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Known-group validity of patient-reported outcome instruments and hemophilia joint health score v2.1 in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.
Published in:
Patient Preference & Adherence, 2017, v. 11, p. 1745, doi. 10.2147/PPA.S141392
By:
- Buckner, Tyler W.;
- Wang, Michael;
- Cooper, David L.;
- Iyer, Neeraj N.;
- Kempton, Christine L.
Publication type:
Article
Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study.
Published in:
Patient Preference & Adherence, 2017, v. 11, p. 1603, doi. 10.2147/PPA.S141389
By:
- Kempton, Christine L.;
- Wang, Michael;
- Recht, Michael;
- Neff, Anne;
- Shapiro, Amy D.;
- Soni, Amit;
- Kulkarni, Roshni;
- Buckner, Tyler W.;
- Batt, Katharine;
- Iyer, Neeraj N.;
- Cooper, David L.
Publication type:
Article
Racial and Ethnic Differences in Distress, Depression, and Quality of Life in people with hemophilia.
Published in:
Journal of Racial & Ethnic Health Disparities, 2024, v. 11, n. 3, p. 1394, doi. 10.1007/s40615-023-01616-3
By:
- Fedewa, Stacey A.;
- Buckner, Tyler W.;
- Parks, Sara Guasch;
- Tran, Duc Q.;
- Cafuir, Lorraine;
- Antun, Ana G.;
- Mattis, Shanna;
- Kempton, Christine L.
Publication type:
Article
Complete Spontaneous Remission of Diffuse Large B-Cell Lymphoma of the Maxillary Sinus After Concurrent Infections.
Published in:
Clinical Lymphoma, Myeloma & Leukemia, 2012, v. 12, n. 6, p. 455, doi. 10.1016/j.clml.2012.06.007
By:
- Buckner, Tyler W.;
- Dunphy, Cherie;
- Fedoriw, Yuri D.;
- van Deventer, Hendrik W.;
- Foster, Matthew C.;
- Richards, Kristy L.;
- Park, Steven I.
Publication type:
Article
Reliability and validity of patient‐reported outcome instruments in US adults with hemophilia B and caregivers in the B‐HERO‐S study.
Published in:
European Journal of Haematology, 2018, v. 101, n. 6, p. 781, doi. 10.1111/ejh.13168
By:
- Buckner, Tyler W.;
- Sidonio, Robert;
- Guelcher, Christine;
- Kessler, Craig M.;
- Witkop, Michelle;
- Clark, David;
- Owens, Wendy;
- Fridman, Moshe;
- Iyer, Neeraj N.;
- Cooper, David L.
Publication type:
Article
Impact of hemophilia B on quality of life in affected men, women, and caregivers--Assessment of patient-reported outcomes in the B-HERO-S study.
Published in:
European Journal of Haematology, 2018, v. 100, n. 6, p. 592, doi. 10.1111/ejh.13055
By:
- Buckner, Tyler W.;
- Witkop, Michelle;
- Guelcher, Christine;
- Sidonio, Robert;
- Kessler, Craig M.;
- Clark, David B.;
- Owens, Wendy;
- Frick, Neil;
- Iyer, Neeraj N.;
- Cooper, David L.
Publication type:
Article
Patient‐reported outcomes and joint status across subgroups of US adults with hemophilia with varying characteristics: Results from the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study.
Published in:
European Journal of Haematology, 2018, v. 100, p. 14, doi. 10.1111/ejh.13028
By:
- Batt, Katharine;
- Boggio, Lisa;
- Neff, Anne;
- Buckner, Tyler W.;
- Wang, Michael;
- Quon, Doris;
- Witkop, Michelle;
- Recht, Michael;
- Kessler, Craig;
- Iyer, Neeraj N.;
- Cooper, David L.
Publication type:
Article
Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient‐reported outcome instruments in the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study.
Published in:
European Journal of Haematology, 2018, v. 100, p. 5, doi. 10.1111/ejh.13027
By:
- Buckner, Tyler W.;
- Batt, Katharine;
- Quon, Doris;
- Witkop, Michelle;
- Recht, Michael;
- Kessler, Craig;
- Baumann, Kimberly;
- Hernandez, Grace;
- Wang, Michael;
- Cooper, David L.;
- Kempton, Christine L.
Publication type:
Article
What can we learn from using formal patient‐reported outcome instruments to assess pain, functional impairment, anxiety, and depression in US adults with hemophilia?
