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Brain Health Registry Study Partner Portal: Novel infrastructure for digital, dyadic data collection.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2024, v. 20, n. 2, p. 846, doi. 10.1002/alz.13492
By:
- Aaronson, Anna;
- Ashford, Miriam T.;
- Jin, Chengshi;
- Bride, Jessica;
- Decker, Josephine;
- DeNicola, Aaron;
- Turner, Robert W.;
- Conti, Catherine;
- Tank, Rachana;
- Truran, Diana;
- Camacho, Monica R.;
- Fockler, Juliet;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Grill, Joshua D.;
- Rabinovici, Gil;
- Carrillo, Maria C.;
- Mackin, R. Scott;
- Weiner, Michael W.;
- Nosheny, Rachel L.
Publication type:
Article
Remote, unsupervised measurement of dyadic subjective cognitive change in the Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, p. 1, doi. 10.1002/alz.075633
By:
- Aaronson, Anna;
- Ashford, Miriam T.;
- Jin, Chengshi;
- Tank, Rachana;
- Camacho, Monica R;
- Fockler, Juliet;
- Flenniken, Derek;
- Truran‐Sacrey, Diana;
- Mackin, Scott R;
- Weiner, Michael S. W.;
- Nosheny, Rachel L
Publication type:
Article
Mobile Toolbox: Remote, unsupervised longitudinal assessment of a diverse cohort in the UCSF Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, p. 1, doi. 10.1002/alz.073456
By:
- Landavazo, Bernard;
- Camacho, Monica R;
- Kaat, Aaron J.;
- Hosseinian, Zahra;
- Gershon, Richard C.;
- Weiner, Michael S. W.;
- Nosheny, Rachel L
Publication type:
Article
Performance of the CANTAB ‐ Paired Associates Learning task in an unsupervised online setting: Results from the Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, p. 1, doi. 10.1002/alz.078890
By:
- Ashford, Miriam T.;
- Aaronson, Anna;
- Kwang, Winnie;
- Eichenbaum, Joseph;
- Gummadi, Shilpa L;
- Jin, Chengshi;
- Cashdollar, Nathan;
- Thorp, Emily;
- Wragg, Elizabeth;
- Zavitz, Kenton;
- Cormack, Francesca K;
- Banh, Timothy;
- Neuhaus, John;
- Ulbricht, Aaron;
- Camacho, Monica R;
- Fockler, Juliet;
- Flenniken, Derek;
- Truran‐Sacrey, Diana;
- Mackin, Scott R;
- Weiner, Michael S. W.
Publication type:
Article
Brain health registry updates: An online longitudinal neuroscience platform.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, n. 11, p. 4935, doi. 10.1002/alz.13077
By:
- Weiner, Michael W.;
- Aaronson, Anna;
- Eichenbaum, Joseph;
- Kwang, Winnie;
- Ashford, Miriam T.;
- Gummadi, Shilpa;
- Santhakumar, Jessica;
- Camacho, Monica R.;
- Flenniken, Derek;
- Fockler, Juliet;
- Truran‐Sacrey, Diana;
- Ulbricht, Aaron;
- Mackin, R. Scott;
- Nosheny, Rachel L.
Publication type:
Article
Digital culturally tailored marketing for enrolling Latino participants in a web‐based registry: Baseline metrics from the Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, n. 5, p. 1714, doi. 10.1002/alz.12805
By:
- Ashford, Miriam T.;
- Camacho, Monica R.;
- Jin, Chengshi;
- Eichenbaum, Joseph;
- Ulbricht, Aaron;
- Alaniz, Roxanne;
- Van De Mortel, Lesley;
- Sorce, Jennefer;
- Aaronson, Anna;
- Parmar, Shivam;
- Flenniken, Derek;
- Fockler, Juliet;
- Truran, Diana;
- Mackin, R. Scott;
- Rivera Mindt, Monica;
- Morlett‐Paredes, Alejandra;
- González, Hector M.;
- Mayeda, Elizabeth Rose;
- Weiner, Michael W.;
- Nosheny, Rachel L.
