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Implementation of a clinical long-term follow-up database for adult childhood cancer survivors in Germany: a feasibility study at two specialised late effects clinics.
Published in:
Journal of Cancer Research & Clinical Oncology, 2023, v. 149, n. 14, p. 12855, doi. 10.1007/s00432-023-05145-8
By:
- Sleimann, Madelaine;
- Balcerek, Magdalena;
- Cytera, Chirine;
- Richter, Franziska;
- Borgmann-Staudt, Anja;
- Wörmann, Bernhard;
- Kronziel, Lea Louisa;
- Calaminus, Gabriele;
- Kock-Schoppenhauer, Ann-Kristin;
- Grabow, Desiree;
- Baust, Katja;
- Neumann, Anke;
- Langer, Thorsten;
- Gebauer, Judith
Publication type:
Article
The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries.
Published in:
European Journal of Epidemiology, 2018, v. 33, n. 3, p. 335, doi. 10.1007/s10654-018-0370-3
By:
- Grabow, Desiree;
- Kaiser, Melanie;
- Hjorth, Lars;
- Byrne, Julianne;
- Alessi, Daniela;
- Allodji, Rodrigue S.;
- Bagnasco, Francesca;
- Bárdi, Edit;
- Bautz, Andrea;
- Bright, Chloe J.;
- de Vathaire, Florent;
- Feijen, Elizabeth A. M.;
- Garwicz, Stanislaw;
- Hagberg, Oskar;
- Haupt, Riccardo;
- Hawkins, Mike M.;
- Jakab, Zsuzsanna;
- Kremer, Leontien C. M.;
- Kuehni, Claudia E.;
- Kuonen, Rahel
Publication type:
Article
Managing a Pan-European Consortium on Late Effects among Long-Term Survivors of Childhood and Adolescent Cancer—The PanCareLIFE Project.
Published in:
International Journal of Environmental Research & Public Health, 2021, v. 18, n. 8, p. 3918, doi. 10.3390/ijerph18083918
By:
- Kaatsch, Peter;
- Byrne, Julianne;
- Grabow, Desiree
Publication type:
Article
Radiation-response in primary fibroblasts of long-term survivors of childhood cancer with and without second primary neoplasms: the KiKme study.
Published in:
Molecular Medicine, 2022, v. 28, n. 1, p. 1, doi. 10.1186/s10020-022-00520-6
By:
- Grandt, Caine Lucas;
- Brackmann, Lara Kim;
- Poplawski, Alicia;
- Schwarz, Heike;
- Hummel-Bartenschlager, Willempje;
- Hankeln, Thomas;
- Kraemer, Christiane;
- Marini, Federico;
- Zahnreich, Sebastian;
- Schmitt, Iris;
- Drees, Philipp;
- Mirsch, Johanna;
- Grabow, Desiree;
- Schmidberger, Heinz;
- Binder, Harald;
- Hess, Moritz;
- Galetzka, Danuta;
- Marron, Manuela
Publication type:
Article
Social outcomes of long-term survivors of adolescent cancer.
Published in:
Psycho-Oncology, 2010, v. 19, n. 12, p. 1277, doi. 10.1002/pon.1692
By:
- Dieluweit, Ute;
- Debatin, Klaus‐Michael;
- Grabow, Desiree;
- Kaatsch, Peter;
- Peter, Richard;
- Seitz, Diana C. M.;
- Goldbeck, Lutz
Publication type:
Article
Updated International Guidelines for Survivorship Care after Pediatric Cancer: Practice Implications in a German and Austrian Comprehensive Care Network.
Published in:
Oncology Research & Treatment, 2023, v. 46, n. 9, p. 382, doi. 10.1159/000530970
By:
- Gebauer, Judith;
- Baust, Katja;
- Bardi, Edit;
- Grabow, Desiree;
- Calminus, Gabriele;
- Ronckers, Cécile M;
- Langer, Thorsten
Publication type:
Article
Guidelines for Long-Term Follow-Up after Childhood Cancer: Practical Implications for the Daily Work.
Published in:
Oncology Research & Treatment, 2020, v. 43, n. 3, p. 61, doi. 10.1159/000504200
By:
- Gebauer, Judith;
- Baust, Katja;
- Bardi, Edit;
- Grabow, Desiree;
- Stein, Alexander;
- van der Pal, Helena J.;
- Calaminus, Gabriele;
- Langer, Thorsten
Publication type:
Article
Late Effects and Long-Term Follow-Up after Cancer in Childhood.
