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Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease.
Published in:
Journal of Patient-Reported Outcomes, 2020, v. 4, n. 1, p. 1, doi. 10.1186/s41687-020-00223-8
By:
- Kyte, Derek;
- Anderson, Nicola;
- Auti, Ram;
- Aiyegbusi, Olalekan Lee;
- Bishop, Jon;
- Bissell, Andrew;
- Brettell, Elizabeth;
- Calvert, Melanie;
- Chadburn, Marie;
- Cockwell, Paul;
- Dutton, Mary;
- Eddington, Helen;
- Forster, Elliot;
- Hadley, Gabby;
- Ives, Natalie J.;
- Jackson, Louise;
- O'Brien, Sonja;
- Price, Gary;
- Sharpe, Keeley;
- Stringer, Stephanie
Publication type:
Article
Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection.
Published in:
Nature Communications, 2022, v. 13, n. 1, p. 1, doi. 10.1038/s41467-022-33826-4
By:
- Aiyegbusi, Olalekan Lee;
- Roydhouse, Jessica;
- Rivera, Samantha Cruz;
- Kamudoni, Paul;
- Schache, Peter;
- Wilson, Roger;
- Stephens, Richard;
- Calvert, Melanie
Publication type:
Article
A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.
Published in:
Therapeutic Advances in Chronic Disease, 2021, p. 1, doi. 10.1177/20406223211015958
By:
- Aiyegbusi, Olalekan Lee;
- Nair, Devika;
- Peipert, John Devin;
- Schick-Makaroff, Kara;
- Mucsi, Istvan
Publication type:
Article
A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.
Published in:
Therapeutic Advances in Chronic Disease, 2021, p. 1, doi. 10.1177/20406223211015958
By:
- Aiyegbusi, Olalekan Lee;
- Nair, Devika;
- Peipert, John Devin;
- Schick-Makaroff, Kara;
- Mucsi, Istvan
Publication type:
Article
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024.
Published in:
Health & Quality of Life Outcomes, 2024, v. 22, n. 1, p. 1, doi. 10.1186/s12955-024-02256-9
By:
- Elsman, Ellen B. M.;
- Mokkink, Lidwine B.;
- Terwee, Caroline B.;
- Beaton, Dorcas;
- Gagnier, Joel J.;
- Tricco, Andrea C.;
- Baba, Ami;
- Butcher, Nancy J.;
- Smith, Maureen;
- Hofstetter, Catherine;
- Aiyegbusi, Olalekan Lee;
- Berardi, Anna;
- Farmer, Julie;
- Haywood, Kirstie L.;
- Krause, Karolin R.;
- Markham, Sarah;
- Mayo-Wilson, Evan;
- Mehdipour, Ava;
- Ricketts, Juanna;
- Szatmari, Peter
Publication type:
Article
A Systematic Review to Evaluate Patient-Reported Outcome Measures (PROMs) for Metastatic Prostate Cancer According to the COnsensus-Based Standard for the Selection of Health Measurement INstruments (COSMIN) Methodology.
Published in:
Cancers, 2022, v. 14, n. 20, p. 5120, doi. 10.3390/cancers14205120
By:
- Ratti, Maria Monica;
- Gandaglia, Giorgio;
- Sisca, Elena Silvia;
- Derevianko, Alexandra;
- Alleva, Eugenia;
- Beyer, Katharina;
- Moss, Charlotte;
- Barletta, Francesco;
- Scuderi, Simone;
- Omar, Muhammad Imran;
- MacLennan, Steven;
- Williamson, Paula R.;
- Zong, Jihong;
- MacLennan, Sara J.;
- Mottet, Nicolas;
- Cornford, Philip;
- Aiyegbusi, Olalekan Lee;
- Van Hemelrijck, Mieke;
- N'Dow, James;
- Briganti, Alberto
Publication type:
Article
A systematic review assessing the quality of patient reported outcomes measures in dry eye diseases.
Published in:
PLoS ONE, 2021, v. 16, n. 8, p. 1, doi. 10.1371/journal.pone.0253857
By:
- Recchioni, Alberto;
- Aiyegbusi, Olalekan Lee;
- Cruz-Rivera, Samantha;
- Rauz, Saaeha;
- Slade, Anita
Publication type:
Article
General practitioners' views on use of patient reported outcome measures in primary care: a cross-sectional survey and qualitative study.
Published in:
BMC Family Practice, 2020, v. 21, n. 1, p. 1, doi. 10.1186/s12875-019-1077-6
By:
- Turner, Grace M.;
- Litchfield, Ian;
- Finnikin, Sam;
- Aiyegbusi, Olalekan Lee;
- Calvert, Melanie
Publication type:
Article
Optimising the selection of outcomes for healthy ageing trials: a mixed methods study.
