Found: 57
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Persistent, Nontender Lip Swelling in a Patient With HIV.
- Published in:
- JAMA Dermatology, 2015, v. 151, n. 12, p. 1369, doi. 10.1001/jamadermatol.2015.2788
- By:
- Publication type:
- Article
Erythema in Skin Adjacent to Area of Long-term Brimonidine Treatment for Rosacea: A Novel Adverse Reaction.
- Published in:
- 2015
- By:
- Publication type:
- journal article
Use and safety of prophylactic endoscopy from a single center serving urban and rural children with portal hypertension.
- Published in:
- Scientific Reports, 2022, v. 12, n. 1, p. 1, doi. 10.1038/s41598-021-03759-x
- By:
- Publication type:
- Article
How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration.
- Published in:
- Orphanet Journal of Rare Diseases, 2015, v. 10, n. 1, p. 1, doi. 10.1186/s13023-015-0281-2
- By:
- Publication type:
- Article
Annular Erythematous Plaques With Central Hypopigmentation on Sun-Exposed Skin.
- Published in:
- 2023
- By:
- Publication type:
- Case Study
Levels of Interleukin-6 in Saliva, but Not Plasma, Correlate with Clinical Metrics in Huntington's Disease Patients and Healthy Control Subjects.
- Published in:
- International Journal of Molecular Sciences, 2020, v. 21, n. 17, p. 6363, doi. 10.3390/ijms21176363
- By:
- Publication type:
- Article
Patients' and caregivers' maximum acceptable risk of death for non‐curative gene therapy to treat Duchenne muscular dystrophy.
- Published in:
- Molecular Genetics & Genomic Medicine, 2021, v. 9, n. 5, p. 1, doi. 10.1002/mgg3.1664
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- Publication type:
- Article
Duchenne expert physician perspectives on Duchenne newborn screening and early Duchenne care.
- Published in:
- American Journal of Medical Genetics. Part C: Seminars in Medical Genetics, 2022, v. 190, n. 2, p. 162, doi. 10.1002/ajmg.c.31993
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- Publication type:
- Article
Diagnostic experiences of Duchenne families and their preferences for newborn screening: A mixed‐methods study.
- Published in:
- American Journal of Medical Genetics. Part C: Seminars in Medical Genetics, 2022, v. 190, n. 2, p. 169, doi. 10.1002/ajmg.c.31992
- By:
- Publication type:
- Article
Healthcare Stakeholder Perspectives on a Value Assessment Approach for Duchenne Muscular Dystrophy Therapies.
- Published in:
- Journal of Multidisciplinary Healthcare, 2024, v. 17, p. 4199, doi. 10.2147/JMDH.S458181
- By:
- Publication type:
- Article
Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best-worst scaling experiment in caregivers and adult patients.
- Published in:
- 2019
- By:
- Publication type:
- journal article
132 Caregivers Perspectives on Multidisciplinary Clinic Visits for Duchenne and Becker Muscular Dystrophy.
- Published in:
- 2023
- By:
- Publication type:
- Abstract
Intestinal transplantation in children with multiple intestinal atresias and immunodeficiency.
- Published in:
- Pediatric Transplantation, 2014, v. 18, n. 2, p. 190, doi. 10.1111/petr.12211
- By:
- Publication type:
- Article
Refractory autoimmune hemolytic anemia after intestinal transplant responding to conversion from a calcineurin to mTOR inhibitor.
- Published in:
- Pediatric Transplantation, 2013, v. 17, n. 5, p. 466, doi. 10.1111/petr.12101
- By:
- Publication type:
- Article
A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches.
- Published in:
- Patient, 2023, v. 16, n. 4, p. 293, doi. 10.1007/s40271-023-00630-1
- By:
- Publication type:
- Article
A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy.
- Published in:
- Patient, 2022, v. 15, n. 5, p. 577, doi. 10.1007/s40271-022-00574-y
- By:
- Publication type:
- Article
How Do Members of the Duchenne and Becker Muscular Dystrophy Community Perceive a Discrete-Choice Experiment Incorporating Uncertain Treatment Benefit? An Application of Research as an Event.
- Published in:
- Patient, 2019, v. 12, n. 2, p. 247, doi. 10.1007/s40271-018-0330-8
- By:
- Publication type:
- Article
We Are the Land: A History of Native California.
- Published in:
- Pacific Northwest Quarterly, 2021, v. 113, n. 1, p. 36
- By:
- Publication type:
- Article
Uric Acid as a Potential Peripheral Biomarker for Disease Features in Huntington's Patients.
- Published in:
- Frontiers in Neuroscience, 2020, p. 1, doi. 10.3389/fnins.2020.00073
- By:
- Publication type:
- Article
Association between congenital heart disease and parenteral nutrition–associated liver disease in neonates: A retrospective cohort study.
- Published in:
- JPEN Journal of Parenteral & Enteral Nutrition, 2023, v. 47, n. 4, p. 501, doi. 10.1002/jpen.2484
- By:
- Publication type:
- Article
Epidemiology and Healthcare Resource Utilization Associated With Children With Short Bowel Syndrome in the United States.
- Published in:
- 2017
- By:
- Publication type:
- journal article
Facial Hair: Preparation and application.
- Published in:
- Theatre Design & Technology (TD&T), 2012, v. 48, n. 3, p. 49
- By:
- Publication type:
- Article
HAIR Preparation & Wig APPLICATION: A Lesson for Makeup Teachers, Wardrobe Supervisors, and Theatre Students.