Published in:
Oncology Research & Treatment, 2017, v. 40, n. 12, p. 746, doi. 10.1159/000484936
By:
- Langer, Thorsten;
- Grabow, Desiree;
- Steinmann, Diana;
- Wörmann, Bernhard;
- Calaminus, Gabriele
Publication type:
Article
Eye Tumors in Childhood as First Sign of Tumor Predisposition Syndromes: Insights from an Observational Study Conducted in Germany and Austria.
Published in:
Cancers, 2021, v. 13, n. 8, p. 1876, doi. 10.3390/cancers13081876
By:
- Reschke, Madlen;
- Biewald, Eva;
- Bronstein, Leo;
- Brecht, Ines B.;
- Dittner-Moormann, Sabine;
- Driever, Frank;
- Ebinger, Martin;
- Fleischhack, Gudrun;
- Grabow, Desiree;
- Geismar, Dirk;
- Göricke, Sophia;
- Guberina, Maja;
- Le Guin, Claudia H. D.;
- Kiefer, Tobias;
- Kratz, Christian P.;
- Metz, Klaus;
- Müller, Bert;
- Ryl, Tatsiana;
- Schlamann, Marc;
- Schlüter, Sabrina
Publication type:
Article
Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE.
Published in:
Journal of Medical Internet Research, 2021, v. 23, n. 1, p. N.PAG, doi. 10.2196/21851
By:
- Calaminus, Gabriele;
- Baust, Katja;
- Berger, Claire;
- Byrne, Julianne;
- Binder, Harald;
- Casagranda, Leonie;
- Grabow, Desiree;
- Grootenhuis, Martha;
- Kaatsch, Peter;
- Kaiser, Melanie;
- Kepak, Tomas;
- Kepáková, Kateřina;
- Kremer, Leontien C M;
- Kruseova, Jarmila;
- Luks, Ales;
- Spix, Claudia;
- van den Berg, Marleen;
- Heuvel-Eibrink, Marry M M van den;
- Broeder, Eline van Dulmen-den;
- Kuonen, Rahel
Publication type:
Article
Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE).
Published in:
Journal of Medical Internet Research, 2018, v. 20, n. 9, p. 125, doi. 10.2196/10824
By:
- van den Berg1, Marleen;
- van Dijk, Marloes;
- Byrne, Julianne;
- Campbell, Helen;
- Berger, Claire;
- Borgmann-Staudt, Anja;
- Calaminus, Gabriele;
- Dirksen, Uta;
- Winther, Jeanette F.;
- Fossa, Sophie D.;
- Grabow, Desiree;
- Grandage1, Victoria L.;
- van den Heuvel-Eibrink, Marry M.;
- Kaiser, Melanie;
- Kepak, Tomas;
- Kremer, Leontien C.;
- Kruseova, Jarmila;
- Kuehni, Claudia E.;
- Lambalk, Cornelis B.;
- van Leeuwen, Flora E.
Publication type:
Article
The impact of the temporal sequence of cranial radiotherapy and platin‐based chemotherapy on hearing impairment in pediatric and adolescent CNS and head‐and‐neck cancer patients: A report from the PanCareLIFE consortium.
Published in:
International Journal of Cancer, 2024, v. 154, n. 2, p. 320, doi. 10.1002/ijc.34732
By:
- Scobioala, Sergiu;
- Parfitt, Ross;
- Matulat, Peter;
- Byrne, Julianne;
- Langer, Thorsten;
- Troschel, Fabian M.;
- Hesping, Amélie E.;
- Clemens, Eva;
- Kaatsch, Peter;
- Grabow, Desiree;
- Kaiser, Melanie;
- Spix, Claudia;
- Kremer, Leontien C.;
- Calaminus, Gabriele;
- Baust, Katja;
- Kuehni, Claudia E.;
- Weiss, Annette;
- Strebel, Sven;
- Kuonen, Rahel;
- Elsner, Susanne
Publication type:
Article
Temporal patterns of childhood cancer survival 1991 to 2016: A nationwide register‐study based on data from the German Childhood Cancer Registry.
Published in:
International Journal of Cancer, 2023, v. 153, n. 4, p. 742, doi. 10.1002/ijc.34556
By:
- Wellbrock, Maike;
- Spix, Claudia;
- Ronckers, Cécile M;
- Grabow, Desiree;
- Filbert, Anna‐Liesa;
- Borkhardt, Arndt;
- Wollschläger, Daniel;
- Erdmann, Friederike
Publication type:
Article
Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study.