Published in:
GeroScience, 2022, v. 44, n. 6, p. 2585, doi. 10.1007/s11357-022-00690-5
By:
- Syed, Muslim Abbas;
- Aiyegbusi, Olalekan Lee;
- Marston, Eliot;
- Lord, Janet M.;
- Teare, Harriet;
- Calvert, Melanie
Publication type:
Article
Patient and public involvement and engagement in the development of innovative patient-centric early phase dose-finding trial designs.
Published in:
Research Involvement & Engagement, 2024, v. 10, n. 1, p. 1, doi. 10.1186/s40900-024-00599-7
By:
- Alger, Emily;
- Van Zyl, Mary;
- Aiyegbusi, Olalekan Lee;
- Chuter, Dave;
- Dean, Lizzie;
- Minchom, Anna;
- Yap, Christina
Publication type:
Article
Co-production of a feasibility trial of pacing interventions for Long COVID.
Published in:
Research Involvement & Engagement, 2023, v. 9, n. 1, p. 1, doi. 10.1186/s40900-023-00429-2
By:
- Turner, Grace M.;
- McMullan, Christel;
- Aiyegbusi, Olalekan Lee;
- Hughes, Sarah E.;
- Walker, Anita;
- Jeyes, Felicity;
- Adler, Yvonne;
- Chong, Amy;
- Buckland, Lewis;
- Stanton, David;
- Davies, Elin Haf;
- Haroon, Shamil;
- Calvert, Melanie
Publication type:
Article
Evaluating patient-reported outcome measures (PROMs) for clinical trials and clinical practice in adult patients with uveitis or scleritis: a systematic review.
Published in:
Journal of Ophthalmic Inflammation & Infection, 2022, v. 12, n. 1, p. 1, doi. 10.1186/s12348-022-00304-3
By:
- O'Donovan, Charles;
- Panthagani, Jesse;
- Aiyegbusi, Olalekan Lee;
- Liu, Xiaoxuan;
- Bayliss, Susan;
- Calvert, Melanie;
- Pesudovs, Konrad;
- Denniston, Alastair;
- Moore, David;
- Braithwaite, Tasanee
Publication type:
Article
Outcome selection for tissue-agnostic drug trials for immune-mediated inflammatory diseases: a systematic review of core outcome sets and regulatory guidance.
Published in:
2022
By:
- Aiyegbusi, Olalekan Lee;
- di Ruffano, Lavinia Ferrante;
- Retzer, Ameeta;
- Newsome, Philip N.;
- Buckley, Christopher D.;
- Calvert, Melanie J.
Publication type:
journal article
Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study.
Published in:
2020
By:
- Aiyegbusi, Olalekan Lee;
- Isa, Fatima;
- Kyte, Derek;
- Pankhurst, Tanya;
- Kerecuk, Larissa;
- Ferguson, James;
- Lipkin, Graham;
- Calvert, Melanie
Publication type:
journal article
The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis.
Published in:
2019
By:
- Rivera, Samantha Cruz;
- Kyte, Derek G.;
- Aiyegbusi, Olalekan Lee;
- Slade, Anita L.;
- McMullan, Christel;
- Calvert, Melanie J.
Publication type:
journal article
Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis.
Published in:
2022
By:
- Fletcher, Benjamin R;
- Damery, Sarah;
- Aiyegbusi, Olalekan Lee;
- Anderson, Nicola;
- Calvert, Melanie;
- Cockwell, Paul;
- Ferguson, James;
- Horton, Mike;
- Paap, Muirne C S;
- Sidey-Gibbons, Chris;
- Slade, Anita;
- Turner, Neil;
- Kyte, Derek
Publication type:
journal article
Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis.
Published in:
PLoS Medicine, 2022, v. 19, n. 4, p. 1, doi. 10.1371/journal.pmed.1003954
By:
- Fletcher, Benjamin R.;
- Damery, Sarah;
- Aiyegbusi, Olalekan Lee;
- Anderson, Nicola;
- Calvert, Melanie;
- Cockwell, Paul;
- Ferguson, James;
- Horton, Mike;
- Paap, Muirne C. S.;
- Sidey-Gibbons, Chris;
- Slade, Anita;
- Turner, Neil;
- Kyte, Derek
Publication type:
Article
Potentially modifiable factors associated with health-related quality of life among people with chronic kidney disease: baseline findings from the National Unified Renal Translational Research Enterprise CKD (NURTuRE-CKD) cohort.
Published in:
Clinical Kidney Journal, 2024, v. 17, n. 2, p. 1, doi. 10.1093/ckj/sfae010
By:
- Phillips, Thomas;
- Harris, Scott;
- Aiyegbusi, Olalekan Lee;
- Lucas, Bethany;
- Benavente, Melissa;
- Roderick, Paul J;
- Cockwell, Paul;
- Kalra, Philip A;
- Wheeler, David C;
- Taal, Maarten W;
- Fraser, Simon D S
Publication type:
Article
Factors that influence the selection of conservative management for end-stage renal disease – a systematic review.