Published in:
European Journal of Haematology, 2018, v. 100, p. 3, doi. 10.1111/ejh.13026
By:
- Buckner, Tyler W.;
- Batt, Katharine;
- Cooper, David L.;
- Kempton, Christine L.
Publication type:
Article
Factors associated with pain severity, pain interference, and perception of functional abilities independent of joint status in US adults with hemophilia: Multivariable analysis of the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study.
Published in:
European Journal of Haematology, 2018, v. 100, p. 25, doi. 10.1111/ejh.13025
By:
- Kempton, Christine L.;
- Buckner, Tyler W.;
- Fridman, Moshe;
- Iyer, Neeraj N.;
- Cooper, David L.
Publication type:
Article
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B- HERO-S) study.
Published in:
European Journal of Haematology, 2017, v. 98, p. 5, doi. 10.1111/ejh.12854
By:
- Buckner, Tyler W.;
- Witkop, Michelle;
- Guelcher, Christine;
- Frey, Mary Jane;
- Hunter, Susan;
- Peltier, Skye;
- Recht, Michael;
- Walsh, Christopher;
- Kessler, Craig M.;
- Owens, Wendy;
- Clark, David B.;
- Frick, Neil;
- Rice, Michelle;
- Iyer, Neeraj N.;
- Holot, Natalia;
- Cooper, David L.;
- Sidonio, Robert
Publication type:
Article
Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study.
Published in:
Patient Related Outcome Measures, 2019, v. 10, p. 299, doi. 10.2147/PROM.S219166
By:
- Buckner, Tyler W;
- Jr, Robert Sidonio;
- Witkop, Michelle;
- Guelcher, Christine;
- Cutter, Susan;
- Iyer, Neeraj N;
- Cooper, David L
Publication type:
Article
Prophylaxis for children with moderate hemophilia: Use of a guideline to increase early initiation.
Published in:
Pediatric Blood & Cancer, 2021, v. 68, n. 1, p. 1, doi. 10.1002/pbc.28577
By:
- Maher, Kristin N.;
- Gibson, Elizabeth;
- Warren, Beth Boulden;
- Funk, Sharon M.;
- Shearer, Rick;
- Buckner, Tyler W.;
- Wang, Michael;
- Manco‐Johnson, Marilyn J.;
- Ng, Christopher J.
Publication type:
Article
Patterns of symptoms and functional impairments in children with cancer.
Published in:
Pediatric Blood & Cancer, 2014, v. 61, n. 7, p. 1282, doi. 10.1002/pbc.25029
By:
- Buckner, Tyler W.;
- Wang, Jichuan;
- DeWalt, Darren A.;
- Jacobs, Shana;
- Reeve, Bryce B.;
- Hinds, Pamela S.
Publication type:
Article
Effect of etranacogene dezaparvovec on quality of life for severe and moderately severe haemophilia B participants: Results from the phase III HOPE‐B trial 2 years after gene therapy.
Published in:
Haemophilia, 2024, v. 30, n. 3, p. 709, doi. 10.1111/hae.14977
By:
- Itzler, Robbin;
- Buckner, Tyler W.;
- Leebeek, Frank W. G.;
- Miller, Joel;
- Recht, Michael;
- Drelich, Douglass;
- Monahan, Paul E.;
- Pipe, Steven W.
Publication type:
Article
Matching‐adjusted indirect comparison of bleeding outcomes in severe haemophilia A: Comparing valoctocogene roxaparvovec gene therapy, emicizumab prophylaxis, and FVIII replacement prophylaxis.
Published in:
Haemophilia, 2023, v. 29, n. 4, p. 1087, doi. 10.1111/hae.14818
By:
- Astermark, Jan;
- Buckner, Tyler W;
- Frenzel, Laurent;
- Hatswell, Anthony J;
- You, Xiaojun;
- Liu, Hai;
- Goodman, Erin;
- Santos, Sandra;
- Hawes, Charles;
- Hinds, David;
- Klamroth, Robert
Publication type:
Article
Cross‐sectional study evaluating the association of haemophilia‐related distress and clinically relevant outcomes.
Published in:
Haemophilia, 2023, v. 29, n. 2, p. 505, doi. 10.1111/hae.14741
By:
- Guasch, Sara;
- Scott, Lia C.;
- Figueroa, Janet;
- Buckner, Tyler W.;
- Mattis, Shanna;
- Tran, Duc Q.;
- Kempton, Christine L.
Publication type:
Article
Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches.