Published in:
Journal of Cancer Survivorship, 2024, v. 18, n. 3, p. 928, doi. 10.1007/s11764-023-01335-y
By:
- van den Oever, Selina R.;
- de Beijer, Ismay A. E.;
- Kremer, Leontien C. M.;
- Alfes, Marie;
- Balaguer, Julia;
- Bardi, Edit;
- Nieto, Adela Cañete;
- Cangioli, Giorgio;
- Charalambous, Eliana;
- Chronaki, Catherine;
- Costa, Tiago;
- Degelsegger, Alexander;
- Düster, Vanessa;
- Filbert, Anna-Liesa;
- Grabow, Desiree;
- Gredinger, Gerald;
- Gsell, Hannah;
- Haupt, Riccardo;
- van Helvoirt, Maria;
- Ladenstein, Ruth
Publication type:
Article
Second Malignancies Following Childhood Cancer Treatment in Germany From 1980 to 2014: A Registry-Based Analysis.
Published in:
Deutsches Ärzteblatt International, 2018, v. 115, n. 23, p. 385, doi. 10.3238/arztebl.2018.0385
By:
- Scholz-Kreisel, Peter;
- Kaatsch, Peter;
- Spix, Claudia;
- Schmidberger, Heinz;
- Marron, Manuela;
- Grabow, Desiree;
- Becker, Cornelia;
- Blettner, Maria
Publication type:
Article
Genetic variation in gonadal impairment in female survivors of childhood cancer: a PanCareLIFE study protocol.
Published in:
2018
By:
- van der Kooi, Anne-Lotte L. F.;
- Clemens, Eva;
- Broer, Linda;
- Zolk, Oliver;
- Byrne, Julianne;
- Campbell, Helen;
- van den Berg, Marleen;
- Berger, Claire;
- Calaminus, Gabriele;
- Dirksen, Uta;
- Winther, Jeanette Falck;
- Fosså, Sophie D;
- Grabow, Desiree;
- Haupt, Riccardo;
- Kaiser, Melanie;
- Kepak, Tomas;
- Kremer, Leontien;
- Kruseova, Jarmila;
- Modan-Moses, Dalit;
- Ranft, Andreas
Publication type:
journal article
Late Cardiac Events after Childhood Cancer: Methodological Aspects of the Pan-European Study PanCareSurFup.
Published in:
PLoS ONE, 2016, v. 11, n. 9, p. 1, doi. 10.1371/journal.pone.0162778
By:
- Feijen, Elizabeth A. M.;
- Font-Gonzalez, Anna;
- van Dalen, Elvira C.;
- van der Pal, Helena J. H.;
- Reulen, Raoul C.;
- Winter, David L.;
- Kuehni, Claudia E.;
- Haupt, Riccardo;
- Alessi, Daniela;
- Byrne, Julianne;
- Bardi, Edit;
- Jakab, Zsuzsanna;
- Grabow, Desiree;
- Garwicz, Stanislaw;
- Jankovic, Momcilo;
- Levitt, Gill A.;
- Skinner, Roderick;
- Zadravec Zaletel, Lorna;
- Hjorth, Lars;
- Tissing, Wim J. E.
Publication type:
Article
Risk of subsequent gliomas and meningiomas among 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study.
Published in:
British Journal of Cancer, 2024, v. 130, n. 6, p. 976, doi. 10.1038/s41416-024-02577-y
By:
- Heymer, Emma J.;
- Hawkins, Michael M.;
- Winter, David L.;
- Teepen, Jop C.;
- Sunguc, Ceren;
- Ronckers, Cécile M.;
- Allodji, Rodrigue S.;
- Alessi, Daniela;
- Sugden, Elaine;
- Belle, Fabiën N.;
- Bagnasco, Francesca;
- Byrne, Julianne;
- Bárdi, Edit;
- Garwicz, Stanislaw;
- Grabow, Desiree;
- Jankovic, Momcilo;
- Kaatsch, Peter;
- Kaiser, Melanie;
- Michel, Gisela;
- Schindera, Christina
Publication type:
Article
Risk of subsequent primary oral cancer in a cohort of 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study.
