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Towards a sustained and fit-for-purpose European ocean observing and forecasting system.
Published in:
Frontiers in Marine Science, 2024, p. 1, doi. 10.3389/fmars.2024.1394549
By:
- Tanhua, Toste;
- Le Traon, Pierre-Yves;
- Köstner, Nicole;
- Eparkhina, Dina;
- Navarro, Gabriel;
- Bonnet Dunbar, Martha;
- Speich, Sabrina;
- Pascual, Ananda;
- von Schuckmann, Karina;
- Liguori, Giovanni;
- Karstensen, Johannes;
- Hassoun, Abed El Rahman;
- van Doorn, Erik;
- Barceló-Llull, Bàrbara;
- Pérez Gómez, Begoña;
- Cusack, Caroline;
- Heslop, Emma;
- Lara-Lopez, Ana;
- Petihakis, George;
- Telszewski, Maciej
Publication type:
Article
The TREAT-NMD advisory committee for therapeutics (TACT): an innovative de-risking model to foster orphan drug development.
Published in:
Orphanet Journal of Rare Diseases, 2015, v. 10, n. 1, p. 1, doi. 10.1186/s13023-015-0258-1
By:
- Heslop, Emma;
- Csimma, Cristina;
- Straub, Volker;
- McCall, John;
- Nagaraju, Kanneboyina;
- Wagner, Kathryn R.;
- Caizergues, Didier;
- Korinthenberg, Rudolf;
- Flanigan, Kevin M.;
- Kaufmann, Petra;
- McNeil, Elizabeth;
- Mendell, Jerry;
- Hesterlee, Sharon;
- Wells, Dominic J.;
- Bushby, Kate
Publication type:
Article
The TREAT-NMD advisory committee for therapeutics (TACT): an innovative de-risking model to foster orphan drug development.
Published in:
2015
By:
- Heslop, Emma;
- Csimma, Cristina;
- Straub, Volker;
- McCall, John;
- Nagaraju, Kanneboyina;
- Wagner, Kathryn R;
- Caizergues, Didier;
- Korinthenberg, Rudolf;
- Flanigan, Kevin M;
- Kaufmann, Petra;
- McNeil, Elizabeth;
- Mendell, Jerry;
- Hesterlee, Sharon;
- Wells, Dominic J;
- Bushby, Kate;
- TACT
Publication type:
journal article
The European Ocean Observing Community: urgent gaps and recommendations to implement during the UN Ocean Decade.
Published in:
Frontiers in Marine Science, 2024, p. 1, doi. 10.3389/fmars.2024.1394984
By:
- Hassoun, Abed El Rahman;
- Tanhua, Toste;
- Lips, Inga;
- Heslop, Emma;
- Petihakis, George;
- Karstensen, Johannes
Publication type:
Article
Thermal Lag Correction on Slocum CTD Glider Data.
Published in:
Journal of Atmospheric & Oceanic Technology, 2011, v. 28, n. 9, p. 1065, doi. 10.1175/JTECH-D-10-05030.1
By:
- Garau, Bartolom;
- Ruiz, Simón;
- Zhang, Weifeng G.;
- Pascual, Ananda;
- Heslop, Emma;
- Kerfoot, John;
- Tintor, Joaquín
Publication type:
Article
Autonomous underwater gliders monitoring variability at 'choke points' in our ocean system: A case study in the Western Mediterranean Sea.
Published in:
Geophysical Research Letters, 2012, v. 39, n. 20, p. n/a, doi. 10.1029/2012GL053717
By:
- Heslop, Emma E.;
- Ruiz, Simón;
- Allen, John;
- López-Jurado, José Luís;
- Renault, Lionel;
- Tintoré, Joaquín
Publication type:
Article
RD-Connect: An Integrated Platform Connecting Databases, Registries, Biobanks and Clinical Bioinformatics for Rare Disease Research.
Published in:
JGIM: Journal of General Internal Medicine, 2014, v. 29, p. 780, doi. 10.1007/s11606-014-2908-8
By:
- Thompson, Rachel;
- Johnston, Louise;
- Taruscio, Domenica;
- Monaco, Lucia;
- Béroud, Christophe;
- Gut, Ivo;
- Hansson, Mats;
- 't Hoen, Peter-Bram;
- Patrinos, George;
- Dawkins, Hugh;
- Ensini, Monica;
- Zatloukal, Kurt;
- Koubi, David;
- Heslop, Emma;
- Paschall, Justin;
- Posada, Manuel;
- Robinson, Peter;
- Bushby, Kate;
- Lochmüller, Hanns
Publication type:
Article
Guidance in Social and Ethical Issues Related to Clinical, Diagnostic Care and Novel Therapies for Hereditary Neuromuscular Rare Diseases: "Translating" the Translational.
