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- Title
A chronic care ostomy self-management program for cancer survivors.
- Authors
Krouse, Robert S.; Grant, Marcia; McCorkle, Ruth; Wendel, Christopher S.; Cobb, Martha D.; Tallman, Nancy J.; Ercolano, Elizabeth; Sun, Virginia; Hibbard, Judith H.; Hornbrook, Mark C.
- Abstract
<bold>Background: </bold>Individuals with ostomies experience extensive changes in health-related quality of life (HRQOL) and daily routine. Patients and families are typically forced to use trial and error to improve self-management.<bold>Methods: </bold>This is a longitudinal one-group design pilot study of a five-session ostomy self-care curriculum based on the Chronic Care Model to improve HRQOL and self-management for cancer survivors with ostomies. Participants were surveyed to evaluate each session. Multiple instruments were administered to examine outcomes at baseline, post-intervention, and at 6-month follow-up (Patient Activation Measure, self-efficacy, Hospital Anxiety and Depression Scale, Ways of Coping, Group Health Association of America Satisfaction with ostomy care survey, and the City of Hope Quality of Life Ostomy). Changes from pre-intervention to post-intervention and pre-intervention to follow-up were evaluated with paired t-tests. Text responses were coded and evaluated for important themes and recommendations.<bold>Results: </bold>Thirty-eight subjects participated in the study. Most had a history of rectal cancer (60.5%) or bladder cancer (28.9%). Participants rated the overall program high (4.4-4.8 on 5-point scale). Text feedback indicated that participants enjoyed the group forums, wanted more participants, and more hands-on training. Scores on multiple surveys were shown to be improved and sustained, including patient activation (p = 0.0004), self-efficacy (p = 0.006), total HRQOL (p = 0.01), physical well-being (p = 0.005), and social well-being (p = 0.002). Survivor anxiety was significantly reduced by follow-up (p = 0.047).<bold>Conclusions: </bold>This self-management ostomy program can help cancer survivors with ostomies adapt to their stoma. Initiating this program in the community setting would be beneficial to many cancer survivors.
- Subjects
CANCER patients; OSTOMY; QUALITY of life; HEALTH self-care; HEALTH education; MENTAL health; ADAPTABILITY (Personality); HEALTH status indicators; LONGITUDINAL method; HEALTH outcome assessment; PATIENT satisfaction; PSYCHOLOGICAL tests; QUESTIONNAIRES; RECTUM tumors; RESEARCH funding; SURVEYS; QUALITATIVE research; PILOT projects; PSYCHOLOGY
- Publication
Psycho-Oncology, 2016, Vol 25, Issue 5, p574
- ISSN
1057-9249
- Publication type
journal article
- DOI
10.1002/pon.4078