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- Title
Survey report of gamete donors' and recipients' preferences regarding disclosure of third party reproduction outcomes and genetic risk information.
- Authors
Lindheim, Steven R.; Porat, Natalie; Jaeger, Ami S.
- Abstract
Issues surrounding egg donation informed consent have recently been spotlighted due to advances in medical genetics. We sought information on attitudes and desires of donors and recipients to craft a program policy on counseling, disclosures, and re-contacting participants. Between April 2003 and September 2006 we conducted a questionnaire-based evaluation in our oocyte donor program. Donors pre-donation ( n = 265) and those undergoing the process ( n = 60), and recipients either ante- or postpartum ( n = 57), were asked about their desire to know/disclose obstetric outcomes (Question 1); willingness for contact in the event of a medical emergency (Question 2); and wish to know/disclose a liveborn's medical condition (Question 3). Pre-donation questioning among all donors generally revealed reticence to Question 1 (31% [ n = 83]), but were overall amenable with Questions 2 and 3 (83% [ n = 220] and 83% [ n = 219]). Following the donation process, no differences in Questions 1 and 2 were noted, but fewer donors were amenable with Question 3 (pre-donation 93% [ n = 56] versus post-donation 38% [ n = 23]; P < 0.01). Overall, recipients were amenable to all three questions (88% [ n = 50], 74% [ n = 42] and 88% [ n = 50]), with similar responses both ante- and postpartum. All programs participating in gamete donation should establish a comprehensive disclosure policy, including consents that are built upon effective lines of communication between clinical staff and legal counsel assuring that parentage, relinquishment, and re-contact information in donor-recipient agreements are consistent with clinic consent documents and desires of both parties; All decisions must be adequately documented and honored and long-term counseling needs should be addressed.
- Subjects
GENETIC disorders; PREGNANCY complication risk factors; OVUM donation; ANALYSIS of variance; ATTITUDE (Psychology); CHI-squared test; COMPUTER software; MEDICAL ethics; PATIENTS; PRIVACY; STATISTICS; LOGISTIC regression analysis; DATA analysis; ETHICS; DISEASE risk factors
- Publication
Journal of Obstetrics & Gynaecology Research, 2011, Vol 37, Issue 4, p292
- ISSN
1341-8076
- Publication type
Article
- DOI
10.1111/j.1447-0756.2010.01333.x