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The humanistic burden of hereditary angioedema: Results from the Burden of Illness Study in Europe.
Published in:
Allergy & Asthma Proceedings, 2014, v. 35, n. 1, p. 47, doi. 10.2500/aap.2013.34.3685
By:
- Caballero, Teresa;
- Aygören-Pürsün, Emel;
- Bygum, Anette;
- Beusterien, Kathleen;
- Hautamaki, Emily;
- Sisic, Zlatko;
- Wait, Suzanne;
- Boysen, Henrik B.
Publication type:
Article
Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe.
Published in:
Orphanet Journal of Rare Diseases, 2014, v. 9, n. 1, p. 1, doi. 10.1186/1750-1172-9-99
By:
- Aygören-Pürsün, Emel;
- Bygum, Anette;
- Beusterien, Kathleen;
- Hautamaki, Emily;
- Sisic, Zlatko;
- Wait, Suzanne;
- Boysen, Henrik B.;
- Caballero, Teresa
Publication type:
Article
Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe.
Published in:
2014
By:
- Aygören-Pürsün, Emel;
- Bygum, Anette;
- Beusterien, Kathleen;
- Hautamaki, Emily;
- Sisic, Zlatko;
- Wait, Suzanne;
- Boysen, Henrik B;
- Caballero, Teresa
Publication type:
journal article
Estimation of EuroQol 5-Dimensions health status utility values in hereditary angioedema.
Published in:
Patient Preference & Adherence, 2016, v. 10, p. 1699, doi. 10.2147/PPA.S100383
By:
- Aygören-Pürsün, Emel;
- Bygum, Anette;
- Beusterien, Kathleen;
- Hautamaki, Emily;
- Sisic, Zlatko;
- Boysen, Henrik B.;
- Caballero, Teresa
Publication type:
Article
Attenuated androgen discontinuation in patients with hereditary angioedema: a commented case series.
Published in:
Allergy, Asthma & Clinical Immunology, 2022, v. 18, n. 1, p. 1, doi. 10.1186/s13223-021-00644-0
By:
- Maurer, Marcus;
- Magerl, Markus;
- Aygören-Pürsün, Emel;
- Bork, Konrad;
- Farkas, Henriette;
- Longhurst, Hilary;
- Kiani‑Alikhan, Sorena;
- Bouillet, Laurence;
- Boccon-Gibod, Isabelle;
- Cancian, Mauro;
- Zanichelli, Andrea;
- Launay, David
Publication type:
Article
Correction to: The International/Canadian Hereditary Angioedema Guideline.
Published in:
2020
By:
- Betschel, Stephen;
- Badiou, Jacquie;
- Binkley, Karen;
- Borici-Mazi, Rozita;
- Hébert, Jacques;
- Kanani, Amin;
- Keith, Paul;
- Lacuesta, Gina;
- Waserman, Susan;
- Yang, Bill;
- Aygören-Pürsün, Emel;
- Bernstein, Jonathan;
- Bork, Konrad;
- Caballero, Teresa;
- Cicardi, Marco;
- Craig, Timothy;
- Farkas, Henriette;
- Grumach, Anete;
- Katelaris, Connie;
- Longhurst, Hilary
Publication type:
Correction Notice
The International/Canadian Hereditary Angioedema Guideline.
Published in:
Allergy, Asthma & Clinical Immunology, 2019, v. 15, n. 1, p. N.PAG, doi. 10.1186/s13223-019-0376-8
By:
- Betschel, Stephen;
- Badiou, Jacquie;
- Binkley, Karen;
- Borici-Mazi, Rozita;
- Hébert, Jacques;
- Kanani, Amin;
- Keith, Paul;
- Lacuesta, Gina;
- Waserman, Susan;
- Yang, Bill;
- Aygören-Pürsün, Emel;
- Bernstein, Jonathan;
- Bork, Konrad;
- Caballero, Teresa;
- Cicardi, Marco;
- Craig, Timothy;
- Farkas, Henriette;
- Grumach, Anete;
- Katelaris, Connie;
- Longhurst, Hilary
Publication type:
Article
Epidemiology of Bradykinin-mediated angioedema: a systematic investigation of epidemiological studies.