Publication type:
Article
Participant experience in a longitudinal online research registry: Associations between ethnocultural identity, educational attainment, and participant feedback in the Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 11, p. 1, doi. 10.1002/alz.061333
By:
- Ashford, Miriam T.;
- Eichenbaum, Joseph;
- Jin, Chengshi;
- Neuhaus, John;
- Ulbricht, Aaron;
- Camacho, Monica R;
- Fockler, Juliet;
- Flenniken, Derek;
- Truran‐Sacrey, Diana;
- Mackin, R Scott;
- Maruff, Paul;
- Weiner, Michael W.;
- Nosheny, Rachel L
Publication type:
Article
The Brain Health Registry: Lessons learned and next steps for remote, online AD and aging clinical research.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 7, p. 1, doi. 10.1002/alz.062186
By:
- Weiner, Mike W.;
- Truran‐Sacrey, Diana;
- Flenniken, Derek;
- Fockler, Juliet;
- Camacho, Monica R;
- Ashford, Miriam T.;
- Howell, Taylor;
- Kwang, Winnie;
- Aaronson, Anna;
- Eichenbaum, Joseph;
- Nosheny, Rachel L
Publication type:
Article
Contributions of remote, unsupervised dyadic subjective measures to identify older adults with Mild Cognitive Impairment.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 7, p. 1, doi. 10.1002/alz.061353
By:
- Nosheny, Rachel L;
- Jin, Chengshi;
- Knight, Krissy N;
- Banh, Timothy;
- Howell, Taylor;
- Truran‐Sacrey, Diana;
- Fockler, Juliet;
- Bui, Chau L;
- Gummadi, Shilpa L;
- Santhakumar, Jess;
- Ashford, Miriam T.;
- Camacho, Monica R;
- Flenniken, Derek;
- Roberson, Erik D;
- Morris, John C.;
- Moulder, Krista L.;
- Li, Yan;
- Petersen, Ronald C.;
- Stricker, Nikki H.;
- Rabinovici, Gil D.
Publication type:
Article
Improved methods for recruiting Latino participants for Alzheimer's disease research using the Brain Healthy Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.056193
By:
- Camacho, Monica R;
- Weiner, Mike W;
- González, Hector M;
- Mayeda, Elizabeth Rose;
- Alaniz, Roxanne;
- Ashford, Miriam T;
- Nosheny, Rachel L
Publication type:
Article
Remote identification of MCI using self‐ and study partner‐report subjective cognitive decline in the Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.052337
By:
- Nosheny, Rachel L;
- Jin, Chengshi;
- Banh, Timothy;
- Ashford, Miriam T.;
- Camacho, Monica R;
- Mackin, R Scott;
- Truran‐Sacrey, Diana;
- Flenniken, Derek;
- Neuhaus, John
Publication type:
Article
Machine learning approaches to predicting amyloid status using data from an online research and recruitment registry: The Brain Health Registry.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.053330
By:
- Albright, Jack;
- Ashford, Miriam T.;
- Jin, Chengshi;
- Neuhaus, John;
- Camacho, Monica R.;
- Rabinovici, Gil D.;
- Truran‐Sacrey, Diana;
- Maruff, Paul T;
- Mackin, R. Scott;
- Nosheny, Rachel L.;
- Weiner, Mike W.
Publication type:
Article
rPOP: Robust PET‐only processing and quantification of community‐acquired amyloid‐PET from the IDEAS Study.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.056581
By:
- Iaccarino, Leonardo;
- La Joie, Renaud;
- Koeppe, Robert;
- Siegel, Barry A;
- Hillner, Bruce E;
- Gatsonis, Constantine;
- Whitmer, Rachel A.;
- Carrillo, Maria C.;
- Apgar, Charles;
- Camacho, Monica R;
- Nosheny, Rachel L;
- Weiner, Mike W.;
- Rabinovici, Gil D.
