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- Title
To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?
- Authors
Dove, Edward S.; Chen, Jiahong; Rothstein, Mark A.; Wilbanks, John T.
- Abstract
In this article, we consider the possible application of the European General Data Protection Regulation (GDPR) to "citizen scientist"-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for lex specialis that would provide greater clarity and certainty regarding the processing of health data by for research purposes, including these non-traditional researchers.
- Subjects
GENERAL Data Protection Regulation, 2016; CITIZEN science; PUBLIC health research; SMARTPHONES; SCIENTISTS; TABLET computers; PERSONALLY identifiable information; MEDICAL research; PRIVACY; ALGORITHMS; MEDICAL ethics; PUBLIC health; TELEMEDICINE; CELL phones; DATA analysis; GOVERNMENT regulation; DATA security; SOCIAL media; MOBILE apps; ELECTRONIC health records
- Publication
Journal of Law, Medicine & Ethics, 2020, Vol 48, p187
- ISSN
1073-1105
- Publication type
Article
- DOI
10.1177/1073110520917046