Published in:
British Journal of Cancer, 2023, v. 128, n. 1, p. 80, doi. 10.1038/s41416-022-02016-w
By:
- Sunguc, Ceren;
- Hawkins, Michael M.;
- Winter, David L.;
- Dudley, Isabelle M.;
- Heymer, Emma J.;
- Teepen, Jop C.;
- Allodji, Rodrigue S.;
- Belle, Fabiën N.;
- Bagnasco, Francesca;
- Byrne, Julianne;
- Bárdi, Edit;
- Ronckers, Cécile M.;
- Haddy, Nadia;
- Gudmundsdottir, Thorgerdur;
- Garwicz, Stanislaw;
- Jankovic, Momcilo;
- van der Pal, Helena J. H.;
- Mazić, Maja Česen;
- Schindera, Christina;
- Grabow, Desiree
Publication type:
Article
Registration, incidence patterns, and survival trends of central nervous system tumors among children in Germany 1980–2019: An analysis of 40 years based on data from the German Childhood Cancer Registry.
Published in:
Pediatric Blood & Cancer, 2024, v. 71, n. 6, p. 1, doi. 10.1002/pbc.30954
By:
- Wellbrock, Maike;
- Voigt, Mathias;
- Ronckers, Cecile;
- Grabow, Desiree;
- Spix, Claudia;
- Erdmann, Friederike
Publication type:
Article
Late mortality reduction among survivors of germ cell tumors in childhood and adolescence in Europe: A report from the PanCareSurFup cohort.
Published in:
Pediatric Blood & Cancer, 2022, v. 69, n. 12, p. 1, doi. 10.1002/pbc.29991
By:
- Trama, Annalisa;
- Bernasconi, Alice;
- Botta, Laura;
- Byrne, Julianne;
- Grabow, Desiree;
- Reulen, Raoul C.;
- Calaminus, Gabriele;
- Terenziani, Monica
Publication type:
Article
Mental health and health‐related quality of life in preschool‐aged childhood cancer survivors. Results of the prospective cohort study ikidS‐OEVA.
Published in:
Pediatric Blood & Cancer, 2021, v. 68, n. 8, p. 1, doi. 10.1002/pbc.29039
By:
- Neu, Marie A.;
- Schlecht, Jennifer;
- Schmidt, Martina F.;
- Robinson, Abigale L.;
- Spix, Claudia;
- Grabow, Desiree;
- Kaatsch, Peter;
- Erdmann, Friederike;
- Faber, Jörg;
- Urschitz, Michael S.
Publication type:
Article
Childhood cancer survivor cohorts in Europe.
Published in:
Acta Oncologica, 2015, v. 54, n. 5, p. 655, doi. 10.3109/0284186X.2015.1008648
By:
- Winther, Jeanette F.;
- Kenborg, Line;
- Byrne, Julianne;
- Hjorth, Lars;
- Kaatsch, Peter;
- Kremer, Leontien C. M.;
- Kuehni, Claudia E.;
- Auquier, Pascal;
- Michel, Gérard;
- de Vathaire, Florent;
- Haupt, Riccardo;
- Skinner, Roderick;
- Madanat-Harjuoja, Laura M.;
- Tryggvadottir, Laufey;
- Wesenberg, Finn;
- Reulen, Raoul C.;
- Grabow, Desiree;
- Ronckers, Cecile M.;
- van Dulmen-den Broeder, Eline;
- van den Heuvel-Eibrink, Marry M.
Publication type:
Article
Educational and vocational achievement among long-term survivors of adolescent cancer in Germany.
Published in:
Pediatric Blood & Cancer, 2011, v. 56, n. 3, p. 432, doi. 10.1002/pbc.22806
By:
- Dieluweit, Ute;
- Debatin, Klaus-Michael;
- Grabow, Desiree;
- Kaatsch, Peter;
- Peter, Richard;
- Seitz, Diana C.M.;
- Goldbeck, Lutz
Publication type:
Article
Life satisfaction in adult survivors of cancer during adolescence: what contributes to the latter satisfaction with life?
Published in:
2011
By:
- Seitz, Diana;
- Hagmann, Daniela;
- Besier, Tanja;
- Dieluweit, Ute;
- Debatin, Klaus-Michael;
- Grabow, Desiree;
- Kaatsch, Peter;
- Henrich, Gerhard;
- Goldbeck, Lutz;
- Seitz, Diana C M
Publication type:
journal article
Corrigendum: Patient-reported long-term outcome following allogeneic hematopoietic stem cell transplantation in pediatric chronic myeloid leukemia.