Publication type:
Article
Predicting amyloid status using remote online self‐report and cognitive assessment: The Brain Health Registry: Biomarkers (non‐neuroimaging)/Prognostic utility.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2020, v. 16, n. 11, p. 1, doi. 10.1002/alz.045932
By:
- Ashford, Miriam T.;
- Neuhaus, John;
- Jin, Chengshi;
- Camacho, Monica R;
- Fockler, Juliet;
- Truran‐Sacrey, Diana;
- Mackin, R. Scott;
- Rabinovici, Gil D.;
- Weiner, Michael W.;
- Nosheny, Rachel L.
Publication type:
Article
Validation of online functional measures in cognitively impaired older adults.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2020, v. 16, n. 10, p. 1426, doi. 10.1002/alz.12138
By:
- Nosheny, Rachel L.;
- Camacho, Monica R.;
- Jin, Chengshi;
- Neuhaus, John;
- Truran, Diana;
- Flenniken, Derek;
- Ashford, Miriam;
- Carrillo, Maria C.;
- Fargo, Keith N.;
- Hendrix, James;
- Hanna, Lucy;
- Rabinovici, Gil;
- Maruff, Paul;
- Mackin, R. Scott;
- Weiner, Michael W.
Publication type:
Article
F4‐01‐02: INCREASING THE IMPACT OF THE IDEAS STUDY USING BRAIN HEALTH REGISTRY ONLINE DATA COLLECTION.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P1216, doi. 10.1016/j.jalz.2019.06.4714
By:
- Nosheny, Rachel L.;
- Camacho, Monica R.;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Fockler, Juliet;
- Mackin, Scott;
- Truran-Sacrey, Diana;
- Maruff, Paul;
- Rabinovici, Gil D.;
- Fargo, Keith;
- Carrillo, Maria C.;
- Weiner, Michael W.
Publication type:
Article
S4‐01‐01: IDENTIFYING ELDERS AT RISK FOR COGNITIVE DECLINE USING THE BRAIN HEALTH REGISTRY (BHR).
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P1215, doi. 10.1016/j.jalz.2019.06.4709
By:
- Weiner, Michael W.;
- Nosheny, Rachel L.;
- Mackin, R Scott;
- Truran-Sacrey, Diana;
- Flenniken, Derek;
- Camacho, Monica R.;
- Kwang, Winnie;
- Howell, Taylor;
- Fockler, Juliet;
- Alosco, Michael L.;
- Stern, Robert A.;
- Montine, Thomas J.;
- Cholerton, Brenna;
- Ashford, J Wesson;
- Maruff, Paul;
- Szoeke, Cassandra
Publication type:
Article
P3‐099: BRAIN HEALTH REGISTRY PARTICIPANT SUPPORT AND COMMUNICATION: WHAT DOES IT TAKE TO SUPPORT AN ONLINE STUDY?
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P966, doi. 10.1016/j.jalz.2019.06.3126
By:
- Howell, Taylor;
- Weiner, Michael W.;
- Truran-Sacrey, Diana;
- Nosheny, Rachel L.;
- Mackin, Scott;
- Fockler, Juliet;
- Camacho, Monica R.
Publication type:
Article
P1‐351: COGNITIVELY IMPAIRED BRAIN HEALTH REGISTRY PARTICIPANTS' ATTITUDES ABOUT THE VALUE OF AMYLOID PET RESULTS.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P385, doi. 10.1016/j.jalz.2019.06.906
By:
- Camacho, Monica R.;
- Grill, Joshua D.;
- Karlawish, Jason;
- Rabinovici, Gil D.;
- Carrillo, Maria C.;
- Weiner, Michael W.;
- Nosheny, Rachel L.
Publication type:
Article
F1‐01‐03: ONLINE STUDY‐PARTNER‐REPORTED SUBJECTIVE DECLINE IS ASSOCIATED WITH β‐AMYLOID AND CLINICAL DIAGNOSIS.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P176, doi. 10.1016/j.jalz.2019.06.4371
By:
- Nosheny, Rachel L.;
- Camacho, Monica R.;
- Mackin, Scott;
- Truran-Sacrey, Diana;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Fockler, Juliet;
- Maruff, Paul;
- Rabinovici, Gil D.;
- Fargo, Keith;
- Carrillo, Maria C.;
- Weiner, Michael W.
