Found: 14

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  • Controlled Access under Review: Improving the Governance of Genomic Data Access.

    Published in:
    PLoS Biology, 2015, v. 13, n. 12, p. 1, doi. 10.1371/journal.pbio.1002339
    By:
    • Shabani, Mahsa;
    • Dyke, Stephanie O. M.;
    • Joly, Yann;
    • Borry, Pascal
    Publication type:
    Article

  • Studying Vulnerable Populations Through an Epigenetics Lens: Proceed with Caution.

    Published in:
    Canadian Journal of Bioethics / Revue canadienne de bioéthique, 2022, v. 5, n. 1, p. 68, doi. 10.7202/1087205ar
    By:
    • Saulnier, Katie;
    • Berner, Alison;
    • Liosi, Stamatina;
    • Earp, Brian;
    • Berrios, Courtney;
    • Dyke, Stephanie O. M.;
    • Dupras, Charles;
    • Joly, Yann
    Publication type:
    Article

  • BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.

    Published in:
    PLoS Genetics, 2018, v. 14, n. 12, p. 1, doi. 10.1371/journal.pgen.1007752
    By:
    • Cline, Melissa S.;
    • Liao, Rachel G.;
    • Parsons, Michael T.;
    • Paten, Benedict;
    • Alquaddoomi, Faisal;
    • Antoniou, Antonis;
    • Baxter, Samantha;
    • Brody, Larry;
    • Cook-Deegan, Robert;
    • Coffin, Amy;
    • Couch, Fergus J.;
    • Craft, Brian;
    • Currie, Robert;
    • Dlott, Chloe C.;
    • Dolman, Lena;
    • den Dunnen, Johan T.;
    • Dyke, Stephanie O. M.;
    • Domchek, Susan M.;
    • Easton, Douglas;
    • Fischmann, Zachary
    Publication type:
    Article

  • Benefits and barriers in the design of harmonized access agreements for international data sharing.

    Published in:
    Scientific Data, 2019, v. 6, n. 1, p. N.PAG, doi. 10.1038/s41597-019-0310-4
    By:
    • Saulnier, Katie M.;
    • Bujold, David;
    • Dyke, Stephanie O. M.;
    • Dupras, Charles;
    • Beck, Stephan;
    • Bourque, Guillaume;
    • Joly, Yann
    Publication type:
    Article

  • Publisher Correction: Federated discovery and sharing of genomic data using Beacons.

    Published in:
    2019
    By:
    • Fiume, Marc;
    • Cupak, Miroslav;
    • Keenan, Stephen;
    • Rambla, Jordi;
    • de la Torre, Sabela;
    • Dyke, Stephanie O. M.;
    • Brookes, Anthony J.;
    • Carey, Knox;
    • Lloyd, David;
    • Goodhand, Peter;
    • Haeussler, Maximilian;
    • Baudis, Michael;
    • Stockinger, Heinz;
    • Dolman, Lena;
    • Lappalainen, Ilkka;
    • Törnroos, Juha;
    • Linden, Mikael;
    • Spalding, J. Dylan;
    • Ur-Rehman, Saif;
    • Page, Angela
    Publication type:
    Correction Notice

  • Federated discovery and sharing of genomic data using Beacons.

    Published in:
    Nature Biotechnology, 2019, v. 37, n. 3, p. 220, doi. 10.1038/s41587-019-0046-x
    By:
    • Fiume, Marc;
    • Cupak, Miroslav;
    • Keenan, Stephen;
    • Rambla, Jordi;
    • de la Torre, Sabela;
    • Dyke, Stephanie O. M.;
    • Brookes, Anthony J.;
    • Carey, Knox;
    • Lloyd, David;
    • Goodhand, Peter;
    • Haeussler, Maximilian;
    • Baudis, Michael;
    • Stockinger, Heinz;
    • Dolman, Lena;
    • Lappalainen, Ilkka;
    • Törnroos, Juha;
    • Linden, Mikael;
    • Spalding, J. Dylan;
    • Ur-Rehman, Saif;
    • Page, Angela
    Publication type:
    Article

  • The International Cancer Genome Consortium's evolving data-protection policies.

    Published in:
    Nature Biotechnology, 2014, v. 32, n. 6, p. 519, doi. 10.1038/nbt.2926
    By:
    • Milius, Djims;
    • Dove, Edward S;
    • Chalmers, Donald;
    • Dyke, Stephanie O M;
    • Kato, Kazuto;
    • Nicolás, Pilar;
    • Ouellette, BF Francis;
    • Ozenberger, Brad;
    • Rodriguez, Laura L;
    • Zeps, Nikolajs;
    • Joly, Yann
    Publication type:
    Article

  • Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M).

