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Including all voices in international data-sharing governance.
- Published in:
- Human Genomics, 2018, v. 12, p. 1, doi. 10.1186/s40246-018-0143-9
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- Publication type:
- Article
Purpose definition as a crucial step for determining the legal basis under the GDPR: implications for scientific research.
- Published in:
- Journal of Law & the Biosciences, 2024, v. 11, n. 1, p. 1, doi. 10.1093/jlb/lsae001
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- Publication type:
- Article
Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 1, p. 1, doi. 10.1093/jlb/lsad013
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- Publication type:
- Article
CHARTING THE PRIVACY LANDSCAPE IN CANADIAN PAEDIATRIC BIOBANKS.
- Published in:
- Health Law Journal, 2013, v. 20, p. 1
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- Publication type:
- Article
'Regular science' is inherently political.
- Published in:
- EMBO Reports, 2013, v. 14, n. 2, p. 113, doi. 10.1038/embor.2012.205
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- Publication type:
- Article
The International Cancer Genome Consortium's evolving data-protection policies.
- Published in:
- Nature Biotechnology, 2014, v. 32, n. 6, p. 519, doi. 10.1038/nbt.2926
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- Publication type:
- Article
DNA Testing for Family Reunification in Canada: Points to Consider.
- Published in:
- Journal of International Migration & Integration, 2017, v. 18, n. 2, p. 391, doi. 10.1007/s12134-016-0496-7
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- Publication type:
- Article
Evaluation of Nine Consensus Indices in Delphi Foresight Research and Their Dependency on Delphi Survey Characteristics: A Simulation Study and Debate on Delphi Design and Interpretation.
- Published in:
- PLoS ONE, 2015, v. 10, n. 8, p. 1, doi. 10.1371/journal.pone.0135162
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- Publication type:
- Article
A Delphi Technology Foresight Study: Mapping Social Construction of Scientific Evidence on Metagenomics Tests for Water Safety.
- Published in:
- PLoS ONE, 2015, v. 10, n. 6, p. 1, doi. 10.1371/journal.pone.0129706
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- Publication type:
- Article
Reconfiguring Social Value in Health Research Through the Lens of Liminality.
- Published in:
- Bioethics, 2017, v. 31, n. 2, p. 87, doi. 10.1111/bioe.12324
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- Publication type:
- Article
The epiknowledge of socially responsible innovation.
- Published in:
- EMBO Reports, 2014, v. 15, n. 5, p. 462, doi. 10.1002/embr.201438683
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- Publication type:
- Article
Noortje Jacobs, Ethics by Committee: A History of Reasoning Together About Medicine, Science, Society, and the State.
- Published in:
- 2024
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- Publication type:
- Book Review
Genomic cloud computing: legal and ethical points to consider.
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 10, p. 1271, doi. 10.1038/ejhg.2014.196
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- Publication type:
- Article
International Charter of principles for sharing bio-specimens and data.
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 6, p. 721, doi. 10.1038/ejhg.2014.197
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- Publication type:
- Article
Ethics review of big data research: What should stay and what should be reformed?
- Published in:
- 2021
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- Publication type:
- journal article
Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
- Published in:
- PLoS Computational Biology, 2012, v. 8, n. 7, p. 1, doi. 10.1371/journal.pcbi.1002549
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- Publication type:
- Article
Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks.
- Published in:
- Croatian Medical Journal, 2016, v. 57, n. 2, p. 207, doi. 10.3325/cmj.2016.57.207
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- Publication type:
- Article
Co-production and Managing Uncertainty in Health Research Regulation: A Delphi Study.
- Published in:
- Health Care Analysis, 2020, v. 28, n. 2, p. 99, doi. 10.1007/s10728-019-00383-9
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- Publication type:
- Article
To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?
- Published in:
- Journal of Law, Medicine & Ethics, 2020, v. 48, p. 187, doi. 10.1177/1073110520917046
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- Publication type:
- Article
The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital Era.
- Published in:
- Journal of Law, Medicine & Ethics, 2018, v. 46, n. 4, p. 1013, doi. 10.1177/1073110518822003
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- Publication type:
- Article
Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework.
- Published in:
- Journal of Law, Medicine & Ethics, 2015, v. 43, n. 4, p. 675, doi. 10.1111/jlme.12311
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- Publication type:
- Article
Thierry Vansweevelt and Nicola Glover-Thomas (eds.), Privacy and Medical Confidentiality in Healthcare: A Comparative Analysis.
- Published in:
- 2024
- By:
- Publication type:
- Book Review
Carolyn Adams, Judy Allen, and Felicity Flack, Sharing Linked Data for Health Research: Toward Better Decision Making.
- Published in:
- 2023
- By:
- Publication type:
- Book Review
Signalling Standards for Progress: Bridging the Divide Between a Valid Consent to Use Patient Data Under Data Protection Law and the Common Law Duty of Confidentiality.
- Published in:
- Medical Law Review, 2021, v. 29, n. 3, p. 411, doi. 10.1093/medlaw/fwab014
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- Publication type:
- Article
Building a data sharing model for global genomic research.