- Published in:
- Theatre Design & Technology (TD&T), 2012, v. 48, n. 1, p. 28
- By:
- Publication type:
- Article
FACTORS IMPACTING SENTENCE SEVERITY OF INTIMATE PARTNER VIOLENCE OFFENDERS AND JUSTIFICATION FOR THE TYPES OF SENTENCES IMPOSED BY MOCK JUDGES.
- Published in:
- Law & Psychology Review, 2010, v. 34, p. 25
- By:
- Publication type:
- Article
An electronic medical records-based approach to identify idiosyncratic drug-induced liver injury in children.
- Published in:
- Scientific Reports, 2019, v. 9, n. 1, p. N.PAG, doi. 10.1038/s41598-019-54075-4
- By:
- Publication type:
- Article
Authors' Response to Comment on "Assessing the Appropriateness of the EQ-5D for Duchenne Muscular Dystrophy: A Patient-Centered Study".
- Published in:
- 2022
- By:
- Publication type:
- Letter
Assessing the Appropriateness of the EQ-5D for Duchenne Muscular Dystrophy: A Patient-Centered Study.
- Published in:
- Medical Decision Making, 2021, v. 41, n. 2, p. 209, doi. 10.1177/0272989X20978390
- By:
- Publication type:
- Article
Clinician Perspectives of Gene Therapy as a Treatment Option for Duchenne Muscular Dystrophy.
- Published in:
- Journal of Neuromuscular Diseases, 2024, v. 11, n. 5, p. 1085, doi. 10.3233/JND-240033
- By:
- Publication type:
- Article
Draft Guidance for Industry Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Related Dystrophinopathies – Developing Potential Treatments for the Entire Spectrum of Disease.
- Published in:
- Journal of Neuromuscular Diseases, 2024, v. 11, n. 2, p. 499, doi. 10.3233/JND-230219
- By:
- Publication type:
- Article
A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy.
- Published in:
- Journal of Neuromuscular Diseases, 2023, v. 10, n. 4, p. 593, doi. 10.3233/JND-221617
- By:
- Publication type:
- Article
Sea Otters: A History.
- Published in:
- 2019
- By:
- Publication type:
- Book Review
Beyond Hawai'i: Native Labor in the Pacific World by Gregory Rosenthal (review).
- Published in:
- 2020
- By:
- Publication type:
- Book Review
Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy.
- Published in:
- Health & Quality of Life Outcomes, 2021, v. 19, n. 1, p. 1, doi. 10.1186/s12955-021-01813-w
- By:
- Publication type:
- Article
Colonialism on Trial.
- Published in:
- 2021
- By:
- Publication type:
- Book Review
Does Privacy Require Secrecy? Societal Expectations of Privacy in the Digital Age.
- Published in:
- American Journal of Criminal Law, 2015, v. 43, n. 1, p. 19
- By:
- Publication type:
- Article
Quantifying Katz: Empirically Measuring "Reasonable Expectations of Privacy" in the Fourth Amendment Context.
- Published in:
- American Journal of Criminal Law, 2011, v. 38, n. 3, p. 289
- By:
- Publication type:
- Article
The World and All the Things upon It: Native Hawaiian Geographies of Exploration.
- Published in:
- 2017
- By:
- Publication type:
- Book Review
The California Deserts: An Ecological Rediscovery.
- Published in:
- 2010
- By:
- Publication type:
- Book Review
Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation: A Position Paper by the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition.
- Published in:
- Journal of Pediatric Gastroenterology & Nutrition, 2023, v. 76, n. 1, p. 84, doi. 10.1097/MPG.0000000000003560
- By:
- Publication type:
- Article
Dehydrated Hereditary Stomatocytosis Presenting as Severe Perinatal Ascites and Cholestasis.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Hepatic fibrosis persists and progresses despite biochemical improvement in children treated with intravenous fish oil emulsion.
- Published in:
- 2013
- By:
- Publication type:
- journal article
Treatment of non-alcoholic fatty liver disease in children: swim at your own risk.
- Published in:
- 2009
- By:
- Publication type:
- Editorial
Strangers on Familiar Soil: Rediscovering the Chile-California Connection.
- Published in:
- 2017
- By:
- Publication type:
- Book Review
The effect of neuropsychiatric medication on pediatric nonalcoholic fatty liver disease.
- Published in:
- CTS: Clinical & Translational Science, 2022, v. 15, n. 9, p. 2241, doi. 10.1111/cts.13358
- By:
- Publication type:
- Article
Natural killer cells in liver transplantation: Can we harness the power of the immune checkpoint to promote tolerance?
- Published in:
- CTS: Clinical & Translational Science, 2022, v. 15, n. 5, p. 1091, doi. 10.1111/cts.13208
- By:
- Publication type:
- Article
Readiness to Change and Prospective Effects of Weight Management Programs in Pediatric Nonalcoholic Fatty Liver Disease.
- Published in:
- CTS: Clinical & Translational Science, 2021, v. 14, n. 2, p. 582, doi. 10.1111/cts.12913
- By:
- Publication type:
- Article
Crypt Apoptotic Count Reproducibility in Small Bowel Allograft Biopsies.
- Published in:
- International Journal of Surgical Pathology, 2013, v. 21, n. 3, p. 257, doi. 10.1177/1066896912452912
- By:
- Publication type:
- Article
Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Gene therapy as a potential therapeutic option for Duchenne muscular dystrophy: A qualitative preference study of patients and parents.
- Published in:
- PLoS ONE, 2019, v. 14, n. 5, p. 1, doi. 10.1371/journal.pone.0213649
- By:
- Publication type:
- Article