Published in:
PLoS Currents, 2013, p. 318, doi. 10.1371/currents.md.f90b49429fa814bd26c5b22b13d773ec
By:
- McCormack, Pauline;
- Woods, Simon;
- AartsmaRus, Annemieke;
- Hagger, Lynn;
- Herczegfalvi, Agnes;
- Heslop, Emma;
- Irwin, Joseph;
- Kirschner, Janbernd;
- Moeschen, Patrick;
- Muntoni, Francesco;
- Ouillade, Marie-Christine;
- Rahbek, Jes;
- RehmannSutter, Christoph;
- Rouault, Francoise;
- Sejersen, Thomas;
- Vroom, Elizabeth;
- Straub, Volker;
- Bushby, Kate;
- Ferlini, Alessandra
Publication type:
Article
Clinician Perspectives of Gene Therapy as a Treatment Option for Duchenne Muscular Dystrophy.
Published in:
Journal of Neuromuscular Diseases, 2024, v. 11, n. 5, p. 1085, doi. 10.3233/JND-240033
By:
- Cope, Heidi;
- Fischer, Ryan;
- Heslop, Emma;
- McNiff, Megan;
- Johnson, Alexandra;
- Camino, Eric;
- Denger, Brian;
- Armstrong, Niki;
- Thakrar, Sejal;
- Bateman-House, Alison;
- Beaverson, Katherine L.;
- Woollacott, Ione O.C.;
- Phillips, Dawn;
- Fernandez, Vivian;
- Ganot, Annie;
- Donisa-Dreghici, Roxana;
- Mansfield, Carol;
- Peay, Holly
Publication type:
Article
Abrupt warming and salinification of intermediate waters interplays with decline of deep convection in the Northwestern Mediterranean Sea.
Published in:
Scientific Reports, 2020, v. 10, n. 1, p. N.PAG, doi. 10.1038/s41598-020-77859-5
By:
- Margirier, Félix;
- Testor, Pierre;
- Heslop, Emma;
- Mallil, Katia;
- Bosse, Anthony;
- Houpert, Loïc;
- Mortier, Laurent;
- Bouin, Marie-Noëlle;
- Coppola, Laurent;
- D'Ortenzio, Fabrizio;
- Durrieu de Madron, Xavier;
- Mourre, Baptiste;
- Prieur, Louis;
- Raimbault, Patrick;
- Taillandier, Vincent
Publication type:
Article
Functional abilities, respiratory and cardiac function in a large cohort of adults with Duchenne muscular dystrophy treated with glucocorticoids.
Published in:
European Journal of Neurology, 2024, v. 31, n. 6, p. 1, doi. 10.1111/ene.16267
By:
- Schiava, Marianela;
- Lofra, Robert Muni;
- Bourke, John P.;
- Díaz‐Manera, Jordi;
- James, Meredith K.;
- Elseed, Maha A.;
- Malinova, Monika;
- Michel‐Sodhi, Jassi;
- Moat, Dionne;
- Ghimenton, Elisabetta;
- Mccallum, Michelle;
- Díaz, Carla Florencia Bolaño;
- Mayhew, Anna;
- Wong, Karen;
- Richardson, Mark;
- Tasca, Giorgio;
- Eglon, Gail;
- Eagle, Michelle;
- Turner, Cathy;
- Heslop, Emma
Publication type:
Article
SOCIB and Balearic islands lifeguards: an example of data products and services that provide direct social benefits.
Published in:
2018
By:
- Rotllán, Paz;
- Frontera, Biel;
- Heslop, Emma;
- Mourre, Baptiste;
- Juza, Melanie;
- ÁLvarez, Amaya;
- Pujol, Lluís;
- Rújula, Miquel Àngel;
- Ruíz, Inmaculada;
- Notario, Xisco;
- Muñoz, Cristian;
- Charcos, Miguel;
- Reyes, Emma;
- Gomila, Miquel;
- Gómara, Sonia;
- Fernández, Juan Gabriel;
- Tintoré, Joaquín
Publication type:
Conference Paper/Materials
OceanBestPractices System: a global resource to facilitate harmonizing practices in ocean observation, data and information.
Published in:
2018
By:
- Pissierssens, Peter;
- Muñoz, Cristian;
- Karstensen, Johannes;
- Pearlman, Jay;
- Simpson, Pauline;
- Bushnell, Mark;
- Buttigieg, Pier Luigi;
- Hermes, Juliet;
- Heslop, Emma;
- Muller-Karger, Frank;
- Pearlman, Francoise
Publication type:
Conference Paper/Materials
An open strategy to connect European gliders: data flow and beyond.
