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- Title
Clinical pathways for inborn errors of metabolism: warranted and feasible.
- Authors
Demirdas, Serwet; van Kessel, Imke N; Korndewal, Marjolein J; Hollak, Carla Em; Meutgeert, Hanka; Klaren, Anja; van Rijn, Margreet; van Spronsen, Francjan J; Bosch, Annet M; Dutch working Group; Hollak, Carla E M
- Abstract
Inborn errors of metabolism (IEMs) are known for their low prevalence and multidisciplinary care mostly founded on expert opinion. Clinical pathways are multidisciplinary tools to organise care which provide a clear route to the best care and improve communication. In 2010 the Dutch Society for Children and Adults with an Inborn Error of Metabolism (VKS) initiated development of clinical pathways for inborn errors of metabolism. In this letter to the editor we describe why it is warranted to develop clinical pathways for IEMs and shortly discuss the process of development for these pathways in the Netherlands.
- Publication
Orphanet Journal of Rare Diseases, 2013, Vol 8, Issue 1, p37
- ISSN
1750-1172
- Publication type
letter
- DOI
10.1186/1750-1172-8-37