Publication type:
Article
O1‐04‐04: VALIDATION OF ONLINE DATA FROM IDEAS PARTICIPANTS WITH MCI AND AD USING THE BRAIN HEALTH REGISTRY.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2018, v. 14, p. P225, doi. 10.1016/j.jalz.2018.06.2351
By:
- Nosheny, Rachel;
- Insel, Philip;
- Camacho, Monica R.;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Fockler, Juliet;
- Truran-Sacrey, Diana;
- Finley, Shannon;
- Maruff, Paul;
- Rabinovici, Gil D.;
- Hendrix, James;
- Carrillo, Maria C.;
- Mackin, Scott;
- Weiner, Michael
Publication type:
Article
Mobile toolbox (MTB) remote measures of executive function and processing speed: development and validation.
Published in:
Journal of the International Neuropsychological Society, 2024, v. 30, n. 7, p. 680, doi. 10.1017/S1355617724000225
By:
- Novack, Miriam A.;
- Young, Stephanie Ruth;
- Dworak, Elizabeth M.;
- Kaat, Aaron J.;
- Slotkin, Jerry;
- Nowinski, Cindy;
- Yao, Lihua;
- Adam, Hubert;
- Stoeger, Jordan;
- Hosseinian, Zahra;
- Amagai, Saki;
- Pila, Sarah;
- Varela Diaz, Maria;
- Almonte Correa, Anyelo;
- Alperin, Keith;
- Carlson, Sonia;
- Kellen, Michael;
- Omberg, Larsson;
- Camacho, Monica R.;
- Landavazo, Bernard
Publication type:
Article
3 Mobile Toolbox: Enrollment of a Large Normative Sample Using the UCSF Brain Health Registry.
Published in:
2023
By:
- Nosheny, Rachel L;
- Camacho, Monica R;
- Landavazo, Bernard;
- Kaat, Aaron J;
- Hosseinian, Zahra;
- Gershon, Richard C;
- Weiner, Michael W
Publication type:
Abstract
Remote olfactory assessment using the NIH Toolbox Odor Identification test and the brain health registry.
Published in:
PLoS ONE, 2024, v. 19, n. 4, p. 1, doi. 10.1371/journal.pone.0301264
By:
- Jaén, Cristina;
- Maute, Christopher;
- Mackin, Scott;
- Camacho, Monica R.;
- Truran, Diana;
- Nosheny, Rachel;
- Weiner, Michael W.;
- Dalton, Pamela
Publication type:
Article
THE ALZHEIMER’S DISEASE PATIENT- AND CAREGIVER-POWERED RESEARCH NETWORK: A PATIENT- AND CAREGIVER-CENTERED INITIATIVE TO FACILITATE ALZHEIMER’S CLINICAL RESEARCH.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2017, v. 13, p. P1342, doi. 10.1016/j.jalz.2017.06.2071
By:
- Nosheny, Rachel;
- Comer, Meryl;
- Alexander, Alex;
- Smith, Glenn E.;
- Weiner, Michael;
- Lappin, Debra;
- Vradenburg, George;
- Sachar, Sally;
- Camacho, Monica R.;
- Lathan, Corinna;
- Shewbridge, Rita;
- Petersen, Ronald C.
Publication type:
Article
VALIDATION OF STUDY PARTNER-REPORTED OUTCOMES COLLECTED ONLINE USING THE BRAIN HEALTH REGISTRY.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2017, v. 13, p. P913, doi. 10.1016/j.jalz.2017.07.337
By:
- Nosheny, Rachel;
- Camacho, Monica R.;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Fockler, Juliet;
- Insel, Philip;
- Mackin, Scott;
- Truran-Sacrey, Diana;
- Finley, Shannon;
- McKenzie, Kirsten;
- Maruff, Paul;
- Weiner, Michael
Publication type:
Article
SELF-REPORTED APOE GENOTYPE IN THE BRAIN HEALTH REGISTRY: ASSOCIATIONS WITH MEMORY AND ASSESSMENT OF APOE 4+ PARTICIPANTS ELIGIBLE FOR ALZHEIMER'S DISEASE CLINICAL TRIALS.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2016, v. 12, p. P1015, doi. 10.1016/j.jalz.2016.06.2094
By:
- Nosheny, Rachel L.;
- Flenniken, Derek;
- Insel, Philip S.;
- Mackin, Scott;
- Finley, Shannon;
- Camacho, Monica R.;
- Truran-Sacrey, Diana;
- Ulbricht, Aaron
Publication type:
Article
USING AN INTERNET REGISTRY TO SUPPLEMENT RECRUITMENT EFFORTS FOR CLINICAL RESEARCH.
