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- Title
Parents' Experiences and Information Needs While Caring for a Child With Functional Constipation: A Systematic Review.
- Authors
Thompson, Alison P.; Wine, Eytan; MacDonald, Shannon E.; Campbell, Alyson; Scott, Shannon D.
- Abstract
Pediatric functional constipation (FC) reportedly affects at least 1 in 10 children worldwide. Parent and family education is a key component for successful treatment, yet there is little research exploring what information families need and how to best support them. The aim of this review is to synthesize current evidence on the experiences and information needs of parents caring for a child with FC. We systematically searched published research and completed screening against a priori inclusion criteria. Thirteen studies (n = 10 quantitative, n = 3 qualitative) were included. We found 2 main themes, precarious footing and profound and pervasive effects. Heavy caregiving burdens fueled doubts, misinformation, relationship breakdown, and treatment deviation. In light of clinical recommendations, our findings reveal a potential mismatch between parents' needs and care provision for FC. It is likely that both parents and health care providers would benefit from resources and interventions to improve care related to pediatric FC.
- Subjects
EDUCATION of parents; CINAHL database; CONSTIPATION; INFORMATION storage &; retrieval systems; MEDICAL databases; MEDICAL information storage &; retrieval systems; PSYCHOLOGY information storage &; retrieval systems; MEDLINE; PSYCHOLOGY of parents; PEDIATRICS; SYSTEMATIC reviews; INFORMATION needs
- Publication
Clinical Pediatrics, 2021, Vol 60, Issue 3, p154
- ISSN
0009-9228
- Publication type
Article
- DOI
10.1177/0009922820964457