Published in:
Haemophilia, 2022, v. 28, n. 2, p. 343, doi. 10.1111/hae.14501
By:
- Newman, Jennifer R.;
- Durben, Nancy;
- Baumann, Kimberly;
- Lambing, Angela Y.;
- Nichols, Cynthia D.;
- Witkop, Michelle;
- Santaella, Maria E.;
- Buckner, Tyler W.
Publication type:
Article
Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items.
Published in:
Haemophilia, 2021, v. 27, n. 6, p. 1062, doi. 10.1111/hae.14408
By:
- Kuijlaars, Isolde A. R.;
- van der Net, Janjaap;
- Buckner, Tyler W.;
- Kempton, Christine L.;
- Schutgens, Roger E. G.;
- Fischer, Kathelijn
Publication type:
Article
Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States.
Published in:
Haemophilia, 2021, v. 27, n. 6, p. 1037, doi. 10.1111/hae.14403
By:
- Miller, Connie H.;
- Soucie, J. Michael;
- Byams, Vanessa R.;
- Payne, Amanda B.;
- Sidonio, Robert F.;
- Buckner, Tyler W.;
- Bean, Christopher J.
Publication type:
Article
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment.
Published in:
Haemophilia, 2021, v. 27, n. 5, p. 769, doi. 10.1111/hae.14383
By:
- Witkop, Michelle;
- Morgan, George;
- O'Hara, Jamie;
- Recht, Michael;
- Buckner, Tyler W.;
- Nugent, Diane;
- Curtis, Randall;
- O'Mahony, Brian;
- Skinner, Mark W.;
- Mulhern, Brendan;
- Cawson, Matthew;
- Ali, Talaha M.;
- Sawyer, Eileen K.;
- Li, Nanxin
Publication type:
Article
An evaluation of PROMIS health domains in adults with haemophilia: A cross‐sectional study.
Published in:
Haemophilia, 2021, v. 27, n. 3, p. 375, doi. 10.1111/hae.14321
By:
- Barry, Vaughn;
- Buckner, Tyler W.;
- Lynch, Mary Ellen;
- Figueroa, Janet;
- Mattis, Shanna;
- Stout, Mary E.;
- Kempton, Christine L.
Publication type:
Article
Evidence of a disability paradox in patient‐reported outcomes in haemophilia.
Published in:
Haemophilia, 2021, v. 27, n. 2, p. 245, doi. 10.1111/hae.14278
By:
- O'Hara, Jamie;
- Martin, Antony P.;
- Nugent, Diane;
- Witkop, Michelle;
- Buckner, Tyler W.;
- Skinner, Mark W.;
- O'Mahony, Brian;
- Mulhern, Brendan;
- Morgan, George;
- Li, Nanxin;
- Sawyer, Eileen K.
Publication type:
Article
Outcome measures in Haemophilia: Beyond ABR (Annualized Bleeding Rate).
Published in:
Haemophilia, 2021, v. 27, p. 87, doi. 10.1111/hae.14099
By:
- Manco‐Johnson, Marilyn J.;
- Warren, Beth Boulden;
- Buckner, Tyler W.;
- Funk, Sharon M.;
- Wang, Michael
Publication type:
Article
Validation of a new instrument to measure disease‐related distress among patients with haemophilia.
Published in:
Haemophilia, 2021, v. 27, n. 1, p. 60, doi. 10.1111/hae.14187
By:
- Kempton, Christine L.;
- Michaels Stout, Mary;
- Barry, Vaughn;
- Figueroa, Janet;
- Buckner, Tyler W.;
- Gillespie, Scott;
- Ellen Lynch, Mary;
- Mattis, Shanna;
- Whitten, Stephanie;
- McCracken, Courtney
Publication type:
Article
Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres.
Published in:
Haemophilia, 2020, v. 26, n. 3, p. 487, doi. 10.1111/hae.13998
By:
- Soucie, John Michael;
- Miller, Connie H.;
- Dupervil, Brandi;
- Le, Binh;
- Buckner, Tyler W.
Publication type:
Article
Improvements in Communication and Coordination of Care in a Hemophilia Treatment Center.
Published in:
Acta Haematologica, 2021, v. 144, n. 6, p. 672, doi. 10.1159/000515350
By:
- Ng, Christopher J.;
- Spomer, Nancy;
- Shearer, Rick;
- LeBlanc, Audra;
- Funk, Sharon;
- Manco-Johnson, Marilyn;
- Branchford, Brian;
- Warren, Beth;
- Buckner, Tyler W.;
- Cowell, Amy;
- Moyer, Genevieve;
- Wang, Michael;
- Gibson, Elizabeth;
- Mashburn, Christine
Publication type:
Article

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