Published in:
2018
By:
- Aygören-Pürsün, Emel;
- Magerl, Markus;
- Maetzel, Andreas;
- Maurer, Marcus
Publication type:
journal article
Preventing Hereditary Angioedema Attacks in hildren Using Cinryze ® : Interim Efficacy and Safety Phase 3 Findings.
Published in:
International Archives of Allergy & Immunology, 2017, v. 173, n. 2, p. 114, doi. 10.1159/000477541
By:
- aygören-Pürsün, Emel;
- Soteres, Daniel;
- Moldovan, Dumitru;
- Christensen, Jim;
- Van Leerberghe, arthur;
- Hao, James;
- Schranz, Jennifer;
- Jacobson, Kraig W.;
- Martinez-Saguer, Inmaculada
Publication type:
Article
Evaluation of patient‐reported outcome measures for on‐demand treatment of hereditary angioedema attacks and design of KONFIDENT, a phase 3 trial of sebetralstat.
Published in:
Clinical & Translational Allergy, 2023, v. 13, n. 9, p. 1, doi. 10.1002/clt2.12288
By:
- Cohn, Danny M.;
- Aygören‐Pürsün, Emel;
- Bernstein, Jonathan A.;
- Farkas, Henriette;
- Lumry, William R.;
- Maurer, Marcus;
- Zanichelli, Andrea;
- Iverson, Matthew;
- Hao, James;
- Smith, Michael D.;
- Yea, Christopher M.;
- Audhya, Paul K.;
- Riedl, Marc A.
Publication type:
Article
Long‐term safety and effectiveness of berotralstat for hereditary angioedema: The open‐label APeX‐S study.
Published in:
Clinical & Translational Allergy, 2021, v. 11, n. 4, p. 1, doi. 10.1002/clt2.12035
By:
- Farkas, Henriette;
- Stobiecki, Marcin;
- Peter, Jonny;
- Kinaciyan, Tamar;
- Maurer, Marcus;
- Aygören‐Pürsün, Emel;
- Kiani‐Alikhan, Sorena;
- Wu, Adrian;
- Reshef, Avner;
- Bygum, Anette;
- Fain, Olivier;
- Hagin, David;
- Huissoon, Aarnoud;
- Jeseňák, Miloš;
- Lindsay, Karen;
- Panovska, Vesna Grivcheva;
- Steiner, Urs C.;
- Zubrinich, Celia;
- Best, Jessica M.;
- Cornpropst, Melanie
Publication type:
Article
Subcutaneous C1‐Inhibitor Concentrate for prophylaxis during pregnancy and lactation in a patient with C1‐INH‐HAE.
Published in:
Clinical Case Reports, 2021, v. 9, n. 3, p. 1273, doi. 10.1002/ccr3.3743
By:
- Andarawewa, Shimalee;
- Aygören‐Pürsün, Emel
Publication type:
Article
Burden of Illness in Hereditary Angioedema: A Conceptual Model.
Published in:
Acta Dermato-Venereologica, 2015, v. 95, n. 6, p. 706, doi. 10.2340/00015555-2014
By:
- BYGUM, Anette;
- AYGÖREN-PÜRSÜN, Emel;
- BEUSTERIEN, Kathleen;
- HAUTAMAKI, Emily;
- SISIC, Zlatko;
- WAIT, Suzanne;
- BOYSEN, Henrik B.;
- CABALLERO, Teresa
Publication type:
Article
Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey.
Published in:
2021
By:
- Mendivil, Joan;
- Murphy, Ryan;
- de la Cruz, Marie;
- Janssen, Ellen;
- Boysen, Henrik Balle;
- Jain, Gagan;
- Aygören-Pürsün, Emel;
- Hirji, Ishan;
- Devercelli, Giovanna
Publication type:
journal article
Pharmacokinetics of plasma-derived C1-esterase inhibitor after subcutaneous versus intravenous administration in subjects with mild or moderate hereditary angioedema: the PASSION study.