Published in:
2018
By:
- Turpin, Victor;
- Buck, Justin;
- Carval, Thierry;
- Llorens, Miguel Charcos;
- Gorring, Patrick;
- Hannant, Terry;
- Hayes, Daniel;
- Hebden, Mark;
- Heslop, Emma;
- Manzella, Giuseppe;
- Novellino, Antonio
Publication type:
Conference Paper/Materials
Technologies for a FAIRer use of Ocean Best Practices.
Published in:
2018
By:
- Buttigieg, Pier Luigi;
- Simpson, Pauline;
- Pearlman, Jay;
- Pissierssens, Peter;
- Caltagirone, Scott;
- Bushnell, Mark;
- Hermes, Juliet;
- Heslop, Emma;
- Karstensen, Johannes;
- Muller-Karger, Frank;
- Muñoz, Cristian;
- Pearlman, Francoise
Publication type:
Conference Paper/Materials
Glider data collected during the Algerian Basin Circulation Unmanned Survey since 2014.
Published in:
Geophysical Research Abstracts, 2019, v. 21, p. 1
By:
- Cotroneo, Yuri;
- Aulicino, Giuseppe;
- Ruiz, Simon;
- Román, Antonio Sánchez;
- Tomàs, Marc Torner;
- Pascual, Ananda;
- Fusco, Giannetta;
- Heslop, Emma;
- Tintoré, Joaquin;
- Budillon, Giorgio
Publication type:
Article
Deep convection in the Northwestern Mediterranean Sea: Stratification versus Fluxes.
Published in:
Geophysical Research Abstracts, 2019, v. 21, p. 1
By:
- Margirier, Félix;
- Testor, Pierre;
- Bosse, Anthony;
- Houpert, Loïc;
- Mortier, Laurent;
- Heslop, Emma;
- Mallil, Katia;
- Coppola, Laurent
Publication type:
Article
SMART"Sardinia - MAllorca Repeated Transect: first results from a new glider line in the western Mediterranean Sea.
Published in:
Geophysical Research Abstracts, 2018, v. 20, p. 6817
By:
- Pessini, Federica;
- Borghini, Mireno;
- Chiggiato, Jacopo;
- Schroeder, Katrin;
- Perilli, Angelo;
- Heslop, Emma;
- Tintoré, Joaquín;
- Torner, Marc Tomàs
Publication type:
Article
Multi-Platform Data Distribution Challenges from Observing Systems to Data Distribution.
Published in:
Geophysical Research Abstracts, 2018, v. 20, p. 6618
By:
- Charcos-Lloréns, Miguel V.;
- Rújula, Miquel À.;
- Heslop, Emma;
- Novellino, Antonio;
- Gorringe, Patrick;
- Fernández, Juan G.;
- Frontera, Biel;
- Muñoz, Cristian;
- Notario, Xisco;
- Reyes, Emma;
- Rotllan, Paz;
- Ruiz, Inma;
- Tintoré, Joaquín
Publication type:
Article
The next DeepWaters formed in the Northwestern Mediterranean Sea will be warmer and saltier than ever !
Published in:
Geophysical Research Abstracts, 2018, v. 20, p. 4411
By:
- Margirier, Félix;
- Testor, Pierre;
- Bosse, Anthony;
- Heslop, Emma;
- Mortier, Laurent;
- Coppola, Laurent;
- de Madron, Xavier Durrieu
Publication type:
Article
Downscaling CMEMS Mediterranean model over the Western basin: impacts on mean flows and mesoescale eddies.
Published in:
Geophysical Research Abstracts, 2018, v. 20, p. 3923
By:
- Aguiar, Eva;
- Mourre, Baptiste;
- Reyes, Emma;
- Hernandez-Lasheras, Jaime;
- Heslop, Emma;
- Juza, Melanie;
- Mason, Evan;
- Tintore, Joaquin
Publication type:
Article
Ocean Observation Best Practices - Interoperability at a New Level.
Published in:
Geophysical Research Abstracts, 2018, v. 20, p. 2573
By:
- Pearlman, Jay;
- Bushnell, Mark;
- Buttigieg, Pier Luigi;
- Hermes, Juliet;
- Heslop, Emma;
- Karstensen, Johannes;
- Munoz, Cristian;
- Pearlman, Francoise;
- Simpson, Pauline
Publication type:
Article
Effects of the Pandemic on Observing the Global Ocean.
