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- Title
Controlled Access under Review: Improving the Governance of Genomic Data Access.
- Authors
Shabani, Mahsa; Dyke, Stephanie O. M.; Joly, Yann; Borry, Pascal
- Abstract
In parallel with massive genomic data production, data sharing practices have rapidly expanded over the last decade. To ensure authorized access to data, access review by data access committees (DACs) has been utilized as one potential solution. Here we discuss core elements to be integrated into the fabric of access review by both established and emerging DACs in order to foster fair, efficient, and responsible access to datasets. We particularly highlight the fact that the access review process could be adversely influenced by the potential conflicts of interest of data producers, particularly when they are directly involved in DACs management. Therefore, in structuring DACs and access procedures, possible data withholding by data producers should receive thorough attention.
- Subjects
GENOMICS; DATA analysis; ACCESS control; ELECTRONIC information resources; DATA protection; DATA mining; SOCIETIES
- Publication
PLoS Biology, 2015, Vol 13, Issue 12, p1
- ISSN
1544-9173
- Publication type
Article
- DOI
10.1371/journal.pbio.1002339