Published in:
Transfusion, 2014, v. 54, n. 6, p. 1552, doi. 10.1111/trf.12501
By:
- Martinez‐Saguer, Inmaculada;
- Cicardi, Marco;
- Suffritti, Chiara;
- Rusicke, Eva;
- Aygören‐Pürsün, Emel;
- Stoll, Hildegard;
- Rossmanith, Tanja;
- Feussner, Annette;
- Kalina, Uwe;
- Kreuz, Wolfhart
Publication type:
Article
Home therapy with intravenous human C1-inhibitor in children and adolescents with hereditary angioedema.
Published in:
Transfusion, 2012, v. 52, n. 1, p. 100, doi. 10.1111/j.1537-2995.2011.03240.x
By:
- Kreuz, Wolfhart;
- Rusicke, Eva;
- Martinez-Saguer, Inmaculada;
- Aygören-Pürsün, Emel;
- Heller, Christine;
- Klingebiel, Thomas
Publication type:
Article
Pharmacokinetic analysis of human plasma–derived pasteurized C1-inhibitor concentrate in adults and children with hereditary angioedema: a prospective study.
Published in:
Transfusion, 2010, v. 50, n. 2, p. 354, doi. 10.1111/j.1537-2995.2009.02394.x
By:
- Martinez-Saguer, Inmaculada;
- Rusicke, Eva;
- Aygören-Pürsün, Emel;
- von Hentig, Nils;
- Klingebiel, Thomas;
- Kreuz, Wolfhart
Publication type:
Article
C1-inhibitor concentrate for individual replacement therapy in patients with severe hereditary angioedema refractory to danazol prophylaxis.
Published in:
Transfusion, 2009, v. 49, n. 9, p. 1987, doi. 10.1111/j.1537-2995.2009.02230.x
By:
- Kreuz, Wolfhart;
- Martinez-Saguer, Inmaculada;
- Aygören-Pürsün, Emel;
- Rusicke, Eva;
- Heller, Christine;
- Klingebiel, Thomas
Publication type:
Article
HAE international home therapy consensus document.
Published in:
Allergy, Asthma & Clinical Immunology, 2010, v. 6, p. 1, doi. 10.1186/1710-1492-6-22
By:
- Longhurst, Hilary J.;
- Farkas, Henriette;
- Craig, Timothy;
- Aygören-Pürsün, Emel;
- Bethune, Claire;
- Bjorkander, Janne;
- Bork, Konrad;
- Bouillet, Laurence;
- Boysen, Henrik;
- Bygum, Anette;
- Caballero, Teresa;
- Cicardi, Marco;
- Dempster, John;
- Gompels, Mark;
- Gooi, Jimmy;
- Grigoriadou, Sofia;
- Huffer, Ursula;
- Kreuz, Wolfhart;
- Levi, Marcel M.;
- Long, Janet
Publication type:
Article
On demand treatment and home therapy of hereditary angioedema in Germany - the Frankfurt experience.
Published in:
Allergy, Asthma & Clinical Immunology, 2010, v. 6, p. 1, doi. 10.1186/1710-1492-6-21
By:
- Aygören-Pürsün, Emel;
- Martinez-Saguer, Inmaculada;
- Rusicke, Eva;
- Klingebiel, Thomas;
- Kreuz, Wolfhart
Publication type:
Article
The international WAO/EAACI guideline for the management of hereditary angioedema—The 2021 revision and update.
Published in:
Allergy, 2022, v. 77, n. 7, p. 1961, doi. 10.1111/all.15214
By:
- Maurer, Marcus;
- Magerl, Markus;
- Betschel, Stephen;
- Aberer, Werner;
- Ansotegui, Ignacio J.;
- Aygören‐Pürsün, Emel;
- Banerji, Aleena;
- Bara, Noémi‐Anna;
- Boccon‐Gibod, Isabelle;
- Bork, Konrad;
- Bouillet, Laurence;
- Boysen, Henrik Balle;
- Brodszki, Nicholas;
- Busse, Paula J.;
- Bygum, Anette;
- Caballero, Teresa;
- Cancian, Mauro;
- Castaldo, Anthony;
- Cohn, Danny M.;
- Csuka, Dorottya
Publication type:
Article
Definition, aims, and implementation of GA<sup>2</sup>LEN/HAEi Angioedema Centers of Reference and Excellence.
