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- Title
CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.
- Authors
Knight-Madden, Jennifer; Romana, Marc; Villaescusa, Rinaldo; Reid, Marvin; Etienne-Julan, Maryse; Boutin, Laurence; Elana, Gisèle; Elenga, Narcisse; Wheeler, Gillian; Lee, Ketty; Nieves, Rosa; Lecointe, Althea Jones; Lalanne-Mistrih, Marie-Laure; Loko, Gylna; Keclard-Christophe, Lisiane; Hardy-Dessources, Marie-Dominique
- Abstract
Sickle cell disease (SCD) is a significant problem in the Caribbean, where many individuals have African and Asian forebears. However, reliable prevalence data and specific health care programs for SCD are often missing in this region. Closer collaboration between Caribbean territories initiated in 2006 to set up strategies to promote better equity in the health care system for SCD patients led to the formation of CAREST: the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia. We present the effectiveness of collaborations established by CAREST to promote SCD newborn screening programs and early childhood care, to facilitate health worker training and approaches for prevention and treatment of SCD complications, and to carry out inter-Caribbean research studies.
- Subjects
WEST Indies; HEALTH promotion; INTERPROFESSIONAL relations; NONPROFIT organizations; SICKLE cell anemia; THALASSEMIA; GENETIC testing; EARLY intervention (Education); ORGANIZATIONAL goals
- Publication
American Journal of Public Health, 2016, Vol 106, Issue 5, p851
- ISSN
0090-0036
- Publication type
Article
- DOI
10.2105/AJPH.2016.303078