Published in:
Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2016, v. 12, p. P1189, doi. 10.1016/j.jalz.2016.07.141
By:
- Camacho, Monica R.;
- Nosheny, Rachel L.;
- Truran-Sacrey, Diana;
- Finley, Shannon;
- Flenniken, Derek;
- Ulbricht, Aaron;
- Mackin, Scott;
- Sperling, Reisa A.;
- Aisen, Paul S.;
- McKenzie, Kirsten;
- Weiner, Michael W.
Publication type:
Article
Participant completion of longitudinal assessments in an online cognitive aging registry: The role of medical conditions.
Published in:
Alzheimer's & Dementia: Translational Research & Clinical Interventions, 2024, v. 10, n. 1, p. 1, doi. 10.1002/trc2.12438
By:
- Ashford, Miriam T.;
- Jin, Chengshi;
- Neuhaus, John;
- Diaz, Adam;
- Aaronson, Anna;
- Tank, Rachana;
- Eichenbaum, Joseph;
- Camacho, Monica R.;
- Fockler, Juliet;
- Ulbricht, Aaron;
- Flenniken, Derek;
- Truran, Diana;
- Mackin, Robert Scott;
- Weiner, Michael W.;
- Mindt, Monica Rivera;
- Nosheny, Rachel L.
Publication type:
Article
Effects of sex, race, ethnicity, and education on online aging research participation.
Published in:
Alzheimer's & Dementia: Translational Research & Clinical Interventions, 2020, v. 6, n. 1, p. 1, doi. 10.1002/trc2.12028
By:
- Ashford, Miriam T.;
- Eichenbaum, Joseph;
- Williams, Tirzah;
- Camacho, Monica R.;
- Fockler, Juliet;
- Ulbricht, Aaron;
- Flenniken, Derek;
- Truran, Diana;
- Mackin, R. Scott;
- Weiner, Michael W.;
- Nosheny, Rachel L.
Publication type:
Article
Online study partner‐reported cognitive decline in the Brain Health Registry.
Published in:
Alzheimer's & Dementia: Translational Research & Clinical Interventions, 2018, v. 4, n. 1, p. 565, doi. 10.1016/j.trci.2018.09.008
By:
- Nosheny, Rachel L.;
- Camacho, Monica R.;
- Insel, Philip S.;
- Flenniken, Derek;
- Fockler, Juliet;
- Truran, Diana;
- Finley, Shannon;
- Ulbricht, Aaron;
- Maruff, Paul;
- Yaffe, Kristine;
- Mackin, R. Scott;
- Weiner, Michael W.
Publication type:
Article
Development and Validation of a Vocabulary Measure in the Mobile Toolbox.
Published in:
Archives of Clinical Neuropsychology, 2024, v. 39, n. 6, p. 714, doi. 10.1093/arclin/acae010
By:
- Young, Stephanie Ruth;
- Dworak, Elizabeth M;
- Kaat, Aaron J;
- Adam, Hubert;
- Novack, Miriam A;
- Slotkin, Jerry;
- Stoeger, Jordan;
- Nowinski, Cindy J;
- Hosseinian, Zahra;
- Amagai, Saki;
- Pila, Sarah;
- Diaz, Maria Varela;
- Correa, Anyelo Almonte;
- Alperin, Keith;
- Omberg, Larsson;
- Kellen, Michael;
- Camacho, Monica R;
- Landavazo, Bernard;
- Nosheny, Rachel L;
- Weiner, Michael W
Publication type:
Article

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