Published in:
Allergy, 2020, v. 75, n. 8, p. 1, doi. 10.1111/all.14293
By:
- Maurer, Marcus;
- Aberer, Werner;
- Agondi, Rosana;
- Al‐Ahmad, Mona;
- Al‐Nesf, Maryam Ali;
- Ansotegui, Ignacio;
- Arnaout, Rand;
- Arruda, Luisa Karla;
- Asero, Riccardo;
- Aygören‐Pürsün, Emel;
- Banerji, Aleena;
- Bauer, Andrea;
- Ben‐Shoshan, Moshe;
- Berardi, Alejandro;
- Bernstein, Jonathan A.;
- Betschel, Stephen;
- Bindslev‐Jensen, Carsten;
- Bizjak, Mojca;
- Boccon‐Gibod, Isabelle;
- Bork, Konrad
Publication type:
Article
Development of the Angioedema Control Test—A patient‐reported outcome measure that assesses disease control in patients with recurrent angioedema.
Published in:
Allergy, 2020, v. 75, n. 5, p. 1165, doi. 10.1111/all.14144
By:
- Weller, Karsten;
- Donoso, Tamara;
- Magerl, Markus;
- Aygören‐Pürsün, Emel;
- Staubach, Petra;
- Martinez‐Saguer, Inmaculada;
- Hawro, Tomasz;
- Altrichter, Sabine;
- Krause, Karoline;
- Siebenhaar, Frank;
- Metz, Martin;
- Zuberbier, Torsten;
- Freier, Denise;
- Maurer, Marcus
Publication type:
Article
Hereditäres Angioödem.
Published in:
Der Internist, 2019, v. 60, n. 9, p. 987, doi. 10.1007/s00108-019-0644-1
By:
- Aygören-Pürsün, Emel;
- Bork, Konrad
Publication type:
Article
Hereditary angioedema in children and adolescents – A consensus update on therapeutic strategies for German‐speaking countries.
Published in:
Pediatric Allergy & Immunology, 2020, v. 31, n. 8, p. 974, doi. 10.1111/pai.13309
By:
- Wahn, Volker;
- Aberer, Werner;
- Aygören‐Pürsün, Emel;
- Bork, Konrad;
- Eberl, Wolfgang;
- Faßhauer, Maria;
- Krüger, Renate;
- Magerl, Markus;
- Martinez‐Saguer, Inmaculada;
- Späth, Peter;
- Staubach‐Renz, Petra;
- Weber‐Chrysochoou, Christina;
- Atanaskovic‐Markovic, Marina
Publication type:
Article
A randomized trial of human C1 inhibitor prophylaxis in children with hereditary angioedema.
Published in:
Pediatric Allergy & Immunology, 2019, v. 30, n. 5, p. 553, doi. 10.1111/pai.13060
By:
- Aygören‐Pürsün, Emel;
- Soteres, Daniel F.;
- Nieto‐Martinez, Sandra A.;
- Christensen, Jim;
- Jacobson, Kraig W.;
- Moldovan, Dumitru;
- Van Leerberghe, Arthur;
- Tang, Yongqiang;
- Lu, Peng;
- Vardi, Moshe;
- Schranz, Jennifer;
- Martinez‐Saguer, Inmaculada
Publication type:
Article
Mitigating Disparity in Health-care Resources Between Countries for Management of Hereditary Angioedema.
Published in:
Clinical Reviews in Allergy & Immunology, 2021, v. 61, n. 1, p. 84, doi. 10.1007/s12016-021-08854-5
By:
- Jindal, Ankur Kumar;
- Reshef, Avner;
- Longhurst, Hilary;
- GEHM workgroup (Global Equity in HAE Management);
- Aberer, Werner;
- Betchel, Stephen;
- Bork, Konrad;
- Aygören-Pürsün, Emel;
- Maurer, Marcus;
- Magerl, Markus;
- Bouillet, Laurence;
- Bygum, Anette;
- Caballero, Teresa;
- Cancian, Mauro;
- Farkas, Henriette;
- Grivcheva-Panovska, Vesna;
- Grumach, Anete;
- Gulbahar, Okan;
- Hide, Michihiro;
- Jindal, Ankur
Publication type:
Article

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