We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Addressing ethnic disparities in neurological research in the United Kingdom: An example from the prospective multicentre COVID-19 Clinical Neuroscience Study.
- Authors
van Wamelen, Daniel J.; Rota, Silvia; Hartmann, Monika; Martin, Naomi H.; Alam, Ali M.; Thomas, Rhys H.; Dodd, Katherine C.; Jenkins, Thomas; Smith, Craig J.; Zandi, Michael S.; Easton, Ava; Carr, Georgina; Benjamin, Laura A.; Lilleker, James B.; Saucer, David; Coles, Alasdair J.; Wood, Nicholas; Chaudhuri, K. Ray; Breen, Gerome; Daniel Michael, Benedict
- Abstract
Background: Minority ethnic groups have often been underrepresented in research, posing a problem in relation to external validity and extrapolation of findings. Here, we aimed to assess recruitment and retainment strategies in a large observational study assessing neurological complications following SARS-CoV-2 infection. Methods: Participants were recruited following confirmed infection with SARS-CoV-2 and hospitalisation. Self-reported ethnicity was recorded alongside other demographic data to identify potential barriers to recruitment. Results: 807 participants were recruited to COVID-CNS, and ethnicity data were available for 93.2%. We identified a proportionate representation of self-reported ethnicity categories, and distribution of broad ethnicity categories mirrored individual centres' catchment areas. White ethnicity within individual centres ranged between 44.5% and 89.1%, with highest percentage of participants with non-White ethnicity in London-based centres. Examples are provided how to reach potentially underrepresented minority ethnic groups. Conclusions: Recruitment barriers in relation to potentially underrepresented ethnic groups may be overcome with strategies identified here.
- Subjects
ETHNIC groups; PATIENT selection; SELF-evaluation; HEALTH service areas; RESEARCH funding; HUMAN research subjects; SCIENTIFIC observation; HOSPITAL care; NEUROLOGICAL disorders; LONGITUDINAL method; MEDICAL research; RESEARCH; COVID-19; PSYCHOSOCIAL factors; PATIENT participation; DISEASE risk factors
- Publication
Clinical Medicine, 2024, Vol 24, Issue 3, p1
- ISSN
1470-2118
- Publication type
Article
- DOI
10.1016/j.clinme.2024.100209