Published in:
Clinical Kidney Journal, 2024, v. 17, n. 1, p. 1, doi. 10.1093/ckj/sfad269
By:
- Sakthivel, Pavithra;
- Mostafa, Alyaa;
- Aiyegbusi, Olalekan Lee
Publication type:
Article
Reducing the pressures of outpatient care: the potential role of patient-reported outcomes.
Published in:
Journal of the Royal Society of Medicine, 2023, v. 116, n. 2, p. 44, doi. 10.1177/01410768231152222
By:
- Aiyegbusi, Olalekan Lee;
- Hughes, Sarah E;
- Peipert, John Devin;
- Schougaard, Liv Marit Valen;
- Wilson, Roger;
- Calvert, Melanie J
Publication type:
Article
Symptoms, complications and management of long COVID: a review.
Published in:
Journal of the Royal Society of Medicine, 2021, v. 114, n. 9, p. 428, doi. 10.1177/01410768211032850
By:
- Aiyegbusi, Olalekan Lee;
- Hughes, Sarah E;
- Turner, Grace;
- Rivera, Samantha Cruz;
- McMullan, Christel;
- Chandan, Joht Singh;
- Haroon, Shamil;
- Price, Gary;
- Davies, Elin Haf;
- Nirantharakumar, Krishnarajah;
- Sapey, Elizabeth;
- Calvert, Melanie J
Publication type:
Article
Patient-reported outcome measurement: a bridge between health and social care?
Published in:
Journal of the Royal Society of Medicine, 2021, v. 114, n. 8, p. 381, doi. 10.1177/01410768211014048
By:
- Hughes, Sarah;
- Aiyegbusi, Olalekan Lee;
- Lasserson, Daniel;
- Collis, Philip;
- Glasby, Jon;
- Calvert, Melanie
Publication type:
Article
Moving beyond project-specific patient and public involvement in research.
Published in:
2020
By:
- Turner, Grace;
- Aiyegbusi, Olalekan Lee;
- Price, Gary;
- Skrybant, Magdalena;
- Calvert, Melanie
Publication type:
journal article
Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study.
Published in:
Neuro-Oncology Advances, 2023, v. 5, n. 1, p. 1, doi. 10.1093/noajnl/vdad096
By:
- Retzer, Ameeta;
- Baddeley, Elin;
- Sivell, Stephanie;
- Scott, Hannah;
- Nelson, Annmarie;
- Bulbeck, Helen;
- Seddon, Kathy;
- Grant, Robin;
- Adams, Richard;
- Watts, Colin;
- Aiyegbusi, Olalekan Lee;
- Kearns, Pamela;
- Rivera, Samantha Cruz;
- Dirven, Linda;
- Calvert, Melanie;
- Byrne, Anthony
Publication type:
Article
Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial.
Published in:
Journal of Patient-Reported Outcomes, 2023, v. 7, n. 1, p. 1, doi. 10.1186/s41687-023-00634-3
By:
- McMullan, Christel;
- Retzer, Ameeta;
- Hughes, Sarah E.;
- Aiyegbusi, Olalekan Lee;
- Bathurst, Camilla;
- Boyd, Alan;
- Coleman, Jamie;
- Davies, Elin Haf;
- Denniston, Alastair K.;
- Dunster, Helen;
- Frost, Chris;
- Harding, Rosie;
- Hunn, Amanda;
- Kyte, Derek;
- Malpass, Rebecca;
- McNamara, Gary;
- Mitchell, Sandra;
- Mittal, Saloni;
- Newsome, Philip N.;
- Price, Gary
Publication type:
Article
Systematic review of guidance for the collection and use of patient-reported outcomes in real-world evidence generation to support regulation, reimbursement and health policy.
Published in:
Journal of Patient-Reported Outcomes, 2022, v. 6, n. 1, p. 1, doi. 10.1186/s41687-022-00466-7
By:
- Maruszczyk, Konrad;
- Aiyegbusi, Olalekan Lee;
- Torlinska, Barbara;
- Collis, Philip;
- Keeley, Thomas;
- Calvert, Melanie J.
Publication type:
Article
Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research: The PRO Ethics Guidelines.
Published in:
2022
By:
- Cruz Rivera, Samantha;
- Aiyegbusi, Olalekan Lee;
- Ives, Jonathan;
- Draper, Heather;
- Mercieca-Bebber, Rebecca;
- Ells, Carolyn;
- Hunn, Amanda;
- Scott, Jane A.;
- Fernandez, Conrad V.;
- Dickens, Andrew P.;
- Anderson, Nicola;
- Bhatnagar, Vishal;
- Bottomley, Andrew;
- Campbell, Lisa;
- Collett, Clive;
- Collis, Philip;
- Craig, Kathrine;
- Davies, Hugh;
- Golub, Robert;
- Gosden, Lesley
Publication type:
journal article
Stroke risk following traumatic brain injury: Systematic review and meta-analysis.
