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- Title
Questioning the Consensus: Managing Carrier Status Results Generated by Newborn Screening.
- Authors
Millet, Fiona Alice; Robert, Jason Scott; Hayeems, Robin Z.
- Abstract
An apparent consensus governs the management of carrier status information generated incidentally through newborn screening: results cannot be withheld from parents. This normative stance encodes the focus on autonomy and distaste for paternalism that characterize the principles of clinical bioethics. However, newborn screening is a classic public health intervention in which paternalism may trump autonomy and through which parents are — in effect — required to receive carrier information. In truth, the disposition of carrier results generates competing moral infringements: to withhold information or require its possession. Resolving this dilemma demands consideration of a distinctive body of public health ethics to highlight the moral imperatives associated with the exercise of collective authority in the pursuit of public health benefits. (Am J Public Health. 2008;99:210-215. doi: 10.2105/AJPH.2008. 136614)
- Subjects
CONSENSUS (Social sciences); NEWBORN infants; PARENTS; PATERNALISM; BIOETHICS; SCIENCE &; ethics; PUBLIC health; MEDICAL ethics; MEDICAL screening; HEALTH risk assessment
- Publication
American Journal of Public Health, 2009, Vol 99, Issue 2, p210
- ISSN
0090-0036
- Publication type
Article
- DOI
10.2105/AJPH.2008.136614