- Published in:
- Genome Biology, 2014, v. 15, n. 7, p. 430, doi. 10.1186/s13059-014-0430-2
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- Publication type:
- Article
Power to the people: a wiki-governance model for biobanks
- Published in:
- Genome Biology, 2012, v. 13, n. 5, p. 158, doi. 10.1186/gb-2012-13-5-158
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- Publication type:
- Article
Elberte v. Latvia.
- Published in:
- Medical Law International, 2015, v. 15, n. 2/3, p. 77, doi. 10.1177/0968533215618853
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- Publication type:
- Article
Ethics, Law and Society: Volume V.
- Published in:
- 2014
- By:
- Publication type:
- Book Review
Open science and community norms: Data retention and publication moratoria policies in genomics projects.
- Published in:
- Medical Law International, 2012, v. 12, n. 2, p. 92, doi. 10.1177/0968533212458431
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- Publication type:
- Article
Broad Consent for Future Research: International Perspectives.
- Published in:
- IRB: Ethics & Human Research, 2018, v. 40, n. 6, p. 7, doi. 10.1002/eahr.406002
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- Publication type:
- Article
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure.
- Published in:
- Human Genomics, 2018, v. 12, n. 1, p. N.PAG, doi. 10.1186/s40246-018-0154-6
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- Publication type:
- Article
The Ethical Implications of Big Data Research in Public Health: "Big Data Ethics by Design" in the UK‐REACH Study.
- Published in:
- Ethics & Human Research, 2022, v. 44, n. 1, p. 2, doi. 10.1002/eahr.500111
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- Publication type:
- Article
The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement.
- Published in:
- JAMA Network Open, 2024, v. 7, n. 9, p. e2435355, doi. 10.1001/jamanetworkopen.2024.35355
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- Publication type:
- Article
Demystifying Biobanks.
- Published in:
- Hastings Center Report, 2013, v. 43, n. 5, p. 4, doi. 10.1002/hast.201
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- Publication type:
- Article
Charting Regulatory Stewardship in Health Research: Making the Invisible Visible.
- Published in:
- Cambridge Quarterly of Healthcare Ethics, 2018, v. 27, n. 2, p. 333, doi. 10.1017/S0963180117000664
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- Publication type:
- Article
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?
- Published in:
- Clinical Ethics, 2017, v. 12, n. 3, p. 150, doi. 10.1177/1477750917704156
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- Publication type:
- Article
Harnessing Omics Sciences, Population Databases, and Open Innovation Models for Theranostics-Guided Drug Discovery and Development.
- Published in:
- Drug Development Research, 2012, v. 73, n. 7, p. 439, doi. 10.1002/ddr.21035
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- Publication type:
- Article
Ethics governance in Scottish universities: how can we do better? A qualitative study.
- Published in:
- Research Ethics, 2023, v. 19, n. 2, p. 166, doi. 10.1177/17470161221147801
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- Publication type:
- Article
Opinions ∙ Exploring Contemporary Core Issues in 'Health Privacy Law'.
- Published in:
- 2024
- By:
- Publication type:
- Editorial
Judith Laing and Jean McHale, Principles of Medical Law.
- Published in:
- 2019
- By:
- Publication type:
- Book Review
When can the Child Speak for Herself? The Limits of Parental Consent in Data Protection Law for Health Research.
- Published in:
- Medical Law Review, 2018, v. 26, n. 3, p. 369, doi. 10.1093/medlaw/fwx052
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- Publication type:
- Article
The Voices and Rooms of European Bioethics.
- Published in:
- 2017
- By:
- Publication type:
- Book Review
Bioscience, Governance and Politics.
- Published in:
- 2015
- By:
- Publication type:
- Book Review
Human Population Genetic Research in Developing Countries: The Issue of Group Protection.
- Published in:
- 2015
- By:
- Publication type:
- Book Review
Ethical Standards for Research Biobank Donation.
- Published in:
- 2015
- By:
- Publication type:
- Letter to the Editor
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
- Published in:
- 2019
- By:
- Publication type:
- journal article
Privacy rights of human research participants in South Africa must be taken seriously.
- Published in:
- SAMJ: South African Medical Journal, 2020, v. 110, n. 3, p. 175, doi. 10.7196/SAMJ.2020.v110i3.14450
- By:
- Publication type:
- Article
Emerging issues in paediatric health research consent forms in Canada: working towards best practices.
- Published in:
- BMC Medical Ethics, 2013, v. 14, n. 1, p. 1, doi. 10.1186/1472-6939-14-5
- By:
- Publication type:
- Article
Emerging issues in paediatric health research consent forms in Canada: working towards best practices.
- Published in:
- 2013
- By:
- Publication type:
- journal article
Data Safe Havens in health research and healthcare.
- Published in:
- Bioinformatics, 2015, v. 31, n. 20, p. 3241, doi. 10.1093/bioinformatics/btv279
- By:
- Publication type:
- Article