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- Title
Adherence is a human behaviour, assessing it requires multimethod evaluation with validated measures: Comment on Guedes VG et al (2019).
- Authors
Duncan, Natalie A.; Kronenberger, William G.; Roberson, Christopher P.; Janson, Isaac A.; Shapiro, Amy D.
- Abstract
Keywords: haemophilia; prophylaxis; self-report measures; treatment adherence and compliance; VERITAS-Pro EN haemophilia prophylaxis self-report measures treatment adherence and compliance VERITAS-Pro 934 936 3 12/21/20 20201101 NES 201101 In the August 2019 issue of I Haemophilia i , Guedes et al presented a study that aimed to compare, in their view, subjective and objective measures of adherence to prophylaxis in haemophilia.1 Guedes et al defined their objective measure of adherence using a dispensation/vial return measure: a percentage value derived from empty factor vials returned to the haemophilia treatment centre (HTC) relative to the expected number of factor units needed to follow the prescribed prophylactic regimen and additional factor required for bleed management. Based on these findings, Guedes et al question the validity of self-report measures of adherence and argue that their objective measure is superior to self-report measures in assessing adherence to haemophilia treatment. These conclusions generated provocative headlines such as 'Self-reported adherence fails to line up with objective measures in hemophilia'.2,3 We commend Guedes et al on their attention to the important issue of measurement of adherence to haemophilia treatment regimens. Haemophilia, prophylaxis, self-report measures, treatment adherence and compliance, VERITAS-Pro.
- Subjects
PATIENT compliance; PSYCHOMETRICS; CHILD patients; CHILD psychology; BEHAVIOR
- Publication
Haemophilia, 2020, Vol 26, Issue 6, p934
- ISSN
1351-8216
- Publication type
Article
- DOI
10.1111/hae.14022