Published in:
Bulletin of the American Meteorological Society, 2023, v. 104, n. 2, p. E389, doi. 10.1175/BAMS-D-21-0210.1
By:
- Boyer, Tim;
- Zhang, Huai-Min;
- O'Brien, Kevin;
- Reagan, James;
- Diggs, Stephen;
- Freeman, Eric;
- Garcia, Hernan;
- Heslop, Emma;
- Hogan, Patrick;
- Huang, Boyin;
- Jiang, Li-Qing;
- Kozyr, Alex;
- Liu, Chunying;
- Locarnini, Ricardo;
- Mishonov, Alexey V.;
- Paver, Christopher;
- Wang, Zhankun;
- Zweng, Melissa;
- Alin, Simone;
- Barbero, Leticia
Publication type:
Article
Monitoring Boundary Currents Using Ocean Observing Infrastructure.
Published in:
Oceanography, 2021, v. 34, p. 16, doi. 10.5670/oceanog.2021.supplement.02-07
By:
- Morris, Tamaryn;
- Rudnick, Daniel;
- Sprintall, Janet;
- Hermes, Juliet;
- Goni, Gustavo J.;
- Parks, Justine;
- Bringas, Francis;
- Heslop, Emma
Publication type:
Article
Multiscale Observations of Deep Convection in the Northwestern Mediterranean Sea During Winter 2012–2013 Using Multiple Platforms.
Published in:
Journal of Geophysical Research. Oceans, 2018, v. 123, n. 3, p. 1745, doi. 10.1002/2016JC012671
By:
- Testor, Pierre;
- Bosse, Anthony;
- Houpert, Loïc;
- Margirier, Félix;
- Mortier, Laurent;
- Legoff, Hervé;
- Dausse, Denis;
- Labaste, Matthieu;
- Karstensen, Johannes;
- Hayes, Daniel;
- Olita, Antonio;
- Ribotti, Alberto;
- Schroeder, Katrin;
- Chiggiato, Jacopo;
- Onken, Reiner;
- Heslop, Emma;
- Mourre, Baptiste;
- D'ortenzio, Fabrizio;
- Mayot, Nicolas;
- Lavigne, Héloise
Publication type:
Article
Glider data collected during the Algerian Basin Circulation Unmanned Survey from 2014 to 2016.
Published in:
Earth System Science Data Discussions, 2018, p. 1, doi. 10.5194/essd-2018-130
By:
- Cotroneo, Yuri;
- Aulicino, Giuseppe;
- Ruiz, Simon;
- Román, Antonio Sánchez;
- Tomas, Marc Torner;
- Pascual, Ananda;
- Fusco, Giannetta;
- Heslop, Emma;
- Tintoré, Joaquín;
- Budillon, Giorgio
Publication type:
Article
Glider data collected during the Algerian Basin Circulation Unmanned Survey.
Published in:
Earth System Science Data, 2019, v. 11, n. 1, p. 147, doi. 10.5194/essd-11-147-2019
By:
- Cotroneo, Yuri;
- Aulicino, Giuseppe;
- Ruiz, Simon;
- Sánchez Román, Antonio;
- Torner Tomàs, Marc;
- Pascual, Ananda;
- Fusco, Giannetta;
- Heslop, Emma;
- Tintoré, Joaquín;
- Budillon, Giorgio
Publication type:
Article
The Global Ocean Observing System in the Ocean Decade: Transformation for Sustainable Development.
Published in:
Marine Technology Society Journal, 2021, v. 55, n. 3, p. 13, doi. 10.4031/mtsj.55.3.17
By:
- Heslop, Emma
Publication type:
Article
Sharing Best Practices Among Operators and Users of Oceanographic Data: Challenge, Status, and Plans of the Ocean Best Practices Project.
Published in:
Marine Technology Society Journal, 2018, v. 52, n. 3, p. 8, doi. 10.4031/MTSJ.52.3.11
By:
- Bushnell, Mark;
- Buttigieg, Pier Luigi;
- Hermes, Juliet;
- Heslop, Emma;
- Karstensen, Johannes;
- Muller-Karger, Frank;
- Mas, Cristian Munoz;
- Pearlman, Francoise;
- Pearlman, Jay;
- Simpson, Pauline
Publication type:
Article
SOCIB: The Balearic Islands Coastal Ocean Observing and Forecasting System Responding to Science, Technology and Society Needs.
Published in:
Marine Technology Society Journal, 2013, v. 47, n. 1, p. 101
By:
- Tintoré, Joaquín;
- Vizoso, Guillermo;
- Casas, Benjamín;
- Heslop, Emma;
- Pascual, Ananda;
- Orfila, Alejandro;
- Ruiz, Simón;
- Martinez-Ledesma, Miguel;
- Torner, Marc;
- Cusí, Simó;
- Diedrich, Amy;
- Balaguer, Pau;
- Gómez-Pujol, Lluís;
- Álvarez-Ellacuria, Amaya;
- Gomara, Sonia;
- Sebastian, Kristian;
- Lora, Sebastián;
- Pau Beltrán, Joan;
- Renault, Lionel;
- Juza, Melanie
Publication type:
Article

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