.
Publication type:
Article
Researching lived experience in health care: Significance for care ethics.
Published in:
2011
By:
- Dierckx de Casterlé, Bernadette;
- Verhaeghe, Sofie TL;
- Kars, Marijke C;
- Coolbrandt, Annemarie;
- Stevens, Marleen;
- Stubbe, Maaike;
- Deweirdt, Nathalie;
- Vincke, Jeroen;
- Grypdonck, Maria
Publication type:
Journal Article
Parents' perspectives on nusinersen treatment for children with spinal muscular atrophy.
Published in:
Developmental Medicine & Child Neurology, 2021, v. 63, n. 7, p. 816, doi. 10.1111/dmcn.14825
By:
- Kruijsbergen, Mette;
- Schröder, Carin D;
- Ketelaar, Marjolijn;
- Pol, W Ludo;
- Cuppen, Inge;
- Geest, Annette;
- Asselman, Fay‐Lynn;
- Fischer, Maarten J;
- Visser‐Meily, Johanna M A;
- Kars, Marijke C
Publication type:
Article
Effective nursing care of adolescents diagnosed with anorexia nervosa: the patients’ perspective.
Published in:
Journal of Clinical Nursing (Wiley-Blackwell), 2009, v. 18, n. 20, p. 2801, doi. 10.1111/j.1365-2702.2009.02821.x
By:
- Van Ommen, Joyce;
- Meerwijk, Esther L.;
- Kars, Marijke;
- Van Elburg, Annemarie;
- Van Meijel, Berno
Publication type:
Article
Parental experiences in end-of-life decision-making in allogeneic pediatric stem cell transplantation: "Have I been a good parent?".
Published in:
2020
By:
- Mekelenkamp, Hilda;
- Lankester, Arjan C.;
- Bierings, Marc B.;
- Smiers, Frans J.W.;
- Vries, Martine C.;
- Kars, Marijke C.;
- de Vries, Martine C
Publication type:
journal article
Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology.
Published in:
Pediatric Blood & Cancer, 2015, v. 62, n. 5, p. 816, doi. 10.1002/pbc.25444
By:
- Dekking, Sara A. S.;
- van der Graaf, Rieke;
- Kars, Marijke C.;
- Beishuizen, Auke;
- de Vries, Martine C.;
- van Delden, Johannes J. M.
Publication type:
Article
Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial.
Published in:
2020
By:
- Korfage, Ida J.;
- Carreras, Giulia;
- Arnfeldt Christensen, Caroline M.;
- Billekens, Pascalle;
- Bramley, Louise;
- Briggs, Linda;
- Bulli, Francesco;
- Caswell, Glenys;
- Červ, Branka;
- van Delden, Johannes J. M.;
- Deliens, Luc;
- Dunleavy, Lesley;
- Eecloo, Kim;
- Gorini, Giuseppe;
- Groenvold, Mogens;
- Hammes, Bud;
- Ingravallo, Francesca;
- Jabbarian, Lea J.;
- Kars, Marijke C.;
- Kodba-Čeh, Hana
Publication type:
journal article
Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries: Experiences from the ACTION trial.
Published in:
PLoS ONE, 2022, v. 17, n. 7, p. 1, doi. 10.1371/journal.pone.0271919
By:
- Arnfeldt, Caroline Moeller;
- Groenvold, Mogens;
- Johnsen, Anna Thit;
- Červ, Branka;
- Deliens, Luc;
- Dunleavy, Lesley;
- van der Heide, Agnes;
- Kars, Marijke C.;
- Lunder, Urška;
- Miccinesi, Guido;
- Pollock, Kristian;
- Rietjens, Judith A. C.;
- Seymour, Jane
Publication type:
Article
Being a Parent of a Child With Cancer Throughout the End-of-Life Course.
Published in:
Oncology Nursing Forum, 2011, v. 38, n. 4, p. E260, doi. 10.1188/11.ONF.E260-E271
By:
- Kars, Marijke C.;
- Grypdonck, Mieke H. F.;
- van Delden, Johannes J. M.
Publication type:
Article
Factors influencing parental readiness to let their child with cancer die.
Published in:
Pediatric Blood & Cancer, 2010, v. 54, n. 7, p. 1000, doi. 10.1002/pbc.22532
By:
- Kars, Marijke C.;
- Grypdonck, Mieke H.F.;
- Beishuizen, Auke;
- Meijer-van den Bergh, Esther M.M.;
- van Delden, Johannes J.M.
Publication type:
Article
How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial.
Published in:
European Journal of Cancer Care, 2022, v. 31, n. 6, p. 1, doi. 10.1111/ecc.13719
By:
- Kodba‐Čeh, Hana;
- Lunder, Urška;
- Bulli, Francesco;
- Caswell, Glenys;
- van Delden, Johannes J. M.;
- Kars, Marijke C.;
- Korfage, Ida J.;
- Miccinesi, Guido;
- Rietjens, Judith A. C.;
- Seymour, Jane;
- Toccafondi, Alessandro;
- Zwakman, Marieke;
- Pollock, Kristian
Publication type:
Article
Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit.