Published in:
Frontiers in Oncology, 2022, v. 12, p. 1, doi. 10.3389/fonc.2022.1116757
By:
- Schleicher, Oliver;
- Horndasch, Annkathrin;
- Krumbholz, Manuela;
- Sembill, Stephanie;
- Bremensdorfer, Claudia;
- Grabow, Desiree;
- Erdmann, Friederike;
- Karow, Axel;
- Metzler, Markus;
- Suttorp, Meinolf
Publication type:
Article
Late health effects and changes in lifestyle factors after cancer in childhood with and without subsequent second primary cancers - the KiKme case-control study.
Published in:
Frontiers in Oncology, 2022, v. 12, p. 1, doi. 10.3389/fonc.2022.1037276
By:
- Brackmann, Lara Kim;
- Foraita, Ronja;
- Schwarz, Heike;
- Galetzka, Danuta;
- Zahnreich, Sebastian;
- Hankeln, Thomas;
- Löbrich, Markus;
- Poplawski, Alicia;
- Grabow, Desiree;
- Blettner, Maria;
- Schmidberger, Heinz;
- Marron, Manuela
Publication type:
Article
Patient-reported long-term outcome following allogeneic hematopoietic stem cell transplantation in pediatric chronic myeloid leukemia.
Published in:
Frontiers in Oncology, 2022, v. 12, p. 1, doi. 10.3389/fonc.2022.963223
By:
- Schleicher, Oliver;
- Horndasch, Annkathrin;
- Krumbholz, Manuela;
- Sembill, Stephanie;
- Bremensdorfer, Claudia;
- Grabow, Desiree;
- Erdmann, Friederike;
- Karow, Axel;
- Metzler, Markus;
- Suttorp, Meinolf
Publication type:
Article
Krebs im Kindes- und Jugendalter.
Published in:
Public Health Forum, 2019, v. 27, n. 4, p. 330, doi. 10.1515/pubhef-2019-0073
By:
- Spix, Claudia;
- Kaatsch, Peter;
- Grabow, Desiree
Publication type:
Article
Die Kohorte der 41.000 Langzeitüberlebenden des Deutschen Kinderkrebsregisters.
Published in:
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 2022, v. 65, n. 4, p. 453, doi. 10.1007/s00103-022-03507-0
By:
- Kaatsch, Peter;
- Trübenbach, Claudia;
- Kaiser, Melanie;
- Erdmann, Friederike;
- Spix, Claudia;
- Grabow, Desiree
Publication type:
Article
Risk of Soft-Tissue Sarcoma Among 69 460 Five-Year Survivors of Childhood Cancer in Europe.
Published in:
2018
By:
- Bright, Chloe J.;
- Hawkins, Mike M.;
- Winter, David L.;
- Alessi, Daniela;
- Allodji, Rodrigue S.;
- Bagnasco, Francesca;
- Bárdi, Edit;
- Bautz, Andrea;
- Byrne, Julianne;
- Feijen, Elizabeth A. M.;
- Fidler, Miranda M.;
- Garwicz, Stanislaw;
- Grabow, Desiree;
- Gudmundsdottir, Thorgerdur;
- Guha, Joyeeta;
- Haddy, Nadia;
- Jankovic, Momcilo;
- Kaatsch, Peter;
- Kaiser, Melanie;
- Kuehni, Claudia E.
Publication type:
journal article
Risk of Subsequent Bone Cancers Among 69 460 Five-Year Survivors of Childhood and Adolescent Cancer in Europe.
Published in:
JNCI: Journal of the National Cancer Institute, 2018, v. 110, n. 2, p. 1, doi. 10.1093/jnci/djx165
By:
- Fidler, Miranda M.;
- Reulen, Raoul C.;
- Winter, David L.;
- Allodji, Rodrigue S.;
- Bagnasco, Francesca;
- Bárdi, Edit;
- Bautz, Andrea;
- Bright, Chloe J.;
- Byrne, Julianne;
- Feijen, Elizabeth A. M.;
- Garwicz, Stanislaw;
- Grabow, Desiree;
- Gudmundsdottir, Thorgerdur;
- Guha, Joyeeta;
- Haddy, Nadia;
- Jankovic, Momcilo;
- Kaatsch, Peter;
- Kaiser, Melanie;
- Kuonen, Rahel;
- Linge, Helena
Publication type:
Article

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