Published in:
International Journal of Stroke, 2021, v. 16, n. 4, p. 370, doi. 10.1177/17474930211004277
By:
- Turner, Grace M;
- McMullan, Christel;
- Aiyegbusi, Olalekan Lee;
- Bem, Danai;
- Marshall, Tom;
- Calvert, Melanie;
- Mant, Jonathan;
- Belli, Antonio
Publication type:
Article
Assessing the impact of healthcare research: A systematic review of methodological frameworks.
Published in:
2017
By:
- Cruz Rivera, Samantha;
- Kyte, Derek G.;
- Aiyegbusi, Olalekan Lee;
- Keeley, Thomas J.;
- Calvert, Melanie J.
Publication type:
journal article
Methodological quality of 100 recent systematic reviews of health-related outcome measurement instruments: an overview of reviews.
Published in:
Quality of Life Research, 2024, v. 33, n. 10, p. 2593, doi. 10.1007/s11136-024-03706-z
By:
- Elsman, Ellen B. M.;
- Mokkink, Lidwine B.;
- Abma, Inger L.;
- Aiyegbusi, Olalekan Lee;
- Chiarotto, Alessandro;
- Haywood, Kirstie L.;
- Matvienko-Sikar, Karen;
- Oosterveer, Daniella M.;
- Pool, Jan J. M.;
- Swinkels-Meewisse, Ilse E. J.;
- Offringa, Martin;
- Terwee, Caroline B.
Publication type:
Article
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024.
Published in:
Quality of Life Research, 2024, v. 33, n. 8, p. 2029, doi. 10.1007/s11136-024-03634-y
By:
- Elsman, Ellen B. M.;
- Mokkink, Lidwine B.;
- Terwee, Caroline B.;
- Beaton, Dorcas;
- Gagnier, Joel J.;
- Tricco, Andrea C.;
- Baba, Ami;
- Butcher, Nancy J.;
- Smith, Maureen;
- Hofstetter, Catherine;
- Aiyegbusi, Olalekan Lee;
- Berardi, Anna;
- Farmer, Julie;
- Haywood, Kirstie L.;
- Krause, Karolin R.;
- Markham, Sarah;
- Mayo-Wilson, Evan;
- Mehdipour, Ava;
- Ricketts, Juanna;
- Szatmari, Peter
Publication type:
Article
Knowledge translation concerns for the CONSORT-PRO extension reporting guidance: a review of reviews.
Published in:
Quality of Life Research, 2022, v. 31, n. 10, p. 2939, doi. 10.1007/s11136-022-03119-w
By:
- Mercieca-Bebber, Rebecca;
- Aiyegbusi, Olalekan Lee;
- King, Madeleine T.;
- Brundage, Michael;
- Snyder, Claire;
- Calvert, Melanie
Publication type:
Article
Key methodological considerations for usability testing of electronic patient-reported outcome (ePRO) systems.
Published in:
2020
By:
- Aiyegbusi, Olalekan Lee
Publication type:
journal article
Study protocol for developing, piloting and disseminating the PRISMA-COSMIN guideline: a new reporting guideline for systematic reviews of outcome measurement instruments.
Published in:
Systematic Reviews, 2022, v. 11, n. 1, p. 1, doi. 10.1186/s13643-022-01994-5
By:
- Elsman, Ellen B. M.;
- Butcher, Nancy J.;
- Mokkink, Lidwine B.;
- Terwee, Caroline B.;
- Tricco, Andrea;
- Gagnier, Joel J.;
- Aiyegbusi, Olalekan Lee;
- Barnett, Carolina;
- Smith, Maureen;
- Moher, David;
- Offringa, Martin
Publication type:
Article
Patient and public perspectives on cell and gene therapies: a systematic review.
Published in:
Nature Communications, 2020, v. 11, n. 1, p. 1, doi. 10.1038/s41467-020-20096-1
By:
- Aiyegbusi, Olalekan Lee;
- Macpherson, Karen;
- Elston, Lauren;
- Myles, Susan;
- Washington, Jennifer;
- Sungum, Nisha;
- Briggs, Mark;
- Newsome, Philip N.;
- Calvert, Melanie J.
Publication type:
Article
Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review.
Published in:
PLoS ONE, 2017, v. 12, n. 6, p. 1, doi. 10.1371/journal.pone.0179733
By:
- Aiyegbusi, Olalekan Lee;
- Kyte, Derek;
- Marshall, Tom;
- Slade, Anita;
- Calvert, Melanie;
- Cockwell, Paul;
- Gheorghe, Adrian;
- Keeley, Thomas
Publication type:
Article

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