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- Title
Governing with public engagement: an anticipatory approach to human genome editing.
- Authors
Barlevy, Dorit; Juengst, Eric; Kahn, Jeffrey; Moreno, Jonathan; Lambert, Lauren; Charo, Alta; Chneiweiss, Hervé; Farooque, Mahmud; Guston, David H; Hyun, Insoo; Knoepfler, Paul S; Selin, Cynthia; Wilbanks, Rebecca; Zaghlula, Manar; Scott, Christopher Thomas
- Abstract
In response to calls for public engagement on human genome editing (HGE), which intensified after the 2018 He Jiankui scandal that resulted in the implantation of genetically modified embryos, we detail an anticipatory approach to the governance of HGE. By soliciting multidisciplinary experts' input on the drivers and uncertainties of HGE development, we developed a set of plausible future scenarios to ascertain publics values—specifically, their hopes and concerns regarding the novel technology and its applications. In turn, we gathered a subset of multidisciplinary experts to propose governance recommendations for HGE that incorporate identified publics' values. These recommendations include: (1) continued participatory public engagement; (2) international harmonization and transparency of multiple governance levers such as professional and scientific societies, funders, and regulators; and (3) development of a formal whistleblower framework.
- Subjects
GENOME editing; HUMAN genome; ANTICIPATORY governance; EMBRYO implantation; PROFESSIONAL associations
- Publication
Science & Public Policy (SPP), 2024, Vol 51, Issue 4, p680
- ISSN
0302-3427
- Publication type
Article
- DOI
10.1093/scipol/scae010