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- Title
Ethical and practical implications of returning genetic research results: two Australian case studies.
- Authors
Tiller, Jane; Trainer, Alison H; Campbell, Ian; Lacaze, Paul A
- Abstract
ASPREE biobank participants consented to re-contact regarding genetic results relevant to personal or family health. Keywords: Genetic testing; Genetic counselling; Ethics; Ethics, research; Pedigree EN Genetic testing Genetic counselling Ethics Ethics, research Pedigree 259 259 1 04/06/21 20210401 NES 210401 Should medically significant genetic results be offered to research participants or their at-risk relatives? Whether any ethical imperative extends to preventing disease in participants' relatives is unclear,13 although it is contemplated by the National Statement (3.3.32 and 3.3.41).2 A concern arising when considering return of results in ASPREE is that elderly research participants may not want to know about genetic results. We acknowledge the contributions of the Lifepool research team, the ASPREE research team and the genetics department at Royal Melbourne Hospital.
- Subjects
HEREDITARY cancer syndromes; MAGNETIC resonance imaging; MEDICAL personnel; BRCA genes; MEDICAL research; CASE studies
- Publication
Medical Journal of Australia, 2021, Vol 214, Issue 6, p259
- ISSN
0025-729X
- Publication type
Article
- DOI
10.5694/mja2.50842