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- Title
Supporting families managing childhood eczema: developing and optimising eczema care online using qualitative research.
- Authors
Sivyer, Katy; Teasdale, Emma; Greenwell, Kate; Steele, Mary; Ghio, Daniela; Ridd, Matthew J; Roberts, Amanda; Chalmers, Joanne R; Lawton, Sandra; Langan, Sinead M; Cowdell, Fiona; Le Roux, Emma; Wilczynska, Sylvia; Williams, Hywel C; Thomas, Kim S; Yardley, Lucy; Santer, Miriam; Muller, Ingrid
- Abstract
<bold>Background: </bold>Childhood eczema is often poorly controlled owing to underuse of emollients and topical corticosteroids (TCS). Parents/carers report practical and psychosocial barriers to managing their child's eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited.<bold>Aim: </bold>To develop an online behavioural intervention to help parents/carers manage and co-manage their child's eczema.<bold>Design and Setting: </bold>Intervention development using a theory-, evidence-, and person-based approach (PBA) with qualitative research.<bold>Method: </bold>A systematic review and qualitative synthesis of studies (n = 32) and interviews with parents/carers (n = 30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (n = 25) were then used to optimise the intervention to increase its acceptability and feasibility.<bold>Results: </bold>Qualitative research identified that parents/carers had concerns about using emollients and TCS, incomplete knowledge and skills around managing eczema, and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that, while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included providing a rationale explaining how emollients and TCS work, demonstrating how to use treatments, and highlighting that the intervention provided new, up-to-date information.<bold>Conclusion: </bold>Parents/carers need support in effectively managing and co-managing their child's eczema. The key output of this research is Eczema Care Online for Families, an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.
- Subjects
TATA Consultancy Services Ltd.; ECZEMA; QUALITATIVE research; FAMILIES; PSYCHOLOGY of parents; ATOPIC dermatitis; DERMATOLOGIC agents; PSYCHOLOGY of caregivers
- Publication
British Journal of General Practice, 2022, Vol 72, Issue 719, pe378
- ISSN
0960-1643
- Publication type
journal article
- DOI
10.3399/BJGP.2021.0503