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- Title
The ethics of community-based research with people who use drugs: results of a scoping review.
- Authors
Souleymanov, Rusty; Kuzmanović, Dario; Marshall, Zack; Scheim, Ayden I.; Mikiki, Mikiki; Worthington, Catherine; Millson, Margaret (Peggy)
- Abstract
<bold>Background: </bold>Drug user networks and community-based organizations advocate for greater, meaningful involvement of people with lived experience of drug use in research, programs and services, and policy initiatives. Community-based approaches to research provide an opportunity to engage people who use drugs in all stages of the research process. Conducting community-based participatory research (CBPR) with people who use drugs has its own ethical challenges that are not necessarily acknowledged or supported by institutional ethics review boards. We conducted a scoping review to identify ethical issues in CBPR with people who use drugs that were documented in peer-reviewed and grey literature.<bold>Methods: </bold>The search strategy focused on three areas; community-based research, ethical issues, and drug use. Searches of five academic databases were conducted in addition to a grey literature search, hand-searching, and consultation with organizational partners and key stakeholders. Peer reviewed literature and community reports published in English between 1985 and 2013 were included, with initial screening conducted by two reviewers.<bold>Results: </bold>The search strategy produced a total of 874 references. Twenty-five references met the inclusion criteria and were included in our thematic analysis. Five areas were identified as important to the ethics of CBPR with people who use drugs: 1) participant compensation, 2) drug user perspectives on CBPR, 3) peer recruitment and representation in CBPR, 4) capacity building, and 5) participation and inclusion in CBPR.<bold>Conclusions: </bold>We critically discuss implications of the emerging research in this field and provide suggestions for future research and practice.
- Subjects
COMMUNITY-based participatory research; DRUG utilization; COMMUNITY organization; ETHICS; REWARDS programs (Criminal investigation); EXCLUSIONARY rule (Evidence); MEDICAL care research; ATTITUDE (Psychology); INCOME; ORGANIZATIONAL change; RESEARCH funding; SUBSTANCE abuse; SYSTEMATIC reviews; DRUG abusers
- Publication
BMC Medical Ethics, 2016, Vol 17, p1
- ISSN
1472-6939
- Publication type
journal article
- DOI
10.1186/s12910-016-0108-2