Published in:
Acta Paediatrica, 2021, v. 110, n. 1, p. 237, doi. 10.1111/apa.15370
By:
- Fahner, Jurrianne;
- Rietjens, Judith;
- Heide, Agnes;
- Milota, Megan;
- Delden, Johannes;
- Kars, Marijke
Publication type:
Article
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning.
Published in:
2020
By:
- Fahner, Jurrianne C.;
- Rietjens, Judith A. C.;
- Heide, Agnes;
- Delden, Johannes J. M.;
- Kars, Marijke C.;
- van der Heide, Agnes;
- van Delden, Johannes J M
Publication type:
journal article
Show yourself, experiences of patients with bipolar disorder recording a film to show their "euthymic being": A qualitative study.
Published in:
Perspectives in Psychiatric Care, 2020, v. 56, n. 2, p. 455, doi. 10.1111/ppc.12456
By:
- Goossens, Peter J. J.;
- Daggenvoorde, Thea H.;
- Groot Lipman, Melanie H. G.;
- Bendegem, Micha A.;
- Kars, Marijke C.
Publication type:
Article
A Qualitative Study into Dependent Relationships and Voluntary Informed Consent for Research in Pediatric Oncology.
Published in:
Pediatric Drugs, 2016, v. 18, n. 2, p. 145, doi. 10.1007/s40272-015-0158-9
By:
- Dekking, Sara;
- Graaf, Rieke;
- Schouten-van Meeteren, Antoinette;
- Kars, Marijke;
- Delden, Johannes
Publication type:
Article
Aspects and Intensity of Pediatric Palliative Case Management Provided by a Hospital-Based Case Management Team: A Comparative Study Between Children With Malignant and Nonmalignant Disease.
Published in:
American Journal of Hospice & Palliative Medicine, 2018, v. 35, n. 1, p. 123, doi. 10.1177/1049909117695068
By:
- Jagt-van Kampen, Charissa T.;
- Colenbrander, Derk A.;
- Bosman, Diederik K.;
- Grootenhuis, Martha A.;
- Kars, Marijke C.;
- Schouten-van Meeteren, Antoinette Y. N.
Publication type:
Article
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories.
Published in:
BMC Palliative Care, 2020, v. 19, n. 1, p. 1, doi. 10.1186/s12904-020-0529-z
By:
- Kochen, Eline M.;
- Jenken, Floor;
- Boelen, Paul A.;
- Deben, Laura M. A.;
- Fahner, Jurrianne C.;
- van den Hoogen, Agnes;
- Teunissen, Saskia C. C. M.;
- Geleijns, Karin;
- Kars, Marijke C.
Publication type:
Article
Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care.
Published in:
BMC Palliative Care, 2018, v. 17, n. 1, p. N.PAG, doi. 10.1186/s12904-018-0335-z
By:
- Zwakman, Marieke;
- Verberne, Lisa M.;
- Kars, Marijke C.;
- Hooft, Lotty;
- van Delden, Johannes J. M.;
- Spijker, René
Publication type:
Article
Barriers and facilitators to the implementation of a paediatric palliative care team.
Published in:
BMC Palliative Care, 2018, v. 17, p. 1, doi. 10.1186/s12904-018-0274-8
By:
- Verberne, Lisa M.;
- Kars, Marijke C.;
- Schepers, Sasja A.;
- Schouten-van Meeteren, Antoinette Y. N.;
- Grootenhuis, Martha A.;
- van Delden, Johannes J. M.
Publication type:
Article
A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team.
Published in:
BMC Palliative Care, 2017, v. 16, p. 1, doi. 10.1186/s12904-016-0166-8
By:
- Jagt-van Kampen, Charissa T.;
- Kars, Marijke C.;
- Colenbrander, Derk A.;
- Bosman, Diederik K.;
- Grootenhuis, Martha A.;
- Caron, Huib N.;
- Schouten-van Meeteren, Antoinette Y. N.
Publication type:
Article
Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study.
Published in:
2021
By:
- Carreras, Giulia;
- Miccinesi, Guido;
- Wilcock, Andrew;
- Preston, Nancy;
- Nieboer, Daan;
- Deliens, Luc;
- Groenvold, Mogensm;
- Lunder, Urska;
- van der Heide, Agnes;
- Baccini, Michela;
- ACTION consortium;
- Korfage, Ida J.;
- Rietjens, Judith A. C.;
- Jabbarian, Lea J.;
- Polinder, Suzanne;
- van Delden, Hans;
- Kars, Marijke;
- Zwakman, Marieke;
- Verkissen, Mariëtte N.;
- Eecloo, Kim
Publication type:
journal article

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