We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Nothing about us without us: Advocacy and engagement in genetic medicine.
- Authors
Olayiwola, Olabimpe; Castillejo, Adam; Louella, Michael; Supercharger, Moses; Harlow, Evelyn; Dee, Lynda; Abdallah, Khadidja; Kityo-Mutuluuza, Cissy; Adair, Jennifer E.; Orentas, Rimas; Dubé, Karine
- Abstract
The development of new genetic medicines to treat sickle cell disease highlights the need for greater collaboration between researchers and people with lived experiences. Drawing on the adage "Nothing about us, without us," we call for increased investments in community advocacy and engagement.
- Subjects
SICKLE cell anemia; RESEARCH personnel
- Publication
Science Translational Medicine, 2024, Vol 16, Issue 746, p1
- ISSN
1946-6234
- Publication type
Article
- DOI
10.1126/scitranslmed.adn2401