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- Title
New consensus definition on defining and measuring care for children with paediatric feeding disorder.
- Authors
Elliot, Chris; Hopwood, Nick; Moraby, Khadeejah; Crockett, Naomi; Wright, Simone; Vanos, Katelyn; Furey, Krystal; Hammond, Anna; Handley, Siobhan; Dalby‐Payne, Jacqueline; Dadich, Ann; Gottschalk, Belinda; Ooi, Chee Y; Woolfenden, Susan
- Abstract
Aim: This study addresses the absence of a definition of care for children with feeding disorders, limited agreement on key performance indicators (KPIs), and the lack of data linked to those KPIs. Methods: Clinicians, consumers and researchers involved in outpatient feeding care in New South Wales (NSW), Australia were invited to participate in a two‐Phase study. In Phase 1, a modified Delphi method was used. Two rounds of voting resulted in a new consensus definition of a multidisciplinary paediatric feeding clinic. Three further rounds voting determined relevant KPIs. In Phase 2, the KPIs were piloted prospectively in 10 clinics. Results: Twenty‐six clinicians, consumers and researchers participated in Phase 1. Participation across five voting rounds declined from 92% to 60% and a valid definition and KPI set were created. In Phase 2, the definition and KPIs were piloted in 10 clinics over 6 weeks. Data for 110 patients were collected. The final KPI set of 28 measures proposed covers clinical features, patient demographics and medical issues, parent–child interaction and outcome measures. Conclusions: A new definition of a multidisciplinary paediatric feeding clinic is now available, linked to a standardised KPI set covering relevant performance measures. These proved viable in baseline data collection for 10 clinics across NSW. This sets a foundation for further data collection, systematic measurement of care provision and outcomes, and research needed to deliver care improvement for children with paediatric feeding disorder.
- Subjects
NEW South Wales; AUSTRALIA; INGESTION disorders; CHILD care; PARENT-child relationships; PEDIATRIC clinics; KEY performance indicators (Management)
- Publication
Journal of Paediatrics & Child Health, 2024, Vol 60, Issue 2/3, p58
- ISSN
1034-4810
- Publication type
Article
- DOI
10.1111/jpc.16534