    Published in:
    NPJ Genomic Medicine, 2018, v. 3, n. 1, p. N.PAG, doi. 10.1038/s41525-018-0057-4
    By:
    • Woolley, J. Patrick;
    • Kirby, Emily;
    • Leslie, Josh;
    • Jeanson, Francis;
    • Cabili, Moran N.;
    • Rushton, Gregory;
    • Hazard, James G.;
    • Ladas, Vagelis;
    • Veal, Colin D.;
    • Gibson, Spencer J.;
    • Tassé, Anne-Marie;
    • Dyke, Stephanie O. M.;
    • Gaff, Clara;
    • Thorogood, Adrian;
    • Knoppers, Bartha Maria;
    • Wilbanks, John;
    • Brookes, Anthony J.
    Publication type:
    Article

  • Return of individual research results from genomic research: A systematic review of stakeholder perspectives.

    Published in:
    PLoS ONE, 2021, v. 16, n. 11, p. 1, doi. 10.1371/journal.pone.0258646
    By:
    • Vears, Danya F.;
    • Minion, Joel T.;
    • Roberts, Stephanie J.;
    • Cummings, James;
    • Machirori, Mavis;
    • Blell, Mwenza;
    • Budin-Ljøsne, Isabelle;
    • Cowley, Lorraine;
    • Dyke, Stephanie O. M.;
    • Gaff, Clara;
    • Green, Robert;
    • Hall, Alison;
    • Johns, Amber L.;
    • Knoppers, Bartha M.;
    • Mulrine, Stephanie;
    • Patch, Christine;
    • Winkler, Eva;
    • Murtagh, Madeleine J.
    Publication type:
    Article

  • Epigenome data release: a participantcentered approach to privacy protection

    Published in:
    Genome Biology, 2015, v. 16, n. 1, p. 142, doi. 10.1186/s13059-015-0723-0
    By:
    • Dyke, Stephanie O. M.;
    • Cheung, Warren A.;
    • Joly, Yann;
    • Ammerpohl, Ole;
    • Lutsik, Pavlo;
    • Rothstein, Mark A.;
    • Caron, Maxime;
    • Busche, Stephan;
    • Bourque, Guillaume;
    • Rönnblom, Lars;
    • Flicek, Paul;
    • Beck, Stephan;
    • Hirst, Martin;
    • Stunnenberg, Henk;
    • Siebert, Reiner;
    • Walter, Jörn;
    • Pastinen, Tomi
    Publication type:
    Article

  • Open science and community norms: Data retention and publication moratoria policies in genomics projects.

    Published in:
    Medical Law International, 2012, v. 12, n. 2, p. 92, doi. 10.1177/0968533212458431
    By:
    • Joly, Yann;
    • Dove, Edward S.;
    • Kennedy, Karen L.;
    • Bobrow, Martin;
    • Ouellette, B. F. Francis;
    • Dyke, Stephanie O. M.;
    • Kato, Kazuto;
    • Knoppers, Bartha M.
    Publication type:
    Article

  • 'Matching' consent to purpose: The example of the Matchmaker Exchange.

    Published in:
    Human Mutation, 2017, v. 38, n. 10, p. 1281, doi. 10.1002/humu.23278
    By:
    • Dyke, Stephanie O. M.;
    • Knoppers, Bartha M.;
    • Hamosh, Ada;
    • Firth, Helen V.;
    • Hurles, Matthew;
    • Brudno, Michael;
    • Boycott, Kym M.;
    • Philippakis, Anthony A.;
    • Rehm, Heidi L.
    Publication type:
    Article

  • Points-to-consider on the return of results in epigenetic research.

    Published in:
    Genome Medicine, 2019, v. 11, n. 1, p. N.PAG, doi. 10.1186/s13073-019-0646-6
    By:
    • Dyke, Stephanie O. M.;
    • Saulnier, Katie M.;
    • Dupras, Charles;
    • Webster, Amy P.;
    • Maschke, Karen;
    • Rothstein, Mark;
    • Siebert, Reiner;
    • Walter, Jörn;
    • Beck, Stephan;
    • Pastinen, Tomi;
    • Joly, Yann
    Publication type:
    Article

  • Consent Codes: Upholding Standard Data Use Conditions.

    Published in:
    PLoS Genetics, 2016, v. 12, n. 1, p. 1, doi. 10.1371/journal.pgen.1005772
    By:
    • Dyke, Stephanie O. M.;
    • Philippakis, Anthony A.;
    • Rambla De Argila, Jordi;
    • Paltoo, Dina N.;
    • Luetkemeier, Erin S.;
    • Knoppers, Bartha M.;
    • Brookes, Anthony J.;
    • Spalding, J. Dylan;
    • Thompson, Mark;
    • Roos, Marco;
    • Boycott, Kym M.;
    • Brudno, Michael;
    • Hurles, Matthew;
    • Rehm, Heidi L.;
    • Matern, Andreas;
    • Fiume, Marc;
    • Sherry, Stephen T.
    Publication type:
    Article